CFS and Lyme

[Guest guest]

Katrina and Jill,

Jill's quote here makes perfect sense to me. Chronic Lyme looks just like

cfs and fms. That's why so many of us with borrelia got labeled cfs or fms.

We don't know what cfs or fms are. We won't know until someone finds the

underlying causes. For now the definition of both is just a constellation of

symptoms.

a Carnes

>>>> the most common symptoms of chronic lyme ARE CFS

> and FM.<<<<<

CFS IS NOT " A SYMPTOM " ! I don't know if you think or mean that, but please

don't say that on a CFS list. It's very misleading, to *newcomers*, and for

all, frankly...diminishing.

[Guest guest]

Who knows if these ancient diseases were one and the same with CFS?

There have been a lot of outbreaks of things over the years that have

similar symptoms.

However, it has been chronicled that people were starting to get sick

in 1984 - and perhaps 1983 - before the Incline Village Outbreak in

1985. The latter, for a number of reasons was the first to receive a

lot of public attention.

Beem me up y!

paul

> > > Katrina and Jill,

> > > Jill's quote here makes perfect sense to me. Chronic Lyme looks

> > just like cfs and fms. That's why so many of us with borrelia got

> > labeled cfs or fms. We don't know what cfs or fms are. We won't

> know

> > until someone finds the underlying causes. For now the definition

> of

> > both is just a constellation of symptoms.

> > a Carnes

> >

> >

> > I agree with Katrina here.

> > CFS is not a symptom, nor is it a constellation of symptoms.

> > CFS is a very definite thing.

> > Sleeping looks like being knocked unconscious, but anyone who

has

> > been knocked out would strongly resist the comparision.

> > Those who had only experienced " sleep " would wonder why someone

> with

> > the same " apparent " affliction would refuse to be lumped together

> > when the similarity appears to be inarguable.

> > Dr has Lyme and viral patients whom he does not

diagnose

> > with CFS for the simple reason that their illness is not the same

> as

> > the one he originally saw during the event that gave rise to CFS.

> > -

>

> ............I realise that Incline was real but doubt it was the

> first episode of such an illness...I think of people like Florence

> Nightingale who suffered so much in her life in fact spent half her

> life bedridden but as as indiviual would not count in the same

> way....very familar where numbers seems to count these days more

and

> more. BW Dianne

> >

>

[Guest guest]

" Doyon " wrote:

>

> Who knows if these ancient diseases were one and the same with CFS?

There have been a lot of outbreaks of things over the years that have

similar symptoms.

>

> However, it has been chronicled that people were starting to get

sick in 1984 - and perhaps 1983 - before the Incline Village Outbreak

in 1985. The latter, for a number of reasons was the first to receive

a lot of public attention.

> paul

When we showed up - Dr Cheney and Dr had never seen anything

like this before.

When Dr h Ryll saw a description of our illness - he recognized

it right away as being the same as his " infectious venulitis " 1975

Mercy Hospital cohort.

He was only a two hour drive away. I wonder why he didn't come up

and tell us?

-

Station: Cable News Network (CNN)

Date: Oktober 24, 1999

Programme: CNN & Time

URL: http://cnn.com/TRANSCRIPTS/impc.html

(home page)

http://cnn.com/CNNPromos/cnntime

(home page 2)

http://cnn.com/TRANSCRIPTS/9910/24/impc.00.html (text)

SICK AND TIRED

--------------

ANNOUNCER: CNN & TIME. Tonight, " Sick and Tired. " It's been called the

yuppie

flu, but it's been anything but a passing fad. It is a major public

outcry.

We all have days when it feels like we just can't roll out of bed.

We're

tired, listless, completely drained. But imagine feeling that way and

worse

day in and day out for weeks, months, and even years.

JEFF GREENFIELD, HOST: We're talking about chronic fatigue syndrome,

the

mysterious, debilitating illness that first showed up in the mid-

1980s. And if

you thought that this yuppie flu was the invention of hypochondriacs

or had

gone the way of Duran Duran or somehow had been cured, consider this.

In the

United States alone right now, hundreds of thousands of people may be

struggling with CFS.

Here's Daryn Kagan.

(BEGIN VIDEOTAPE)

DARYN KAGAN, CNN CORRESPONDENT (voice-over): As the 1999 Women's World

Cup

came down to the wire in penalty kicks, another drama was taking place

behind

the scenes.

MICHELLE AKERS, U.S. WOMEN'S SOCCER TEAM: I'm graying out, and I can't

hear,

and my body's just clenched.

SPORTS ANNOUNCER: Look at Akers. She leads by example.

KAGAN: Akers played 90 minutes in blistering heat, until her

body

gave out.

SPORTS ANNOUNCER: All eyes are on Akers.

AKERS: So they put me on the table and then started trying to get the

IVs in.

KAGAN: Akers' doctors, coaches, and teammates know her symptoms are

real, but

some people think the disease she's recovering from, chronic fatigue

syndrome,

is not.

(on camera): When you say worst, what does worst feel like for people

who

don't know what that feels like?

AKERS: It's like just feeling totally empty on the inside. It's like --

there's no reserve, no energy. It's like a black hole in the very

depths of

your soul.

(voice-over): For years, CFS has been dismissed by many in the general

public,

the medical profession, even experts at the Federal Centers for Disease

Control and Prevention. Fifteen years ago, a mysterious illness swept

through

the Alpine resorts and towns near Lake Tahoe. Incline Village, Nevada,

was

ground zero.

DR. DAN PETERSON, PHYSICIAN: The first ones were isolated cases. A

marathon

runner in town who couldn't run any longer.

KAGAN: Dr. Dan is a local physician. He saw the first cases.

PETERSON: Then we started seeing the clustering with the girls' high

school

basketball team where the entire team became ill -- extremely ill.

KAGAN: At Tahoe-Truckee High School, dozens of students came down with

symptoms resembling mononucleosis. So did a third of the teachers.

JERRY KENNEDY: You're not tired. You're -- it's like the blood's

drained out

of you.

KAGAN: Like Jerry Kennedy who taught auto mechanics and drafting and

his wife

Janice (ph) who taught English.

JANICE KENNEDY, FORMER HIGH SCHOOL TEACHER: It's like having bricks

piled on

you. It's as though you're fighting to move at all.

JERRY KENNEDY: It's the worst feeling I've ever had in my life. I can't

compare it to anything else that's ever happened to me.

KAGAN: The number of cases multiplied during the summer of 1985.

PETERSON: That's when I first thought, well, there's some new

contagious

disease, you know, I mean, there's something in the water, some

Typhoid

had come into the school system and affected the kids and the teachers.

KAGAN: Besides fatigue, most patients developed a bizarre mental

fogginess.

JERRY KENNEDY: You feel dumb because you can't remember things. You

forget

people's -- you don't even comprehend the names. You lose it.

JANICE KENNEDY: As an English teacher, I remember one horrible moment

when I

asked myself, " What is a subordinate clause? " I could not remember

what a

subordinate clause was.

KAGAN: Eventually, more than 250 people living around Lake Tahoe

seemed to

have the illness. For months, Dr. couldn't persuade anyone to

investigate. Finally, the CDC agreed to send a two-man team.

JANICE KENNEDY: They didn't seem to feel that there was an epidemic,

and we

knew there was. It might have been small, but it definitely existed.

DR. WILLIAM REEVES, CDC EPIDEMIOLOGIST: CDC's study at that time

failed to

identify any evidence that there was an unusual occurrence of a

chronically

fatiguing illness.

KAGAN: Dr. Reeves is the CDC epidemiologist now in charge of

investigating chronic fatigue syndrome. He didn't go to Incline

Village, but

he defends the team that did. He also defends their findings, which

are still

controversial today. REEVES: Using epidemiologic public expertise of

the time,

there was no evidence, clear-cut, replicable evidence that anything

unusual is

happening in that population.

PETERSON: As I just said right now, I'm right about this. I know that

these

people were well, and now they're sick, and they're staying sick. So I

have to

hang in there and be diligent about it, regardless of what the rest of

rest of

the world thinks.

KAGAN: Over the years, chronic fatigue syndrome has been thought of as

a

trendy illness, the yuppie flu. Sufferers say the official name the

CDC gave

it didn't help.

JANICE KENNEDY: Ever since they started calling it chronic fatigue

syndrome, I

think every person who has had it, every family member of someone who

has it,

every doctor who is familiar with it hates that name because it seems

to

trivialize.

KAGAN: A diagnostic test for CFS has yet to be developed, but the CDC

did come

up with a definition: debilitating fatigue lasting at least six

months, along

with four of eight other symptoms. They include sore throat, muscle

and joint

pain, short-term memory loss, and an inability to recover from

exertion. New

cases have continued to crop up all over the country. Akers

first

noticed her symptoms in 1991.

AKERS: I would go into the shower after training and just cry and cry

and cry.

It was the only place I could go to where no one would see me and just

say, " I

can't do this. I can't do it. "

KAGAN: Akers sidelined herself for almost an entire season in order to

recover, but when she came back to soccer, she suffered constant

relapses.

Still, she kept the illness secret from her teammates, friends, even

her

family. Finally, in 1996, Akers went public. She wrote an emotional

letter to

Congress describing a day in the life of a typical sufferer.

AKERS: That was the first time I admitted publicly even to my folks

how bad I

was actually feeling, and I read it to my dad over the phone. I

remember my

dad was just stunned.

KAGAN: And so were some members of Congress who voted to give millions

of

dollars to the CDC to solve the mystery of chronic fatigue. But less

than half

actually went directly to CFS research. That led to another mystery.

What

happened to the money?

(on camera): This year, federal investigators found out. The CDC

diverted

between $9 and $13 million dollars, money that Congress had

specifically set

aside to study CFS. Instead, it was spent on other diseases, like

polio and

measles.

(voice-over): It was Dr. Reeves, the head of the government

CFS lab

who helped bring the diversion to light. He says he did so after a

superior

asked him to lie about how much money was going to CFS research.

REEVES: I felt that the best thing to do was just to report this to

Congress,

and that's when I formally blew the whistle.

KAGAN: But not before CDC officials gave inaccurate and misleading

information

to Congress about how the money was spent. But why was the money taken

from

CFS in the first place?

REEVES: It was taken from chronic fatigue syndrome because it was not

perceived by the people doing it as important as the other ones, not

perceived

as an infectious disease.

KAGAN: The CDC's current director, Dr. Koplan, says all the

missing

money will be restored over the next four years, and while nobody was

fired,

the division overseeing CFS has been put on probationary status.

DR. JEFFREY KOPLAN, CDC DIRECTOR: CDC, in regard to chronic fatigue

syndrome,

misspent funds allocated to us for chronic fatigue syndrome, and for

that, we

sincerely apologize to all parties involved and in particular the

people and

their families that suffer from chronic fatigue syndrome.

REEVES: We were set back. There is no question about that. We were set

back

substantially. Programs suffered because of this. This has probably

set us

back three to five years.

JERRY KENNEDY: I'm not surprised that the money went someplace else.

Somebody

had the power to move it some other place, some pet project they had,

and they

did it.

KAGAN: Perhaps the government's premier laboratory didn't make CFS a

priority,

but other researchers have. Dr. Dedra Buchwald, a Harvard-trained

physician,

arrived in Incline Village after the CDC left, and she's been studying

CFS

ever since. She believes she's on the verge of a breakthrough. She's

designed

a unique study using identical twins. She compares sick twins to their

healthy

counterparts, trying to detect differences caused by CFS.

DR. DEDRA BUCHWALD, CFS RESEARCHER: So they'll put the electrodes on

your

head, and then what they do is -- they'll monitor your brain waves.

KAGAN: (ph) and Martha (ph) are the 21st pair of

twins to

take part in Buchwald's study. Martha was an Arkansas state trooper

for 20

years, until a series of worsening symptoms forced her into early

retirement.

MARTHA WILLIAMS, FORMER ARKANSAS STATE TROOPER: I always had a reason

for why

I was hurting. It was either the leather gear or the bulletproof vest.

The

boots. Getting in and out of the car. The headaches was from my hat.

Or my

eyes hurt because the sun...

KAGAN: is a construction worker in Missouri. She's still on the

job.

MARY NELSON, CONSTRUCTION WORKER: Oh, yes. Yes. Anything they've got

that

comes in by delivery, if I'm -- I happen to be at the warehouse, I'm

unloading

it. KAGAN: Researchers aren't supposed to know which twin is sick, but

it's

pretty obvious. Martha's symptoms - fatigue, muscle pain, difficulty

thinking

and sleeping -- are familiar indicators of CFS.

WILLIAMS: Your legs hurt. It feels like you're walking on needles. In

the

night while you're trying to sleep, you wake up, and it's hard to

describe to

someone, but it's like your arms and your legs are asleep, or they're

numb but

they hurt.

(BEGIN VIDEO CLIP)

CFS RESEARCHER: Here we go. Just stare at that thing, and if you have

to

blink, blink all at once, get it over with.

(END VIDEO CLIP)

KAGAN: For an entire week, the twins were put through a battery of

tests,

tests to measure exercise tolerance, memory and thought processing,

sleep

disturbances, and blood hormone levels.

BUCHWALD: What we thought was that there would very substantial

differences

between the healthy twin and the sick twin.

KAGAN: But there wasn't. Both twins performed low on many of the tests.

Buchwald believes it's because both twins have a genetic

predisposition to

CFS.

BUCHWALD: Right now, our thinking is just that there is a group of

people that

are vulnerable or that are likely to be vulnerable to get CFS.

KAGAN: Buchwald's study presents a new option, that hereditary plays a

major

role in chronic fatigue.

BUCHWALD: Most people who have that predisposition will never get

chronic

fatigue syndrome, but for an unfortunate few, they will be exposed to

some

series of triggers or trigger, which could be anything from an

infectious

illness to an episode of depression or a motor- vehicle accident, that

will

trigger this chronic fatigue syndrome.

KAGAN: Meanwhile, the Centers for Disease Control is still trying to

catch up.

KOPLAN: We're looking at what we have now, what resources we have in

terms of

people and laboratory techniques, what studies need to be done, who

else we

need to involve from outside in giving us more information. So we're

trying to

set a forward course in saying how can we make a difference with this

disease.

KAGAN: They're starting with a new national head count. As recently as

two

years ago, the CDC believed only 10,000 Americans had the illness. Now

the CDC

says, based on a study in Wichita, Kansas, that number is actually 40

times

higher. Today, the CDC estimates 400,000 Americans over age 18 have

active

CFS.

REEVES: This is a major public health problem, and as I said, in

Wichita at

least, this is about a quarter the number of people that have -- women

that

have breast cancer, and it's about four times more than the number of

women

that have cervical cancer.

KAGAN: But 15 years after the outbreak of CFS in Incline Village,

Nevada, the

man who first identified the illness expected to be further along.

PETERSON: I mean, the CDC is still counting heads, still saying this

disease

exists, and here are the numbers. Well, we -- I never expected to be

here

still quandering (ph) this problem 15 years later. I really didn't.

KAGAN: Recently, did his own follow-up of 180 of his original

patients.

PETERSON: About 30 percent of them are still severely disabled. The

remainder

have had substantial or at least partial improvements.

KAGAN: And how many are completely recovered?

PETERSON: None.

(END VIDEOTAPE)

GREENFIELD: In April, the Social Security administration official

recognized

chronic fatigue syndrome as a medical impairment. That makes it much

easier

for CFS patients to receive disability payments.

--------

© 1999 Cable News Network

[Guest guest]

Also, important to remember the barbaric medical treatments that have

often been foisted on patients throughout history, and continuing in the

present. Easy to imagine historical people with CFS being killed by

misdiagnosis followed by improper treatments. It happens today so

certainly happened throughout history.

Re: CFS and Lyme

Who knows if these ancient diseases were one and the same with CFS?

There have been a lot of outbreaks of things over the years that have

similar symptoms.

However, it has been chronicled that people were starting to get sick

in 1984 - and perhaps 1983 - before the Incline Village Outbreak in

1985. The latter, for a number of reasons was the first to receive a

lot of public attention.

Beem me up y!

paul

> > > Katrina and Jill,

> > > Jill's quote here makes perfect sense to me. Chronic Lyme looks

> > just like cfs and fms. That's why so many of us with borrelia got

> > labeled cfs or fms. We don't know what cfs or fms are. We won't

> know

> > until someone finds the underlying causes. For now the definition

> of

> > both is just a constellation of symptoms.

> > a Carnes

> >

> >

> > I agree with Katrina here.

> > CFS is not a symptom, nor is it a constellation of symptoms.

> > CFS is a very definite thing.

> > Sleeping looks like being knocked unconscious, but anyone who

has

> > been knocked out would strongly resist the comparision.

> > Those who had only experienced " sleep " would wonder why someone

> with

> > the same " apparent " affliction would refuse to be lumped together

> > when the similarity appears to be inarguable.

> > Dr has Lyme and viral patients whom he does not

diagnose

> > with CFS for the simple reason that their illness is not the same

> as

> > the one he originally saw during the event that gave rise to CFS.

> > -

>

> ............I realise that Incline was real but doubt it was the

> first episode of such an illness...I think of people like Florence

> Nightingale who suffered so much in her life in fact spent half her

> life bedridden but as as indiviual would not count in the same

> way....very familar where numbers seems to count these days more

and

> more. BW Dianne

> >

>

[Guest guest]

I might like to get in on this as well. I've had the testing done already of most of these things, but it wouldn't hurt to have the testing done again when I am finished recuperating. Thanks once again for posting! cfs and lyme

From another group wanted to share.I wanted to share the following information with everyone:Standford Research Project on Chronic Fatigue Includes Lyme and Co-Infections! !!!! Please share with all!!!Dr. Montoya at Stanford is doing the most extensive research project on Chronic Fatigue Syndrome that I believe has ever been done.Anyone can volunteer for this study if they have chronic fatigue (more than 6 months) and have not taken antivirals or antibiotics within 1 month of blood test (and don't have chronic fatigue from cancer).The best part is that everyone that volunteers gets free blood tests and results.The testing is very extensive and includes ~60 different tests (viral, bacterial, etc.). They are still in the process of finalizing the list of tests but so far they have told me they're testing forXMRV,EBV,HHV6,HHV1,HHV2,CMV (HHV5),several strains of LymeDisease,Chlamyedia Pneumonia,Babesiosis (several strains),Bartonella (several strains),Ehrlichiosis,Rickettsia,Mycoplasma,Enovirus,...and much more!!I hope you can already see how extensive this testing is going to be. By the way, having Lyme Disease does not disqualify you!!If interested in getting this free extensive blood test and being part of this fantastic study, call Jane (the study coordinator) at (650) 723-8126.This is a very large study and will be going on for at least four more months.Jane will go over all your questions and will ask you a few to make sure you're qualified for the study.Although this study is being done in the California bay area, anyone qualified is welcome to participate in this groundbreaking study.It will take 6 to 12 months to get your test results depending on how long they keep the studyopen.

[Guest guest]

Please let me know how the phone call go's before passing on anymore.

>

> We have some bay Area members,me,margerite,D.,Zoe...Sounds like an excellent

study.

>

>

>

> ________________________________

> From: healinghope <mfrreman@...>

> bird mites

> Sent: Sat, June 5, 2010 10:25:11 AM

> Subject: cfs and lyme

>

>

> From another group wanted to share.

> I wanted to share the following information with everyone:

>

> Standford Research Project on Chronic Fatigue Includes Lyme and

> Co-Infections! !!!! Please share with all!!!

>

> Dr. Montoya at Stanford is doing the most extensive research project on

Chronic Fatigue Syndrome that I believe has ever been done.

>

> Anyone can volunteer for this study if they have chronic fatigue (more than 6

months) and have not taken antivirals or antibiotics within 1 month of blood

test (and don't have chronic fatigue from cancer).

>

> The best part is that everyone that volunteers gets free blood tests and

results.

>

> The testing is very extensive and includes ~60 different tests (viral,

bacterial, etc.). They are still in the process of finalizing the list of tests

but so far they have told me they're testing for

>

> XMRV,

> EBV,

> HHV6,

> HHV1,

> HHV2,

> CMV (HHV5),

> several strains of Lyme Disease,

> Chlamyedia Pneumonia,

> Babesiosis (several strains),

> Bartonella (several strains),

> Ehrlichiosis,

> Rickettsia,

> Mycoplasma,

> Enovirus,

> ...and much more!!

>

> I hope you can already see how extensive this testing is going to be. By the

way, having Lyme Disease does not disqualify you!!

>

> If interested in getting this free extensive blood test and being part of this

fantastic study, call Jane (the study coordinator) at (650) 723-8126.

>

> This is a very large study and will be going on for at least four more months.

>

> Jane will go over all your questions and will ask you a few to make sure

you're qualified for the study.

>

> Although this study is being done in the California bay area, anyone qualified

is welcome to participate in this groundbreaking study.

>

> It will take 6 to 12 months to get your test results depending on how long

they keep the study open.

>

[Guest guest]

Frito please post and let us all know the results of the phone call. It is a

post from the local lyme group of my state. Grilling and drinking cold ones

today:) worked on a friends computer and she gave me a case of miller light long

neck, in a dry county this is gold:)

>

> Marie, this is awesome.  I will be calling monday morning.

>

>

>

>

> ________________________________

> From: healinghope <mfrreman@...>

> bird mites

> Sent: Sat, June 5, 2010 12:25:11 PM

> Subject: cfs and lyme

>

>  

> From another group wanted to share.

> I wanted to share the following information with everyone:

>

> Standford Research Project on Chronic Fatigue Includes Lyme and

> Co-Infections! !!!! Please share with all!!!

>

> Dr. Montoya at Stanford is doing the most extensive research project on

Chronic Fatigue Syndrome that I believe has ever been done.

>

> Anyone can volunteer for this study if they have chronic fatigue (more than 6

months) and have not taken antivirals or antibiotics within 1 month of blood

test (and don't have chronic fatigue from cancer).

>

> The best part is that everyone that volunteers gets free blood tests and

results.

>

> The testing is very extensive and includes ~60 different tests (viral,

bacterial, etc.). They are still in the process of finalizing the list of tests

but so far they have told me they're testing for

>

> XMRV,

> EBV,

> HHV6,

> HHV1,

> HHV2,

> CMV (HHV5),

> several strains of Lyme Disease,

> Chlamyedia Pneumonia,

> Babesiosis (several strains),

> Bartonella (several strains),

> Ehrlichiosis,

> Rickettsia,

> Mycoplasma,

> Enovirus,

> ...and much more!!

>

> I hope you can already see how extensive this testing is going to be. By the

way, having Lyme Disease does not disqualify you!!

>

> If interested in getting this free extensive blood test and being part of this

fantastic study, call Jane (the study coordinator) at (650) 723-8126.

>

> This is a very large study and will be going on for at least four more months.

>

> Jane will go over all your questions and will ask you a few to make sure

you're qualified for the study.

>

> Although this study is being done in the California bay area, anyone qualified

is welcome to participate in this groundbreaking study.

>

> It will take 6 to 12 months to get your test results depending on how long

they keep the study open.

>

[Guest guest]

Yum except for the beer. Still, ice cold crown would be nice with the grilling. I got my foodstamps today thank GOD, so I picked up some kabobs that we will broil. Way to hot out there to do anything. Enjoy yourself!!! And I will let you know.

Frito

From: healinghope <mfrreman@...>bird mites Sent: Sat, June 5, 2010 2:02:23 PMSubject: Re: cfs and lyme

Frito please post and let us all know the results of the phone call. It is a post from the local lyme group of my state. Grilling and drinking cold ones today:) worked on a friends computer and she gave me a case of miller light long neck, in a dry county this is gold:)>> Marie, this is awesome. I will be calling monday morning.> > > > > ________________________________> From: healinghope <mfrreman@...>> bird mites > Sent: Sat, June 5, 2010 12:25:11 PM> Subject: cfs and lyme> >

 > From another group wanted to share.> I wanted to share the following information with everyone:> > Standford Research Project on Chronic Fatigue Includes Lyme and > Co-Infections! !!!! Please share with all!!!> > Dr. Montoya at Stanford is doing the most extensive research project on Chronic Fatigue Syndrome that I believe has ever been done.> > Anyone can volunteer for this study if they have chronic fatigue (more than 6 months) and have not taken antivirals or antibiotics within 1 month of blood test (and don't have chronic fatigue from cancer).> > The best part is that everyone that volunteers gets free blood tests and results.> > The testing is very extensive and includes ~60 different tests (viral, bacterial, etc.). They are still in the process of finalizing the list of tests but so far they have told me they're testing for> >

XMRV,> EBV,> HHV6,> HHV1,> HHV2,> CMV (HHV5),> several strains of Lyme Disease,> Chlamyedia Pneumonia,> Babesiosis (several strains),> Bartonella (several strains),> Ehrlichiosis,> Rickettsia,> Mycoplasma,> Enovirus,> ...and much more!!> > I hope you can already see how extensive this testing is going to be. By the way, having Lyme Disease does not disqualify you!!> > If interested in getting this free extensive blood test and being part of this fantastic study, call Jane (the study coordinator) at (650) 723-8126.> > This is a very large study and will be going on for at least four more months.> > Jane will go over all your questions and will ask you a few to make sure you're qualified for the study.> > Although this study is being done in the California bay area, anyone qualified is

welcome to participate in this groundbreaking study.> > It will take 6 to 12 months to get your test results depending on how long they keep the study open.>

[Guest guest]

Hi LynnHere is the phone number you were needing: (650) 723-8126.----- Forwarded Message -----From: rose bird mites Sent: Sat, 5 Jun 2010 17:43:49 +0000 (UTC)Subject: Re: cfs and lyme

We have some bay Area members,me,margerite,D.,Zoe...Sounds like an excellent study.

From: healinghope <mfrreman@...>bird mites Sent: Sat, June 5, 2010 10:25:11 AMSubject: cfs and lyme

From another group wanted to share.I wanted to share the following information with everyone:Standford Research Project on Chronic Fatigue Includes Lyme and Co-Infections! !!!! Please share with all!!!Dr. Montoya at Stanford is doing the most extensive research project on Chronic Fatigue Syndrome that I believe has ever been done.Anyone can volunteer for this study if they have chronic fatigue (more than 6 months) and have not taken antivirals or antibiotics within 1 month of blood test (and don't have chronic fatigue from cancer).The best part is that everyone that volunteers gets free blood tests and results.The testing is very extensive and includes ~60 different tests (viral, bacterial, etc.). They are still in the process of finalizing the list of tests but so far they have told me they're testing forXMRV,EBV,HHV6,HHV1,HHV2,CMV (HHV5),several strains of Lyme Disease,Chlamyedia Pneumonia,Babesiosis (several strains),Bartonella (several strains),Ehrlichiosis,Rickettsia,Mycoplasma,Enovirus,...and much more!!I hope you can already see how extensive this testing is going to be. By the way, having Lyme Disease does not disqualify you!!If interested in getting this free extensive blood test and being part of this fantastic study, call Jane (the study coordinator) at (650) 723-8126.This is a very large study and will be going on for at least four more months.Jane will go over all your questions and will ask you a few to make sure you're qualified for the study.Although this study is being done in the California bay area, anyone qualified is welcome to participate in this groundbreaking study.It will take 6 to 12 months to get your test results depending on how long they keep the study open.

[Guest guest]

By the way, Stanford has a great reputation, but am not sure how great they really are. My brother was at Stanford for cancer treatment for a couple of years, and they were not all that great. He changed hospitals. cfs and lyme

From another group wanted to share.I wanted to share the following information with everyone:Standford Research Project on Chronic Fatigue Includes Lyme and Co-Infections! !!!! Please share with all!!!Dr. Montoya at Stanford is doing the most extensive research project on Chronic Fatigue Syndrome that I believe has ever been done.Anyone can volunteer for this study if they have chronic fatigue (more than 6 months) and have not taken antivirals or antibiotics within 1 month of blood test (and don't have chronic fatigue from cancer).The best part is that everyone that volunteers gets free blood tests and results.The testing is very extensive and includes ~60 different tests (viral, bacterial, etc.). They are still in the process of finalizing the list of tests but so far they have told me they're testing forXMRV,EBV,HHV6,HHV1,HHV2,CMV (HHV5),several strains of Lyme Disease,Chlamyedia Pneumonia,Babesiosis (several strains),Bartonella (several strains),Ehrlichiosis,Rickettsia,Mycoplasma,Enovirus,...and much more!!I hope you can already see how extensive this testing is going to be. By the way, having Lyme Disease does not disqualify you!!If interested in getting this free extensive blood test and being part of this fantastic study, call Jane (the study coordinator) at (650) 723-8126.This is a very large study and will be going on for at least four more months.Jane will go over all your questions and will ask you a few to make sure you're qualified for the study.Although this study is being done in the California bay area, anyone qualified is welcome to participate in this groundbreaking study.It will take 6 to 12 months to get your test results depending on how long they keep the study open.