Guest guest Posted September 1, 2003 Report Share Posted September 1, 2003 Yes, it is related. Its Autoimmune... All the best, " Parents should decide through informed choice, which vaccines if any should be given to their children " <A HREF= " http://www.vaccinetruth.org/ " >Vaccine Information</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 Lynda, Vaccine reactions can appear at any time during life, and those reactions will go to the weakest genetic link. Also, whatever the weakest genetic link may be from the parents, grand-parents, etc., at the time of conception from vaccines and vaccine damage will also appear in the child. We know that vaccines attach to the DNA of the host, and we know that in dogs that it takes anywhere from 3 to 5 generations to clear vaccine damage. It is only then that one will know what is actually genetic and what is vaccine damaged genetics. So there is no way a human would ever see long-term what they do or don't do. Jackie Noel www.sagaciousairedales.com www.sagacousdogcountry.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 Muscular dystrophy is an inherited problem - my cousin has it - inherited from his mother (a distant aunt to me) who is a carrier. It's mainly in boys - the type of problem that girls/women are carriers and only pass on to their sons. That's the way I understand it anyways Caroline > Does anyone know if there has ever been any research or possible link of Musular Dystrophy and vaccines? I have been watching the telethon and they mentioned more than once that it comes out of the blue to perfectly healthy individuals. They are now talking about numerous " neuromuscular diseases " on the telethon. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Just call the regional (not local ) office and ask them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 I see both my regular doctor and go to the MDA clinic. I generally only go to the MDA doctors when I need an MDA service, such as wheelchair repairs, authorized. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Simone, We live in KC and have never seen our local MDA clinic (long story) but we saw Dr. Bach when Brett was diagnosed 4-1/2 years ago and he is an MDA doctor- so whenver we need services, we just call Bach and he sends a letter to the local office and we get what we need. SO, I think once you are evaluated once you are eligible for services. But this is only our experience. Good luck! Kristal Mom to Brett- SMA II- 6 years old " Life is 10% what happens to you and 90% how you respond to it. " ~anonymous Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm MDA Question I was just wondering how many of you use MDA benefits but have your own Neurologist. I have been seeing MDA neuros since I was a kid, but since I moved up here the Doctor has his intern look at me and I maybe see my Neuro for 5 minutes if I'm lucky and they do the same basic stupid reflex tests and junk. It makes me feel like they think I'm gonna die anyway so why waste their time, ya know? Anyway, recently I was sent to another Neuro for Migraines because my MDA neuro couldn't squeeze me in for two months (what a shock), she seemed surprised that my MDA neuro never requested a PFT or an EKG on me ever. When I explained what had been going on, she offered to do my followup for SMA as well as my headache management. Will I still be eligible for stuff like wheelchair repairs and such if I change Neuros? Simone A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Thanks for the help, I'm just really tired of being treated that way. So, hopefully things will work out and I'll get to keep this new neurologist. Simone Album: http://community.webshots.com/user/ssegerter Website: http://www.geocities.com/sunshine9573 " Character cannot be developed in ease and quiet. Only through experience of trial and suffering can the soul be strengthened, vision cleared, ambition inspired, and success achieved. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Yes, you can still get other benefits such as wheelchair repair. I haven't seen an MDA neurologist in years. L Simone wrote: > Will I still be eligible for stuff like wheelchair repairs and such if > I change Neuros? > > Simone > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Good luck with the new neurologist, Simone. I actually didn't use my MDA clinic between the ages of 14-36, and have only gone there 2x in the last 3 years. I'm sure it has a lot to do with what type of insurance one has and if there are specialists nearby, but I've been able to use my Medicaid, and later add in an HMO, along with a general practitioner to order most of my medical equipment over the years including wheelchairs. Occasionally I am referred by my GP to a pulmonologist for ventilator settings. The wheelchair vendor's in-house OT helped with ordering my chair and my GP signed off on it. I got a referral from my GP to see a urologist and an infectious disease specialist when those issues became pertinent, and I get a prescription to see an orthotist when my body jacket needs work. The MDA clinic was very helpful when I was young and trying to figure out what I need, but now I only use it for highly specialized things like trouble with swallowing specifically due to a neuromuscular disease. I didn't even use the clinic when I went on a ventilator; my local pulmonologist and the hospital RT staff did fine work assessing me and setting up my equipment. I had a fair amount of trouble with the MDA neurologist thinking my health care priorities should be different than what mine are, though, she did give me two very good referrals. I hear she's moved on. Maybe I'll feel better respected by the new one if I ever go there for services. As for paying for things, MDA has paid for 1/2 a wheelchair ramp. When I requested headlights for my wheelchair, they denied them because they weren't medical equipment. I'm lucky Medicaid has paid for the medical equipment I've needed, and I know this is different in every state. Alana Quote Link to comment Share on other sites More sharing options...
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