Re: Info on Autism & Epilepsy

[Guest guest]

Hi Franco,

Dr. Goldberg has been presented with questions on this exact issue. I can't

remember off the top of my head if one of his papers has specific info, but

if you go into his conference area, click on search, and type in seizure,

you'll be able to bring up any questions/answers that have been posted.

Hope that helps.

Cheryl

http://www.neuroimmunedr.com/Conference/conference.html

Subject: Info on Autism & Epilepsy

> Hi group,

>

> Before I begin to trawl the net I thought I would ask the mailing list if

anyone has any experience with both the above. You see earlier this week we

had quite a severe episode with our son, Benedict, who is only 6. This was

the 3rd time (in 16 months) he has had a seizure and now the Doctors have

started to label him an epileptic.

>

> Anyone experience/information in this area would be welcome (good or bad)

as we need now to understand this new problem.

>

> Thanking you in advance.

>

> Franco

[Guest guest]

Franco, you might want to consider checking out the ketogenic diet and

epilepsy. I don't have a son with epilepsy but have a friend whose daughter

has benefitted from this approach. It may or may not eliminate the need for

medical control of the siezure disorder. Hope this helps.

[Guest guest]

Hi Franco,

I have had experience with both with my 8 yr old dx autism daughter. This is

very common because Autism is just a checklist disorder of the underlying

Neuro immune Disease. My daughter's immune system was reaticing to overload.

We had her on anti convulsents which have very dangerous side effects, which

stopped the seizures. Then, We did dietary eliminations, and Dr. Goldberg's

treatment protocol, and was able to get completely off of the anti

convulsents, and has been seizure free since Nov.95

Tina hendrix

In a message dated 7/27/00 3:52:26 PM Pacific Daylight Time,

franco.fiona@... writes:

<< Hi group,

Before I begin to trawl the net I thought I would ask the mailing list if

anyone has any experience with both the above. You see earlier this week we

had quite a severe episode with our son, Benedict, who is only 6. This was

the 3rd time (in 16 months) he has had a seizure and now the Doctors have

started to label him an epileptic.

Anyone experience/information in this area would be welcome (good or bad) as

we need now to understand this new problem.

Thanking you in advance.

Franco

>>

[Guest guest]

We just found out that our son has seizures in his sleep (through a 3 hour

sleeping EEG) and we are waiting for a MRI with contrast to see if there are

structural or cysts/tumor problems. He had a normal EEG before for about 20

minutes but that doctor dismissed us rather without being helpful. We had

never seen a seizure but his new neurologist thought that since he soils

himself often in his sleep and he's 6 years old that it was a possibility.

So we are doing bloodwook to see if he can tolerate Depakote Sprinkles and

praying that will help. I was so surprised that after all this time of PDD

and trying everything under the sun (since he was 1-1/2) searching for an

answer that we may have one and this list is discussing it!

Info on Autism & Epilepsy

Hi group,

Before I begin to trawl the net I thought I would ask the mailing list if

anyone has any experience with both the above. You see earlier this week we

had quite a severe episode with our son, Benedict, who is only 6. This was

the 3rd time (in 16 months) he has had a seizure and now the Doctors have

started to label him an epileptic.

Anyone experience/information in this area would be welcome (good or bad) as

we need now to understand this new problem.

Thanking you in advance.

Franco

[Guest guest]

If you go into Dr. Goldberg's articles (sorry can't remember which one) you

will see that seizures are yet another unfortunate manifestation of . It

really is logical and a wonder that more children do not have the seizures

considering the hypoperfusion to the different parts of the brain and the

resulting brain damage that eventually occurs if the child with autism is not

medically treated. Remember that seizures are caused by an area of damaged

brain tissue that does not allow the normal passage of the impulse. I'm not

sure how calling it epilepsy changes anything. In my mind it only

demonstrates a lack of understanding of . You can get to Dr. Goldberg's

site by going to neuroimmunedr.com Kathy r

[Guest guest]

Are you treating his PDD? neuroimmunedr.com

[Guest guest]

Increased permeability of the gut occurs with many disorders. It is hardly

unique to autism. It is usually a result of another disorder. Please go to

Dr. Goldberg's website and read the articles. PDD and other autistic

disorders are symptoms of an immune disorder. In order to get rid of the

symptom you have to attack the disease. I am familiar with Wakefield's work.

Read Dr. Goldberg. Kathy r

[Guest guest]

We have Benedict on a GF CF diet . We live in the UK and as such don't have

access to professionals with interests in autism, their title GP says it

all.

He has however been seen by Wakefields team at the Royal Free in

London. They found, as with many, if not all autistics, evidence of gut

damage. As a consequence we administer an anti-inflammatory called

sulfasalafine (I think) which seems to help and we give him pico sulphate, a

laxative to keep things moving, so to speak.

As an aside the week leading up to the seizure he was constipated, related?

Maybe, maybe not.

Re: Info on Autism & Epilepsy

> Are you treating his PDD? neuroimmunedr.com

>

>

>

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