Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 Dana, Good luck at your next appt. It never hurts to get a second opinion! Let us know how it goes! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 Dana, It just never hurts to get a second and even sometimes a third opinion. I think you are doing the right thing. Good luck and let us know how things go. Marci (Mom to ) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 , I know that the civilian doctors are more likely to refer us to a specialist, which is what we want. The military doesn't want to because they know it will cost them money. Hopefully it won't be an outragous wait to see a pediatric neuro around here. And we'll go from there. I really just don't want her head to stay this way, and I think the only way we can do anything about it at this point is to treat it. I mean, it's been there for several months at least with no improvement. My Dad was telling me that he noticed it in her face back in November. I just don't what are options are around here as far as treatment. I know in my heart that I'm doing the right thing. Dana NC, USA > Dana, > Good luck at your next appt. It never hurts to get a second opinion! Let us > know how it goes! > > ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 : Thank you for your story. That makes me feel much better. Thank goodness for the mommy instinct! I plan on going to CT with as many questions as possible. Tami --- rella1234@... wrote: > Tami, > Hi and welcome to the group! I just wanted to share > with you my experience: > was dx with tort at 2 mnths and at 3 mnths > I asked my ped to give me > her opinion of his head shape. She said it would > round out and not to worry. > I didn't feel right with this- so I went to Cranial > Tech on my own for a > free eval. They told me to go home and reposition > for a month, to exhaust > that route. This told me that they were not just > shelling out dx for the > band without really being concerned and honest with > people. I went back at > 4mnths, because it was only getting worse, and after > looking at ' 2 > day old photo, they also noticed that plagio was > evident at birth, since he > was squished being almost 10 lbs. > At 4 mnth check-up the ped still said she thought it > wasn't necessary, but > after much consideration, I asked her to give us the > referral as we had > decided this was our best bet at correction. We are > so glad we did. Just > wanted to share that so you know that CT actually > sent me home the first > time, and were not out to scam me. They were always > very professional, and > courteous, and I would give the CT in Miami rave > reviews!!! Good luck in > your decision making, it is probably the hardest > part to just decide what to > do, and go from there, because you are torn between > what a Doctor tells you > and what your Mommy instinct is telling you. Good > luck and keep us all > posted with whatever you decide! > > > ' mom > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Tamra: I would echo the other posts. CT was always upfront about their product and the amount of correction we could get. Make sure you check this list of questions against the ones you have already prepared...www.plagiocephaly.org/support/questions Best of luck, please let us know what you decide. Sue Cleveland, OH Second opinion > Hi All: > > I just joined the group this week and have appreciated > your comments to other e-mails. My daughter Annika is > 8 1/2 months old. We have been monitoring her head > since her 2 month visit to the pediatrician. With > repositioning it has definitely improved. However, > within the last month I noticed that the rate of > improvement slowed down. I decided it was time for a > second opinion. > > We saw a neurosurgeon this week who told us that > Annika had mild to moderate positional plagiocephaly > with absolutely no facial asymmetry. The doctor told > us about our options (specifically a doc band), but > advised us that she did not think it was necessary. > She thought that Annika's head would continue to round > out although not by very much and would never be 100% > perfect. > > Despite the doctor's opinion, we requested a > prescription for the doc band. We have not decided > whether to proceed with the band therapy and really > feel like we need another opinion. > > For those of you who have been through this already, > can I expect to get an honest and straightforward > opinion from Cranial Technologies regarding Annika's > condition and whether the band is necessary? > > Thanks, > Tami (mom to Annika) > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Did you get a second opinion? : It is reassuring to hear that other mothers are struggling with the same concerns. I just want to make sure that I am doing what is best for Annika. I am definitely going to meet with CT to get their opinion. I am hopeful that they will give an honest opinion about her condition. I also have another appointment with the neurosurgeon to look at the x-rays. Good luck to you and . Let me know how your evaluation with CT goes. I am interested to hear what they say to you. Thanks, Tami --- Stiles <sstiles@...> wrote: > Tami, > I just set up a consultation with Cranial > Technologies in Charlotte, NC, to > help me decide whether or not to go through with > banding for our son. Our > neurologist (who did not feel has any > neurological problems) referred > us to a plastic surgeon group for their opinion > about the plagiocephaly. > The plastic surgeon, Dr. Jay Lucas, then referred us > to CT. Our son has a > moderate case of torticollis, which we have been > working on, which was > causing him to sleep in an awkward position. We > have modified this habit > and his head seems to be improving. However, his > ears are still not in > alignment and one side of his head is still rounder > than the other. But > people (friends, neighbors) keep asking why we are > considering banding – > that it isn’t that bad. The torticollis is more > noticeable than the > plagiocephaly. So, now I am torn about what to do. > > I didn’t mean to make this such a rambling email! > Quite simply, I wanted to > let you know that I feel as you do. And I have set > up a consultation (I was > told it was free) for next week with CT to get > another opinion. I asked her > if they have ever told a parent that his/her child > wouldn’t gain much with a > band – and wouldn’t suffer without one for that > matter – and she said yes. > In the meantime, we are already going through the > insurance motions to see > what we will have to battle on that front if we do > decide to band. Did you > get a second opinion? > > Usually, I can make a decision. But this one is > starting to keep me awake > at night. > :-) (mom to ) > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2002 Report Share Posted February 13, 2002 Tami, I just set up a consultation with Cranial Technologies in Charlotte, NC, to help me decide whether or not to go through with banding for our son. Our neurologist (who did not feel has any neurological problems) referred us to a plastic surgeon group for their opinion about the plagiocephaly. The plastic surgeon, Dr. Jay Lucas, then referred us to CT. Our son has a moderate case of torticollis, which we have been working on, which was causing him to sleep in an awkward position. We have modified this habit and his head seems to be improving. However, his ears are still not in alignment and one side of his head is still rounder than the other. But people (friends, neighbors) keep asking why we are considering banding – that it isn’t that bad. The torticollis is more noticeable than the plagiocephaly. So, now I am torn about what to do. I didn’t mean to make this such a rambling email! Quite simply, I wanted to let you know that I feel as you do. And I have set up a consultation (I was told it was free) for next week with CT to get another opinion. I asked her if they have ever told a parent that his/her child wouldn’t gain much with a band – and wouldn’t suffer without one for that matter – and she said yes. In the meantime, we are already going through the insurance motions to see what we will have to battle on that front if we do decide to band. Did you get a second opinion? Usually, I can make a decision. But this one is starting to keep me awake at night. J (mom to ) Quote Link to comment Share on other sites More sharing options...
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