Guest guest Posted December 10, 2000 Report Share Posted December 10, 2000 lori, have you seen any major changes in tommy that are different now that he is on the seroquel? just curious......leah mom to ashton who is also on seroquel, but much higher dose' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Debbie Whipppeee...So glad to hear some GREAT news....So how much lighter do you feel without all that worry off your shoulders....Things sound great and we will be thinking of you all and those low numbers.....YEA... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Debbie, I'm still new around here, but have been reading all of the posts on Tommy and wanted you to know how extremely happy I am for you and Tommy. The power of prayer is an awesom thing, and you two have certainly been in mine over the past few weeks. Since I've been diagnosed with AIH I have been extremely thankful that this has happened to me and not to one of my daughters. I can only imagine what you as a mother have gone through. Tommy is lucky to have a mother like you and I will continue to keep you in my prayers. AIH (01/01) Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Debbie..... That is ABSOLUTELY TERRIFIC NEWS !! Prayer works !!! Will continue to keep you guys in them. Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2001 Report Share Posted March 19, 2001 Thanks everyone for your support. LFT 82 and hopefully going lower.... Debbie (Tommy's Mom) > [Original Message] > From: <BBNLU@...> > < > > Date: 3/19/01 6:56:38 PM > Subject: Re: [ ] Update on Tommy > > Debbie > > Whipppeee...So glad to hear some GREAT news....So how much lighter do you > feel without all that worry off your shoulders....Things sound great and we > will be thinking of you all and those low numbers.....YEA... > > Luanne Ty's mom > --- Have a fun day! --- debbiehenry@... --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Good to hear that Tommy's biopsy indicated no permanent damage. Hopefully his monthly tests will indicate progress. What is the dosage Tommy is on as of now? Wishing well for him. aumesh ---------- At 06:48 PM 03/19/2001 -0500, you wrote: >I want to thank everyone for their prayers. They are working. An update on >Tommy: Tommy's liver biopsy came back as inflammation present but NO >PERMANENT DAMAGE. This is wonderful news. His blood tests are also much >better. He is doing so well that when I talked to his doctor today, she >said lets wait and see what he does before we start the awful drugs. If his >blood counts go to normal by themselves, she will continue monthly blood >tests, but will hold off on medication. If his blood counts stay high, even >slightly high, she will start medication in June unless they all of a >sudden go higher than they are now, in which case medication will be >started immediately. But now they believe that they caught this at the >beginning. His GI said that she has been very worried about Tommy, but the >results of all the testing was even better than she believed possible. > >We are a long way from being out of the woods, but things are definitely >looking GOOD!!!!!!!! Keep those prayers coming. He is a beautiful boy and >deserves the best future he can possibly have. > >Debbie (Tommy's Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Glad to hear this great news. Keep it up Tommy. Genny/Jodi's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2002 Report Share Posted January 26, 2002 Jill: I'm so happy Tommy is ok. You're hardly the worst mommy in the world. Remember just over a month ago how I found my Abby running around the house with a bottle of bleach (the cap was screwed on crooked so it leaked all over the place, Abby included)? These things happen, unfortunately. It only takes one second for toddlers to get into things. The important thing is that he's fine. Congrats on him waving! How cute. Debbie Abby's mom DOCgrad MI > Well, we got through the night and Tommy is back to normal today! He > was unbelievably cranky most of yesterday evening and kept popping in > and out of sleep. He did start shaking at one point and I was > worried, but the nurse said that as long as it was short in duration > and didn't repeat Tommy was fine. I felt like the World's Worst > Mommy when I left for school last night and he had separation > anxiety. I am going to go to the drug store today and lay in a > supply of Ipecac and charcoal in case Tommy finds something ELSE to > poison himself with! (I swear he keeps a supply hidden from his mommy) > On another note, Tommy learned to wave " hi " today, and does it > everytime someone says hi, whether it is directed at him or not! > > Jill Ramos, Las Vegas, NV > Tommy (DOC grad 10/26/01) > and Gavin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Hi , in southeast PA, We too are having problems with school staff not understanding the need for accommodations. They seem to be under the impression that there is a quick fix, when we all know that life isnt like that. Even the simplest request, like moving her desk, is met with delay after delay. Perhaps there is a another way to approach their reluctance. How about having a neutral third party explain it to them? What about involving the media or perphaps the law? Maybe the school needs some 'encouragement' to understand that Tommy, and kids like him, walk to a different beat. Its my kids uniqueness that makes them stand out, and I do not want their personalities changed to accommodate tired, faceless, beurocrats that couldnt care less about my child the moment they leave a room. If I can be of any help, let me know... wendy, in canada Joye wrote: Dear all,It has been a while since I have posted about my child's situation. We have been having a rather awful time this school year! His OCD is, for the most part, under control at home and in other venues. At school, though, he has been experiencing so much anxiety that he has reverted back to old behaviors of threatening teachers, and threatening to kill himself. After countless IEP meetings, meetings with his Doctors, IEP meetings with the Dr.'s on speakerphone, etc...I am still not convinced that the terms that we have agreed upon will be carried out. <snip> ... Hanging in... in Southeastern PA --------------------------------- Find, Connect, Date! Yahoo! Canada Personals. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 they seem to interpret his seeming refusal to do work as refusal, instead of seeing it as a temporary unavailabliity of his brain to do the work they are requesting at that moment in time! IF you don't mind, I'm going to keep that phrase in mind and borrow it when needed as that is the perfect way to describe 's OCD at school. Especially in regard to his reading. I hope things ease up for you soon. I, too, am partly looking forward to summer (no homework!) except that's when, with me working, 's left on his own with - shudder! - his brothers! And I have my oldest (17 this April) saying how he hates school, etc., etc., and wants to be homeschooled! <sigh> > Dear all,It has been a while since I have posted about my child's situation. We have been having a rather awful time this school year! His OCD is, for the most part, under control at home and in other venues. At school, though, he has been experiencing so much anxiety that he has reverted back to old behaviors of threatening teachers, and threatening to kill himself. After countless IEP meetings, meetings with his Doctors, IEP meetings with the Dr.'s on speakerphone, etc...I am still not convinced that the terms that we have agreed upon will be carried out. It is beyond frustrating to have this go on as we had been successful in the last year in helping Tommy to find other outlets and ways of expressing his anxiety, and once again in this building, they seem to interpret his seeming Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2002 Report Share Posted March 26, 2002 Hi : Hugs to you and Tommy. That is wonderful that he has his OCD more under control at home. I am sorry to hear that the school situation is not working so well. You are so right we have to do groundbreaking work for our kids. Tommy is very lucky to have you on his side. Hang in there, take care, aloha, kathy (h) kathyh@... > Dear all,It has been a while since I have posted about my child's situation. We have been having a rather awful time this school year! His OCD is, for the most part, under control at home and in other venues. At school, though, he has been experiencing so much anxiety that he has reverted back to old behaviors of threatening teachers, and threatening to kill himself. After countless IEP meetings, meetings with his Doctors, IEP meetings with the Dr.'s on speakerphone, etc...I am still not convinced that the terms that we have agreed upon will be carried out. It is beyond frustrating to have this go on as we had been successful in the last year in helping Tommy to find other outlets and ways of expressing his anxiety, and once again in this building, they seem to interpret his seeming refusal to do work as refusal, instead of seeing it as a temporary unavailabliity of his brain to do the work they are requesting at that moment in time! This was a lesson that I had to learn about my son, and once I did, things got better for us here. He does not rule the roost by any means here at home, but I sometimes need to allow him more time than the other kids to make the best choice for his behavior, and that most definitely means that he has to follow the rules! So much of what we have to do for our kids is groundbreaking! Right now, I am so very very wearyand as much as I don't really like hot weather, I am more than ready for summer. We have heard the Pink Floyd song (Another brick in the wall) on the car radio A LOT lately and I think I have been cranking up the volume as much for myself as for my son! Hanging in... in Southeastern PA Quote Link to comment Share on other sites More sharing options...
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