Guest guest Posted September 15, 2000 Report Share Posted September 15, 2000 Rosemary, If you suspect your son has allergies or sensitivities I would suggest you have him tested before doing any major dietary elimination. Almost all of our kids have allergies to SOMETHINGS but my experience may not be the same as yours. It would be a shame to eliminate things based on what we say if they are not necessary. I agree that an allergy to casein is pretty common but it's also very difficult to follow. I would want the assurance that it was necessary before going that route. I would take any child with suspected allergies off cow's milk. It's simply not necessary for children to grow up healthy (as long as they get calcium from another source) We took our son off milk at age 3 because he would drink it by the gallon to the exclusion of food. As for the rest, it's best to do the testing first. If you need info. on what tests to run, let me know. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2000 Report Share Posted September 15, 2000 At 08:28 AM 09/15/2000 -0600, you wrote: > >I am very interested in learning more, since I am pretty sure my son has >trouble with certain foods. It is very difficult to keep a 9 yr. old off >of milk and cheese, though, let alone wheat/gluten. How do you all do it? > >Rosemary we started very young. And his behaviour is *so* bad off his limited diet that even he recognises it now. Personally I would go the bribery route and do a deal for a set length of time. Can you substitue dairy with soy without him noticing? anna v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 My daughter has been on an avoidance diet for 7 years and there is no doubt that she would not have developed speech had I not done it. My response when people ask me how I've done it is to ask them what they would do if their child was diagnosed with cancer and the only treatment was food avoidance. Autistic syndrome is a progressive disease. Once you have seen the slides of neurospects with the damaged parts of the brain clearly shown then avoiding food seems a very small price to pay to help prevent that. My cousin just died of Leukemia. If only it would have been as simple as avoiding some food! Health food stores have so much now. There is so much online that you can order. Libraries have tons of cookbooks for allergic people. It is more work and it is more expensive but children are work and expensive aren't they? Kathy R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 , Unfortunately food testing, actually any kind of allergy testing in children with is highly inaccurate. Children with have to stop consuming dairy products and eliminate as much wheat as possible. There are many alternatives one can use. Kathy R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 HI ROSEMARY AND LINDA: It is very difficult to know what foods to avoid, etc. But if a child reacts negatively usually w/in an hour or so after eating a particular food, this is usually a sign that the food should be avoided. Remember no allergy test is 100% conclusive and all children are different. Let's face it, noone knows how hard it is to raise a child, except us. Good Luck!! : ) Michele D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 Kathy R, I totally agree with you!! Michele D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 Michele, I agree that some food reactions are obvious and almost immediate. We've noticed very bad days with our son when he eats cheerios (go figure--the only cereal that doesn't have sugar!). Nonetheless, I think the advice of (who wrote Special Diets for Special Kids) is good advice. She says she wished she had tested her child before trying the gluten/casein free diet b/c it's so restrictive. I wasn't refering to the allergy testing available through your doctor's office (RAST, etc). There are more sophisticated alternatives. No, it's not 100%--what is? But it at least provides a starting point. Let's say it shows a definite allergy to corn. Why not try JUST eliminating that first (on the basis of the results) and see how your child does? Eliminating too much too quickly leaves you with limited dietary choices and a fear to try any of it again b/c it MIGHT be the offending substance. Does this make sense or am I out in left field here. I want to know b/c we are in the process of arranging allergy testing through metamix labs and (naturally) our insurance won't cover it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 In a message dated 09/17/2000 4:43:41 PM Eastern Daylight Time, lveggie@... writes: << Michele, I agree that some food reactions are obvious and almost immediate. We've noticed very bad days with our son when he eats cheerios (go figure--the only cereal that doesn't have sugar!). Nonetheless, I think the advice of (who wrote Special Diets for Special Kids) is good advice. She says she wished she had tested her child before trying the gluten/casein free diet b/c it's so restrictive. I wasn't refering to the allergy testing available through your doctor's office (RAST, etc). There are more sophisticated alternatives. No, it's not 100%--what is? But it at least provides a starting point. Let's say it shows a definite allergy to corn. Why not try JUST eliminating that first (on the basis of the results) and see how your child does? Eliminating too much too quickly leaves you with limited dietary choices and a fear to try any of it again b/c it MIGHT be the offending substance. Does this make sense or am I out in left field here. I want to know b/c we are in the process of arranging allergy testing through metamix labs and (naturally) our insurance won't cover it. >> Hi ! The book you are referring to above is a good one. I am definitely not an advocate to just eliminate foods!! I had that sophicasted allergy test you are referring to and my daughter has had sooo many of these so called sophicasted allergy tests and each time depending upon what is being consumed by her, the tests varied!!! So if I was to start over again, I would not have the test but just avoid: All Dairy products, whole wheat, refined sugars and berries (incl red dyed sugar free candies). I feel (and I am 1st to admit)... that I've been making the mistake and going crazy eliminating foods from my daughter's diet. Some kids are more allergic than other kids. My daughter can have soy, peanut butter (low sugar Jif, is what I give her), Polaner grape jelly, Wonder Bread, Dairy Free Banana Pudding, Tofutti, etc. etc. And tests revealed differently. For example Peanut Butter was supposely a food to avoid, spoke to Dr. Goldberg and he said to try it, and now she has it every day for lunch (just about) and there seems to be no negative reactions. I would definitely not have spent so much $$$... testing and re-testing. Michele D. : ) Quote Link to comment Share on other sites More sharing options...
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