re 'plastic'

[Guest guest]

Hi ,

I know exactly what you mean and I agree with you, it is quite awful

what being disabled for ten years (esp with a 'controversial'

illness) will do to your credit rating, not to mention your whole

life.

The only thing that surprises me is; that there is anyone who has had

this type of chronic debilitating disease for a length of time, who

can still afford to pay for a private doctor, or afford any kind of

fancy expensive protocol; or even eat organic fruit and vegetables -

well I know I can't.

I have found out about four exciting new supplements by following up

information I have received since joining this group.

I cleaned myself right out buying the first one; hopefully it is the

most important, because now I will have to wait and see.

Because if my UK national health service ME specialist can't or won't

prescribe them........then they will have to wait until next year.

If you are wondering if I might be exaggerating; I cant disclose the

size of my debts obviously, but I can tell you that they are very

scary and my household budget, for all groceries (including feeding

my welsh border collie dog); is a maximum of £21.00 per week.

I am very lucky, in that there is still a national health service

over here at all,(even if it may only be paying lip service to

helping people with diseases like ours);

and that I have paid my national insurance dues all my life before I

was sick; so now at least I can claim incapacity benefit; and I dont

have to find more cash to get the pain medicines prescribed by my NHS

GP.

I think there are a great many people out there who are so much worse

off than I am,

and at least (so far) I still have my computer and access to the

internet, the majority are not so fortunate I am certain.

What makes me cross, though, is that I feel very badly stigmatised

now I have been stuck with this extremely biased and

inappropriate `CFS' label.

Considering I am now housebound and have had my whole life wrecked by

this illness, I feel very angry and humiliated when I have to endure,

time and time again, the sneering attitude of so many NHS medical

personnel; who appear to find my situation trivial or even highly

amusing, because they have been totally misinformed about the true

nature of this illness and how serious it is.

This gross mistreatment and rudeness adds to my already considerable

suffering and distress, and along with my cognitive difficulties

makes it doubly difficult to get the kind of practical help I that I

badly need.

I ramble. I apologise.

all the best

> >

> >

> > When I said I hadn't " used plastic in many years " I was

referring

> to

> > using plastic charge cards -- nothing at all to do with plastic

> > versus glass containers. I don't charge things onto a plastic

> charge

> > card -- I generally shop locally, directly and in person.

> >

> >

> >

> > Oh, thats great if it works for you, I can't afford not to shop

> at the discount online vite places and the things that help me most

I

> couldn't get here locally anyway. Course with Swansons or any other

> mail order you can always mail a check in with your order too, you

> don't need to use 'plastic'.

> > [...]

> > Marcia

> >

> >

>