Re: Anybody else with heat intolerance?

[Guest guest]

In a message dated 4/8/2006 5:41:47 PM Eastern Standard Time, kathryn@...

writes:

> Just wanted to know if any other PWCs suffer from extreme

> >heat intolerance in the summer?

I feel totally drained in humid weather. I don't go in the sun at all the

warmer it gets, the worse I feel.

I used to hate the cold winters, but not anymore...Sue

[Guest guest]

Most of the people I know with CFIDS develop heat intolerance.

I am not on any medications but have it & just make sure I drink a lot of

electrolytes when I get overheated & try to cool off.

[Guest guest]

Count me in! I feel as though I have to escape when I'm in

the heat. I don't know why I'm so intolerant. Wish I did.

I try to avoid it as much as I can.

Kathy F.

----- Original Message -----

From: <rudedog89@...>

> Just wanted to know if any other PWCs suffer from extreme

> heat

> intolerance in the summer? I can barely stand to go

> outside when it

> starts to get warm (80s) and have puzzled over whether it

> is a CFIDs

> symptom or due to some of the medicines I have to take,

> one of which is

> Coumadin. So anybody else??? Thanks ahead for any

> comments.

[Guest guest]

I am absolutely heat intolerant. I will get horifically ill (nausea, vomiting,

BP drop, eventually pass out). Keeping well hydrated is the only defense. As

much as I love being outdoors and in the water, I have to spend most of my time

in AC. (Except when it isn't hot out ;~), I do live in OH)

-Dawn M

Most of the people I know with CFIDS develop heat intolerance.> I am not on any

medications but have it & just make sure I drink a lot of > electrolytes when I

get overheated & try to cool off.

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[Guest guest]

Yes. If you find anything that helps, please share it. This is

apparently common in MS, I wonder if similar mechanisms are at work in

CFS/FM/Lyme. Summer's coming...

>

> Hi All:

>

> Just wanted to know if any other PWCs suffer from extreme heat

> intolerance in the summer? I can barely stand to go outside when it

> starts to get warm (80s) and have puzzled over whether it is a CFIDs

> symptom or due to some of the medicines I have to take, one of which

is

> Coumadin. So anybody else??? Thanks ahead for any comments.

>

> :-) Teena

>

[Guest guest]

>

>Yes, i also have it to an extreme degree since I've been ill, i even

have trouble in a warm room, or if the sun is shining on me and

starting to warm me up. I absolutely dread the summer. zuzu

Count me in! I feel as though I have to escape when I'm in

> the heat. I don't know why I'm so intolerant. Wish I did.

> I try to avoid it as much as I can.

>

> Kathy F.

>

> ----- Original Message -----

> From: <rudedog89@...>

>

> > Just wanted to know if any other PWCs suffer from extreme

> > heat

> > intolerance in the summer? I can barely stand to go

> > outside when it

> > starts to get warm (80s) and have puzzled over whether it

> > is a CFIDs

> > symptom or due to some of the medicines I have to take,

> > one of which is

> > Coumadin. So anybody else??? Thanks ahead for any

> > comments.

>

[Guest guest]

Temperature disregulation is common in CFS/CFIDS/ME. I, too truly fear summer

days, especially with Diastolic Heart problem, and it now begins in the 70s

" heat " for me. About the exact temperature that everyone else jumps for joy.

(Just as it lowers to heaven for me, others are grumbling).

Gookinaid helps, has " revived " me many times.

Dr. Cheney said heat intolerance has to do with microcirculation and skin.

I hope to learn all I can about cooling down.

Katrina

> >

> >Yes, i also have it to an extreme degree since I've been ill, i even

> have trouble in a warm room, or if the sun is shining on me and

> starting to warm me up. I absolutely dread the summer. zuzu

>

>

>

>

>

>

> Count me in! I feel as though I have to escape when I'm in

> > the heat. I don't know why I'm so intolerant. Wish I did.

> > I try to avoid it as much as I can.

> >

> > Kathy F.

> >

> > ----- Original Message -----

> > From: <rudedog89@>

> >

> > > Just wanted to know if any other PWCs suffer from extreme

> > > heat

> > > intolerance in the summer? I can barely stand to go

> > > outside when it

> > > starts to get warm (80s) and have puzzled over whether it

> > > is a CFIDs

> > > symptom or due to some of the medicines I have to take,

> > > one of which is

> > > Coumadin. So anybody else??? Thanks ahead for any

> > > comments.

> >

>

[Guest guest]

Yes. It is very marked. Room temperature of 77+ is very debilitating.

Also, FWIW, I have recently started to use a de-humidifier in the single

room that I inhabit almost all the time. There has been record rain and

humidity in N Cal recently, and it was really getting me down-fostering mold

presumably?

I set it for a humidity of 30% (quite low, I believe), and it maintains that

easily. However, it also, as a " side effect, " warms the room. So when it

gets too warm, I turn it off and turn on the air-conditioner for a while.

When that makes things cooler, I switch back. Air conditioners are

themselves efficient dehumidifiers, but they only accomplish that when the

temperature is high, and they are actively cooling. (They also cannot be set

to a goal-level for humidity.)

Significantly, I have completely stopped using my three high-quality

air-purifiers throughout this period (merely 4 days so far). I find this

dehumidifier/air-conditioner setup to work better than the purifiers had

been doing-though the purifiers had already been noticeably helpful

themselves. One thing that is immediately apparent is that I just breathe

easier, like after taking a decongestant or using a standard nasal spray.

I don't know why I am getting this real-time effect. I can understand a

possible long-term effect, since I understand mold remains adverse even

after it is killed, by dry air or anything else. So I'd expect, at a

minimum, to have to wait until the next generation of mold fails to be

generated

[Guest guest]

Do you put a few drops of Tea Tree Oil on the filters of the dehumidifier

and a/c to kill the nasties?

mjh

Date: Sun, 9 Apr 2006 15:38:59 -0700

From: " Kolodney " <d4235@...>

Subject: Re: Anybody else with heat intolerance?

Yes. It is very marked. Room temperature of 77+ is very debilitating.

Also, FWIW, I have recently started to use a de-humidifier in the single

room that I inhabit almost all the time. There has been record rain and

humidity in N Cal recently, and it was really getting me down-fostering mold

presumably?

I set it for a humidity of 30% (quite low, I believe), and it maintains that

easily. However, it also, as a " side effect, " warms the room. So when it

gets too warm, I turn it off and turn on the air-conditioner for a while.

When that makes things cooler, I switch back. Air conditioners are

themselves efficient dehumidifiers, but they only accomplish that when the

temperature is high, and they are actively cooling. (They also cannot be set

to a goal-level for humidity.)

Significantly, I have completely stopped using my three high-quality

air-purifiers throughout this period (merely 4 days so far). I find this

dehumidifier/air-conditioner setup to work better than the purifiers had

been doing-though the purifiers had already been noticeably helpful

themselves. One thing that is immediately apparent is that I just breathe

easier, like after taking a decongestant or using a standard nasal spray.

I don't know why I am getting this real-time effect. I can understand a

possible long-term effect, since I understand mold remains adverse even

after it is killed, by dry air or anything else. So I'd expect, at a

minimum, to have to wait until the next generation of mold fails to be

generated

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Hi MJH,

Will Tee Tree Oil work on humidifiers as well? My son has chronic ear

infections and so he sleeps with a humidifier every night. I have worried about

potential bacterial or fungal growth. If it is an effective treatment, is there

a certain brand? Where so you buy it?

Thanks,

Dawn M

Do you put a few drops of Tea Tree Oil on the filters of the dehumidifier > and

a/c to kill the nasties?

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[Guest guest]

Some have temps at 99-99.9 and many do not. Many complex possible causes.

But worth checking.

Dr. J

RE: Re: Anybody else with heat intolerance?

>I am absolutely heat intolerant. I will get horifically ill (nausea,

>vomiting, BP drop, eventually pass out). Keeping well hydrated is the only

>defense. As much as I love being outdoors and in the water, I have to

>spend most of my time in AC. (Except when it isn't hot out ;~), I do live

>in OH)

>

> -Dawn M

>

>

> Most of the people I know with CFIDS develop heat intolerance.> I am not

> on any medications but have it & just make sure I drink a lot of >

> electrolytes when I get overheated & try to cool off.

>

>

>

> It's the future, it's here, and it's free: Windows Live Mail beta

> http://www2.imagine-msn.com/minisites/mail/Default.aspx?locale=en-us

>

>