Re: Preston's visit with the specialist

[Guest guest]

,

I know exactly how you feel. I dreaded getting 's DOC Band -- I

was depressed, blaming myself, and had lots of doubts: would it

irritate his sensitive skin, would it bother him to wear it, would he

have trouble holding his head up with the extra weight, etc.

The worst part was doing the head mold -- he cried for 10 minutes,

but it wasn't as bad as I had expected. And the day he got his band,

I was really surprised because it was no big deal! He didn't mind it,

and I felt much better when the anticipation was over.

didn't have any problems with the band, and we were so pleased

with his results. I'm sure in the end you'll feel that it was all

worth it. 's head shape looks great -- not perfect, but whose

is? And the biggest surprise -- he didn't cry at all during his exit

cast!

Good luck with the repositioning in the next few weeks. Don't fight

your feelings because they are natural, but just know that you will

feel much better when Preston gets the helmet!

Christi in TX

Mommy to , 6/2/01 at 34 weeks, DOC Grad 1/17/02

http://www.exracers.com/nathan.htm

[Guest guest]

:

Thanks for the update. SOunds like everything went as you had

expected. Do you have an appt scheduled with the physical therapist

yet?

I'm not very familiar with passive helmets, but it could possibly

help with the ears and other facial assymetries. I do know ears &

assymetries are the hardest to correct. You never know. Like you

said, you'll take whatever improvement you can get :-). As I always

said beggers can't be choosers.

Try not to get too discouraged or upset about the pending helmet. I

know, I know, I've was at the same place you are at last year. But

it really isn't bad at all. The vast majority of babies adjust w/o

any problems at all. It's us adults who have the hard time. It gets

easier day by day. Waiting for the casting, fittings, etc. the

anticipation of it all is one of the most stressful periods to this

process.

In the meantime, keep up the good work with repositioning. Also,

keep appealing your ins. company. Don't go down w/o a fight!

Debbie Abby's mom DOCGrad

MI

--- In Plagiocephaly@y..., " barryandnancys " <barryandnancy@m...>

wrote:

> We saw the specialist today. Preston has mild/moderate plagio with

> possible tort which the P.T. will diagnose. This was all as we

> suspected. Preston is 5 mo. old and they won't fit him with a

helmet

> until he is 6 mo. old. So we are going to continue to reposition

so

> it won't get worse. She said they see alot of head shape

improvement

> with the helmets but the ear misalignment and the facial assymetry

> will not improve. The forehead bossing may improve. We were

> disappointed as we had hoped for more improvement. But we will

take

> what we can get. We are going to get the helmet regardless of

> whether or not our insurance covers it. I feel so discouraged now

> and dread at doing the helmet. But at least you all seem to feel

> that your kids don't mind it as much as you do. Thanks again for

all

> the info and encouragement.

>

>

> Preston's mommy