Re: thyroid problems along with cfs?

[Guest guest]

Thanks ,

I went. I read.

I would find it hard to believe I don't have hashi. I have a nodule

that tested cold. Additonally, when I started the thyroid meds (years

ago), symptoms specific to hypo/hashi disappeared - being constantly

cold (even in the Summer), hand tremors, etc. The CFS type symptoms

continued. But I'm open. What exactly is RenewPro and how would one

know if they fit the profile to use it? btw: my temp is pretty much

always at or below 97. When I'm in a " flare " it hovers around 95 to 96

and I have a lot of heat in my body (again, when in a " flare " ). Voice

is still low and especially thin and hoarse when in a " flare.

Thanks again,

Ballady

> (recent numbers): Free T3 = 3.70 (range 1.80-4.60)

> > Free T4 = 0.90 (range 0.9 -1.8)

> > TSH 0.389 )previously it was 0.019 considered

> > low from the range 0.27-4.2. My free T4

> > was 1.40)

> >

> > My doc said he thought my TSH low because I was taking too much

> > Armour; therefore, he decreased it from 90 mg to 45 mg. I seem to

> > function all right on this (am Hypo and Hashi.), at least outwardly.

>

> > Thanks for any help

>

>

>

> ***You very well may have hydrogen peroxide hypothyroidism(HPH), not

Hashimoto's(as discovered by Rich Van Konynenburg, Ph.D. in CFS and

who has helped many of us on this list). Your thyroid test scores are

very remeniscent of mine which I had done many over several years

until recently where I've conquered my hypothyroidism.

>

>

> ***Check out post message# 90350 to get the complete scoop on how I

did and you may do this.

>

>

>

>

>

[Guest guest]

B., T3 is perfect, T4 is in range, TSH is fine but makes doctors nervous. I

wouldn't touch it. I think his action was premature and excessive...but I'm not

a physician. I'd take note of morning temperature, energy level, and recheck in

a couple months. These numbers were established based on how patients felt but

we have learned to disregard the patient and treat the numbers. Hope this helps.

Mel

[Guest guest]

Thanks Mel,

By " excessive " do you mean decreasing my dosage? He said I could take

either dose (I now split the 90mg)depending on how I felt and will

recheck in 2 months. Checking energy level is tricky as it's difficult

to know if fatigue is related to thyroid or CFS.

>

> B., T3 is perfect, T4 is in range, TSH is fine but makes doctors

nervous. I wouldn't touch it. I think his action was premature and

excessive...but I'm not a physician. I'd take note of morning

temperature, energy level, and recheck in a couple months. These

numbers were established based on how patients felt but we have

learned to disregard the patient and treat the numbers. Hope this

helps. Mel

>

>

>

[Guest guest]

Hi, Ballady.

" ballady4 " <ballady4@...> wrote:

>

>

>

> Thanks ,

>

> I went. I read.

>

> I would find it hard to believe I don't have hashi. I have a nodule

> that tested cold. Additonally, when I started the thyroid meds (years

> ago), symptoms specific to hypo/hashi disappeared - being constantly

> cold (even in the Summer), hand tremors, etc. The CFS type symptoms

> continued. But I'm open. What exactly is RenewPro and how would one

> know if they fit the profile to use it?

***Well, having CFS and hypoythroidism raises a huge red flag! And the fact

that the thyroid meds. did not eliminate your CFS makes it all but certain that

you have poor glutathione status.

***As you may vaguely recall or perhaps missed somehow in your quest for health,

poor glutatathione levels and glutathione metabolism are very common to PWCs.

RenewPro is a nondenatured whey that I happen to get from needs.com that is easy

to use and provides the body with precursors

to help your liver replenish your glutathione stores.

***Other methods for helping replenish glutathione like glutathione intramusclar

injections or glutathione suppositories can complement RenewPros provision for

the liver. There are compounding pharmacies that make those that you can have

your doc make out a prescription for in order to get them.

***RenewPro you can get without a prescription. As far as diagnostic tests for

glutathione status there are several that might be helpful, but I think the

whole blood glutathione test by immunosciencelabs.com might the best bang for

the buck.

***Something else to consider is getting your gene variants tested by places

like genovations.com. This testing, which I had done, can tell you if you have

genetic vulnerabilities called SNPs or polymorphisms that predispose you

genetically to glutathione problems and problems connected to something called

methylation.

***There is a really good book on this if you don't mind spending $30 called

Autism: Effective Biomedical Treatments by Pangborn and Baker available through

Amazon.com A scientist named Rich on this list is the one who noticed the

glutathione issue is really important to CFS and noticed that there are some

connections biochemically between

CFS and Autism which are very interesting, indeed.

***Some of their treatment protocols seem to be in sync with improving ones

methylation and can enhance efforts to raise ones glutathione status.

btw: my temp is pretty much

> always at or below 97. When I'm in a " flare " it hovers around 95 to 96

> and I have a lot of heat in my body (again, when in a " flare " ). Voice

> is still low and especially thin and hoarse when in a " flare.

***That's quite telling. Besides thyroid hormones the other way the body keeps

up body temperature is through mitochondrial function. In CFS, it looks like

mitochondrial function is compromised which leads to poor cellular energy that

requires glutathione for its production.

***This is an oversimplification of CFS pathology but it does cut to the chase I

believe. I know my body temp remained at 96.6 degress despite any type of the

thyroid med. protocol I tried.

***I'm now off thyroid medications because of my RenewPro anchored treatments

this past year and now my thyroid is at 97 degrees. I think, as Rich suggested

to me recently, my body temperature may be the last thing to come up to normal

because it is determined by the the functionality of cells of the skeletal

muscles.

***The skeletal muscles are the first body system to stop getting glutathione

when there is a lowering of glutathione body wide. The immune cells are not too

far behind which may explain why many of us have gone through boughts if not

chronically have problems with immunity.

***I hope this all helps.

> Thanks again,

>

> Ballady

> <davidhall@> wrote:

> > ***Check out post message# 90350 to get the complete scoop on how I

> did and you may do this.

> >

> >

> >

> >

[Guest guest]

Are you sensitive to all sulfury things? Or, just things like sulfites,

sulfa drugs?

DO you eat onions, garlic, broccoli, dairy products?

DO you take Epsom salt baths? MSM? Glucosamine sulfate? SAM-e?

THere is a group called sulfurstories that helps unravel the sulfur

pathways..... also has lots of Moms with autistic kids and some really smart

researchers.

Hope this helps

mjh

In a message dated 2/17/06 2:25:55 PM Eastern Standard Time,

ballady4@... writes:

> Okay. I am allergic to Sulfur so will not pursue that path - Renewpro.

> I am familiar with Molybendenum.

>

> Thanks again .

[Guest guest]

Wow! Thanks for all this great information. I have copied it to

my email so that I can peruse it more thoroughly.

One thing I don't understand from your response is that you seem to be

indicating (unless I am misunderstanding you) that tests that show

Thyroid dysfunction actually point to something else. If this is true,

than why did I have a lessening of Thyroid type symptoms when I began

the Armour Protocal? Are you saying those identified symptoms were

actually suggestive of poor glutatathione levels instead of a Thyroid

problem? I utilize Needs.com from time to time so will probably check

out the Renewpro, as long as it's not going to create some other type

of imbalance since I don't actually know my glutathione levels.

Thanks again.

Ballady

> > > ***Check out post message# 90350 to get the complete scoop on how I

> > did and you may do this.

> > >

> > >

> > >

> > >

>

[Guest guest]

Hi, Ballady.

" ballady4 " <ballady4@...> wrote:

One thing I don't understand from your response is that you seem to be

>indicating (unless I am misunderstanding you) that tests that show Thyroid

dysfunction actually point to something else.

***No. Tests that show thyroid

dysfunction do indicate a thyroid problem but what that problem is may not be

clear from these tests if you have CFS that is not cleared up by thyroid med.

use. Also, remember that hypothyroidism is mostly a clinical diagnosis based on

presenting symptoms and illness history more than on test results. In

actuality, taking the meds. and seeing what happens to your symptoms as a result

is perhaps the most telling test docs do at present.

(They don't know about HPH secondary to glutathione depletion yet)

..If this is true,

> than why did I have a lessening of Thyroid type symptoms when I began

> the Armour Protocal? Are you saying those identified symptoms were

> actually suggestive of poor glutatathione levels instead of a Thyroid

> problem?

***I think my last response covers this.

I utilize Needs.com from time to time so will probably check out the Renewpro,

as long as it's not going to create some other type

> of imbalance since I don't actually know my glutathione levels.

***One smaller subset of people do have problems with the sulfur in whey

products like RenewPro, but that problems solution is taking the simple

supplement called molybdenum(sp?). Another small side effect can be a feeling a

tiny bit sicker for short a period of time(minutes, perhaps hours).

***This is mostly your body's response to elimating toxins or infections as a

result of increased capacity from the glutathione to do so. It's a good sign

IMO and should go away after a short period.

> Thanks again.

>

> Ballady

\

***You're welcome. Let us know how it goes.

[Guest guest]

Okay. I am allergic to Sulfur so will not pursue that path - Renewpro.

I am familiar with Molybendenum.

Thanks again .

> One thing I don't understand from your response is that you seem to be

> >indicating (unless I am misunderstanding you) that tests that show

Thyroid dysfunction actually point to something else.

>

>

>

> ***No. Tests that show thyroid

> dysfunction do indicate a thyroid problem but what that problem is

may not be clear from these tests if you have CFS that is not cleared

up by thyroid med. use. Also, remember that hypothyroidism is mostly

a clinical diagnosis based on presenting symptoms and illness history

more than on test results. In actuality, taking the meds. and seeing

what happens to your symptoms as a result is perhaps the most telling

test docs do at present.

> (They don't know about HPH secondary to glutathione depletion yet)

>

>

>

> .If this is true,

> > than why did I have a lessening of Thyroid type symptoms when I began

> > the Armour Protocal? Are you saying those identified symptoms were

> > actually suggestive of poor glutatathione levels instead of a Thyroid

> > problem?

>

>

>

> ***I think my last response covers this.

>

>

>

> I utilize Needs.com from time to time so will probably check out the

Renewpro, as long as it's not going to create some other type

> > of imbalance since I don't actually know my glutathione levels.

>

>

>

> ***One smaller subset of people do have problems with the sulfur in

whey products like RenewPro, but that problems solution is taking the

simple supplement called molybdenum(sp?). Another small side effect

can be a feeling a tiny bit sicker for short a period of time(minutes,

perhaps hours).

>

>

>

> ***This is mostly your body's response to elimating toxins or

infections as a result of increased capacity from the glutathione to

do so. It's a good sign IMO and should go away after a short period.

>

>

>

> > Thanks again.

> >

> > Ballady

> \

>

>

> ***You're welcome. Let us know how it goes.

>

>

>

>

>

[Guest guest]

Okay, Dr. Enlander clarified this before and now you are saying again,

I think, that saying the Renewpro wouldn't be a problem if my allergy

is to sulfites because it is a different classification. Right?

However ... I cannot take Glucosomine sulfate either and I do have a

problem with garlic and somewhat with onions. No problems with

broccoli or dairy.

B.

>

> Are you sensitive to all sulfury things? Or, just things like

sulfites,

> sulfa drugs?

>

> DO you eat onions, garlic, broccoli, dairy products?

>

> DO you take Epsom salt baths? MSM? Glucosamine sulfate? SAM-e?

>

> THere is a group called sulfurstories that helps unravel the

sulfur

> pathways..... also has lots of Moms with autistic kids and some

really smart

> researchers.

>

> Hope this helps

> mjh

>

>

> In a message dated 2/17/06 2:25:55 PM Eastern Standard Time,

> ballady4@... writes:

>

> > Okay. I am allergic to Sulfur so will not pursue that path - Renewpro.

> > I am familiar with Molybendenum.

> >

> > Thanks again .

>

>

>

>

[Guest guest]

Hi, Ballady.

Got it. There are variations on sulfur treatment theme and RenewPro may still

be a possibility for you.

It would just take some teasing a part.

Therefore, I highly recommend the book by Pangborn and Baker called Autism:

Effective Biological treatments at Amazaon.com.

They help the lay person get into the most up to date biochemistry on this type

illness and see many specific in and outs you can apply that can be different in

different folk, PWC/Autistics/etc..

If somehow after reading you see RenewPro is not right for you, you will have

read other means for getting your own body producing and metabolizing sufficient

glutathione effectively. This will give you the chance to get your thyroid back

up on line and getting you mitochondrial function, most pointly, up to snuff

too.

RenewPro is really just a clear cut easy approach to doing this without one

needing to manage more detail elements.

Eitherway, glutathione repletion is what is important.

" ballady4 " <ballady4@...> wrote:

>

> Okay. I am allergic to Sulfur so will not pursue that path - Renewpro.

> I am familiar with Molybendenum.

>

> Thanks again .

>

>

[Guest guest]

You certainly dont need to measure your GSH levels before tryinig Renewpro but I

do want to point out that was tested to find low GSH and that might or

might not be true for you. Most studies of CFS patients have not shown low GSH

levels to be present. That doesnt mean Renewpro might not be helpful for you.

davidhall2020 <davidhall@...> wrote: Hi, Ballady.

Got it. There are variations on sulfur treatment theme and RenewPro may still

be a possibility for you.

It would just take some teasing a part.

Therefore, I highly recommend the book by Pangborn and Baker called Autism:

Effective Biological treatments at Amazaon.com.

They help the lay person get into the most up to date biochemistry on this type

illness and see many specific in and outs you can apply that can be different in

different folk, PWC/Autistics/etc..

If somehow after reading you see RenewPro is not right for you, you will have

read other means for getting your own body producing and metabolizing sufficient

glutathione effectively. This will give you the chance to get your thyroid back

up on line and getting you mitochondrial function, most pointly, up to snuff

too.

RenewPro is really just a clear cut easy approach to doing this without one

needing to manage more detail elements.

Eitherway, glutathione repletion is what is important.

" ballady4 " <ballady4@...> wrote:

>

> Okay. I am allergic to Sulfur so will not pursue that path - Renewpro.

> I am familiar with Molybendenum.

>

> Thanks again .

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Okay, thanks again!

> >

> > Okay. I am allergic to Sulfur so will not pursue that path - Renewpro.

> > I am familiar with Molybendenum.

> >

> > Thanks again .

> >

> >

>

[Guest guest]

Okay. Thanks for the clarification

> >

> > Okay. I am allergic to Sulfur so will not pursue that path - Renewpro.

> > I am familiar with Molybendenum.

> >

> > Thanks again .

> >

> >

>

>

>

>

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested in

any treatment discussed here, please consult your doctor.

>

>

>

>