Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 there all crap that i seen vin --- bhammanuk@... wrote: --------------------------------- Hi I want to look into what the state of my health is like after a year of trying to rebuild it - Does anyone know what the Best UK CFS/ME doctors for referral maybe ? Regards CS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Hi CS, I was in the UK about 10 years ago and I was seen at the Oxford University CFS clinic - by a Dr Sharpe I think. I since heard that there was a 2 year wait to see the doctors at the CFS clinic there! I was working for a Doctor in Harley Street at the time and I got an introduction that way. I have no idea if the people at Oxford are still considered forefront? How about Leon Chaitow....I think he had a practise in the south of England somewhere. ......I guess you REALLY need to see someone who's on the same page as you treatment wise, and someone who is very well read on current thinking about CFS. I'll be looking for a doctor myself again soon. My worst fear is consulting with someone who only understands half what I do about the liver detoxification pathways, heavy metal poisoning etc.... I feel I have wasted enough money seeing doctors who can see only one small piece of the jigsaw. I wish you luck finding someone. I'm sure a current UK resident will be able to help you better. Anne. > > Hi > > > I want to look into what the state of my health is like after a year of > trying to rebuild it - Does anyone know what the Best UK CFS/ME doctors for > referral maybe ? > > > Regards > CS > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Hi Anne and CS, I saw Leon Chaitow years ago and he was abysmal on CFS and ME. I mentioned to him some of the work Rich was producing on Glutathione and this was news to him. It did spark and interest I believe and he has improved since then (I've been told) but he is well behind experienced people on this list. The only person I can think of is Dr Ian Hyams (who once worked with Dr Cheney in the USA). He has moved to Canada but does visit London. 0148 1238437 is the last number I had for his clinic. If that doesn't work try 0207 4367827 Good luck Kindest regards, Annette Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Hi All, I'm surprised no-one has mentioned Myhill? www.drmyhill.co.uk Phil > > Hi > > > I want to look into what the state of my health is like after a year of > trying to rebuild it - Does anyone know what the Best UK CFS/ME doctors for > referral maybe ? > > > Regards > CS > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 > > Hi > > > I want to look into what the state of my health is like after a year of > trying to rebuild it - Does anyone know what the Best UK CFS/ME doctors for > referral maybe ? > > > Regards > CS .........come on CS the whole reason we have searched out for alternative sources is because of the general attitude/mentality of any so called CFS/ME specialist/********* regards and good luck in your pursuit Dianne > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 Deara list, I've often exchanged emails with Dr. McLaren of www.biolab.co.uk I have found him to be a very inteligent man. A quote from one of his emails today in reference to CFS: " We would do an ATP profile, and if necessary, detailed studies of the translocator protein in the mitochondrial membranes (see our web site - www.biolab.co.uk/screens). It would also be important to check superoxide dismutase function. If zinc/copper SODase coded on chromosome 21 or Manganese SODase coded on chromosome 6 is seriously depleted it could account for most of what you describe. " I don't think he is in private practice but biolad may refer. Blake Re: Best UK doctors for referral there all crap that i seen vin --- bhammanuk@... wrote: --------------------------------- Hi I want to look into what the state of my health is like after a year of trying to rebuild it - Does anyone know what the Best UK CFS/ME doctors for referral maybe ? Regards CS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 They have a referral list at: http://www.biolab.co.uk/reflist.html Re: Best UK doctors for referral there all crap that i seen vin --- bhammanuk@... wrote: --------------------------------- Hi I want to look into what the state of my health is like after a year of trying to rebuild it - Does anyone know what the Best UK CFS/ME doctors for referral maybe ? Regards CS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 I think it depends on whether you agree with her protocol - from my standpoint I wouldnt see her. Regards Cs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 " Hi All, I'm surprised no-one has mentioned Myhill? www.drmyhill.co.uk Phil " It depends whether you agree with her theory - its a non starter for me. Regards Cs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 " come on CS the whole reason we have searched out for alternative sources is because of the general attitude/mentality of any so called CFS/ME specialist/********* regards and good luck in your pursuit Dianne " I disagree - I think there have been a few metnioned that Im considering on looking into ie Biolab Dr's / s clinic/ Hazel Duprez in UK. Regards CS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 Hi, CS. For what it's worth, I think Dr. Myhill has a big part of it right, i.e. the mitochondrial dysfunction. She works with Dr. at Biolab for testing, as you know, and he has not found glutathione to be a major factor except in the PWCs who have chemical exposure. I'm still interacting with them about this part. I've just committed to coauthoring a paper with Dr. Myhill on mitochondrial dysfunction in CFS. I think it will take a few months to get it together, but I'm hopeful that it will be a good paper and will focus the attention of researchers on this aspect. I think we have a very good case for mitochondrial dysfunction, and Dr. 's ATP Profile clinches it rather directly. Rich > > > " Hi All, > > I'm surprised no-one has mentioned Myhill? www.drmyhill.co.uk > > Phil " > > It depends whether you agree with her theory - its a non starter for me. > > Regards > Cs > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2006 Report Share Posted May 4, 2006 This is one reason I think many more PWC's should have hyperbaric treatments available to them. Mild chambers are more than sufficient. I know that slowly more and more alt. docs are starting to get them. I hope this continues. > > > > > > " Hi All, > > > > I'm surprised no-one has mentioned Myhill? > www.drmyhill.co.uk > > > > Phil " > > > > It depends whether you agree with her theory - its a non starter > for me. > > > > Regards > > Cs > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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