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PFO and Hypercoagulation

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Well, well, well. There's a link between PFO's and hypercoagulation.

I'm starting to think that it would be very worthwhile getting my PFO

closed:

Antiphospholipid antibodies are common in patients referred for

percutaneous patent foramen ovale closure.

Dodge SM, Hassell K, CA, Keller J, Groves B, Carroll JD.

Division of Cardiology, Department of Medicine, University of Colorado

Health Sciences Center, Denver, Colorado 80262, USA.

Very little is known about any interaction between patent foramen

ovale (PFO) and various hypercoagulable disorders that have been

associated with cryptogenic stroke. Percutaneous PFO closure for

secondary prevention of paradoxical thromboembolization is receiving

increasing attention. Hypercoagulability may affect the potential

risks and expected benefits of percutaneous PFO closure. Consecutive

patients undergoing percutaneous PFO closure at a single center were

screened for the presence of antiphospholipid antibodies, elevated

lipoprotein(a), hyperhomocysteinemia, and dysfibrinogenemia. Sixteen

of 34 patients (47%) with complete arterial hypercoagulability

screening had laboratory evidence of arterial hypercoagulability.

Thirteen of these patients (38%) had antiphospholipid antibodies.

Antiphospholipid antibodies appear to be common in patients referred

for percutaneous PFO closure for secondary prevention of systemic

thromboembolic events. Thorough testing based on established

recommendations is warranted. Further studies are needed regarding the

interaction between PFO and various hypercoagulable disorders that

have been associated with cryptogenic stroke. Copyright 2004

Wiley-Liss, Inc.

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Can the PFO be undiagnosed?

Diane in MI

PFO and Hypercoagulation

Well, well, well. There's a link between PFO's and hypercoagulation.

I'm starting to think that it would be very worthwhile getting my PFO

closed:

Antiphospholipid antibodies are common in patients referred for

percutaneous patent foramen ovale closure.

Dodge SM, Hassell K, CA, Keller J, Groves B, Carroll JD.

Division of Cardiology, Department of Medicine, University of Colorado

Health Sciences Center, Denver, Colorado 80262, USA.

Very little is known about any interaction between patent foramen

ovale (PFO) and various hypercoagulable disorders that have been

associated with cryptogenic stroke. Percutaneous PFO closure for

secondary prevention of paradoxical thromboembolization is receiving

increasing attention. Hypercoagulability may affect the potential

risks and expected benefits of percutaneous PFO closure. Consecutive

patients undergoing percutaneous PFO closure at a single center were

screened for the presence of antiphospholipid antibodies, elevated

lipoprotein(a), hyperhomocysteinemia, and dysfibrinogenemia. Sixteen

of 34 patients (47%) with complete arterial hypercoagulability

screening had laboratory evidence of arterial hypercoagulability.

Thirteen of these patients (38%) had antiphospholipid antibodies.

Antiphospholipid antibodies appear to be common in patients referred

for percutaneous PFO closure for secondary prevention of systemic

thromboembolic events. Thorough testing based on established

recommendations is warranted. Further studies are needed regarding the

interaction between PFO and various hypercoagulable disorders that

have been associated with cryptogenic stroke. Copyright 2004

Wiley-Liss, Inc.

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There is a 1 in 4 chance that you have a PFO. It's very common.

In general, the more tests you do, the more that you will find wrong

with you.

The only reason I found out that I had a PFO was because they mistook

one of my CFS attacks for a possible stroke or TIA. So they sent me

for all kinds of neurological and cardiological workup. I found out

during that workup that one of my main arteries joins at the wrong

place, I have a mild chiari malformation, and I have a PFO. Later on,

during testing at the FFC, I found out that I have HHV6a, Lyme disease

(by criteria), and I have hypercoagulation.

CFS/ME/CFIDS/CFAC could just be a cumulation of many things.

The PFO was diagnosed using ultrasound and " bubbles " of saline.

You'll need to see a cardiologist to get tested, and he'll want a good

reason to test you (suspected TIA, etc.).

Katrina.

>

> Can the PFO be undiagnosed?

> Diane in MI

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definitely.

adrienne

PFO and Hypercoagulation

Well, well, well. There's a link between PFO's and hypercoagulation.

I'm starting to think that it would be very worthwhile getting my PFO

closed:

Antiphospholipid antibodies are common in patients referred for

percutaneous patent foramen ovale closure.

Dodge SM, Hassell K, CA, Keller J, Groves B, Carroll JD.

Division of Cardiology, Department of Medicine, University of Colorado

Health Sciences Center, Denver, Colorado 80262, USA.

Very little is known about any interaction between patent foramen

ovale (PFO) and various hypercoagulable disorders that have been

associated with cryptogenic stroke. Percutaneous PFO closure for

secondary prevention of paradoxical thromboembolization is receiving

increasing attention. Hypercoagulability may affect the potential

risks and expected benefits of percutaneous PFO closure. Consecutive

patients undergoing percutaneous PFO closure at a single center were

screened for the presence of antiphospholipid antibodies, elevated

lipoprotein(a), hyperhomocysteinemia, and dysfibrinogenemia. Sixteen

of 34 patients (47%) with complete arterial hypercoagulability

screening had laboratory evidence of arterial hypercoagulability.

Thirteen of these patients (38%) had antiphospholipid antibodies.

Antiphospholipid antibodies appear to be common in patients referred

for percutaneous PFO closure for secondary prevention of systemic

thromboembolic events. Thorough testing based on established

recommendations is warranted. Further studies are needed regarding the

interaction between PFO and various hypercoagulable disorders that

have been associated with cryptogenic stroke. Copyright 2004

Wiley-Liss, Inc.

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Maybe I really don't want to know...I have about all I want to think about right

now with just hypothyroidism/cfids/fm/osa and coag. defect. I'm sure we'll find

it if it's to be found at some point.

Diane in MI

Re: PFO and Hypercoagulation

There is a 1 in 4 chance that you have a PFO. It's very common.

In general, the more tests you do, the more that you will find wrong

with you.

The only reason I found out that I had a PFO was because they mistook

one of my CFS attacks for a possible stroke or TIA. So they sent me

for all kinds of neurological and cardiological workup. I found out

during that workup that one of my main arteries joins at the wrong

place, I have a mild chiari malformation, and I have a PFO. Later on,

during testing at the FFC, I found out that I have HHV6a, Lyme disease

(by criteria), and I have hypercoagulation.

CFS/ME/CFIDS/CFAC could just be a cumulation of many things.

The PFO was diagnosed using ultrasound and " bubbles " of saline.

You'll need to see a cardiologist to get tested, and he'll want a good

reason to test you (suspected TIA, etc.).

Katrina.

>

> Can the PFO be undiagnosed?

> Diane in MI

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Do they have to be specifically looking for a PFO to find it or would it have

shown up on my general echocardiogram?

Trina

katrinanon <katnap@...> wrote:

The PFO was diagnosed using ultrasound and " bubbles " of saline.

You'll need to see a cardiologist to get tested, and he'll want a good

reason to test you (suspected TIA, etc.).

Katrina.

.

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is quite correct. They swoosh the saline back and forth between

two syringes to make it full of tiny bubbles, then they inject that

into the vein going back to your heart. Once the bubbles are in your

heart, they have you make a " bearing down " motion, similar to the one

made when going to the toilet. If the bubbles cross over into the

other chamber, then you have a PFO which opens under pressure. They

can tell how big the hole is by the number of bubbles that cross over.

Kat.

>

> They have to be looking for it and it isn't seen in an

echocardiogram. They

> have to do some type of saline test...

>

>

>

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  • 4 weeks later...
Guest guest

Thanks, Annette,

Is it a cardiologist that diagnoses? Do you know the precursory symptoms,

that lead one to think it is a probability from the patient's point of view?

And what symptoms would be relevant to the doc?

Really appreciate that knowledgable answer...

Amelia

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Hi Amelia,

My Fiance has a PFO (but doesn't have CFS or ME).

The diagnosis can be made by transthoracic echocardiography with injection of

bubble contrast, combined with multiple sustained Valsalva manoeuvres.

In his case he does not have a high heart rate.

The reason he was tested for a PFO was blood clots.

Kindest regards,

Annette

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Hi Kat,

The procedure sounds invasive and a bit scary (especially for CFIDS/Distolic

Dysfunction person).

Did they tell you, or did you research any risks/side effects?

What did it feel like?

Do you have other cardiac diagnosis or symptoms?

What had you been told to do or not do about it?

This is an extremely valuable thread!

Katrina

> >

> > They have to be looking for it and it isn't seen in an

> echocardiogram. They

> > have to do some type of saline test...

> >

> >

> >

>

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On 7/7/06, katrinanon <katnap@...> wrote:

>

> Well, well, well. There's a link between PFO's and hypercoagulation.

> I'm starting to think that it would be very worthwhile getting my PFO

> closed:

There was a recent posting here and elsewhere where Dr. Cheney

documents a case where a CFS patient had PFO closure with BAD results.

>

> Sixteen

> of 34 patients (47%) with complete arterial hypercoagulability

> screening had laboratory evidence of arterial hypercoagulability.

> Thirteen of these patients (38%) had antiphospholipid antibodies.

>

I don't think either of these numbers is high enough to show a causal

relationship.

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