Re: Infections/NCF?/a/Beach?

June 4, 2006

Beach,

What is your real name?

My real name is a Carnes. I use it at some personal risk, but I

figure people's lives are worth some honesty on my part since I have

had the temerity to write a few medical articles and speak before the

NIH and CDC on behalf of patients.

Perhaps you would like to write the CFIDS Association with this

request using your actual name. This might amount to economy of risk.

a Carnes

>

> a,

>

> Why not ask the CFIDS Association to do this....after all, they

> bring in $2,000,000 per year..... This would be a drop in the

> bucket to them. As for the NCF, they have spent $ 350,000

> thus far on their research. The CFIDS Association has spent

> ten times that thus far. It's economies of scale!

>

> Beach

>

> > > >

> > > > ,

> > > > Let me try to make my point again.

> > > >

> > > > 1. The NCF used DeMeirleir's research on Stat 1 and his

patent

> > > > information which is public domain knowledge, but did not

give

> > him

> > > > any credit - no footnoted link to his studies.

> > > >

> > > > 2. The NCF funded research on a virus which may or may not

have

> > much

> > > > to do with causing cfs.

> > > >

> > > > 3. DeMeirleir, who is arguably the foremost researcher along

with

> > > > Suhadolnik and Englebienne on this whole question, has not

> > indicated

> > > > that he feels a virus is the responsible infection for the

> > downstream

> > > > destruction of RNaseL or stat 1. Indeed, he gives at least

equal

> > > > responsibility to both viruses and bacteria. MY QUESTION ALL

> > ALONG

> > > > HAS BEEN WHY DOESN'T THE NCF LOCATED IN THE HEART OF LYME

COUNTRY

> > > > FUND RESEARCH INTO BACTERIAL INFECTIONS THAT COULD DAMAGE THE

> > RNASEL

> > > > PATHWAY? Please note that patients with borrelia often are

also

> > > > carrying mycoplasma mentioned by DeMeirleir as affecting

RNaseL

> > and

> > > > stat 1.

> > > >

> > > > Cort doesn't go deeply into stat 1 since this was not

> > covered

> > > > in depth in DeMeirleir's book. DeMeirleir does mention

repeatedly

> > > > that the virus infections found in cfs may be opportunistic

and

> > that

> > > > bacteria such as mycoplasma can alter the RNaseL pathway.

Also,

> > in

> > > > DeMeirleir's treatment protocol he used both Ampligen and

> > antibiotics

> > > > alternating each 4 months at a time. I don't think he uses

> > Ampligen

> > > > at all anymore, probably because it causes further

degradation of

> > > > stat 1 - again this LOOKS LIKE a virus is not the cause

according

> > to

> > > > DeMeirleir as Ampligen is used to treat viral infections.

> > Hemespherix

> > > > has started researching the use of Ampligen for AIDS after

all.

> > > >

> > > > Here is another quote from Cort's summary just to make the

point

> > > > again.

> > > >

> > > > http://www.phoenix-cfs.org/The%20SITE/CFSABAVI.htm

> > > >

> > > > " Another possible factor in the apoptotic disregulation seen

is

> > the

> > > > high number of opportunistic infections CFS patients have.

> > Viruses,

> > > > chlamydia and mycoplasma are all able to inhibit apoptosis.

(We

> > will

> > > > see later that mycoplasmas also appear to be able to fragment

> > RNase

> > > > L. Opportunistic infections can also aggravate the

pathogenic

> > > > process in CFS by disrupting metabolic pathways and cytokine

> > > > production. G-actin cleavage undoubtedly negatively effects

> > antigen

> > > > presentation and phagocytosis. "

> > > >

> > > > a Carnes

> > > > >

> > > > > ***This link has no mention or reference to STAT-1 so does

> > nothing

> > > > to answer the question. In fact, Cort's

> > > > > entire summary of DeMeirleir's book at the phoenix-cfs.org

site

> > is

> > > > fairly thin on STAT-1 commentary.

> > > > >

> > > > > ***It is a summary, so perhaps that explains it.

Nevertheless,

> > the

> > > > STAT-1 question I ask regarding its plausible depletion as a

> > result

> > > > of upstream ATP production problems in PWCs, before and more

than

> > > > what PIV-5 virus exposure might do, remains.

> > > > >

> > > >

> > >

> >

>

June 5, 2006

What makes some of us think " Beach " is an AKA? Remember River Pheonix? How

about Moon Zappa? I know plenty of people with earth or universe names. I

myself have a niece named Prairie. What's the problem?

Jill McLaughlin <jillmclaughlin@...> wrote:

Of course there are legitimate reasons for using a different name. But there

are also not-so-legitimate reasons. If people have been asking over time

there must be reasons why they are suspicious (and most do not keep

insignificant posts from 2 years ago). We are well aware that there are

those who make people up or use fake ids to support their position or

pretend to support their organizations. Most pick up on writing styles,

phrases, lots of exclamation points. In many instances it is rather obvious

who people really are - and why they invent fake identities.

Jill