Re: A question and a favor

January 23, 2002

:

I just looked at Kayleigh's beautiful pictures. I can say that her

head looks to me as if it has improved some over time. Maybe it's

becuz her hair does help cover it up a bit too, it's hard to say.

Her head shape also reminds me of my Abby's, but not as severe as

Abby's. Abby was in a DOCband at 11.5mos -15.5 mos., we rec'd about

50-60% correction. Her head is still flat, I've come to accept the

fact it will never be perfect. Many of our baby's heads never will

be in this group.

See what the neuro recommends doing. It probably is too late to

begin any type of helmet therapy. It's so frustrating, I know. I

obsess over Abby's head every stinking day too. If one hair is out

of place, her head can look so flat, then the next minute, it looks

ok. I don't think Kayleigh's is all that bad. Surgery would be

awfully hard on all of you. She is a beautiful girl . Only a few

more days til you can finally get some answers.

Debbie Abby's mom DOCGrad

MI

> As you all know or don't know - we fought with peds and docs for

> months and months and they always told us Kayleigh's head would

round

> out - now at 19 months - we finally get to see a neuro surgeon on

> Monday. I am so anxious.

>

> Anyways - I put together a little website that shows her plagio at

> different stages - starting at 5 months as her plagio started

between

> 3-6 weeks, but I dont have pics of it - cause most pics were cute

> close ups of her face LOL.

>

> Anyways - if you guys could check it out and tell me what you

think -

> if her plagio is mild or moderate....and if it was bad enough that

> the docs should sent me earlier to a neuro.

>

> I also gathered all these pics to take to the neuro too to show

him.

>

> Now that she has haid - it is less noticeable - but still very much

> there. It has barely improved if it has improved at all. With

hair -

> if you catch her at the right angle it looks like a piece of her

> lower - right hand side back of her head was sawed right off.

>

> http://www.parksolutions.com/plagio

>

> Anyways - thanks for looking guys and I can't wait to hear what you

> have to say.

>

> - in Canada

January 25, 2002

,

I looked at the pictures of your precious Kayleigh. She really is a

doll baby :-) I am in agreement with the other replies you have had,

I think it looks mild/moderate. I do hope that everything goes well

for you on Monday. I wish there was more that we could do to make

Doctors realize that this is not a game and that we need them to

start taking Plagio seriously. Again good luck.

Mom to Garrett 5 months