Re: Autism: could calcium be the missing link or pure coincidence???

[Guest guest]

Gillian, I am hoping that other parents will come up with more

'anectodal evidence' (as there is not much else we can go on anyway).

The ultimate hope of course is more research and clinical trials that

would lead to better understanding and treatments...

As for early signs, my son started teething when he was four months old

- two teeth came up at once and were fully grown within days. When he

turned six months he had EIGHT fully grown teeth. I did not think

calcium at the time, but I did think 'minerals... something is at play,

something is driving this...' I just did not think it was normal/good,

and wasn't really buying that he was 'advanced for his age'.

Also, he was not a very big baby when he was born, but he soon started

turning into a really (I mean exceptionally) big baby - not fat at all,

just lots of muscle mass and BIG bones. We called him Little Rambo. My

husband and myself are relatively tall, but more skinny tall, and no

known member of our families is really strong/big.

.... fast forward: just around new year we started supplementing with a

few things on top of mb12 shots, SCD diet and td glutothione. We first

tried a B complex, he regressed slightly, we dropped it and he was fine

after a few days (I think it was due to one of the vitamins being in

aspartate form, but not sure).

Next we tried cod liver oil, he seemed to be regressing slightly after

a few days but we were not entirely sure whether it was still

'remnants' from the last regression so we decided to stick to it for a

few more days. But then we added calcium powder to clo and things

turned really nasty, he turned really weird and really, really

'autistic' - all eye contact was lost, he started handflapping and

stimming like mad and just 'switched off' completely. He had been

pretty hf for a few months, was responding well to the whole biomed

thing, so this was very shocking and unexpected... But the worst of

all, and this was the first time and hopefully the last time we

saw it, was his BODY POSTURE - toewalking went 1000% up and the upper

part of his body just stiffened, he walked around like an insect, with

his hands close to his body and bent at elbows and wrists. He was like

that all the time, except for when handflapping. When I read that

calcium controls muscle stiffness and contractions that made so much

sense. Anyway, we dropped both calcium and clo and he returned back to

'normal' within a week or so...

Hope this can shed some light...

Best wishes,

Natasa

>> Thankyou so much Natasha. Your research is ringing alarm bells in my head.> I just Googled Syndrome and read about the work of Mark Keating of> the Children¹s Hospital in Boston. He said: ³Our findings that individuals> with Syndrome met the criteria for autism, or had severe deficits of> language and social development suggest that abnormal calcium signaling may> contribute to these disorders.²> > I¹d love to know what it was that made you suspect your son¹s problems> might have something to do with calcium.> > Thanks for taking the time to present this information to us all> > Cheers> Gillian.>

[Guest guest]

Natasha, the teeth point is interesting. My son is 6 and will be 7 in April- and hasn’t lost a baby tooth yet. This has always intrigued me. Like your son he started teething early. I’ve met a few mums whose autistic children of the same age have yet to loose a baby tooth. Is this normal folks. My neurotypical daughter started loosing her baby teeth at around 4. There is a history of build up of calcium on teeth in my family.

Any more information on this calcium issue would be appreciated from anyone on the list.

Thanks again for all your research Natasha. Must have taken ages!

Gillian

On 4/2/06 15:37, " natasa778 " <neno@...> wrote:

Gillian, I am hoping that other parents will come up with more 'anectodal evidence' (as there is not much else we can go on anyway). The ultimate hope of course is more research and clinical trials that would lead to better understanding and treatments...

As for early signs, my son started teething when he was four months old - two teeth came up at once and were fully grown within days. When he turned six months he had EIGHT fully grown teeth. I did not think calcium at the time, but I did think 'minerals... something is at play, something is driving this...' I just did not think it was normal/good, and wasn't really buying that he was 'advanced for his age'.

Also, he was not a very big baby when he was born, but he soon started turning into a really (I mean exceptionally) big baby - not fat at all, just lots of muscle mass and BIG bones. We called him Little Rambo. My husband and myself are relatively tall, but more skinny tall, and no known member of our families is really strong/big.

.... fast forward: just around new year we started supplementing with a few things on top of mb12 shots, SCD diet and td glutothione. We first tried a B complex, he regressed slightly, we dropped it and he was fine after a few days (I think it was due to one of the vitamins being in aspartate form, but not sure).

Next we tried cod liver oil, he seemed to be regressing slightly after a few days but we were not entirely sure whether it was still 'remnants' from the last regression so we decided to stick to it for a few more days. But then we added calcium powder to clo and things turned really nasty, he turned really weird and really, really 'autistic' - all eye contact was lost, he started handflapping and stimming like mad and just 'switched off' completely. He had been pretty hf for a few months, was responding well to the whole biomed thing, so this was very shocking and unexpected... But the worst of all, and this was the first time and hopefully the last time we saw it, was his BODY POSTURE - toewalking went 1000% up and the upper part of his body just stiffened, he walked around like an insect, with his hands close to his body and bent at elbows and wrists. He was like that all the time, except for when handflapping. When I read that calcium controls muscle stiffness and contractions that made so much sense. Anyway, we dropped both calcium and clo and he returned back to 'normal' within a week or so...

Hope this can shed some light...

Best wishes,

Natasa

>

> Thankyou so much Natasha. Your research is ringing alarm bells in my head.

> I just Googled Syndrome and read about the work of Mark Keating of

> the Children’s Hospital in Boston. He said: “Our findings that individuals

> with Syndrome met the criteria for autism, or had severe deficits of

> language and social development suggest that abnormal calcium signaling may

> contribute to these disorders.”

>

> I’d love to know what it was that made you suspect your son’s problems

> might have something to do with calcium.

>

> Thanks for taking the time to present this information to us all

>

> Cheers

> Gillian.

>

DISCLAIMER

No information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.

[Guest guest]

That is really intriguing, baby tooth not being replaced. I really wish

someone is going to take this up and do some 'serious' research... I am

going to write to a few big 'calcium' names in research, see if anyone

replies and has any suggestions (although I suspect they'll all run

miles on the mention of the A word and refuse to comment)...

My research didn't take that long, couple of weeks or so - quite a few

late nights.. and have shed a few pounds, so all this brain-work brought

a small personal pay off already :)

Natasa

> >> >

> >> > Thankyou so much Natasha. Your research is ringing alarm bells in

my head.

> >> > I just Googled Syndrome and read about the work of Mark

Keating of

> >> > the Children¹s Hospital in Boston. He said: ³Our findings

that individuals

> >> > with Syndrome met the criteria for autism, or had severe

deficits

> >> of

> >> > language and social development suggest that abnormal calcium

signaling may

> >> > contribute to these disorders.²

> >> >

> >> > I¹d love to know what it was that made you suspect your

son¹s problems

> >> > might have something to do with calcium.

> >> >

> >> > Thanks for taking the time to present this information to us all

> >> >

> >> > Cheers

> >> > Gillian.

> >> >

> >

> >

> >

> > DISCLAIMER

> > No information contained in this post is to be construed as medical

advice. If

> > you need medical advice, please seek it from a suitably qualified

> > practitioner.

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi ,

What other physical symptons might be connected to hypothyroid?

-Europe , " Cochran " <Ladyshrink111@...> wrote:

>

> Also, look at the picture of the girl, specifically the flat nose

bridge, a telltale sign of hypothyroid, happens late, after the

thyroid has been malfunctioning for a looong time.

>

>

>

>

> Re: Autism: could calcium be

the missing link or pure coincidence???

>

>

> Gillian, have a look at this :

> http://www.avn.org.au/Children's%20Gallery/angie.htm

> - brings up some interesting points re testing for thyroid

problems!

>

> Natasa

>

>

>

>

> > >>>> >

> > >>>> > Thankyou so much Natasha. Your research is ringing

alarm bells

> in my

> > >>>> head.

> > >>>> > I just Googled Syndrome and read about the

work of

> Mark Keating

> > >>>> of

> > >>>> > the Children¹s Hospital in Boston. He said: ³Our

findings

> that

> > >>>> individuals

> > >>>> > with Syndrome met the criteria for autism, or

had

> severe

> > >>>> deficits of

> > >>>> > language and social development suggest that abnormal

calcium

> signaling

> > >>>> may

> > >>>> > contribute to these disorders.²

> > >>>> >

> > >>>> > I¹d love to know what it was that made you suspect

your

> son¹s problems

> > >>>> > might have something to do with calcium.

> > >>>> >

> > >>>> > Thanks for taking the time to present this

information to us

> all

> > >>>> >

> > >>>> > Cheers

> > >>>> > Gillian.

> > >>>> >

> > >>>

> > >>>

> > >>>

> > >>> DISCLAIMER

> > >>> No information contained in this post is to be construed

as

> medical advice.

> > >>> If you need medical advice, please seek it from a suitably

> qualified

> > >>> practitioner.

> > >>>

> > >>>

> > >>>

> > >>>

> > >>>

> > >>>

[Guest guest]

Probably the most common are; slow growth, passiveness, dry skin even when given some source of oil, thin hair.

Google "hypothyroidism symptoms". This is vitally important as low thyroid can cause developmental problems in children. The article referenced with the girl's picture said the dr found hypothyroidism in all ASD kids. I don't know about that, but because of the potential loss of IQ points, I would make sure they get tested with a free T3 and free T4.

Re: Autism: could calcium be the missing link or pure coincidence???> > > Gillian, have a look at this : > http://www.avn.org.au/Children's%20Gallery/angie.htm> - brings up some interesting points re testing for thyroid problems!> > Natasa> > > > > > >>>> >> > >>>> > Thankyou so much Natasha. Your research is ringing alarm bells> in my> > >>>> head.> > >>>> > I just Googled Syndrome and read about the work of> Mark Keating> > >>>> of> > >>>> > the Children¹s Hospital in Boston. He said: ³Our findings> that> > >>>> individuals> > >>>> > with Syndrome met the criteria for autism, or had> severe> > >>>> deficits of> > >>>> > language and social development suggest that abnormal calcium> signaling> > >>>> may> > >>>> > contribute to these disorders.²> > >>>> >> > >>>> > I¹d love to know what it was that made you suspect your> son¹s problems> > >>>> > might have something to do with calcium.> > >>>> >> > >>>> > Thanks for taking the time to present this information to us> all> > >>>> >> > >>>> > Cheers> > >>>> > Gillian.> > >>>> >> > >>>> > >>>> > >>>> > >>> DISCLAIMER> > >>> No information contained in this post is to be construed as> medical advice.> > >>> If you need medical advice, please seek it from a suitably> qualified> > >>> practitioner.> > >>>> > >>>> > >>>> > >>>> > >>>> > >>>

[Guest guest]

Hypothyroidism and autism. THis is VERY INTERESTING. As a suffeerer

of hypothyroidism for many years and it being in the family, i

definitely intend to research this more.

does anyone have first hand experience of what a child with

hypothyroidism is like, what is displayed, etc?? Will the NHS to a

TRH test?

I was interested in the " broad nose bridge " theory as i have always

noticed from the start that my son has a very wide bridged nose,

whereas i dont. I know this isnt partiucularly scientific, but my

own son sweats a lot and is lethargic a lot of the time. Yet his tsh

tests came back normal.

more info on this from anyone much appreciated!!!

> > > >>>> >

> > > >>>> > Thankyou so much Natasha. Your research is ringing

> alarm bells

> > in my

> > > >>>> head.

> > > >>>> > I just Googled Syndrome and read about the

> work of

> > Mark Keating

> > > >>>> of

> > > >>>> > the Children¹s Hospital in Boston. He said: ³Our

> findings

> > that

> > > >>>> individuals

> > > >>>> > with Syndrome met the criteria for autism,

or

> had

> > severe

> > > >>>> deficits of

> > > >>>> > language and social development suggest that

abnormal

> calcium

> > signaling

> > > >>>> may

> > > >>>> > contribute to these disorders.²

> > > >>>> >

> > > >>>> > I¹d love to know what it was that made you

suspect

> your

> > son¹s problems

> > > >>>> > might have something to do with calcium.

> > > >>>> >

> > > >>>> > Thanks for taking the time to present this

> information to us

> > all

> > > >>>> >

> > > >>>> > Cheers

> > > >>>> > Gillian.

> > > >>>> >

> > > >>>

> > > >>>

> > > >>>

> > > >>> DISCLAIMER

> > > >>> No information contained in this post is to be

construed

> as

> > medical advice.

> > > >>> If you need medical advice, please seek it from a

suitably

> > qualified

> > > >>> practitioner.

> > > >>>

> > > >>>

> > > >>>

> > > >>>

> > > >>>

> > > >>>

[Guest guest]

You can't go on TSH, they can be within normal range due to mercury. You have to look at the free T3 and free T4, which is the amount of thyroid hormones available and floating around in the body.

I don't think the TRH is necessary if you have the above values.

Another problem is that they use adult reference ranges for the Free T3 and T4 when, acutally the reference ranges for children are much, much higher. So, is almost a coincidence if you can find a dr who knows what to test for, and then knows how to interpret the values correctly.

Ours started out hyperactive, but picked up the change to hypothyroid on a hair test. She is in the 95% for height, so not slow growing, has tons of thick hair, is definitely not passive, so the only symptom we had was dry skin, but she clearly tested hypo on the free T3. But, as I said, we caught it very early.

Good luck,

Re: Autism: could calcium be the missing link or pure coincidence???

Hypothyroidism and autism. THis is VERY INTERESTING. As a suffeerer of hypothyroidism for many years and it being in the family, i definitely intend to research this more. does anyone have first hand experience of what a child with hypothyroidism is like, what is displayed, etc?? Will the NHS to a TRH test? I was interested in the "broad nose bridge" theory as i have always noticed from the start that my son has a very wide bridged nose, whereas i dont. I know this isnt partiucularly scientific, but my own son sweats a lot and is lethargic a lot of the time. Yet his tsh tests came back normal. more info on this from anyone much appreciated!!!> > > >>>> >> > > >>>> > Thankyou so much Natasha. Your research is ringing > alarm bells> > in my> > > >>>> head.> > > >>>> > I just Googled Syndrome and read about the > work of> > Mark Keating> > > >>>> of> > > >>>> > the Children¹s Hospital in Boston. He said: ³Our > findings> > that> > > >>>> individuals> > > >>>> > with Syndrome met the criteria for autism, or > had> > severe> > > >>>> deficits of> > > >>>> > language and social development suggest that abnormal > calcium> > signaling> > > >>>> may> > > >>>> > contribute to these disorders.²> > > >>>> >> > > >>>> > I¹d love to know what it was that made you suspect > your> > son¹s problems> > > >>>> > might have something to do with calcium.> > > >>>> >> > > >>>> > Thanks for taking the time to present this > information to us> > all> > > >>>> >> > > >>>> > Cheers> > > >>>> > Gillian.> > > >>>> >> > > >>>> > > >>>> > > >>>> > > >>> DISCLAIMER> > > >>> No information contained in this post is to be construed > as> > medical advice.> > > >>> If you need medical advice, please seek it from a suitably> > qualified> > > >>> practitioner.> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>> > > >>>

[Guest guest]

Have you read that article in full? Here is the link again:

http://www.avn.org.au/Children's%20Gallery/angie.htm

I think it is extremely relevant as it talks about different tests and

how thyroid problems can easily be missed in standard tests. It also

mentions treatments...

Natasa

> > > > >>>> >

> > > > >>>> > Thankyou so much Natasha. Your research is ringing

> > alarm bells

> > > in my

> > > > >>>> head.

> > > > >>>> > I just Googled Syndrome and read about the

> > work of

> > > Mark Keating

> > > > >>>> of

> > > > >>>> > the Children¹s Hospital in Boston. He said:

³Our

> > findings

> > > that

> > > > >>>> individuals

> > > > >>>> > with Syndrome met the criteria for autism,

> or

> > had

> > > severe

> > > > >>>> deficits of

> > > > >>>> > language and social development suggest that

> abnormal

> > calcium

> > > signaling

> > > > >>>> may

> > > > >>>> > contribute to these disorders.²

> > > > >>>> >

> > > > >>>> > I¹d love to know what it was that made you

> suspect

> > your

> > > son¹s problems

> > > > >>>> > might have something to do with calcium.

> > > > >>>> >

> > > > >>>> > Thanks for taking the time to present this

> > information to us

> > > all

> > > > >>>> >

> > > > >>>> > Cheers

> > > > >>>> > Gillian.

> > > > >>>> >

> > > > >>>

> > > > >>>

> > > > >>>

> > > > >>> DISCLAIMER

> > > > >>> No information contained in this post is to be

> construed

> > as

> > > medical advice.

> > > > >>> If you need medical advice, please seek it from a

> suitably

> > > qualified

> > > > >>> practitioner.

> > > > >>>

> > > > >>>

> > > > >>>

> > > > >>>

> > > > >>>

> > > > >>>

[Guest guest]

Hi mjh,

Thanks for all the info. I could not read it all but certainly get the " drift.

Well . . . . I can tell you that I have been experiementing with my

multiminerals lately and it seems like they are definetely interfering with my

brain inflammation and pain too.

I definetely feel I react to calcium(glycine, too) and the glutamate.

What does someone like me do to replace all the calcium every month(due to

very heavy menstral bleeding) loss but has terrible reactions to these

excitotoxins.

Boy I think I am really getting somewhere here.

Rich . . . can you help out here, too.

All thses glutamates, glycine and calcium are really causing losts of brain

problems with pain, light shows, and brain damage. I am trying to cut back to

protect my brain, but the rest of my body may really need it I feel stuck.

I understand Dr. Amy Yasko recognizes this as a problem too by reading her

website at www.autismanswer.com. and some of her books.

I am just so overwhelmed with all this info and having difficultly thinking. I

know I am getting somewhere but still can't seem to put it all together.

Please help.

Thanks, Sue T

foxhillers@... wrote:

Hiya all

I have Natasha's permission to crosspost the following originally posted on

mb12 valtrex and autism_LDN. Look at the ion channel issues, viruses and etc.

Anyone here see the importance of Magnesium following this line of thought?

mjh

Date: Sat, 04 Feb 2006 12:38:19 -0000

From: " natasa778 " <neno@...>

Subject: Autism: could calcium be the missing link or pure coincidence???

Dear Stan and others,

This is a long post, but please bear with me as I believe I have

stumbled across something that might turn out to be one of the

underlying mechanism in autism. Even if only a small fraction of my

observations has some validity, it could offer better understanding and

hopefully wider treatment options for at least a subset of our kids. So

please read on (and it does get interesting, promise [] ). If you

really cannot, for whatever reason, that please forward this to your DAN

doc or whoever might be interested.

[p.s.if you cannot open the links just cut and paste into your browser]

[Guest guest]

Hi, Sue.

Do you know for sure that it isn't some additive in your

multimineral that is causing problems?

The other thing that occurs to me is that if these nutrients are

causing brain problems, it must mean that the blood-brain barrier is

not functioning properly. Oxidative stress can cause this. I know

you are working on getting your sulfur metabolism up, so that the

glutathione level can come up, and this should help to support the

blood-brain barrier. (There's a paper in the literature by A.C.

Logan in Canada that talks about this.) In the meantime, I wonder

if taking other antioxidants might help. For example, we talked

about more vitamin C before. What about boosting your vitamin C

intake?

You're ahead of me on studying Amy Yasko's work, so I don't yet know

her thinking on these issues. I hope to get up to speed on her work

soon.

Rich

> Well . . . . I can tell you that I have been experiementing with

my multiminerals lately and it seems like they are definetely

interfering with my brain inflammation and pain too.

>

> I definetely feel I react to calcium(glycine, too) and the

glutamate.

>

> What does someone like me do to replace all the calcium every

month(due to very heavy menstral bleeding) loss but has terrible

reactions to these excitotoxins.

>

> Boy I think I am really getting somewhere here.

> Rich . . . can you help out here, too.

>

> All thses glutamates, glycine and calcium are really causing

losts of brain problems with pain, light shows, and brain damage. I

am trying to cut back to protect my brain, but the rest of my body

may really need it I feel stuck.

>

> I understand Dr. Amy Yasko recognizes this as a problem too by

reading her website at www.autismanswer.com. and some of her books.

> I am just so overwhelmed with all this info and having

difficultly thinking. I know I am getting somewhere but still can't

seem to put it all together.

>

> Please help.

>

> Thanks, Sue T