Re: Inflammed GI's and Stomach Ulcers/Bernie

[Guest guest]

Hi, Bernie.

" bernieanneca " <BernieAnne@...> wrote:

>

> ***Hi CS - I would never have known my glutathione level was low

> without a blood test. How could you possibly know if you have low

> levels without a test?? This doesn't make any sense to me as there

> aren't any specific symptoms that would definitively pinpoint low GSH.

>

> Take care.

>

> Bernie

***Well, one specific symptom that is telling of likely poor glutathione status

is...A DIAGNOSIS OF CFS, CFIDS or ME/CFS!

***Docs like Cheney and many others in recent years consider low glutathione to

be virtually universal to all who qualify for this diagnosis. Some of these

docs no longer bother to test for it.

***This is not to imply they all recognize the full import of this finding.

Rich's 2004 AACFS poster on the topic threw down the gauntlet on this one!

***Tests for glutathione levels can be of value by providing an objective

measure for experimental treatments. But some, like CS apparently for money

savings or other reasons, trust the almost certain writing on the wall without

test verification.

***He's a wild man!

" Marcia " <mgrahn@> wrote:

> >

> >

> >

> > Nope.

> >

> > As I didnt need it - I can tell by the reaction that my

> glutathione levsl

> > were low - I have improved beyond all recognition and continue

> to improve as I

> > add a few more things. Im still on target on the road to

> recovery - Perhaps a

> > months or two more!

> >

> > Regards

> > CS

[Guest guest]

***Tests for glutathione levels can be of value by providing an objective

measure for experimental treatments. But some, like CS apparently for money

savings or other reasons, trust the almost certain writing on the wall without

test verification.

,

My concern here isn't so much that people might not 'have' it to begin with but

that in doing all the things to build it, assuming its going up just can't be

done, because I did all the right things (tried them all anyway) and mine

actually went lower, so we can't be sure that doing all these things to build

glut is actually building anything unless its tested to prove it, and then if

its tested and found not to be low, if we dont' 'know' that it was low to begin

with or how low (a baseline), we are totally shooting in the dark and dont' know

what/if anything we are doing with all this. Believe me, I've spend a BUNDLE of

money on whey proteins (immunocal/Immuplus/ImmuneproRx), glut IV's, Glut

suppositories, lipo glut., glut capsules, you name it. And after all that mine

is NOT higher.

Marcia

marcia

[Guest guest]

>

> Hi, Bernie.

>

>

> ***Well, one specific symptom that is telling of likely poor

glutathione status is...A DIAGNOSIS OF CFS, CFIDS or ME/CFS!

>

>

>

> ***Docs like Cheney and many others in recent years consider low

glutathione to be virtually universal to all who qualify for this

diagnosis. Some of these docs no longer bother to test for it.

>

>

***Hi - I belong to another CFS group that haven't taken the

glutathione theory all that seriously. I don't know if any of the

members were tested or not, however, most didn't seem to consider GSH

a problem for themselves.

I thought Cheney had gone off in a totally different direction since

he had his heart transplant?? I got the impression that he was no

longer considering the GSH theory and now thought we all had heart

disease.

Take care.

Bernie

[Guest guest]

I hear ya, Marcia. Whay you're saying actually agrees with my statement.

My point about CS has more to do with getting things started with glutathione

repletion measures, since the assumption of low GSH is a fair one to make with

already diagnosed ME/CFS case.

The plateau or blockade he has generally recognized as of late may eventually

make him consider doing a few different tests. Doing this can help bring his

experiments to a greater focus, different than the more pure trial and error

path he is doing now.

" Marcia " <mgrahn@...> wrote:

>

>

>

> ***Tests for glutathione levels can be of value by providing an objective

measure for experimental treatments. But some, like CS apparently for money

savings or other reasons, trust the almost certain writing on the wall without

test verification.

>

> ,

>

> My concern here isn't so much that people might not 'have' it to begin with

but that in doing all the things to build it, assuming its going up just can't

be done, because I did all the right things (tried them all anyway) and mine

actually went lower, so we can't be sure that doing all these things to build

glut is actually building anything unless its tested to prove it, and then if

its tested and found not to be low, if we dont' 'know' that it was low to begin

with or how low (a baseline), we are totally shooting in the dark and dont' know

what/if anything we are doing with all this. Believe me, I've spend a BUNDLE of

money on whey proteins (immunocal/Immuplus/ImmuneproRx), glut IV's, Glut

suppositories, lipo glut., glut capsules, you name it. And after all that mine

is NOT higher.

>

> Marcia

[Guest guest]

Hi, Bernie.

" bernieanneca " <BernieAnne@...> wrote:

Hi - I belong to another CFS group that haven't taken the

glutathione theory all that seriously.

***I'm not surprised. There are still a few big theories around needing to play

themselves out to success or fizzle. We'll see.

I don't know if any of the

> members were tested or not, however, most didn't seem to consider GSH

a problem for themselves.

***What do they consider their problem?

Mold and lyme theory seem to be the only other big ones left, if they are indeed

seperate from the glutathione/sulfur metabolism deficit issue.

I thought Cheney had gone off in a totally different direction since

he had his heart transplant?? I got the impression that he was no longer

considering the GSH theory and now thought we all had heart

> disease.

***I think he still prescribes some form of glutathione support, but by and

large I think he has abandoned the GSH depletion theory for the heart disease

centered model of cause. This is unfortate having been a Cheney patient before

who is now getting clear benefits in my cardio profile by normalized

systolic/diastilic bp as well as amelioration of DI and hypothyroidism.

[Guest guest]

>

>

> I don't know if any of the

> > members were tested or not, however, most didn't seem to consider

GSH

> a problem for themselves.

>

>

>

> ***What do they consider their problem?

> Mold and lyme theory seem to be the only other big ones left, if

they are indeed seperate from the glutathione/sulfur metabolism

deficit issue.

>

***Hi - Honestly, I think these people are waiting for

that " magic " blood test that is going to confirm that they have CFS,

and then they will get the " magic " prescription med that will be the

cure. They are basically sitting around waiting, that being one of

the reasons I decided to leave the group.

Take care.

Bernie

[Guest guest]

Bernie,

What group is that?

Thanks,

Ellen

> ***Hi - I belong to another CFS group that haven't taken the

> glutathione theory all that seriously. I don't know if any of the

> members were tested or not, however, most didn't seem to consider GSH

> a problem for themselves.

[Guest guest]

Hi, Bernie.

That's very unfortunate, perhaps tragic. Being responsible is a proactive state

and about the only mode of operating that I know of that can make true magic

happen.

" bernieanneca " <BernieAnne@...> wrote:

> > ***What do they consider their problem?

>

>

> ***Hi - Honestly, I think these people are waiting for

> that " magic " blood test that is going to confirm that they have CFS,

> and then they will get the " magic " prescription med that will be the

> cure. They are basically sitting around waiting, that being one of

> the reasons I decided to leave the group.

>

> Take care.

>

> Bernie

>

[Guest guest]

I do take your points on board. I dont believe im shooting in the dark when

my reaction to raising Glutathione was so evident.

King Regards

CS

[Guest guest]

Hi - I belong to another CFS group that haven't taken the

glutathione theory all that seriously. I don't know if any of the

members were tested or not, however, most didn't seem to consider GSH

a problem for themselves.

***I would take it seriously - I believe it to be the crux of the problem -

if you get time read Rich thesis on Glutathione depletion and CFS

Regards

CS

[Guest guest]

The plateau or blockade he has generally recognized as of late may

eventually make him consider doing a few different tests. Doing this can help

bring

his experiments to a greater focus, different than the more pure trial and

error path he is doing now.

*****I do have a plan. If you look at my regime I have focused on

fundamental areas. Its only since reaching a blockade with Whey protein ive

started to

consider different pathays to help boost Glutathione with good effect.

1) HEAVY METALS & THYROID - Raise Glutathione via Whey Protein Isolate ,

Vitamin C, Magnesium, Zinc, Turmeric, Selenium, Milk thistle,

2) PARASITES/FUNGAL/BACTERIAL - Lactoferrin / Coconut oil / Manuka Honey

3) ADRENALS - Sea Salt / Licorice

4) DIGESTION - Probiotics / Bromelain enzyme

5) NUTRITION - EFA's / Multi vits / Co Q10

DIET - Protein / Butter / Veggies & Salad/ Rice / Yoghurt /

Sunflower seeds / Water - no wheat/ limited dairy / limited fruit / no

nuts

Kind regards

CS

[Guest guest]

In a message dated 3/25/06 1:40:25 P.M. Eastern Standard Time,

BernieAnne@... writes:

They are basically sitting around waiting, that being one of

the reasons I decided to leave the group.

Take care.

Bernie>>

Hi Bernie,

Good for you! I have a couple of friends who are waiting for that too and

don't understand why I spend so much time doing my own research. I recently

had a former work colleague say to me that I just needed to spend more time

meditating :-)

Take care,

Maxine

[Guest guest]

Good on you bernie.

Glutathione is the way forward!

Regards

Cs

[Guest guest]

Great!

You may have to add things alongside using the Whey Protein to to help with

: all the pathogens in your system, adrenal failure , dysbosis, low nutrient

/antioxidant status and then you may want to add other things to help boost

glutathione down the line.

Regards

CS

[Guest guest]

>

>

>

> ***I would take it seriously - I believe it to be the crux of the

problem -

> if you get time read Rich thesis on Glutathione depletion and CFS

>

>

***Hi CS - I definitely think in my case Glutathione is the problem.

I've started taking Immunocal and will be switching over to ImmunoPro.

I've not only read Rich's thesis, I've printed all of Rich's info and

refer to it often :-)

Take care.

Bernie

[Guest guest]

Hi Maxine

> Good for you! I have a couple of friends who are waiting for that

too and

> don't understand why I spend so much time doing my own research. >

***I did the sitting around and waiting and it got me absolutely

nowhere. It was nice for a while having a " support " group, however, I

think some people tend to get stuck in those. I noticed from several

internet groups that after a while PWCs tend to end up with

only " CFS " friends, and no one from the real world.

>> I recently

> had a former work colleague say to me that I just needed to spend

more time

> meditating :-)

***Doesn't that drive you nuts?!?! I get told that if I would just go

for a walk, I would feel so much better. One person suggested that I

didn't pray enough. Oh well!!

Take care.

Bernie