Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 > > But Ken, I have never failed to catch every viral thing that comes my way, before my illness and all throughout my illness. > > I keep reading that people with " our " illness don't catch colds and 'flus, but I DO and I get extremely ill with every new one.> ***Hi Nelly - I am exactly the same as you. If something is going around, I get it, and it usually lasts 3 to 4 times as long as it does for anyone else who doesn't have CFS. I was beginning to think that I was the only one who had that problem. I certainly don't have an " up- regulated " immune system as it would appear most people with CFS have. Take care. Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 I know that you are a major exception to the usual pattern and have tried almost every known candidate antibiotic with improvement but not remission. Your perpensity to acquire viral infections may be a significant delta for you. The viral response will likely trigger coagulation and associated antibodies that may keep coagulation turned on for months afterwards. If your immune response is strong, then Vitamin D may have little effect unless it's the controller of some aspect that may influence your tendency to catch viral infections. That's speculation because there is not that adequate detail information on it, just high level results. Did you grow up in the Australia sun-belt or further south? Did you also catch every viral as a kid? > > But Ken, I have never failed to catch every viral thing that comes my way, before my illness and all throughout my illness. > > I keep reading that people with " our " illness don't catch colds and 'flus, but I DO and I get extremely ill with every new one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 A flu or bug lasting 3-4 times longer tend to suggest a coagulation defect. Coagulation is a normal response to a bug (it slows down the spread of the infection until the body can mobilize an appropriate response). A coagulation defect means that the body produces less of some component used to break down coagulation (these are called " Factors " ), which means that instead of 3 days to breakdown the coagulation produced, it takes 20 days. How that I am recovered (and with the Vitamin D dosage, I've noticed that the intensity of bugs seem to be much less - speculation: body is responding faster to the infection?), I find that about 3-4 days into a bug, I will use some Heparin Nasal spray and often that will eliminate a lot of the remaining symptoms within minutes, and they stay away. Heparin works well for some coagulation defects (but not all). --- In , " bernieanneca " > ***Hi Nelly - I am exactly the same as you. If something is going > around, I get it, and it usually lasts 3 to 4 times as long as it does > for anyone else who doesn't have CFS. I was beginning to think that I > was the only one who had that problem. I certainly don't have an " up- > regulated " immune system as it would appear most people with CFS have. > Bernie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Me too.. I'm in the same boat as Bernie and the other poster. Catch everything and hard to get rid of. Have been using Olive Leaf extract this flu season and have been successful so far! Hubby had cold I did catch, but it was light and easy to get rid of. I'm HOOKED on Olive Leaf.. bernieanneca <BernieAnne@...> wrote: > > But Ken, I have never failed to catch every viral thing that comes my way, before my illness and all throughout my illness. > > I keep reading that people with " our " illness don't catch colds and 'flus, but I DO and I get extremely ill with every new one.> ***Hi Nelly - I am exactly the same as you. If something is going around, I get it, and it usually lasts 3 to 4 times as long as it does for anyone else who doesn't have CFS. I was beginning to think that I was the only one who had that problem. I certainly don't have an " up- regulated " immune system as it would appear most people with CFS have. Take care. Bernie This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 I'm another one of those who used to catch everything, several times a year, with long-lasting complications, especially after CFS. I've also been using olive leaf extract for about three years and for whatever reason, I haven't gotten a cold since then. There have been a few times where I thought I was coming down with something, and in addition to the all of leaf extract, I took huge doses of monolaurin. Ellen > Me too.. I'm in the same boat as Bernie and the other poster. Catch > everything and hard to get rid of. Have been using Olive Leaf extract this > flu season and have been successful so far! Hubby had cold I did catch, > but it was light and easy to get rid of. I'm HOOKED on Olive Leaf.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 My conclusion is that if I don't have what all you other people have then it'll just have to be antibiotics (since it's the only thing that has ever clearly helped me) and I'll forget about the rest of things that seem to make others recover. God only knows what might happen to me if I increased my vit D and as a result got an INCREASED immune response to bugs. I would just drop dead from the cytokine storm, as people did with SARS for eg. Nelly Nelly. thats not necessisarly true tho. I am also a patient who's gotten every cold and flu bug that comes along. For me tho it happens when I'm overly fatigued, get too cold for too long, have to push myself to do too much etc. Then I'll get whatever 'bug' comes along and I too will run 103 fever for a few days with a bad flu bug. BUT, the vite D does not make me get more bugs or react worse to them, its been the contrary, I get fewer bugs and less severe reactions than I used to get (fever of 101 now), so I think the D which is essential for the immune system isn't going to make you 'over immune' but will 'normalize' the deficiencies in the immune system. Least thats been my experience. I was hoping it would take away getting the colds/flu's, I got the crud twice this year, but had it VERY badly 4 times the winter before (no D supplementing yet at that time). Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Unfortunately I'm the same as you Nelly, except for the first year of my illness. I spend my life avoiding people with flus.If I hear somebody coughing near me I quickly move away. Recently I caught a stomach bug(my daughter had it first).It's been 3 weeks,I still have it. As for anti biotics I have become allergic to every type I've taken. Best Getting colds and 'flus >Ken > But Ken, I have never failed to catch every viral thing that comes my way, > before my illness and all throughout my illness. > > I keep reading that people with " our " illness don't catch colds and 'flus, > but I DO and I get extremely ill with every new one. I have to avoid even > limited contact with anyone with a cold or I'll be desperately ill for > weeks, in fact during 'flu season I have to refrain from spending time in > large shops for eg. if I do, I'll be down with something viral for certain > within a couple of days. > > So...either I am not sick (I wish!) ...or what I've got has nothing to do > with what other people have > > My conclusion is that if I don't have what all you other people have then > it'll just have to be antibiotics (since it's the only thing that has ever > clearly helped me) and I'll forget about the rest of things that seem to > make others recover. God only knows what might happen to me if I increased > my vit D and as a result got an INCREASED immune response to bugs. I would > just drop dead from the cytokine storm, as people did with SARS for eg. > > Nelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 I was like that for the first 10 years of my illness.Don't get much colds and flu any more. best wishes. Nil > > Unfortunately I'm the same as you Nelly, except for the first year of my > illness. > I spend my life avoiding people with flus.If I hear somebody coughing near > me I quickly move away. > Recently I caught a stomach bug(my daughter had it first).It's been 3 > weeks,I still have it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Hi Nil, What have you done that makes you not get colds or flus anymore? -Dawn I was like that for the first 10 years of my illness.Don't get much colds> and flu any more.> best wishes.> > Nil It’s the future of Hotmail: Try Windows Live Mail beta http://www2.imagine-msn.com/minisites/mail/Default.aspx?locale=en-us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Hi Nelly, I also agree with you. I catch everything! I am sooo careful, constantly washing my hands, never touching my face, yet it seems I am always catching some virus or another. I had to laugh when I read 's line about when people cough, because it is just so familiar. I will actually hold my breath until I can get away. I guess I am just not very educated because I thought that was common in our illness. As for antibiotics, they always rip up my gut and give me rip roaring yeast infections, but other than that, I can tolerate them just fine. Just thought I'd let you know, you are definitely not alone. -Dawn > Unfortunately I'm the same as you Nelly, except for the first year of my > illness.> I spend my life avoiding people with flus.If I hear somebody coughing near > me I quickly move away.> Recently I caught a stomach bug(my daughter had it first).It's been 3 > weeks,I still have it.> > As for anti biotics I have become allergic to every type I've taken.> > Best > > > ----- Original Message ----- > From: " Nelly Pointis " <janel@...>> To: < >> Sent: Wednesday, March 29, 2006 3:11 AM> Subject: Getting colds and 'flus >Ken> > > > But Ken, I have never failed to catch every viral thing that comes my way, > > before my illness and all throughout my illness.> >> > I keep reading that people with " our " illness don't catch colds and 'flus, > > but I DO and I get extremely ill with every new one. I have to avoid even > > limited contact with anyone with a cold or I'll be desperately ill for > > weeks, in fact during 'flu season I have to refrain from spending time in > > large shops for eg. if I do, I'll be down with something viral for certain > > within a couple of days.> >> > So...either I am not sick (I wish!) ...or what I've got has nothing to do > > with what other people have> >> > My conclusion is that if I don't have what all you other people have then > > it'll just have to be antibiotics (since it's the only thing that has ever > > clearly helped me) and I'll forget about the rest of things that seem to > > make others recover. God only knows what might happen to me if I increased > > my vit D and as a result got an INCREASED immune response to bugs. I would > > just drop dead from the cytokine storm, as people did with SARS for eg.> >> > Nelly It's the future, it's here, and it's free: Windows Live Mail beta http://www2.imagine-msn.com/minisites/mail/Default.aspx?locale=en-us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2006 Report Share Posted March 28, 2006 Hi Wendi, What is Olive leaf? Where do you get it? Thanks, Dawn Me too.. I'm in the same boat as Bernie and the other poster. Catch everything and hard to get rid of. Have been using Olive Leaf extract this flu season and have been successful so far! Hubby had cold I did catch, but it was light and easy to get rid of. I'm HOOKED on Olive Leaf..> It’s the future of Hotmail: Try Windows Live Mail beta http://www2.imagine-msn.com/minisites/mail/Default.aspx?locale=en-us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 Snap. I am the same as Nelly too I catch every cold and flu going infact I haven't been out since Christmas in a desperate attempt to avoid more sickness. If I go out on average I will have a cold/flu every 10 days to 2 weeks and when I do catch a bad one that can last for ever - weeks and weeks. Raising glutathione has helped a bit but I still have the problem. In truth it is one of my worse symptoms and ruins my life. I have tried almost everything to remedy it. I think there is a significant minority of us who do catch colds and flus Getting colds and 'flus >Ken > > >> But Ken, I have never failed to catch every viral thing that comes my >> way, >> before my illness and all throughout my illness. >> >> I keep reading that people with " our " illness don't catch colds and >> 'flus, >> but I DO and I get extremely ill with every new one. I have to avoid even >> limited contact with anyone with a cold or I'll be desperately ill for >> weeks, in fact during 'flu season I have to refrain from spending time in >> large shops for eg. if I do, I'll be down with something viral for >> certain >> within a couple of days. >> >> So...either I am not sick (I wish!) ...or what I've got has nothing to do >> with what other people have >> >> My conclusion is that if I don't have what all you other people have then >> it'll just have to be antibiotics (since it's the only thing that has >> ever >> clearly helped me) and I'll forget about the rest of things that seem to >> make others recover. God only knows what might happen to me if I >> increased >> my vit D and as a result got an INCREASED immune response to bugs. I >> would >> just drop dead from the cytokine storm, as people did with SARS for eg. >> >> Nelly > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 Nothing that I did helped with that problem for long term. When I moved into bed-ridden stage I started not getting colds and flus any more. best wishes. Nil Hi Nil, What have you done that makes you not get colds or flus anymore? -Dawn I was like that for the first 10 years of my illness.Don't get much colds> and flu any more.> best wishes.> > Nil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 Nil, Ditto, staying away from people (staying home-keeping friends with colds away) is the only thing which helps me. Nelly Re: Re: Getting colds and 'flus >Ken Nothing that I did helped with that problem for long term. When I moved into bed-ridden stage I started not getting colds and flus any more. best wishes. Nil Hi Nil, What have you done that makes you not get colds or flus anymore? -Dawn I was like that for the first 10 years of my illness.Don't get much colds> and flu any more.> best wishes.> > Nil This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 Nelly,that was not what I meant:-).Even if I contact people I don't get sick as I did before.In the past if I sat in front of window for half an hour I would get sick. I was so scared to be in a car. If someone opened the window I would get sick the next day.Now I can do these without getting sick. Or even the slightest sweating would be followed by cold,now it is not as much.My immune system is not completely well but it is better in these years. Exhaustion is much worse,though. Nil ----- Original Message ----- > Nil, > > Ditto, staying away from people (staying home-keeping friends with colds > away) is the only thing which helps me. > > Nelly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 I think there is a significant minority of us who do catch colds and flus Its starting to sound like its not a minority at all! Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 Hi Nil, Thanks fir the explanation. I always wondered why it seemed like I would feel really great for a day or two before I would be knocked off my feet with a really bed virus/ infection. I think I may finally have the answer. I wonder how many more of us feel this way... Thanks, Dawn Hi all,> > Here is my humble explanation.I sometimes get better energywise and > at those times I seem to get more immune system problems. At other > times I am lower in energy but don't have much infections.I am > thinking that this is directly related to effect of cortisol on > immune system.When I get worse my adrenals stop working thus > producing little cortisol resulting in less immune system problems. > When I get better my adrenals start producing excess cortisol > resulting in immune suppression.> > Best wishes.> Nil Search on the go: Try Windows Live Search for Mobile beta http://www1.imagine-msn.com/minisites/mobile/Default.aspx?locale=en-us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 Hi All. I am in the catch lots of viruses and then can't get rid of them club too. I become a recluse for most of the year to avoid getting colds and flu. The supplement that has helped me the most with this problem is Proboost Thymic Protein A. It is expesive but worth it for me because catching a virus reduces my ability to function to near zero. Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2006 Report Share Posted March 29, 2006 > > Hi All. > > I am in the catch lots of viruses and then can't get rid of them club > too. I become a recluse for most of the year to avoid getting colds > and flu. > > The supplement that has helped me the most with this problem is > Proboost Thymic Protein A. It is expesive but worth it for me because > catching a virus reduces my ability to function to near zero. > > Tom > I have left it a few days waiting for mixed responses but none came forward on my side...I only occasionally get a cold or any virus and when I have I caught it off my husband it seems, so obviously my immune system must be working pretty fine..just adding as a child I had many bad colds, streamers not chesty colds and if I get one now that is how they are still. I have been fairly mobile for a year and do some walking and gardening but I still ache like mad whatever I do...It is a feeling like you have been kicked all over which I cannot seem to find the answer too just now.BW Dianne Quote Link to comment Share on other sites More sharing options...
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