Re: update - I have morgellons

[Guest guest]

Wow!!

Did he say how to clean your environement, house,

car???

My dr said i have Morgellons also.

Maybe i will try iver also.

Can you please tell us more details like what he

thinks morgs is and where it came from

and everything he told you to do?????

Please let me know

love L

--- golfingnut1957 <golfingnut1957@...> wrote:

> I met with Dr. Harvey. He has a hand held

> microscope that attaches to

> a laptop. He showed me my " bites " and found fibers

> in 2 of them.

> This is a sign of morgellons disease. What I have

> is a parasite that

> lives in the skin and inside the body. The " bites "

> are not punctures

> but exit wounds from the parasites. They feel like

> bites but are

> parasites coming out. I was prescribed invermectin

> and after taking 6

> x 3mg pills for last 3 days I feel better than I

> have since this

> started. I plan to super clean my house and try to

> avoid

> reinfestation. I still have clothes that are

> invested. I want to

> thank Rita C. for all her advice as her posts have

> been right on

> target. When this is over I plan to write letters

> to all the docs I

> have seen and let them know how to treat this and

> beg them to help

> future patients.

>

> My surgeon friend is going to talk with a ID doc at

> Hosp. here

> in DC and see if he will talk to Dr. Harvey so he

> can treat people on

> the east coast. I am personal friends with several

> docs and plan to

> let them know about this. Ivermectin is very safe

> and has been used

> for years so no reason not to treat us.

>

> I think we need to get all our families and go to

> CDC or NIH and do a

> peaceful protest. We must get the message out. Its

> hard to tell

> people you have a parasite but until the truth gets

> out many will

> continue to suffer. The pride and egos at CDC etc.

> are getting in the

> way of relief for those infested.

>

> We may be at the tip of new plague.

>

>

>

>

>

[Guest guest]

Hi again,

did he say how long to take it?

i think others on here have taken it ...didnt Ray have

good results???

anyone else taken it?

what were the results??

I want to try it too!

L

--- golfingnut1957 <golfingnut1957@...> wrote:

> I met with Dr. Harvey. He has a hand held

> microscope that attaches to

> a laptop. He showed me my " bites " and found fibers

> in 2 of them.

> This is a sign of morgellons disease. What I have

> is a parasite that

> lives in the skin and inside the body. The " bites "

> are not punctures

> but exit wounds from the parasites. They feel like

> bites but are

> parasites coming out. I was prescribed invermectin

> and after taking 6

> x 3mg pills for last 3 days I feel better than I

> have since this

> started. I plan to super clean my house and try to

> avoid

> reinfestation. I still have clothes that are

> invested. I want to

> thank Rita C. for all her advice as her posts have

> been right on

> target. When this is over I plan to write letters

> to all the docs I

> have seen and let them know how to treat this and

> beg them to help

> future patients.

>

> My surgeon friend is going to talk with a ID doc at

> Hosp. here

> in DC and see if he will talk to Dr. Harvey so he

> can treat people on

> the east coast. I am personal friends with several

> docs and plan to

> let them know about this. Ivermectin is very safe

> and has been used

> for years so no reason not to treat us.

>

> I think we need to get all our families and go to

> CDC or NIH and do a

> peaceful protest. We must get the message out. Its

> hard to tell

> people you have a parasite but until the truth gets

> out many will

> continue to suffer. The pride and egos at CDC etc.

> are getting in the

> way of relief for those infested.

>

> We may be at the tip of new plague.

>

>

>

>

>

[Guest guest]

Hi again,

I also tried the Ivermectin but only had one day's dosage. It didn't

work for me but then again the doctor only gave me one days dose.

Maybe it does take longer as Golfingnut said.

Lady Dee

>

> > I met with Dr. Harvey. He has a hand held

> > microscope that attaches to

> > a laptop. He showed me my " bites " and found fibers

> > in 2 of them.

> > This is a sign of morgellons disease. What I have

> > is a parasite that

> > lives in the skin and inside the body. The " bites "

> > are not punctures

> > but exit wounds from the parasites. They feel like

> > bites but are

> > parasites coming out. I was prescribed invermectin

> > and after taking 6

> > x 3mg pills for last 3 days I feel better than I

> > have since this

> > started. I plan to super clean my house and try to

> > avoid

> > reinfestation. I still have clothes that are

> > invested. I want to

> > thank Rita C. for all her advice as her posts have

> > been right on

> > target. When this is over I plan to write letters

> > to all the docs I

> > have seen and let them know how to treat this and

> > beg them to help

> > future patients.

> >

> > My surgeon friend is going to talk with a ID doc at

> > Hosp. here

> > in DC and see if he will talk to Dr. Harvey so he

> > can treat people on

> > the east coast. I am personal friends with several

> > docs and plan to

> > let them know about this. Ivermectin is very safe

> > and has been used

> > for years so no reason not to treat us.

> >

> > I think we need to get all our families and go to

> > CDC or NIH and do a

> > peaceful protest. We must get the message out. Its

> > hard to tell

> > people you have a parasite but until the truth gets

> > out many will

> > continue to suffer. The pride and egos at CDC etc.

> > are getting in the

> > way of relief for those infested.

> >

> > We may be at the tip of new plague.

> >

> >

> >

> >

> >

[Guest guest]

Ivermectin works really well. I have taken it now for almost 2 years. That's an oximoron... spelling... the thing with ivermectin is your body gets used to taking it and your immune system takes a break and lets the ivermectin do the work. once it's out of your system, these things come back with a vengence. It's difficult to get doctors to prescribe it. A lot of people on the scabies forum have been cured with it, along with a topical, and aggressive environmental cleaning. I've been seeing fibers on me when I scope my tissues. I spray a tissue with hydrogen peroxide, swipe my skin with it, and see black specs and fibers. Lovely, fibers. And gulfingnut has morgellons. This is horrible.ladydee96 <ladydee96@...> wrote: Hi again,I also tried the Ivermectin but only had one day's dosage. It didn't work for me but then again the doctor only gave me one days dose. Maybe it does take longer as Golfingnut said.Lady Dee> > > I met with Dr. Harvey. He has a hand held> > microscope that attaches to> > a laptop. He showed me my "bites" and found fibers> > in 2 of them. > > This is a sign of morgellons disease. What I have> > is a parasite that> > lives in the skin and inside the body. The "bites"> > are not punctures> > but exit wounds from the parasites. They feel like> > bites but are> > parasites coming out. I was prescribed invermectin> > and after taking 6> > x 3mg pills for last 3 days I feel better than I> > have since this> > started. I plan to super clean my house and try to> > avoid> > reinfestation. I still have clothes that are> > invested. I want to> > thank Rita C. for all her advice as her posts have> > been right on> >

target. When this is over I plan to write letters> > to all the docs I> > have seen and let them know how to treat this and> > beg them to help> > future patients. > > > > My surgeon friend is going to talk with a ID doc at> > Hosp. here> > in DC and see if he will talk to Dr. Harvey so he> > can treat people on> > the east coast. I am personal friends with several> > docs and plan to> > let them know about this. Ivermectin is very safe> > and has been used> > for years so no reason not to treat us.> > > > I think we need to get all our families and go to> > CDC or NIH and do a> > peaceful protest. We must get the message out. Its> > hard to tell> > people you have a parasite but until the truth gets> > out many will> > continue to suffer. The pride

and egos at CDC etc.> > are getting in the> > way of relief for those infested.> > > > We may be at the tip of new plague. > > > > > > > > > >

[Guest guest]

Hi to all of you who are taking iver or plan to. Neal's dermatologist

gave him Stromectol which is the human brand name for iver. Neal weighs

about 250# and his prescription was to take 7 3mg pills (21mg total) all

at once, once per week. He stayed on that dosage for about 6 weeks.

After we sprayed everything in the house with Cedarcide and bought new

mattresses (tempurpedic, not cotton) things got much better. The people

at CedarCide said to not vacuum carpet or mop floors for at least a week

to 10 days to give it time to kill the eggs and larvae which it has

apparently done. Neal has had no crawlies for about 2 weeks now and has

not been bitten since November. We went to dermatologist monday and he

said to quit taking the iver and come back in a month to get checked. I

don't think the iver will work right taking small doses as the large

doses are adjusted per your weight and will flood your system with

poison for the parasites, doctor said all kinds but I don't think he is

up to date on morgell0ns so they may be immune to it. Anyway, it stays

in your body approximately 7-12 days gradually being eliminated in your

digestive tract. I hope and pray we are rid of those things but am

holding my breath. Neal mowed this week and I insisted he spray down

with CedarCide before he did it. I am keeping all of you in my prayers

and hope you will have a good solution for this horrible problem.

Thank you golfingnut1957 for sharing your experiences. Now that you

have some powerful people believing you maybe some who are hiding their

heads in the sand will come out and do some studying up on our problem.

Our dermatologist is very interested in all the remedies this group have

discovered on their own and hopefully he will spread some info around in

his circle in the Houston area. I know there will be more and more

people having this happen if nothing is done about it and you are

absolutely right about our own government people ignoring the problem.

Good luck and God Bless. Joan

>

> > I met with Dr. Harvey. He has a hand held

> > microscope that attaches to

> > a laptop. He showed me my " bites " and found fibers

> > in 2 of them.

> > This is a sign of morgellons disease. What I have

> > is a parasite that

> > lives in the skin and inside the body. The " bites "

> > are not punctures

> > but exit wounds from the parasites. They feel like

> > bites but are

> > parasites coming out. I was prescribed invermectin

> > and after taking 6

> > x 3mg pills for last 3 days I feel better than I

> > have since this

> > started. I plan to super clean my house and try to

> > avoid

> > reinfestation. I still have clothes that are

> > invested. I want to

> > thank Rita C. for all her advice as her posts have

> > been right on

> > target. When this is over I plan to write letters

> > to all the docs I

> > have seen and let them know how to treat this and

> > beg them to help

> > future patients.

> >

> > My surgeon friend is going to talk with a ID doc at

> > Hosp. here

> > in DC and see if he will talk to Dr. Harvey so he

> > can treat people on

> > the east coast. I am personal friends with several

> > docs and plan to

> > let them know about this. Ivermectin is very safe

> > and has been used

> > for years so no reason not to treat us.

> >

> > I think we need to get all our families and go to

> > CDC or NIH and do a

> > peaceful protest. We must get the message out. Its

> > hard to tell

> > people you have a parasite but until the truth gets

> > out many will

> > continue to suffer. The pride and egos at CDC etc.

> > are getting in the

> > way of relief for those infested.

> >

> > We may be at the tip of new plague.

> >

> >

> >

> >

> >

[Guest guest]

Joan: Ivermectin does not stay in your system for 7 days. It only stays in your system about 2 days. The reason it is taken once every seven days is to get the mites that have hatched from eggs, as ivermectin does not kill eggs. I hope that your husband gets over this soon. Thanks for updating us on your progress. Mel jww1931 <joanwood@...> wrote: Hi to all of you who are taking iver or plan to. Neal's dermatologistgave him Stromectol which is the human brand name for

iver. Neal weighsabout 250# and his prescription was to take 7 3mg pills (21mg total) allat once, once per week. He stayed on that dosage for about 6 weeks. After we sprayed everything in the house with Cedarcide and bought newmattresses (tempurpedic, not cotton) things got much better. The peopleat CedarCide said to not vacuum carpet or mop floors for at least a weekto 10 days to give it time to kill the eggs and larvae which it hasapparently done. Neal has had no crawlies for about 2 weeks now and hasnot been bitten since November. We went to dermatologist monday and hesaid to quit taking the iver and come back in a month to get checked. Idon't think the iver will work right taking small doses as the largedoses are adjusted per your weight and will flood your system withpoison for the parasites, doctor said all kinds but I don't think he isup to date on morgell0ns so they may be immune to it. Anyway, it staysin your

body approximately 7-12 days gradually being eliminated in yourdigestive tract. I hope and pray we are rid of those things but amholding my breath. Neal mowed this week and I insisted he spray downwith CedarCide before he did it. I am keeping all of you in my prayersand hope you will have a good solution for this horrible problem. Thank you golfingnut1957 for sharing your experiences. Now that youhave some powerful people believing you maybe some who are hiding theirheads in the sand will come out and do some studying up on our problem. Our dermatologist is very interested in all the remedies this group havediscovered on their own and hopefully he will spread some info around inhis circle in the Houston area. I know there will be more and morepeople having this happen if nothing is done about it and you areabsolutely right about our own government people ignoring the problem. Good luck and God Bless. Joan>> > I met with Dr. Harvey. He has a hand held> > microscope that attaches to> > a laptop. He showed me my "bites" and found fibers> > in 2 of them.> > This is a sign of morgellons disease. What I have> > is a parasite that> > lives in the skin and inside the body. The "bites"> > are not

punctures> > but exit wounds from the parasites. They feel like> > bites but are> > parasites coming out. I was prescribed invermectin> > and after taking 6> > x 3mg pills for last 3 days I feel better than I> > have since this> > started. I plan to super clean my house and try to> > avoid> > reinfestation. I still have clothes that are> > invested. I want to> > thank Rita C. for all her advice as her posts have> > been right on> > target. When this is over I plan to write letters> > to all the docs I> > have seen and let them know how to treat this and> > beg them to help> > future patients.> >> > My surgeon friend is going to talk with a ID doc at> > Hosp. here> > in DC and see if he will talk to Dr. Harvey so he> > can treat people on> >

the east coast. I am personal friends with several> > docs and plan to> > let them know about this. Ivermectin is very safe> > and has been used> > for years so no reason not to treat us.> >> > I think we need to get all our families and go to> > CDC or NIH and do a> > peaceful protest. We must get the message out. Its> > hard to tell> > people you have a parasite but until the truth gets> > out many will> > continue to suffer. The pride and egos at CDC etc.> > are getting in the> > way of relief for those infested.> >> > We may be at the tip of new plague.> >> >> >> >> >

[Guest guest]

Golfnut

What sort of prognosis has this doctor given you?

Is he thinking you can be cured, or will you just be able to become

asymptomatic and manage life so that it doesnt over take your system

again?

You are also in a fabulous possition to do something that many of us

can not do - be taken seriously!!! Not many people are going to say

a lawyer is crazy - you will do a lot for the rest of us who are

made voiceless by the dilusionary label - and let us know if you

ever do ralley a peaceful protest - my family will come.

Mel

Thanks for all your incredible knowledge - Don't be afraid! you have

had a long battle, but that definately doesent mean you wont over

come this.....and with new approaches like what we read about all

the time on this forum....you will get through this!!! You have

always been a voice of positive reason to me and my family - and so

encouraging when I was in a dark place - we are all here for you,

and you will beat this.

z

[Guest guest]

Zooks. You are a sweetie pie. Thank you for your positive comments. I truly believe now that I will never beat this. I can only keep these things at bay. I have done just about everything, except change my diet.... And that will be hard for me, and I'm not sure I can do it. Mel zmooks <zuleikahwalker@...> wrote: GolfnutWhat sort of prognosis has this doctor given you? Is he thinking you can be cured, or will you just be able to become asymptomatic and manage

life so that it doesnt over take your system again?You are also in a fabulous possition to do something that many of us can not do - be taken seriously!!! Not many people are going to say a lawyer is crazy - you will do a lot for the rest of us who are made voiceless by the dilusionary label - and let us know if you ever do ralley a peaceful protest - my family will come.MelThanks for all your incredible knowledge - Don't be afraid! you have had a long battle, but that definately doesent mean you wont over come this.....and with new approaches like what we read about all the time on this forum....you will get through this!!! You have always been a voice of positive reason to me and my family - and so encouraging when I was in a dark place - we are all here for you, and you will beat this.z

Never miss a thing. Make your homepage.

[Guest guest]

The CDC website has an announcement of the Morgellon's study that they

are launching in Northern California.

http://www.cdc.gov/unexplaineddermopathy/investigation.html#2

At the bottom of this page, there is contact information if you want

to email or leave a voice message for the CDC. I seem to recall

reading a post a couple of months ago but can't recall the outcome.

If you feel this is a waste of time, you could try writing to the CDC

Director, Dr. Gerberding. She has a background in infectious

diseases.

Dr. Locksley at UCSF (University of California, San Francisco)

has spent years studying parasites.

http://www.medicine.ucsf.edu/id/faculty/locksley.html He may not be

interested in researching parasitic mites or Morgellon's, but would

probably know if any of his colleagues are interested in this. I

worked at UCSF for 15 years, but left several years ago to move to

Hawaii. It has one of the largest research organizations in the U.S.,

about on par with s Hopkins.

I have made no effort to identify exactly what my problem is, so I

don't have any information to share with scientists, and I don't have

any questions right now. I'm real focused on getting well. About

half of the people I talk to here on Maui are fully aware of the bird

mite problem. The ones who had birds nesting in their rafters called

the pest control companies right away, and got rid of the problem with

pesticides. The pest control operators removed the bird nests. The

people with chickens have a more serious problem, and have to throw

out most of their things, like me. It is considered a horrible

problem. The only doctor I mentioned the problem to was my

gynecologist, and she knew all about it and offered to prescribe a

skin cream to stop the crawling sensation, but I didn't want the

prescription because I want to know if something is crawling on me.

Parasites are a very common problem in Hawaii.

myrtle

>

> Golfnut

>

> What sort of prognosis has this doctor given you?

> Is he thinking you can be cured, or will you just be able to become

> asymptomatic and manage life so that it doesnt over take your system

> again?

>

> You are also in a fabulous possition to do something that many of us

> can not do - be taken seriously!!! Not many people are going to say

> a lawyer is crazy - you will do a lot for the rest of us who are

> made voiceless by the dilusionary label - and let us know if you

> ever do ralley a peaceful protest - my family will come.

>

> Mel

>

> Thanks for all your incredible knowledge - Don't be afraid! you have

> had a long battle, but that definately doesent mean you wont over

> come this.....and with new approaches like what we read about all

> the time on this forum....you will get through this!!! You have

> always been a voice of positive reason to me and my family - and so

> encouraging when I was in a dark place - we are all here for you,

> and you will beat this.

>

> z

>

[Guest guest]

Myrtle

thanks for your informative email, I looked at those links - thank you.

I know that the cdc want people to register with this, but I dont want

to - I'm not very trusting these days:)

We lived on Oahu for 6 years, I loved every day of it! At least you

have beautiful salt water to swim in! boy I would be in that ocean

daily if I was still in Hawaii.

I bet the climate doesnt help with the mites though. I hate these

things, they have even invaded paradise.

I got a very interesting email from Trisha Springstin - she is very

involved in this, I even saw her on the only documentary I have seen

on this (well at least on morgellons) she is working closely with

their research institute etc. She talks a lot about the endocrin break

down. I dont want to post her email here, I would be happy to forward

it to anyone though.

p.s. Myrtle thanks for your cleansing file, I had Mel email it to me!

Its great! looks so unbelievably strict, but I think there is a lot

to diet and cleanses.

z

[Guest guest]

I am interested in receiving a forward of that if you would. Thank you very much. I am curious if it pertains to the health of my mother previous to her death and now my own experiences. Thanks a lot.zmooks <zuleikahwalker@...> wrote: Myrtlethanks for your informative email, I looked at those links - thank you.I know that the cdc want people to register with this, but I dont want to - I'm not very trusting these days:)We lived on Oahu for 6 years, I loved every day of it! At least you have beautiful

salt water to swim in! boy I would be in that ocean daily if I was still in Hawaii.I bet the climate doesnt help with the mites though. I hate these things, they have even invaded paradise.I got a very interesting email from Trisha Springstin - she is very involved in this, I even saw her on the only documentary I have seen on this (well at least on morgellons) she is working closely with their research institute etc. She talks a lot about the endocrin break down. I dont want to post her email here, I would be happy to forward it to anyone though.p.s. Myrtle thanks for your cleansing file, I had Mel email it to me!Its great! looks so unbelievably strict, but I think there is a lot to diet and cleanses.z

Never miss a thing. Make your homepage.

[Guest guest]

Hi Zmooks,

We have plenty of bugs here in paradise, it goes with the 80 degree

year-round temps. I'm here because my family is here, otherwise I

would have gone back to the " big dirt " by now. But Hawaii is a great

place, including the bugs, ocean, hula, flowers, gorgeous scenery and

nice people.

I would like to see the email you mention, from Trisha Springstein.

Please forward it when you have a chance.

There were two things about the CDC website that bothered me. One was

that they are doing a study on Morgellon's, but have a statement that

" Morgellons is not a condition that is reportable... " The second is

that they do not mention bird mites in the parasite index:

http://www.cdc.gov/ncidod/dpd/parasites/index.htm#

The only mites I could find in the index was the scabies mite. It

might be useful if some of us write to the CDC and tell them about the

bird mite ordeal we're going through, and how some of the people are

developing Morgellons.

I'm glad you found the cleanse program interesting. I didn't enjoy

doing it, especially the part about not drinking coffee. I'm not sure

I would recommend it to anyone because it is so extreme and

unsustainable, but it has a lot of interesting ideas.

I wish I had time to swim in the ocean, but I have to work to make

money to support my mite habit! And I'm scared of sharks...

Aloha,

myrtle

>

> Myrtle

>

> thanks for your informative email, I looked at those links - thank you.

> I know that the cdc want people to register with this, but I dont want

> to - I'm not very trusting these days:)

>

> We lived on Oahu for 6 years, I loved every day of it! At least you

> have beautiful salt water to swim in! boy I would be in that ocean

> daily if I was still in Hawaii.

> I bet the climate doesnt help with the mites though. I hate these

> things, they have even invaded paradise.

>

> I got a very interesting email from Trisha Springstin - she is very

> involved in this, I even saw her on the only documentary I have seen

> on this (well at least on morgellons) she is working closely with

> their research institute etc. She talks a lot about the endocrin break

> down. I dont want to post her email here, I would be happy to forward

> it to anyone though.

>

> p.s. Myrtle thanks for your cleansing file, I had Mel email it to me!

> Its great! looks so unbelievably strict, but I think there is a lot

> to diet and cleanses.

>

> z

>

[Guest guest]

z

could i get a copy sent to me also??

lucylu62@...

thanx!

--- fritolay66 <fritolay66@...> wrote:

> I am interested in receiving a forward of that if

> you would. Thank you very much. I am curious if it

> pertains to the health of my mother previous to her

> death and now my own experiences. Thanks a lot.

>

> zmooks <zuleikahwalker@...> wrote:

> Myrtle

>

> thanks for your informative email, I looked at those

> links - thank you.

> I know that the cdc want people to register with

> this, but I dont want

> to - I'm not very trusting these days:)

>

> We lived on Oahu for 6 years, I loved every day of

> it! At least you

> have beautiful salt water to swim in! boy I would be

> in that ocean

> daily if I was still in Hawaii.

> I bet the climate doesnt help with the mites though.

> I hate these

> things, they have even invaded paradise.

>

> I got a very interesting email from Trisha

> Springstin - she is very

> involved in this, I even saw her on the only

> documentary I have seen

> on this (well at least on morgellons) she is working

> closely with

> their research institute etc. She talks a lot about

> the endocrin break

> down. I dont want to post her email here, I would be

> happy to forward

> it to anyone though.

>

> p.s. Myrtle thanks for your cleansing file, I had

> Mel email it to me!

> Its great! looks so unbelievably strict, but I think

> there is a lot

> to diet and cleanses.

>

> z

>

>

>

>

>

>

> ---------------------------------

> Never miss a thing. Make your homepage.

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

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