Addendum Re: C-Reactive Protein / Inflammation

[Guest guest]

Hi Teena,

I dont understand ANY of those test results you mentioned - but I can

really identify with the feeling!

As far as I know, CFIDS, and CFS, are not the names of specific

diseases or illnesses at all, but only rather vague 'labels'.

I have been led to understand that they are only very

broad 'umbrella terms' that have purposely been designed so a doctor

can give you a loose 'diagnosis' and dismiss you without further

investigation or proper treatment.

I think the word 'Syndrome' that they use; just means 'a group of

symptoms'!

and I think that CFIDS/CFS is an extremely broad term that probably

encompasses about a dozen different possible diseases;

but proper investigation and treatment of these diseases is

obviously a lot more expensive than dishing out antidepressants.

C'est la Vie, eh? money talks.

In fact, I dont think we are supposed to notice,

that not everybody even has to share the same symptoms to get the

same 'diagnosis'.

my memories not great of course so dont quote me ok?

but I think there are 8 'diagnostic symptoms'

and you needed to have 4 out of 8 to qualify for the lucky CFIDS/CFS

label.

In fact, I have reached the conclusion that the CFIDS/CFS/ diagnosis

is just an insult to our intelligence, really.

I think it is a way to artificially and falsely try to link our far

more serious diseases, with the much less serious 'chronic fatigue;

and in fact it seems as if an lot of people who should know better

dont seem to even know the difference between them - that includes

most journalists and even quite a few doctors by all accounts.

I am pretty sure (at least over here in the UK)

that you can have

depression, headaches, sore throats and swollen glands;

and receive the exact same CFS/CFIDS 'diagnosis' as somebody with

muscle pain, multi-joint pain, post-exertional illness and cognitive

problems.

'Fatigue' itself isnt even among these CDC criteria symptoms, not at

least according to my notes from the ME specialist over here.

I dont have the brain power to list them all now because I

have 'cognitive problems'

but there are a number of perhaps treatable, perhaps serious, other

diseases that your doctor will not normally have investigated,

and I think it is even worse in the UK than in the states-

(but I am not suggesting 'its alright for you' because I know darn

well it isnt ok?)

My own Gp labelled me 'CFS' too, and guess what-I dont even suffer

from fatigue!!

my best wishes

>

>

> Wow. I posted this before reading the post from qqtip2001 on 5/15/06

> " Would like to know if anyone familar with test results in light of

> CFIDs " that Rich responded to. Now I am really confused! I have a

> positive sensitive C-RP, elevated liver enzymes, hypothyroidism,

and am

> hypercoagulable on Coumadin. I am not sure about the current sed

rate. I

> know it has mostly been around 1-2 but once it spiked up to 19. I

also

> have a 6 year diagnosis of CFIDs. Now I am wondering if I really

have

> CFIDs???? ...Something else ....or a combination of stuff.

>

> Teena

>

> On Wed, 17 May 2006 17:48:50 -0500 rudedog89@... writes:

> > Dear Rich / Group:

> >

> > My results from my sensitive CRP test were positive. Just

wondering

> > if

> > this could be another anomaly that PWCs have or is it just me? I

> > realize

> > the CRP has to do with inflammation in the body but have less

> > understading of the purpose of the sensitive CRP...only that it

has

> > something to do with heart, arteries and valves (according to the

> > doctor). Also, my liver enzymes are elevated. Could any of this be

> > related? Thanks ahead for any comments.

> >

> > Teena

> >

> >

> >