Re: Re: Whey, Glutathione, Specific Carbohydrate Diet/shakerz25

[Guest guest]

Hi,

I would not waste your time guessing . . .have you considered the Genetic

testing from www.testing4health.com ? Rich and myself have suggested this

several times on the this list. I have tried your route and it did not work for

me . . I believe you need to find out your genetics first and then follow that

path. I am using Dr. Amy Yasko at this point with the support of several other

doctors and I am having progress(but slow as expected).

This is the best advice I can give after fighting this illness for 18 years.

Best wishes, Sue T

shakerz25 <shakerz25@...> wrote:

Thank your for the reply. I tried Immunocal in the distant past,

nothing. More recently I tried Metagenics whey, and Renewpro, which

are " non-denatured " whey, and saw no benefit. Maybe they were doing

something, but I didn't see it. My understanding is these are the

high-quality whey products you describe, and the price tag leads one

to believe that they might not be inferior.

If they don't do anything, why? Maybe blocks in the methylation

cycle. I have the Autism book and can't figure out the methylation

cycle, which I guess indicates cognitive impairments greater than I

care to admit. The best I can do is try this, try that. Next is B6

and magnesium, taurine, TMG...The order of trials is probably

important, but beyond me.

I got the impression from the talk about glutathione and whey on this

list that if you take whey (like Renewpro), you increase glutathione,

and you're on the road to recovery. However, it's not that simple:

the whey powders apparently don't work for me, so I'm trying the

liposomal.

This SCD diet advocates cutting out all carbs except

monosaccharides. Seems crazy, but actually makes sense. The whey

powders, whole grains, supplements, etc., don't do anything because

they just muck up the microvilli and their enzymes in the small

intestine. Since I have already tried many diet changes and have

been avoiding gluten for some time, the SCD will not actually be that

difficult, and as I said, may hold some promise. It's not what you

eat, but what you assimilate. And what you don't assimilate, burdens

the system and does harm.

> >

> > After trying Whey protein for some time, and feeling no

improvement,

> > I have come to think maybe this is not going to increase

glutathione

> > levels for me, and maybe others.

>

>

>

> ***Which type whey did you use? Not all wheys are the same. In

fact for those with low glutathione, one type vs another can make a

profound difference in trajectory towards health or not.

>

>

>

>

> > I have started Readisorb Liposomal Glutathione, and think I feel

> > immediate benefit, if that is possible.

>

>

>

> ***It could be. One study done with a chemo drug, which are known

for being difficult in bypassing the blood-brain barrier to

effectively treat brain cancers, had this agent put into liposomes,

like glutathione is done in Readisorb for example, then administered

to a brain cancer patient. The result was an efficient and completely

successful transfer of the chemo agent into the inside of glial cells

of the patient's brain. I think this bodes well for liposomal

delivery of glutathione to the inside of cells and providing needed

benefit there.

>

>

>

>

> > Elaine Gottschall, author of the book " Breaking the Vicious

Cycle, "

> > and proponent of the Specific Carbohydrate Diet, has a negative

> > opinion of whey at www.breakingtheviciouscycle.info

under " Knowledge

> > Base, " under " W. "

>

>

>

> ***I looked at this and I agree with the her critique of the type

of whey, that made as a by product of cheese manufacturing, in which

she is referring. Unfortunately before she died, she apparently

didn't find out about the effectiveness of nondenatured whey, the

type NOT made as a by product of cheese and which is not oxidized(a

huge distinction).

>

>

>

> ***Dr Cheney, I believe unknowingly on his part also, ran into the

same trouble and drew a similar, albeit not accurate conclusion about

whey, because of his trials with ImmunoCal. If he would have used

nondenatured ImmunePro or more currently RenewPro or a product called

The True Whey he would have had and now be getting far superior

treatment results with the PWCs he

> sees, particularly those with low hypothalamus hormone output(human

growth hormone, vasopressin, etc), low blood volume, orthostatic

intolerance, hypothyroidism and diastolic heart faiure.

>

>

>

> TheseThis book and diet are mentioned in the

> > Pangborn/Baker Autism book that Rich and others have suggested

here.

> > There is a group for the SCD called " pecanbread. "

> >

> > My guess is whey and the other mountains of supplements I have

tried

> > have done no good because I can't assimilate them due to injured

> > microvilli, mucoid plaque and bacterial overgrowth in the small

> > intestine.

>

>

>

> ***As I'm indicating, I think the problem is far more likely from

the inferiority of the whey product(s) you had been using.

>

>

>

> The SCD looks like it may be the best and only way forward for me

at

> > this point. I am grateful to this list for leading me to it.

>

>

>

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Where do I get Readisorb Liposomal Glutathione???

Thank you,

Janet

helen9jora <helenjora@...> wrote:

I am going on the SCD later this month, am slowly decreasing my

intake of certain foods prior to doing it. Read about it in the

Pangborn Baker book. Sounds worth a try.

Cheney has patients on Immune Pro and liposomal glutathione.

Immune Pro has a small amount of lactose in it, which is forbidden on

the SCD, but I'm going to keep taking it anyway.

Cheney in his video talks about xenobiotic toxins from the guts

causing problems and that is exactly what the SCD addresses, by

starving the bad bacteria. The problem is the die off release of

toxins from the bad bacteria which I am trying to lessen by ramping

down my complex carb intake prior to going on the SCD.

The people at pecanbread recommend Epsom Salt baths and taking

activated charcoal caps to reduce die off. I asked about doing enemas

as an adjunct but nobody answered me. Since they are mostly parents

of autistic kids, that would be a problem to do and probably hasn't

been looked into much.

One of my friends said trying to avoid die off was like trying to

avoid gravity but I'm still trying to find a way to do it.

Helen

> >

> > After trying Whey protein for some time, and feeling no

improvement,

> > I have come to think maybe this is not going to increase

glutathione

> > levels for me, and maybe others.

>

>

>

> ***Which type whey did you use? Not all wheys are the same. In

fact for those with low glutathione, one type vs another can make a

profound difference in trajectory towards health or not.

>

>

>

>

> > I have started Readisorb Liposomal Glutathione, and think I feel

> > immediate benefit, if that is possible.

>

>

>

> ***It could be. One study done with a chemo drug, which are known

for being difficult in bypassing the blood-brain barrier to

effectively treat brain cancers, had this agent put into liposomes,

like glutathione is done in Readisorb for example, then administered

to a brain cancer patient. The result was an efficient and completely

successful transfer of the chemo agent into the inside of glial cells

of the patient's brain. I think this bodes well for liposomal

delivery of glutathione to the inside of cells and providing needed

benefit there.

>

>

>

>

> > Elaine Gottschall, author of the book " Breaking the Vicious

Cycle, "

> > and proponent of the Specific Carbohydrate Diet, has a negative

> > opinion of whey at www.breakingtheviciouscycle.info

under " Knowledge

> > Base, " under " W. "

>

>

>

> ***I looked at this and I agree with the her critique of the type

of whey, that made as a by product of cheese manufacturing, in which

she is referring. Unfortunately before she died, she apparently

didn't find out about the effectiveness of nondenatured whey, the

type NOT made as a by product of cheese and which is not oxidized(a

huge distinction).

>

>

>

> ***Dr Cheney, I believe unknowingly on his part also, ran into the

same trouble and drew a similar, albeit not accurate conclusion about

whey, because of his trials with ImmunoCal. If he would have used

nondenatured ImmunePro or more currently RenewPro or a product called

The True Whey he would have had and now be getting far superior

treatment results with the PWCs he

> sees, particularly those with low hypothalamus hormone output(human

growth hormone, vasopressin, etc), low blood volume, orthostatic

intolerance, hypothyroidism and diastolic heart faiure.

>

>

>

> TheseThis book and diet are mentioned in the

> > Pangborn/Baker Autism book that Rich and others have suggested

here.

> > There is a group for the SCD called " pecanbread. "

> >

> > My guess is whey and the other mountains of supplements I have

tried

> > have done no good because I can't assimilate them due to injured

> > microvilli, mucoid plaque and bacterial overgrowth in the small

> > intestine.

>

>

>

> ***As I'm indicating, I think the problem is far more likely from

the inferiority of the whey product(s) you had been using.

>

>

>

> The SCD looks like it may be the best and only way forward for me

at

> > this point. I am grateful to this list for leading me to it.

>

>

>

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

HI Sue,

I am seriously considering the testing at testing4health. It looks like there

is another fee for Dr. Yaskow to interpet the results. Is that right??? Once I

take the test, do they suggest things to take so I can get better??. I have

found a doctor who will work with me. Can most doctors interpet this stuff???

Thank you so much for your help.

Janet

Sue T <morabshadow@...> wrote:

Hi,

I would not waste your time guessing . . .have you considered the Genetic

testing from www.testing4health.com ? Rich and myself have suggested this

several times on the this list. I have tried your route and it did not work for

me . . I believe you need to find out your genetics first and then follow that

path. I am using Dr. Amy Yasko at this point with the support of several other

doctors and I am having progress(but slow as expected).

This is the best advice I can give after fighting this illness for 18 years.

Best wishes, Sue T

shakerz25 <shakerz25@...> wrote:

Thank your for the reply. I tried Immunocal in the distant past,

nothing. More recently I tried Metagenics whey, and Renewpro, which

are " non-denatured " whey, and saw no benefit. Maybe they were doing

something, but I didn't see it. My understanding is these are the

high-quality whey products you describe, and the price tag leads one

to believe that they might not be inferior.

If they don't do anything, why? Maybe blocks in the methylation

cycle. I have the Autism book and can't figure out the methylation

cycle, which I guess indicates cognitive impairments greater than I

care to admit. The best I can do is try this, try that. Next is B6

and magnesium, taurine, TMG...The order of trials is probably

important, but beyond me.

I got the impression from the talk about glutathione and whey on this

list that if you take whey (like Renewpro), you increase glutathione,

and you're on the road to recovery. However, it's not that simple:

the whey powders apparently don't work for me, so I'm trying the

liposomal.

This SCD diet advocates cutting out all carbs except

monosaccharides. Seems crazy, but actually makes sense. The whey

powders, whole grains, supplements, etc., don't do anything because

they just muck up the microvilli and their enzymes in the small

intestine. Since I have already tried many diet changes and have

been avoiding gluten for some time, the SCD will not actually be that

difficult, and as I said, may hold some promise. It's not what you

eat, but what you assimilate. And what you don't assimilate, burdens

the system and does harm.

> >

> > After trying Whey protein for some time, and feeling no

improvement,

> > I have come to think maybe this is not going to increase

glutathione

> > levels for me, and maybe others.

>

>

>

> ***Which type whey did you use? Not all wheys are the same. In

fact for those with low glutathione, one type vs another can make a

profound difference in trajectory towards health or not.

>

>

>

>

> > I have started Readisorb Liposomal Glutathione, and think I feel

> > immediate benefit, if that is possible.

>

>

>

> ***It could be. One study done with a chemo drug, which are known

for being difficult in bypassing the blood-brain barrier to

effectively treat brain cancers, had this agent put into liposomes,

like glutathione is done in Readisorb for example, then administered

to a brain cancer patient. The result was an efficient and completely

successful transfer of the chemo agent into the inside of glial cells

of the patient's brain. I think this bodes well for liposomal

delivery of glutathione to the inside of cells and providing needed

benefit there.

>

>

>

>

> > Elaine Gottschall, author of the book " Breaking the Vicious

Cycle, "

> > and proponent of the Specific Carbohydrate Diet, has a negative

> > opinion of whey at www.breakingtheviciouscycle.info

under " Knowledge

> > Base, " under " W. "

>

>

>

> ***I looked at this and I agree with the her critique of the type

of whey, that made as a by product of cheese manufacturing, in which

she is referring. Unfortunately before she died, she apparently

didn't find out about the effectiveness of nondenatured whey, the

type NOT made as a by product of cheese and which is not oxidized(a

huge distinction).

>

>

>

> ***Dr Cheney, I believe unknowingly on his part also, ran into the

same trouble and drew a similar, albeit not accurate conclusion about

whey, because of his trials with ImmunoCal. If he would have used

nondenatured ImmunePro or more currently RenewPro or a product called

The True Whey he would have had and now be getting far superior

treatment results with the PWCs he

> sees, particularly those with low hypothalamus hormone output(human

growth hormone, vasopressin, etc), low blood volume, orthostatic

intolerance, hypothyroidism and diastolic heart faiure.

>

>

>

> TheseThis book and diet are mentioned in the

> > Pangborn/Baker Autism book that Rich and others have suggested

here.

> > There is a group for the SCD called " pecanbread. "

> >

> > My guess is whey and the other mountains of supplements I have

tried

> > have done no good because I can't assimilate them due to injured

> > microvilli, mucoid plaque and bacterial overgrowth in the small

> > intestine.

>

>

>

> ***As I'm indicating, I think the problem is far more likely from

the inferiority of the whey product(s) you had been using.

>

>

>

> The SCD looks like it may be the best and only way forward for me

at

> > this point. I am grateful to this list for leading me to it.

>

>

>

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Is this something that has to be compunded by a pharmacy with a prescription??

I just ordered some glutathione trouches and they were very expensive! $150.00

for 60, 250 mg. What did you pay???

Janet

helen9jora <helenjora@...> wrote:

I don't know. I get the type I am taking from the Wellness Pharmacy.

> > >

> > > After trying Whey protein for some time, and feeling no

> improvement,

> > > I have come to think maybe this is not going to increase

> glutathione

> > > levels for me, and maybe others.

> >

> >

> >

> > ***Which type whey did you use? Not all wheys are the same. In

> fact for those with low glutathione, one type vs another can make a

> profound difference in trajectory towards health or not.

> >

> >

> >

> >

> > > I have started Readisorb Liposomal Glutathione, and think I

feel

> > > immediate benefit, if that is possible.

> >

> >

> >

> > ***It could be. One study done with a chemo drug, which are

known

> for being difficult in bypassing the blood-brain barrier to

> effectively treat brain cancers, had this agent put into liposomes,

> like glutathione is done in Readisorb for example, then

administered

> to a brain cancer patient. The result was an efficient and

completely

> successful transfer of the chemo agent into the inside of glial

cells

> of the patient's brain. I think this bodes well for liposomal

> delivery of glutathione to the inside of cells and providing needed

> benefit there.

> >

> >

> >

> >

> > > Elaine Gottschall, author of the book " Breaking the Vicious

> Cycle, "

> > > and proponent of the Specific Carbohydrate Diet, has a negative

> > > opinion of whey at www.breakingtheviciouscycle.info

> under " Knowledge

> > > Base, " under " W. "

> >

> >

> >

> > ***I looked at this and I agree with the her critique of the type

> of whey, that made as a by product of cheese manufacturing, in

which

> she is referring. Unfortunately before she died, she apparently

> didn't find out about the effectiveness of nondenatured whey, the

> type NOT made as a by product of cheese and which is not oxidized(a

> huge distinction).

> >

> >

> >

> > ***Dr Cheney, I believe unknowingly on his part also, ran into

the

> same trouble and drew a similar, albeit not accurate conclusion

about

> whey, because of his trials with ImmunoCal. If he would have used

> nondenatured ImmunePro or more currently RenewPro or a product

called

> The True Whey he would have had and now be getting far superior

> treatment results with the PWCs he

> > sees, particularly those with low hypothalamus hormone output

(human

> growth hormone, vasopressin, etc), low blood volume, orthostatic

> intolerance, hypothyroidism and diastolic heart faiure.

> >

> >

> >

> > TheseThis book and diet are mentioned in the

> > > Pangborn/Baker Autism book that Rich and others have suggested

> here.

> > > There is a group for the SCD called " pecanbread. "

> > >

> > > My guess is whey and the other mountains of supplements I have

> tried

> > > have done no good because I can't assimilate them due to

injured

> > > microvilli, mucoid plaque and bacterial overgrowth in the small

> > > intestine.

> >

> >

> >

> > ***As I'm indicating, I think the problem is far more likely from

> the inferiority of the whey product(s) you had been using.

> >

> >

> >

> > The SCD looks like it may be the best and only way forward for

me

> at

> > > this point. I am grateful to this list for leading me to it.

> >

> >

> >

> >

> >

>

>

>

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested

in any treatment discussed here, please consult your doctor.

>

>

>

>

[Guest guest]

HI Janet,

Yes, the interepretation is called a GAR and will include a very lenghty

report(one person reported her son's was 60 pages) with instructions on what to

take and explains your genetics. I am still waiting for mine. I tcan take a 2-3

months.You can get started early by joining www.autismanswer.com forum for

parents. It is for alll people following Dr. Amy's program just not for parents

with kids with autism.

Best wishes, Sue T

Janet s <jgstev716@...> wrote:

HI Sue,

I am seriously considering the testing at testing4health. It looks like there

is another fee for Dr. Yaskow to interpet the results. Is that right??? Once I

take the test, do they suggest things to take so I can get better??. I have

found a doctor who will work with me. Can most doctors interpet this stuff???

Thank you so much for your help.

Janet

Sue T <morabshadow@...> wrote:

Hi,

I would not waste your time guessing . . .have you considered the Genetic

testing from www.testing4health.com ? Rich and myself have suggested this

several times on the this list. I have tried your route and it did not work for

me . . I believe you need to find out your genetics first and then follow that

path. I am using Dr. Amy Yasko at this point with the support of several other

doctors and I am having progress(but slow as expected).

This is the best advice I can give after fighting this illness for 18 years.

Best wishes, Sue T

shakerz25 <shakerz25@...> wrote:

Thank your for the reply. I tried Immunocal in the distant past,

nothing. More recently I tried Metagenics whey, and Renewpro, which

are " non-denatured " whey, and saw no benefit. Maybe they were doing

something, but I didn't see it. My understanding is these are the

high-quality whey products you describe, and the price tag leads one

to believe that they might not be inferior.

If they don't do anything, why? Maybe blocks in the methylation

cycle. I have the Autism book and can't figure out the methylation

cycle, which I guess indicates cognitive impairments greater than I

care to admit. The best I can do is try this, try that. Next is B6

and magnesium, taurine, TMG...The order of trials is probably

important, but beyond me.

I got the impression from the talk about glutathione and whey on this

list that if you take whey (like Renewpro), you increase glutathione,

and you're on the road to recovery. However, it's not that simple:

the whey powders apparently don't work for me, so I'm trying the

liposomal.

This SCD diet advocates cutting out all carbs except

monosaccharides. Seems crazy, but actually makes sense. The whey

powders, whole grains, supplements, etc., don't do anything because

they just muck up the microvilli and their enzymes in the small

intestine. Since I have already tried many diet changes and have

been avoiding gluten for some time, the SCD will not actually be that

difficult, and as I said, may hold some promise. It's not what you

eat, but what you assimilate. And what you don't assimilate, burdens

the system and does harm.

> >

> > After trying Whey protein for some time, and feeling no

improvement,

> > I have come to think maybe this is not going to increase

glutathione

> > levels for me, and maybe others.

>

>

>

> ***Which type whey did you use? Not all wheys are the same. In

fact for those with low glutathione, one type vs another can make a

profound difference in trajectory towards health or not.

>

>

>

>

> > I have started Readisorb Liposomal Glutathione, and think I feel

> > immediate benefit, if that is possible.

>

>

>

> ***It could be. One study done with a chemo drug, which are known

for being difficult in bypassing the blood-brain barrier to

effectively treat brain cancers, had this agent put into liposomes,

like glutathione is done in Readisorb for example, then administered

to a brain cancer patient. The result was an efficient and completely

successful transfer of the chemo agent into the inside of glial cells

of the patient's brain. I think this bodes well for liposomal

delivery of glutathione to the inside of cells and providing needed

benefit there.

>

>

>

>

> > Elaine Gottschall, author of the book " Breaking the Vicious

Cycle, "

> > and proponent of the Specific Carbohydrate Diet, has a negative

> > opinion of whey at www.breakingtheviciouscycle.info

under " Knowledge

> > Base, " under " W. "

>

>

>

> ***I looked at this and I agree with the her critique of the type

of whey, that made as a by product of cheese manufacturing, in which

she is referring. Unfortunately before she died, she apparently

didn't find out about the effectiveness of nondenatured whey, the

type NOT made as a by product of cheese and which is not oxidized(a

huge distinction).

>

>

>

> ***Dr Cheney, I believe unknowingly on his part also, ran into the

same trouble and drew a similar, albeit not accurate conclusion about

whey, because of his trials with ImmunoCal. If he would have used

nondenatured ImmunePro or more currently RenewPro or a product called

The True Whey he would have had and now be getting far superior

treatment results with the PWCs he

> sees, particularly those with low hypothalamus hormone output(human

growth hormone, vasopressin, etc), low blood volume, orthostatic

intolerance, hypothyroidism and diastolic heart faiure.

>

>

>

> TheseThis book and diet are mentioned in the

> > Pangborn/Baker Autism book that Rich and others have suggested

here.

> > There is a group for the SCD called " pecanbread. "

> >

> > My guess is whey and the other mountains of supplements I have

tried

> > have done no good because I can't assimilate them due to injured

> > microvilli, mucoid plaque and bacterial overgrowth in the small

> > intestine.

>

>

>

> ***As I'm indicating, I think the problem is far more likely from

the inferiority of the whey product(s) you had been using.

>

>

>

> The SCD looks like it may be the best and only way forward for me

at

> > this point. I am grateful to this list for leading me to it.

>

>

>

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Hi Sue,

Thank you for your help. So I am feeling a little uncomfortable ordering a

$750.00 without talking to someone on the phone. If I order off the internet,

take the test and submit it, then I just wait??? Is their instructions with the

test?? Where to send it??? Thank you for your help. I know I need to do this.

Janet

Sue T <morabshadow@...> wrote:

HI Janet,

Yes, the interepretation is called a GAR and will include a very lenghty

report(one person reported her son's was 60 pages) with instructions on what to

take and explains your genetics. I am still waiting for mine. I tcan take a 2-3

months.You can get started early by joining www.autismanswer.com forum for

parents. It is for alll people following Dr. Amy's program just not for parents

with kids with autism.

Best wishes, Sue T

Janet s <jgstev716@...> wrote:

HI Sue,

I am seriously considering the testing at testing4health. It looks like there

is another fee for Dr. Yaskow to interpet the results. Is that right??? Once I

take the test, do they suggest things to take so I can get better??. I have

found a doctor who will work with me. Can most doctors interpet this stuff???

Thank you so much for your help.

Janet

Sue T <morabshadow@...> wrote:

Hi,

I would not waste your time guessing . . .have you considered the Genetic

testing from www.testing4health.com ? Rich and myself have suggested this

several times on the this list. I have tried your route and it did not work for

me . . I believe you need to find out your genetics first and then follow that

path. I am using Dr. Amy Yasko at this point with the support of several other

doctors and I am having progress(but slow as expected).

This is the best advice I can give after fighting this illness for 18 years.

Best wishes, Sue T

shakerz25 <shakerz25@...> wrote:

Thank your for the reply. I tried Immunocal in the distant past,

nothing. More recently I tried Metagenics whey, and Renewpro, which

are " non-denatured " whey, and saw no benefit. Maybe they were doing

something, but I didn't see it. My understanding is these are the

high-quality whey products you describe, and the price tag leads one

to believe that they might not be inferior.

If they don't do anything, why? Maybe blocks in the methylation

cycle. I have the Autism book and can't figure out the methylation

cycle, which I guess indicates cognitive impairments greater than I

care to admit. The best I can do is try this, try that. Next is B6

and magnesium, taurine, TMG...The order of trials is probably

important, but beyond me.

I got the impression from the talk about glutathione and whey on this

list that if you take whey (like Renewpro), you increase glutathione,

and you're on the road to recovery. However, it's not that simple:

the whey powders apparently don't work for me, so I'm trying the

liposomal.

This SCD diet advocates cutting out all carbs except

monosaccharides. Seems crazy, but actually makes sense. The whey

powders, whole grains, supplements, etc., don't do anything because

they just muck up the microvilli and their enzymes in the small

intestine. Since I have already tried many diet changes and have

been avoiding gluten for some time, the SCD will not actually be that

difficult, and as I said, may hold some promise. It's not what you

eat, but what you assimilate. And what you don't assimilate, burdens

the system and does harm.

> >

> > After trying Whey protein for some time, and feeling no

improvement,

> > I have come to think maybe this is not going to increase

glutathione

> > levels for me, and maybe others.

>

>

>

> ***Which type whey did you use? Not all wheys are the same. In

fact for those with low glutathione, one type vs another can make a

profound difference in trajectory towards health or not.

>

>

>

>

> > I have started Readisorb Liposomal Glutathione, and think I feel

> > immediate benefit, if that is possible.

>

>

>

> ***It could be. One study done with a chemo drug, which are known

for being difficult in bypassing the blood-brain barrier to

effectively treat brain cancers, had this agent put into liposomes,

like glutathione is done in Readisorb for example, then administered

to a brain cancer patient. The result was an efficient and completely

successful transfer of the chemo agent into the inside of glial cells

of the patient's brain. I think this bodes well for liposomal

delivery of glutathione to the inside of cells and providing needed

benefit there.

>

>

>

>

> > Elaine Gottschall, author of the book " Breaking the Vicious

Cycle, "

> > and proponent of the Specific Carbohydrate Diet, has a negative

> > opinion of whey at www.breakingtheviciouscycle.info

under " Knowledge

> > Base, " under " W. "

>

>

>

> ***I looked at this and I agree with the her critique of the type

of whey, that made as a by product of cheese manufacturing, in which

she is referring. Unfortunately before she died, she apparently

didn't find out about the effectiveness of nondenatured whey, the

type NOT made as a by product of cheese and which is not oxidized(a

huge distinction).

>

>

>

> ***Dr Cheney, I believe unknowingly on his part also, ran into the

same trouble and drew a similar, albeit not accurate conclusion about

whey, because of his trials with ImmunoCal. If he would have used

nondenatured ImmunePro or more currently RenewPro or a product called

The True Whey he would have had and now be getting far superior

treatment results with the PWCs he

> sees, particularly those with low hypothalamus hormone output(human

growth hormone, vasopressin, etc), low blood volume, orthostatic

intolerance, hypothyroidism and diastolic heart faiure.

>

>

>

> TheseThis book and diet are mentioned in the

> > Pangborn/Baker Autism book that Rich and others have suggested

here.

> > There is a group for the SCD called " pecanbread. "

> >

> > My guess is whey and the other mountains of supplements I have

tried

> > have done no good because I can't assimilate them due to injured

> > microvilli, mucoid plaque and bacterial overgrowth in the small

> > intestine.

>

>

>

> ***As I'm indicating, I think the problem is far more likely from

the inferiority of the whey product(s) you had been using.

>

>

>

> The SCD looks like it may be the best and only way forward for me

at

> > this point. I am grateful to this list for leading me to it.

>

>

>

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

I know he has been great about this. I am just trying to get a feel for what

instructions I get with the test and that once I pay the $750.00 and send in the

results, that I know I will get feedback on the test from them.

Did you get instructions with the test. Telling you what to do and what to

expect???

Janet

jill1313 <jenbooks13@...> wrote:

I don't mean to speak for Rich but so far he has been very good at

interpreting folks' results just out of kindness, when they ask. It's

been very interesting to read too.

> > >

> > > After trying Whey protein for some time, and feeling no

> improvement,

> > > I have come to think maybe this is not going to increase

> glutathione

> > > levels for me, and maybe others.

> >

> >

> >

> > ***Which type whey did you use? Not all wheys are the same. In

> fact for those with low glutathione, one type vs another can make a

> profound difference in trajectory towards health or not.

> >

> >

> >

> >

> > > I have started Readisorb Liposomal Glutathione, and think I feel

> > > immediate benefit, if that is possible.

> >

> >

> >

> > ***It could be. One study done with a chemo drug, which are known

> for being difficult in bypassing the blood-brain barrier to

> effectively treat brain cancers, had this agent put into liposomes,

> like glutathione is done in Readisorb for example, then administered

> to a brain cancer patient. The result was an efficient and completely

> successful transfer of the chemo agent into the inside of glial cells

> of the patient's brain. I think this bodes well for liposomal

> delivery of glutathione to the inside of cells and providing needed

> benefit there.

> >

> >

> >

> >

> > > Elaine Gottschall, author of the book " Breaking the Vicious

> Cycle, "

> > > and proponent of the Specific Carbohydrate Diet, has a negative

> > > opinion of whey at www.breakingtheviciouscycle.info

> under " Knowledge

> > > Base, " under " W. "

> >

> >

> >

> > ***I looked at this and I agree with the her critique of the type

> of whey, that made as a by product of cheese manufacturing, in which

> she is referring. Unfortunately before she died, she apparently

> didn't find out about the effectiveness of nondenatured whey, the

> type NOT made as a by product of cheese and which is not oxidized(a

> huge distinction).

> >

> >

> >

> > ***Dr Cheney, I believe unknowingly on his part also, ran into the

> same trouble and drew a similar, albeit not accurate conclusion about

> whey, because of his trials with ImmunoCal. If he would have used

> nondenatured ImmunePro or more currently RenewPro or a product called

> The True Whey he would have had and now be getting far superior

> treatment results with the PWCs he

> > sees, particularly those with low hypothalamus hormone output(human

> growth hormone, vasopressin, etc), low blood volume, orthostatic

> intolerance, hypothyroidism and diastolic heart faiure.

> >

> >

> >

> > TheseThis book and diet are mentioned in the

> > > Pangborn/Baker Autism book that Rich and others have suggested

> here.

> > > There is a group for the SCD called " pecanbread. "

> > >

> > > My guess is whey and the other mountains of supplements I have

> tried

> > > have done no good because I can't assimilate them due to injured

> > > microvilli, mucoid plaque and bacterial overgrowth in the small

> > > intestine.

> >

> >

> >

> > ***As I'm indicating, I think the problem is far more likely from

> the inferiority of the whey product(s) you had been using.

> >

> >

> >

> > The SCD looks like it may be the best and only way forward for me

> at

> > > this point. I am grateful to this list for leading me to it.

> >

> >

> >

> >

> >

>

>

>

>

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested in

any treatment discussed here, please consult your doctor.

>

>

>

>

[Guest guest]

Janet,

I would really try and educate yourself with Dr. Amy's books, websites and

videos. It seems a bit overwhelming in the beginning, but all I can say that for

me it is worth it cause of my improvement.

Please remember taking this on may be a marathon and not a sprint. I spend

hours a day studying her program materials.

Best wishes, Sue T

Janet s <jgstev716@...> wrote:

Hi Sue,

Thank you for your help. So I am feeling a little uncomfortable ordering a

$750.00 without talking to someone on the phone. If I order off the internet,

take the test and submit it, then I just wait??? Is their instructions with the

test?? Where to send it??? Thank you for your help. I know I need to do this.

Janet

Sue T <morabshadow@...> wrote:

HI Janet,

Yes, the interepretation is called a GAR and will include a very lenghty

report(one person reported her son's was 60 pages) with instructions on what to

take and explains your genetics. I am still waiting for mine. I tcan take a 2-3

months.You can get started early by joining www.autismanswer.com forum for

parents. It is for alll people following Dr. Amy's program just not for parents

with kids with autism.

Best wishes, Sue T

Janet s <jgstev716@...> wrote:

HI Sue,

I am seriously considering the testing at testing4health. It looks like there

is another fee for Dr. Yaskow to interpet the results. Is that right??? Once I

take the test, do they suggest things to take so I can get better??. I have

found a doctor who will work with me. Can most doctors interpet this stuff???

Thank you so much for your help.

Janet

Sue T <morabshadow@...> wrote:

Hi,

I would not waste your time guessing . . .have you considered the Genetic

testing from www.testing4health.com ? Rich and myself have suggested this

several times on the this list. I have tried your route and it did not work for

me . . I believe you need to find out your genetics first and then follow that

path. I am using Dr. Amy Yasko at this point with the support of several other

doctors and I am having progress(but slow as expected).

This is the best advice I can give after fighting this illness for 18 years.

Best wishes, Sue T

shakerz25 <shakerz25@...> wrote:

Thank your for the reply. I tried Immunocal in the distant past,

nothing. More recently I tried Metagenics whey, and Renewpro, which

are " non-denatured " whey, and saw no benefit. Maybe they were doing

something, but I didn't see it. My understanding is these are the

high-quality whey products you describe, and the price tag leads one

to believe that they might not be inferior.

If they don't do anything, why? Maybe blocks in the methylation

cycle. I have the Autism book and can't figure out the methylation

cycle, which I guess indicates cognitive impairments greater than I

care to admit. The best I can do is try this, try that. Next is B6

and magnesium, taurine, TMG...The order of trials is probably

important, but beyond me.

I got the impression from the talk about glutathione and whey on this

list that if you take whey (like Renewpro), you increase glutathione,

and you're on the road to recovery. However, it's not that simple:

the whey powders apparently don't work for me, so I'm trying the

liposomal.

This SCD diet advocates cutting out all carbs except

monosaccharides. Seems crazy, but actually makes sense. The whey

powders, whole grains, supplements, etc., don't do anything because

they just muck up the microvilli and their enzymes in the small

intestine. Since I have already tried many diet changes and have

been avoiding gluten for some time, the SCD will not actually be that

difficult, and as I said, may hold some promise. It's not what you

eat, but what you assimilate. And what you don't assimilate, burdens

the system and does harm.

> >

> > After trying Whey protein for some time, and feeling no

improvement,

> > I have come to think maybe this is not going to increase

glutathione

> > levels for me, and maybe others.

>

>

>

> ***Which type whey did you use? Not all wheys are the same. In

fact for those with low glutathione, one type vs another can make a

profound difference in trajectory towards health or not.

>

>

>

>

> > I have started Readisorb Liposomal Glutathione, and think I feel

> > immediate benefit, if that is possible.

>

>

>

> ***It could be. One study done with a chemo drug, which are known

for being difficult in bypassing the blood-brain barrier to

effectively treat brain cancers, had this agent put into liposomes,

like glutathione is done in Readisorb for example, then administered

to a brain cancer patient. The result was an efficient and completely

successful transfer of the chemo agent into the inside of glial cells

of the patient's brain. I think this bodes well for liposomal

delivery of glutathione to the inside of cells and providing needed

benefit there.

>

>

>

>

> > Elaine Gottschall, author of the book " Breaking the Vicious

Cycle, "

> > and proponent of the Specific Carbohydrate Diet, has a negative

> > opinion of whey at www.breakingtheviciouscycle.info

under " Knowledge

> > Base, " under " W. "

>

>

>

> ***I looked at this and I agree with the her critique of the type

of whey, that made as a by product of cheese manufacturing, in which

she is referring. Unfortunately before she died, she apparently

didn't find out about the effectiveness of nondenatured whey, the

type NOT made as a by product of cheese and which is not oxidized(a

huge distinction).

>

>

>

> ***Dr Cheney, I believe unknowingly on his part also, ran into the

same trouble and drew a similar, albeit not accurate conclusion about

whey, because of his trials with ImmunoCal. If he would have used

nondenatured ImmunePro or more currently RenewPro or a product called

The True Whey he would have had and now be getting far superior

treatment results with the PWCs he

> sees, particularly those with low hypothalamus hormone output(human

growth hormone, vasopressin, etc), low blood volume, orthostatic

intolerance, hypothyroidism and diastolic heart faiure.

>

>

>

> TheseThis book and diet are mentioned in the

> > Pangborn/Baker Autism book that Rich and others have suggested

here.

> > There is a group for the SCD called " pecanbread. "

> >

> > My guess is whey and the other mountains of supplements I have

tried

> > have done no good because I can't assimilate them due to injured

> > microvilli, mucoid plaque and bacterial overgrowth in the small

> > intestine.

>

>

>

> ***As I'm indicating, I think the problem is far more likely from

the inferiority of the whey product(s) you had been using.

>

>

>

> The SCD looks like it may be the best and only way forward for me

at

> > this point. I am grateful to this list for leading me to it.

>

>

>

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

HI Sue,

I have already lost a home and $300,00 fighting an unknown virus in 02 " which

I could not get rid of. I guess I am to a point of trying to get the CFS under

control with the little money I have left. From what I read from the list, the

glutathione supplementation and getting rid of the mercury seems to be of

paramount importantance. I am trying not to spend any more than I have to. (I

don't have another house to sell). Were the books expensive, the videos?? I am

having one of THOSE DAYS and went to look on her website and for today is was

quite overwhelming.

Thank you for all your help.

Janet

Sue T <morabshadow@...> wrote:

Janet,

I would really try and educate yourself with Dr. Amy's books, websites and

videos. It seems a bit overwhelming in the beginning, but all I can say that for

me it is worth it cause of my improvement.

Please remember taking this on may be a marathon and not a sprint. I spend

hours a day studying her program materials.

Best wishes, Sue T

Janet s <jgstev716@...> wrote:

Hi Sue,

Thank you for your help. So I am feeling a little uncomfortable ordering a

$750.00 without talking to someone on the phone. If I order off the internet,

take the test and submit it, then I just wait??? Is their instructions with the

test?? Where to send it??? Thank you for your help. I know I need to do this.

Janet

Sue T <morabshadow@...> wrote:

HI Janet,

Yes, the interepretation is called a GAR and will include a very lenghty

report(one person reported her son's was 60 pages) with instructions on what to

take and explains your genetics. I am still waiting for mine. I tcan take a 2-3

months.You can get started early by joining www.autismanswer.com forum for

parents. It is for alll people following Dr. Amy's program just not for parents

with kids with autism.

Best wishes, Sue T

Janet s <jgstev716@...> wrote:

HI Sue,

I am seriously considering the testing at testing4health. It looks like there

is another fee for Dr. Yaskow to interpet the results. Is that right??? Once I

take the test, do they suggest things to take so I can get better??. I have

found a doctor who will work with me. Can most doctors interpet this stuff???

Thank you so much for your help.

Janet

Sue T <morabshadow@...> wrote:

Hi,

I would not waste your time guessing . . .have you considered the Genetic

testing from www.testing4health.com ? Rich and myself have suggested this

several times on the this list. I have tried your route and it did not work for

me . . I believe you need to find out your genetics first and then follow that

path. I am using Dr. Amy Yasko at this point with the support of several other

doctors and I am having progress(but slow as expected).

This is the best advice I can give after fighting this illness for 18 years.

Best wishes, Sue T

shakerz25 <shakerz25@...> wrote:

Thank your for the reply. I tried Immunocal in the distant past,

nothing. More recently I tried Metagenics whey, and Renewpro, which

are " non-denatured " whey, and saw no benefit. Maybe they were doing

something, but I didn't see it. My understanding is these are the

high-quality whey products you describe, and the price tag leads one

to believe that they might not be inferior.

If they don't do anything, why? Maybe blocks in the methylation

cycle. I have the Autism book and can't figure out the methylation

cycle, which I guess indicates cognitive impairments greater than I

care to admit. The best I can do is try this, try that. Next is B6

and magnesium, taurine, TMG...The order of trials is probably

important, but beyond me.

I got the impression from the talk about glutathione and whey on this

list that if you take whey (like Renewpro), you increase glutathione,

and you're on the road to recovery. However, it's not that simple:

the whey powders apparently don't work for me, so I'm trying the

liposomal.

This SCD diet advocates cutting out all carbs except

monosaccharides. Seems crazy, but actually makes sense. The whey

powders, whole grains, supplements, etc., don't do anything because

they just muck up the microvilli and their enzymes in the small

intestine. Since I have already tried many diet changes and have

been avoiding gluten for some time, the SCD will not actually be that

difficult, and as I said, may hold some promise. It's not what you

eat, but what you assimilate. And what you don't assimilate, burdens

the system and does harm.

> >

> > After trying Whey protein for some time, and feeling no

improvement,

> > I have come to think maybe this is not going to increase

glutathione

> > levels for me, and maybe others.

>

>

>

> ***Which type whey did you use? Not all wheys are the same. In

fact for those with low glutathione, one type vs another can make a

profound difference in trajectory towards health or not.

>

>

>

>

> > I have started Readisorb Liposomal Glutathione, and think I feel

> > immediate benefit, if that is possible.

>

>

>

> ***It could be. One study done with a chemo drug, which are known

for being difficult in bypassing the blood-brain barrier to

effectively treat brain cancers, had this agent put into liposomes,

like glutathione is done in Readisorb for example, then administered

to a brain cancer patient. The result was an efficient and completely

successful transfer of the chemo agent into the inside of glial cells

of the patient's brain. I think this bodes well for liposomal

delivery of glutathione to the inside of cells and providing needed

benefit there.

>

>

>

>

> > Elaine Gottschall, author of the book " Breaking the Vicious

Cycle, "

> > and proponent of the Specific Carbohydrate Diet, has a negative

> > opinion of whey at www.breakingtheviciouscycle.info

under " Knowledge

> > Base, " under " W. "

>

>

>

> ***I looked at this and I agree with the her critique of the type

of whey, that made as a by product of cheese manufacturing, in which

she is referring. Unfortunately before she died, she apparently

didn't find out about the effectiveness of nondenatured whey, the

type NOT made as a by product of cheese and which is not oxidized(a

huge distinction).

>

>

>

> ***Dr Cheney, I believe unknowingly on his part also, ran into the

same trouble and drew a similar, albeit not accurate conclusion about

whey, because of his trials with ImmunoCal. If he would have used

nondenatured ImmunePro or more currently RenewPro or a product called

The True Whey he would have had and now be getting far superior

treatment results with the PWCs he

> sees, particularly those with low hypothalamus hormone output(human

growth hormone, vasopressin, etc), low blood volume, orthostatic

intolerance, hypothyroidism and diastolic heart faiure.

>

>

>

> TheseThis book and diet are mentioned in the

> > Pangborn/Baker Autism book that Rich and others have suggested

here.

> > There is a group for the SCD called " pecanbread. "

> >

> > My guess is whey and the other mountains of supplements I have

tried

> > have done no good because I can't assimilate them due to injured

> > microvilli, mucoid plaque and bacterial overgrowth in the small

> > intestine.

>

>

>

> ***As I'm indicating, I think the problem is far more likely from

the inferiority of the whey product(s) you had been using.

>

>

>

> The SCD looks like it may be the best and only way forward for me

at

> > this point. I am grateful to this list for leading me to it.

>

>

>

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Hi Janet,

I totally understand the $$$ situation . . . I am having lots of difficulty

with that,too.

The reason I chose Dr. Amy is because I can not take Glutathione(makes me ill)

and every time I have tried to deal with HG(I could spend 3 days telling you of

my horror stories oregarding my amalgan and dentist issues) I get sicker . . . .

so that it WHY I chose her program. It gets down to the reasons WHY we have the

difficulties you mentioned and deals with them head on with the genetic

variation results.

Sue T

Janet s <jgstev716@...> wrote:

From what I read from the list, the glutathione supplementation and getting

rid of the mercury seems to be of paramount importantance. I am trying not to

spend any more than I have to.

[Guest guest]

HI Sue,

I tried again to look at her website and got a little further. I am WITH YOU,

lets get down to it and take it head on! I can deal with glutathione and my

mercury problems are not as bad as yours, but I want to get to the genetic

problem. Which books have you read??. Which ones did you get the most out of??.

I have to take that genetic test, I know that for sure.

Thank you so much for your help.

Janet

in San Diego

Sue T <morabshadow@...> wrote:

Hi Janet,

I totally understand the $$$ situation . . . I am having lots of difficulty

with that,too.

The reason I chose Dr. Amy is because I can not take Glutathione(makes me ill)

and every time I have tried to deal with HG(I could spend 3 days telling you of

my horror stories oregarding my amalgan and dentist issues) I get sicker . . . .

so that it WHY I chose her program. It gets down to the reasons WHY we have the

difficulties you mentioned and deals with them head on with the genetic

variation results.

Sue T

Janet s <jgstev716@...> wrote:

From what I read from the list, the glutathione supplementation and getting

rid of the mercury seems to be of paramount importantance. I am trying not to

spend any more than I have to.

[Guest guest]

Hi Janet,

Genetic ByPass Book comes with the testing kit along with a beginning level

DVD. Dr. Amy is coming out with a new supplement type book very soon and that I

would consider that a must. I would also call the office at (207) 824 8501 and

ask for their recommendations. I have learned a tremendous amount by just

reading the forum and all their new posts(especially Dr. Amy's) daily.

Again give the office a call . . . they are very helpful. Explain your

situation and tell them you know of another female CFS adult that is on the

program.

Hope this helps, Sue T

Janet s <jgstev716@...> wrote:

HI Sue,

I tried again to look at her website and got a little further. I am WITH YOU,

lets get down to it and take it head on! I can deal with glutathione and my

mercury problems are not as bad as yours, but I want to get to the genetic

problem. Which books have you read??. Which ones did you get the most out of??.

I have to take that genetic test, I know that for sure.

Thank you so much for your help.

Janet

in San Diego

Sue T <morabshadow@...> wrote:

Hi Janet,

I totally understand the $$$ situation . . . I am having lots of difficulty

with that,too.

The reason I chose Dr. Amy is because I can not take Glutathione(makes me ill)

and every time I have tried to deal with HG(I could spend 3 days telling you of

my horror stories oregarding my amalgan and dentist issues) I get sicker . . . .

so that it WHY I chose her program. It gets down to the reasons WHY we have the

difficulties you mentioned and deals with them head on with the genetic

variation results.

Sue T

Janet s <jgstev716@...> wrote:

From what I read from the list, the glutathione supplementation and getting

rid of the mercury seems to be of paramount importantance. I am trying not to

spend any more than I have to.

[Guest guest]

Hi Sue,

I will call their office. Thank you so much for the number and all the help

you have given me today. Are you feeling alot better from being on the

program??? About how long did it take ti start to feel better?? Can you

exercise??

Janet

in San Diego

Sue T <morabshadow@...> wrote:

Hi Janet,

Genetic ByPass Book comes with the testing kit along with a beginning level

DVD. Dr. Amy is coming out with a new supplement type book very soon and that I

would consider that a must. I would also call the office at (207) 824 8501 and

ask for their recommendations. I have learned a tremendous amount by just

reading the forum and all their new posts(especially Dr. Amy's) daily.

Again give the office a call . . . they are very helpful. Explain your

situation and tell them you know of another female CFS adult that is on the

program.

Hope this helps, Sue T

Janet s <jgstev716@...> wrote:

HI Sue,

I tried again to look at her website and got a little further. I am WITH YOU,

lets get down to it and take it head on! I can deal with glutathione and my

mercury problems are not as bad as yours, but I want to get to the genetic

problem. Which books have you read??. Which ones did you get the most out of??.

I have to take that genetic test, I know that for sure.

Thank you so much for your help.

Janet

in San Diego

Sue T <morabshadow@...> wrote:

Hi Janet,

I totally understand the $$$ situation . . . I am having lots of difficulty

with that,too.

The reason I chose Dr. Amy is because I can not take Glutathione(makes me ill)

and every time I have tried to deal with HG(I could spend 3 days telling you of

my horror stories oregarding my amalgan and dentist issues) I get sicker . . . .

so that it WHY I chose her program. It gets down to the reasons WHY we have the

difficulties you mentioned and deals with them head on with the genetic

variation results.

Sue T

Janet s <jgstev716@...> wrote:

From what I read from the list, the glutathione supplementation and getting

rid of the mercury seems to be of paramount importantance. I am trying not to

spend any more than I have to.

[Guest guest]

Hi Janet,

I am slowly feeling better, but I have not received all my results or GAR yet

.. . so I am still fine tuning the supplements. It took a month or two for me

to start feeling better. I am walking my dogs a couple of blocks at this time

and very light gardening. Most my symptoms are Neurological so noise, light,

people, writing, etc are still a challenge, but improving..

Have a nice weekend

Sue T

Janet s <jgstev716@...> wrote:

Hi Sue,

I will call their office. Thank you so much for the number and all the help

you have given me today. Are you feeling alot better from being on the

program??? About how long did it take ti start to feel better?? Can you

exercise??

Janet

in San Diego

Sue T <morabshadow@...> wrote:

Hi Janet,

Genetic ByPass Book comes with the testing kit along with a beginning level

DVD. Dr. Amy is coming out with a new supplement type book very soon and that I

would consider that a must. I would also call the office at (207) 824 8501 and

ask for their recommendations. I have learned a tremendous amount by just

reading the forum and all their new posts(especially Dr. Amy's) daily.

Again give the office a call . . . they are very helpful. Explain your

situation and tell them you know of another female CFS adult that is on the

program.

Hope this helps, Sue T

Janet s <jgstev716@...> wrote:

HI Sue,

I tried again to look at her website and got a little further. I am WITH YOU,

lets get down to it and take it head on! I can deal with glutathione and my

mercury problems are not as bad as yours, but I want to get to the genetic

problem. Which books have you read??. Which ones did you get the most out of??.

I have to take that genetic test, I know that for sure.

Thank you so much for your help.

Janet

in San Diego

Sue T <morabshadow@...> wrote:

Hi Janet,

I totally understand the $$$ situation . . . I am having lots of difficulty

with that,too.

The reason I chose Dr. Amy is because I can not take Glutathione(makes me ill)

and every time I have tried to deal with HG(I could spend 3 days telling you of

my horror stories oregarding my amalgan and dentist issues) I get sicker . . . .

so that it WHY I chose her program. It gets down to the reasons WHY we have the

difficulties you mentioned and deals with them head on with the genetic

variation results.

Sue T

Janet s <jgstev716@...> wrote:

From what I read from the list, the glutathione supplementation and getting

rid of the mercury seems to be of paramount importantance. I am trying not to

spend any more than I have to.

[Guest guest]

Hi Sue,

Thank you for letting me know how you are feeling. I am going to call the

office Monday and go from there. I have different symptoms, more of the

pain/fatigue after to much exertion (its pathetic what to much is) but I think

you are on the right track. I am grateful to you and this list for all the help

you have given me.

Janet

Sue T <morabshadow@...> wrote:

Hi Janet,

I am slowly feeling better, but I have not received all my results or GAR yet

.. . so I am still fine tuning the supplements. It took a month or two for me

to start feeling better. I am walking my dogs a couple of blocks at this time

and very light gardening. Most my symptoms are Neurological so noise, light,

people, writing, etc are still a challenge, but improving..

Have a nice weekend

Sue T

Janet s <jgstev716@...> wrote:

Hi Sue,

I will call their office. Thank you so much for the number and all the help

you have given me today. Are you feeling alot better from being on the

program??? About how long did it take ti start to feel better?? Can you

exercise??

Janet

in San Diego

Sue T <morabshadow@...> wrote:

Hi Janet,

Genetic ByPass Book comes with the testing kit along with a beginning level

DVD. Dr. Amy is coming out with a new supplement type book very soon and that I

would consider that a must. I would also call the office at (207) 824 8501 and

ask for their recommendations. I have learned a tremendous amount by just

reading the forum and all their new posts(especially Dr. Amy's) daily.

Again give the office a call . . . they are very helpful. Explain your

situation and tell them you know of another female CFS adult that is on the

program.

Hope this helps, Sue T

Janet s <jgstev716@...> wrote:

HI Sue,

I tried again to look at her website and got a little further. I am WITH YOU,

lets get down to it and take it head on! I can deal with glutathione and my

mercury problems are not as bad as yours, but I want to get to the genetic

problem. Which books have you read??. Which ones did you get the most out of??.

I have to take that genetic test, I know that for sure.

Thank you so much for your help.

Janet

in San Diego

Sue T <morabshadow@...> wrote:

Hi Janet,

I totally understand the $$$ situation . . . I am having lots of difficulty

with that,too.

The reason I chose Dr. Amy is because I can not take Glutathione(makes me ill)

and every time I have tried to deal with HG(I could spend 3 days telling you of

my horror stories oregarding my amalgan and dentist issues) I get sicker . . . .

so that it WHY I chose her program. It gets down to the reasons WHY we have the

difficulties you mentioned and deals with them head on with the genetic

variation results.

Sue T

Janet s <jgstev716@...> wrote:

From what I read from the list, the glutathione supplementation and getting

rid of the mercury seems to be of paramount importantance. I am trying not to

spend any more than I have to.

[Guest guest]

Hi Rich,

Funny you would bring that up. I had decided today (I spoke to their office)

that I was going to go ahead and order the testing and the GAR. What I am hoping

for is to pull this at the root. I am tired of being sick! I feel you and this

list are a gift. Thank you all for what you do.

Janet

in San Diego

rvankonynen <richvank@...> wrote:

Hi, Janet.

By now you may have already decided what you're going to do about

the SNP test. Sorry to be so slow in commenting. It's true that I

try to interpret test results when people ask me to, and I enjoy

doing it. However, sometimes I'm pretty slow at getting back to

people when the email traffic, on and off the list, gets

overwhelming, or when family and household matters require my

attention. With regard to the genetic testing, I am still getting

up to speed on understanding the meaning of all of it. I have a

pile of Amy Yasko's new DVDs that I haven't had time to watch yet,

but hope to soon. I don't know how long you would have to wait for

a GAR report from Amy, but I'm sure you would learn a lot more from

her than you would from me, not only because she is very sharp, but

also given all of her experience. So if you can find it in your

budget to order a GAR, I would encourage you to do that. If not, I

would try to interpret your results to the degree I understood what

they meant, when I was able to get to it.

Rich

> >

> > Hi Sue,

> >

> > Thank you for your help. So I am feeling a little uncomfortable

> ordering a $750.00 without talking to someone on the phone. If I

order

> off the internet, take the test and submit it, then I just wait???

Is

> their instructions with the test?? Where to send it??? Thank you

for

> your help. I know I need to do this.

> >

> > Janet

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.