Re: Leaky gut syndrome and CFS

[Guest guest]

In a message dated 2/2/2006 5:38:32 AM Eastern Standard Time,

katrieninfo@... writes:

How important could the role of diet be in CFS?

Katrien

Katrien

I think that diet is key in all chronic illness..

And, diet can be key in preventing illness.

As some old dude said, " let your food be your medicine and your medicine,

your food. "

Just my two cents.....

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Hi Katrien

It was interesting that you should send this post just now, as I was

just about to write an update on my daughter`s test results from Red

Labs (which showed high elastase (1850, normal level less than 150)

and abnormal RnaseL ratio (2,7, normal level less than 0,5)). I

wrote about this in post nr. 88838. My daughter is 23, she has had

CFS since 2001.

Just as in your case, it turned out that my daughter has antibodies

to gut bacteria in her blood, which also in her case indicates Leaky

gut.

And also like you, she is going to check for fructose and lactose

intolerance.

I guess that leaky gut leading to gut bacteria in the bloodstream

could be one of the reason why there is an inflammation (and

therefore one of the reasons behind her high elastase activity).

I will be very interested in following your progress. May I ask if

you also have increased elatase and RnaseL ratio? If you prefer, you

are welcome to write about this privately.

My daughter has low IgA, and she has often since she became ill had

problems with her gut system. She is taking digestive enzymes and

probiotics, and she has for some time been trying to avoid dairy

products, sugar, gluten and fruits.

She looks forward to getting lactose and fructose intolerance tested

to see if it is necessary to avoid lactose and fructose 100 percent,

or if she might be able to tolerate them.

Yours

ne

[Guest guest]

Hi ne,

It was good to read the update on your daughter's test results. It

seems like De Meirleir has done the same blood tests on her as on me.

I am having my Elastase and RnaseL tested later this month, as well as

a possible intolerance for lactose and fructose. I will let you know

what the results are, as soon as they come in.

Like your daughter, I am taking digestive enzymes and probiotics, and

I am trying to stick to a glutenfree, lactosefree and sugarfree diet.

Has De Meirleir's approach improved her condition?

Katrien

>

> Hi Katrien

>

> It was interesting that you should send this post just now, as I was

> just about to write an update on my daughter`s test results from Red

> Labs (which showed high elastase (1850, normal level less than 150)

> and abnormal RnaseL ratio (2,7, normal level less than 0,5)). I

> wrote about this in post nr. 88838. My daughter is 23, she has had

> CFS since 2001.

>

> Just as in your case, it turned out that my daughter has antibodies

> to gut bacteria in her blood, which also in her case indicates Leaky

> gut.

>

> And also like you, she is going to check for fructose and lactose

> intolerance.

>

> I guess that leaky gut leading to gut bacteria in the bloodstream

> could be one of the reason why there is an inflammation (and

> therefore one of the reasons behind her high elastase activity).

>

> I will be very interested in following your progress. May I ask if

> you also have increased elatase and RnaseL ratio? If you prefer, you

> are welcome to write about this privately.

>

> My daughter has low IgA, and she has often since she became ill had

> problems with her gut system. She is taking digestive enzymes and

> probiotics, and she has for some time been trying to avoid dairy

> products, sugar, gluten and fruits.

>

> She looks forward to getting lactose and fructose intolerance tested

> to see if it is necessary to avoid lactose and fructose 100 percent,

> or if she might be able to tolerate them.

>

> Yours

> ne

>

[Guest guest]

Hi Katrien,

You asked about diet and CFS and if it was important.

I was " lucky " and in the early days tried a lot of diets to help with my

symptoms. What I learned was that avoiding certain things did help with stomach

upsets but overall did little with my main M.E. symptoms.

I did exclusion diets, stone-age diets, anti-candida diets and had food

allergy tests (blood tests and alternative tests). For example I spent a year

without milk products and although I learned that it helped my stomach it did

not " cure " my M.E.

At the Homeopathic Hospital in London I had EPD for allergies and this helped

with the problems I had identified.

Now, I have incorporated all that I learned from the diets in my day-to-day

life and helps me to get the optimum strength and lack of problems. However, it

has made little difference to my overall functioning.

Good luck with Dr M. You are so very lucky to be able to see him.

Kindest regards,

Annette

---------------------------------

Photos – NEW, now offering a quality print service from just 8p a photo.

[Guest guest]

Katrien,

Do you eat cheese? Which type? Best wishes. Nil

Re: Leaky gut syndrome and CFS

> Hi ne,

> It was good to read the update on your daughter's test results. It

> seems like De Meirleir has done the same blood tests on her as on me.

> I am having my Elastase and RnaseL tested later this month, as well as

> a possible intolerance for lactose and fructose. I will let you know

> what the results are, as soon as they come in.

> Like your daughter, I am taking digestive enzymes and probiotics, and

> I am trying to stick to a glutenfree, lactosefree and sugarfree diet.

>

> Has De Meirleir's approach improved her condition?

>

>

[Guest guest]

I am thinking that digestive system problems are secondary to illness. Diet

is important after digestive system problems start not to make the condition

worse. Best wishes nil

Re: Leaky gut syndrome and CFS

>

>

> In a message dated 2/2/2006 5:38:32 AM Eastern Standard Time,

> katrieninfo@... writes:

>

>

> How important could the role of diet be in CFS?

>

> Katrien

>

>

[Guest guest]

>

> Hi, all.

>

> A couple of weeks ago I went to see professor De Meirleir for the

> first time. I guess most of you know that he's dedicating a lot of

his

> time to the research of CFS and the treatment of people afflicted

with

> this devastating illness.

>

> I was surprised to hear that he wants me to have a fructose

> intolerance test and a lactose intolerance test. He claimed that

in my

> case the low IgG3 values in my blood could be due to a fructose

> intolerance. Other people with whom I am in contact, and who follow

> his protocol, have also had these intolerance tests. This made me

> wonder if lactose and fructose intolerance are a typical feature of

> CFS. Does anyone have an idea about this? Has anyone had these

tests?

>

> De Meirleir also seems to be focussed on leaky gut syndrome in CFS.

> There were antibodies to gut bacteria found in my blood, which led

the

> doctor to make the diagnosis of leaky gut syndrome. I know of three

> other patients of his who had the same blood test, got the same

> diagnosis and were advised to go on a strict diet.

>

> How important could the role of diet be in CFS?

>

> Katrien

>

Hi Katrien,

De Meirleir is focussing on the gut as one of the possible issues of

CFS.He also complains about the fact little is known about the

gut,superficial knowledge yes, but even specialists know little of

the deeper aspects of the things that can go wrong in the

gut.Internist can diagnose a disease in the gut but they can't

explain much more about it.

Leaky gut means that not-fully digested foodparticles enter the

bloodstream.The immunesystem has to work 24 hours a day,course these

foodparticles are recognised as foreign bodies and have to be

destroyed.Everybody gets fatigued from such an overactive

immunesystem.

The important question is :how the gut becomes leaky?

I think food intolerances will give a mild infection in the gut

itself. This infection gives the leaks.

So testing for intolerance of food is a good thing.

I'm no doctor , so some of these reasonings can be shaky.

I have no leaky gut , but gut dysbiosis and after ten years of CFS I

learned that bread causes swelling of my belly.Since lowering my

consumption of bread , the swelling has lessened considerably.

It's never to late to learn something (so obvious).

And get a little bit better.

Good luck,

[Guest guest]

Katrien,

Just to let you know I also have a fructose intolerance as indicated

by past lab tests.

And yes I think diet is extremely important.............for everyone.

Tammy

>

> Hi, all.

>

> A couple of weeks ago I went to see professor De Meirleir for the

> first time. I guess most of you know that he's dedicating a lot of

his

> time to the research of CFS and the treatment of people afflicted

with

> this devastating illness.

>

> I was surprised to hear that he wants me to have a fructose

> intolerance test and a lactose intolerance test. He claimed that

in my

> case the low IgG3 values in my blood could be due to a fructose

> intolerance. Other people with whom I am in contact, and who follow

> his protocol, have also had these intolerance tests. This made me

> wonder if lactose and fructose intolerance are a typical feature of

> CFS. Does anyone have an idea about this? Has anyone had these

tests?

>

> De Meirleir also seems to be focussed on leaky gut syndrome in CFS.

> There were antibodies to gut bacteria found in my blood, which led

the

> doctor to make the diagnosis of leaky gut syndrome. I know of three

> other patients of his who had the same blood test, got the same

> diagnosis and were advised to go on a strict diet.

>

> How important could the role of diet be in CFS?

>

> Katrien

>

[Guest guest]

Hi Katrien

You asked if my daughter`s condition has improved during the time (2

years) that she has been following the approach of De Meirleir. I

would say that things have improved, because she has now for ten

months been at a steady level where she is able to study and also to

go out with friends. However the tests show that the disease process

is still going on, so there is still more to do.

I think that following the approach 100 percent over a long time is

not always easy (getting the supplements and medicine, taking all in

the prescribed doses, taking care of diet etc.).

Furthermore as we stay in another country, she cannot go to see De

Meirleir so often, but she has a doctor here in Denmark also. But as

time passes we become better in understanding what she needs to do.

And we try to learn as much as possible, so I am very thankful for

this board!

ne

> Has De Meirleir's approach improved her condition?

> Katrien