Re: Rich & Autism One & exquisiteness in hearing

[Guest guest]

Hi,

I didn't hear Rich on the program because I was actually going out

into the world and doing something. Now I am in bed paying for it.

In regard to music, since I have been sick I have not liked music

much. I used to love it - almost any kind of music. It throws me off

now. Besides that I have songs going through my head all the time and

would love some silence. It's like the " music center " in my brain is

hyperactive or something.

I don't know if this is what you mean.

Michele G

>

> Rich and all,

>

> I was listening to Rich's participation in the program on Autism One

Radio

> this morning, and as soon as " hearing " was mentioned I thought of

> something. Now this is something that's particular to me, and

pretty weird

> and snarky besides, but I'm wondering if anyone else has anything

similar

> that they can relate to it. And I'm wondering where it fits in, in

the CFS

> -- autism spectrum, if indeed there is one. I'll describe the

situation

> that occurred.

>

> Last year I was in a brief conversation with a male who was about my

> age. He was 55 and I was 58, so we grew up in about the same time

frame,

> and we also both grew up in central or northern Illinois. The

subject of

> the conversation was " rock music. "

>

> I have a particular affinity for early rock music -- the stuff from

the 50s

> and 60s. He, the man, said he couldn't stand any of it -- except

for one

> group, he said, that he liked because he liked the " harmony. " The

> group? The Beach Boys.

>

> When he said " Beach Boys, " I went off the deep end, because I've always

> hated the group and thought they were particularly annoying and

> dissonant. Harmony?...what harmony? The Beach Boys are dissonant

and they

> hurt my ears.

>

> When I hear the Beach Boys, they are always " off key " to me, if only

just a

> little bit -- and my ears actually hurt, my brain hurts, and I screw up

> (tighten up, constrict) my face and head until the noise, the

racket, goes

> away (the song ends).

>

> When I heard " hearing " mentioned again in Rich's interview on Autism

One

> Radio, this is what I was remembering, and it occurred to me that

this is

> different than " loud noises " or " high-pitched noises " or " nearby

> noises. " This is " exquisite noise " or the perception of some sound

in an

> " exquisite " way.

>

> Anyone have anything to relate to this? Doesn't matter to me if you

think

> I'm cuckoo, just tell me. I appreciate any insight into this at all.

>

> Thanks ahead of time,

>

>

> still in Champaign IL

>

>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.1.394 / Virus Database: 268.8.2/357 - Release Date: 6/6/2006

>

[Guest guest]

I don't have a clue to what you are trying to communicate.

Sorry, Sue T

Capel <kcapel@...> wrote:

Rich and all,

I was listening to Rich's participation in the program on Autism One Radio

this morning, and as soon as " hearing " was mentioned I thought of

something. Now this is something that's particular to me, and pretty weird

and snarky besides, but I'm wondering if anyone else has anything similar

that they can relate to it. And I'm wondering where it fits in, in the CFS

-- autism spectrum, if indeed there is one. I'll describe the situation

that occurred.

Last year I was in a brief conversation with a male who was about my

age. He was 55 and I was 58, so we grew up in about the same time frame,

and we also both grew up in central or northern Illinois. The subject of

the conversation was " rock music. "

I have a particular affinity for early rock music -- the stuff from the 50s

and 60s. He, the man, said he couldn't stand any of it -- except for one

group, he said, that he liked because he liked the " harmony. " The

group? The Beach Boys.

When he said " Beach Boys, " I went off the deep end, because I've always

hated the group and thought they were particularly annoying and

dissonant. Harmony?...what harmony? The Beach Boys are dissonant and they

hurt my ears.

When I hear the Beach Boys, they are always " off key " to me, if only just a

little bit -- and my ears actually hurt, my brain hurts, and I screw up

(tighten up, constrict) my face and head until the noise, the racket, goes

away (the song ends).

When I heard " hearing " mentioned again in Rich's interview on Autism One

Radio, this is what I was remembering, and it occurred to me that this is

different than " loud noises " or " high-pitched noises " or " nearby

noises. " This is " exquisite noise " or the perception of some sound in an

" exquisite " way.

Anyone have anything to relate to this? Doesn't matter to me if you think

I'm cuckoo, just tell me. I appreciate any insight into this at all.

Thanks ahead of time,

still in Champaign IL

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.1.394 / Virus Database: 268.8.2/357 - Release Date: 6/6/2006

[Guest guest]

On Jun 6, 2006, at 5:46 PM, Sue T wrote:

> I don't have a clue to what you are trying to communicate.

> Sorry, Sue T

I get it. Completely.

, start googling " auditory processing disorders. " This sounds

for all the world like you might have one.

They can be genetically passed in families (and endemic in mine); are

an important factor in autisim; and can be acquired even by non-

affected people through changes in the CNS (like those brought on by

menopause or CFS).

And they do make people very sensitive to certain combinations of

sounds. Everybody's got their own special set, but they are a sign of

an underlying cognitive problem.

The good news: APD can be fixed.

Sara

>

> Capel <kcapel@...> wrote:

> Rich and all,

>

> I was listening to Rich's participation in the program on Autism

> One Radio

> this morning, and as soon as " hearing " was mentioned I thought of

> something. Now this is something that's particular to me, and

> pretty weird

> and snarky besides, but I'm wondering if anyone else has anything

> similar

> that they can relate to it. And I'm wondering where it fits in, in

> the CFS

> -- autism spectrum, if indeed there is one. I'll describe the

> situation

> that occurred.

>

> Last year I was in a brief conversation with a male who was about my

> age. He was 55 and I was 58, so we grew up in about the same time

> frame,

> and we also both grew up in central or northern Illinois. The

> subject of

> the conversation was " rock music. "

>

> I have a particular affinity for early rock music -- the stuff from

> the 50s

> and 60s. He, the man, said he couldn't stand any of it -- except

> for one

> group, he said, that he liked because he liked the " harmony. " The

> group? The Beach Boys.

>

> When he said " Beach Boys, " I went off the deep end, because I've

> always

> hated the group and thought they were particularly annoying and

> dissonant. Harmony?...what harmony? The Beach Boys are dissonant

> and they

> hurt my ears.

>

> When I hear the Beach Boys, they are always " off key " to me, if

> only just a

> little bit -- and my ears actually hurt, my brain hurts, and I

> screw up

> (tighten up, constrict) my face and head until the noise, the

> racket, goes

> away (the song ends).

>

> When I heard " hearing " mentioned again in Rich's interview on

> Autism One

> Radio, this is what I was remembering, and it occurred to me that

> this is

> different than " loud noises " or " high-pitched noises " or " nearby

> noises. " This is " exquisite noise " or the perception of some sound

> in an

> " exquisite " way.

>

> Anyone have anything to relate to this? Doesn't matter to me if you

> think

> I'm cuckoo, just tell me. I appreciate any insight into this at all.

>

> Thanks ahead of time,

>

>

> still in Champaign IL

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.1.394 / Virus Database: 268.8.2/357 - Release Date:

> 6/6/2006

>

>

>

>

>

>

>

[Guest guest]

Hi Michele. Thank you! Yes, I think it's related, tangential in

some way. The " hyperactivity " I think may be the same thing either

expressed in a different way or we're perceiving it in our own

particular ways.

I think it is related. Thank you for your input. I hope someone

else pipes up.

Before I forget. The " songs going through your head " is not tinnitus

(like I have), right? You mean melodies you hear in your head and

you can't get your concentration to go elsewhere?

PS. I haven't done anything all day and I'm " paying for it " too! So,

at least you got something useful done. Today I'm hard-pressed to

even walk across a room. Argh.

>

> Hi,

> I didn't hear Rich on the program because I was actually going out

> into the world and doing something. Now I am in bed paying for it.

>

> In regard to music, since I have been sick I have not liked music

> much. I used to love it - almost any kind of music. It throws me off

> now. Besides that I have songs going through my head all the time

and

> would love some silence. It's like the " music center " in my brain is

> hyperactive or something.

>

> I don't know if this is what you mean.

> Michele G

>

[Guest guest]

I'll be darned. APD? Thank you, Sara. I wonder how else it affects

me. I really do hate the Beach Boys and don't care about " fixing "

that!

Thank you so much, Sara.

>

> > I don't have a clue to what you are trying to communicate.

> > Sorry, Sue T

>

> I get it. Completely.

>

> , start googling " auditory processing disorders. " This sounds

> for all the world like you might have one.

>

> They can be genetically passed in families (and endemic in mine);

are

> an important factor in autisim; and can be acquired even by non-

> affected people through changes in the CNS (like those brought on

by

> menopause or CFS).

>

> And they do make people very sensitive to certain combinations of

> sounds. Everybody's got their own special set, but they are a sign

of

> an underlying cognitive problem.

>

> The good news: APD can be fixed.

>

> Sara

>

[Guest guest]

Hi,

I have the same kind of problems with music too. I have a lot of

neurological and cognitive problems in general but I find my

perception of music is one of the things that has changed.

Very often I even wake up with something really annoying like the

horrible theme tune of some dreadful tv advert going through my mind

and it keeps coming back during the course of the day and for days,

it makes me cringe, the more I hate the music the harder it seems to

stop it.

I used to love music but now I rarely listen to it because usually it

jars and irritates me so much.

the other thing that really drives me nuts is how difficult it is to

concentrate on those movies with loud, unnecessary orchestral

soundtracks added to them.

-its so dreadful, especially when there is nothing much happening

onscreen and so they play all that loud discordant 'dramatic' music

to make out that it is exciting

-I hate that wind you up stressy type of orchestra music especially!

This kind of music spoils most films for me and I have to turn the

sound off quickly or I think I will explode

-I have had to give up on trying to watch countless otherwise

watchable movies because the discordant orchestra music is too

intolerable for me.

What can be done to cure this problem with music tolerance?

best wishes

yvonne

-- In , " netsukeme " <kcapel@...>

wrote:

>

> Hi Michele. Thank you! Yes, I think it's related, tangential in

> some way. The " hyperactivity " I think may be the same thing either

> expressed in a different way or we're perceiving it in our own

> particular ways.

>

> I think it is related. Thank you for your input. I hope someone

> else pipes up.

>

> Before I forget. The " songs going through your head " is not

tinnitus

> (like I have), right? You mean melodies you hear in your head and

> you can't get your concentration to go elsewhere?

>

>

> PS. I haven't done anything all day and I'm " paying for it " too!

So,

> at least you got something useful done. Today I'm hard-pressed to

> even walk across a room. Argh.

>

>

>

> >

> > Hi,

> > I didn't hear Rich on the program because I was actually going out

> > into the world and doing something. Now I am in bed paying for it.

> >

> > In regard to music, since I have been sick I have not liked music

> > much. I used to love it - almost any kind of music. It throws me

off

> > now. Besides that I have songs going through my head all the time

> and

> > would love some silence. It's like the " music center " in my brain

is

> > hyperactive or something.

> >

> > I don't know if this is what you mean.

> > Michele G

> >

>

[Guest guest]

On Jun 6, 2006, at 6:17 PM, wrote:

> What can be done to cure this problem with music tolerance?

Google this: Berard Auditory Integration.

Sara

[Guest guest]

Hi,

This is all very interesting. A long time ago, before I became really

sick I was a speech and language therapist. We used to really get into

auditory processing, and I never heard of this type of thing. But what

has been happening to me is the song or tune getting stuck in my head

and it just won't leave. I know that this is not abnormal in " norma; "

people, as I have read references about it, but in me it is

unrelenting. And really obnoxious music. I thought at one point that

it was related to the metal in my mouth, as it got really worse when I

had a gold onlay put on a tooth, and as soon as that thing went in I

became really crabby and songs like " 76 Trombones " , which I hate,

would play over and over in my head and I couldn't stand it. When that

onlay was removed and the temporary replaced at least " 76 Trombones "

went away and I was a much nicer person.

In addition I grind my teeth in tune to the song. Really drives me

nuts. I have some TMJ problems, especially since some dental work

threw my bite off. I also have tenitus - ringing in my ears,

especially when I'm extra tired and at night. Fortunately I have air

filters and the white noise masks the tenitus. So all in all I have my

own home entertainment system built into my head. Now to figure out

how to have it removed.

I can usually stand to watch movies and TV, but if the music is bad I

can't stand it. Also, can't stand the noise of the football and

baseball games my husband watches.

I would be really interested to know how widespread this music

intolerance, songs in the head thing is in CFIDS/ME people.

Michele G

> > >

> > > Hi,

> > > I didn't hear Rich on the program because I was actually going out

> > > into the world and doing something. Now I am in bed paying for it.

> > >

> > > In regard to music, since I have been sick I have not liked music

> > > much. I used to love it - almost any kind of music. It throws me

> off

> > > now. Besides that I have songs going through my head all the time

> > and

> > > would love some silence. It's like the " music center " in my brain

> is

> > > hyperactive or something.

> > >

> > > I don't know if this is what you mean.

> > > Michele G

> > >

> >

>

[Guest guest]

Hi Michele,

Is it possible that the metal in the teeth could be acting sort of

like an antenna of some kind? That sounds kind of nuts, but it

sounds like you keep getting " tuning forks " introduced into your

mouth and the received (how?) sound gets transmitted to your brain.

I don't have that, thank heaven, but I do have tinnitus in the left

ear. I think my problem is more of an " acuteness " problem of some

sort. It probably also explains why, when I took piano and violin

lessons (separately), I never could learn to read music -- but I

always " played by ear. " I used to sing in choirs a lot too, and I

always sang by ear then, too. All kinds of music in my history and

none of it involving the reading of any actual notes. I never could

master that. It was all " done by ear. "

Intersting stuffs!

in Champaign IL

>

> Hi,

> This is all very interesting. A long time ago, before I became

really

> sick I was a speech and language therapist. We used to really get

into

> auditory processing, and I never heard of this type of thing. But

what

> has been happening to me is the song or tune getting stuck in my

head

> and it just won't leave. I know that this is not abnormal

in " norma; "

> people, as I have read references about it, but in me it is

> unrelenting. And really obnoxious music. I thought at one point that

> it was related to the metal in my mouth, as it got really worse

when I

> had a gold onlay put on a tooth, and as soon as that thing went in I

> became really crabby and songs like " 76 Trombones " , which I hate,

> would play over and over in my head and I couldn't stand it. When

that

> onlay was removed and the temporary replaced at least " 76 Trombones "

> went away and I was a much nicer person.

>

> In addition I grind my teeth in tune to the song. Really drives me

> nuts. I have some TMJ problems, especially since some dental work

> threw my bite off. I also have tenitus - ringing in my ears,

> especially when I'm extra tired and at night. Fortunately I have air

> filters and the white noise masks the tenitus. So all in all I have

my

> own home entertainment system built into my head. Now to figure out

> how to have it removed.

>

> I can usually stand to watch movies and TV, but if the music is bad

I

> can't stand it. Also, can't stand the noise of the football and

> baseball games my husband watches.

>

> I would be really interested to know how widespread this music

> intolerance, songs in the head thing is in CFIDS/ME people.

> Michele G

>

>

[Guest guest]

Hi ,

I think in the case of that particular tooth it was. I since have had

full mouth restoration and all the dissimilar metals removed and only

used one metal that I tested out for on the Clifford test. So now if

it is that metal, it is only one, instead of a metal soup. But I don't

know for sure.

BTW, my sister claimed to pick up a radio station on her teeth. I

wouldn't have believed it, but i read in Dear Abby about that

happening to a few people.

Michele g

> >

> > Hi,

> > This is all very interesting. A long time ago, before I became

> really

> > sick I was a speech and language therapist. We used to really get

> into

> > auditory processing, and I never heard of this type of thing. But

> what

> > has been happening to me is the song or tune getting stuck in my

> head

> > and it just won't leave. I know that this is not abnormal

> in " norma; "

> > people, as I have read references about it, but in me it is

> > unrelenting. And really obnoxious music. I thought at one point that

> > it was related to the metal in my mouth, as it got really worse

> when I

> > had a gold onlay put on a tooth, and as soon as that thing went in I

> > became really crabby and songs like " 76 Trombones " , which I hate,

> > would play over and over in my head and I couldn't stand it. When

> that

> > onlay was removed and the temporary replaced at least " 76 Trombones "

> > went away and I was a much nicer person.

> >

> > In addition I grind my teeth in tune to the song. Really drives me

> > nuts. I have some TMJ problems, especially since some dental work

> > threw my bite off. I also have tenitus - ringing in my ears,

> > especially when I'm extra tired and at night. Fortunately I have air

> > filters and the white noise masks the tenitus. So all in all I have

> my

> > own home entertainment system built into my head. Now to figure out

> > how to have it removed.

> >

> > I can usually stand to watch movies and TV, but if the music is bad

> I

> > can't stand it. Also, can't stand the noise of the football and

> > baseball games my husband watches.

> >

> > I would be really interested to know how widespread this music

> > intolerance, songs in the head thing is in CFIDS/ME people.

> > Michele G

> >

> >

>

[Guest guest]

Isn't that interesting! I bet you have some genetic thing with your

auditory nerve and/or the processing? Your sister and you, I mean,

both having similar events. I'm not sure which I'd pick if I had a

choice -- the radio station or " 76 Trombones " ! It could have been " You

Light Up My Life " by Debbie Boone, Michele! I guess you're supposed

to be thankful for small favors?

Can you tell me what the Clifford test is?

>

> Hi ,

> I think in the case of that particular tooth it was. I since have had

> full mouth restoration and all the dissimilar metals removed and only

> used one metal that I tested out for on the Clifford test. So now if

> it is that metal, it is only one, instead of a metal soup. But I

don't

> know for sure.

> BTW, my sister claimed to pick up a radio station on her teeth. I

> wouldn't have believed it, but i read in Dear Abby about that

> happening to a few people.

> Michele g

>

[Guest guest]

Oh yeh. Now that little song will be playing! :-)

The Clifford tests compatable dental materials. Dental materials that

you do/don't react to.

Michele G

> >

> > Hi ,

> > I think in the case of that particular tooth it was. I since have had

> > full mouth restoration and all the dissimilar metals removed and only

> > used one metal that I tested out for on the Clifford test. So now if

> > it is that metal, it is only one, instead of a metal soup. But I

> don't

> > know for sure.

> > BTW, my sister claimed to pick up a radio station on her teeth. I

> > wouldn't have believed it, but i read in Dear Abby about that

> > happening to a few people.

> > Michele g

> >

>

[Guest guest]

I could have said " House of the Rising Sun " by the Animals and you'd

never sleep again, Michele! " The Lion Sleeps Tonight " ?

Thank you, Michele. Sweet dreams! Ting-tang-walla-walla-bing-bang!

>

> Oh yeh. Now that little song will be playing! :-)

> The Clifford tests compatable dental materials. Dental materials that

> you do/don't react to.

> Michele G

>