Re: Autism: could calcium be the missing link or pure coi...

[Guest guest]

Hiya Sue T

Remember that Calcium needs to be in balance with Magnesium. You might try

to take some additional Magnesium on an empty stomach for a while and see

what transpires. You might consider trying Mg hyroxide or citrate form rather

than an amino acid chelate.

See Blaylock's book Excitotoxins it can be very helpful. Just avoid the

glycines, DMG and TMG as well as glutamates in any form for a while and watch

your body's reponse. If you eat processed or prepared foods, watch for

ingredients like 'natural flavorings " as these can be code words for MSG (mono

sodium glutamate).

Sulfites should be considered, too.

Are you eating wild salmon very regularly or other coldwater fish sources of

omega-3 fatty acids? Do you take fish oil? Enough of it? In addition to

providing good nutrients to the brain and heart, it is also anti-inflammatory.

Just some more for you to think about.....

mjh

In a message dated 2/6/2006 10:13:10 AM Eastern Standard Time,

morabshadow@... writes:

Hi mjh,

Thanks for all the info. I could not read it all but certainly get the

" drift.

Well . . . . I can tell you that I have been experiementing with my

multiminerals lately and it seems like they are definetely interfering with my

brain

inflammation and pain too.

I definetely feel I react to calcium(glycine, too) and the glutamate.

What does someone like me do to replace all the calcium every month(due to

very heavy menstral bleeding) loss but has terrible reactions to these

excitotoxins.

Boy I think I am really getting somewhere here.

Rich . . . can you help out here, too.

All thses glutamates, glycine and calcium are really causing losts of brain

problems with pain, light shows, and brain damage. I am trying to cut back to

protect my brain, but the rest of my body may really need it I feel stuck.

I understand Dr. Amy Yasko recognizes this as a problem too by reading her

website at www.autismanswer.com. and some of her books.

I am just so overwhelmed with all this info and having difficultly thinking.

I know I am getting somewhere but still can't seem to put it all together.

Please help.

Thanks, Sue T

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

In a message dated 2/6/2006 11:29:28 AM Eastern Standard Time,

morabshadow@... writes:

I am going to try and get some calcium from chamomile, nettles, and chervil.

I was just looking at my chervil bed a few days ago before it snowed and

harvested some for my scrambled eggs. I wonder what amounts of chervil and

chamomile you will consume and in what form to get an adequate amount of

calcium.

I love nettles, they are mineral rich amongst other things.

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Hi mjh,

After I take my multimineral which has almost equal amounts of cal citrate and

mag citrate I get stiff muscles in shoulders and neck and also the bad headache

and eye pain.

I am going to try and get some calcium from chamomile, nettles, and chervil. I

am also on a low glutamate diet now, to which is helping a bit. I cut back on

protein to help stop the ammonia.

I take mag citrate separate on an empty stomach cause I need additional and

that is fine.

Dr. Amy Yasko posted that if you have heavy periods to stop Vitamin C and she

does not recommend to take a calcium supplement form if you have brain symptoms

like mine, plus cut back on glutamates and glycine.

I think she is on track with this one like you to so degree.

Thanks for your help.

Sue T

foxhillers@... wrote:

Hiya Sue T

Remember that Calcium needs to be in balance with Magnesium. You might try

to take some additional Magnesium on an empty stomach for a while and see

what transpires. You might consider trying Mg hyroxide or citrate form rather

than an amino acid chelate.

See Blaylock's book Excitotoxins it can be very helpful. Just avoid the

glycines, DMG and TMG as well as glutamates in any form for a while and watch

your body's reponse. If you eat processed or prepared foods, watch for

ingredients like 'natural flavorings " as these can be code words for MSG (mono

sodium glutamate).

Sulfites should be considered, too.

Are you eating wild salmon very regularly or other coldwater fish sources of

omega-3 fatty acids? Do you take fish oil? Enough of it? In addition to

providing good nutrients to the brain and heart, it is also anti-inflammatory.

Just some more for you to think about.....

mjh

In a message dated 2/6/2006 10:13:10 AM Eastern Standard Time,

morabshadow@... writes:

Hi mjh,

Thanks for all the info. I could not read it all but certainly get the

" drift.

Well . . . . I can tell you that I have been experiementing with my

multiminerals lately and it seems like they are definetely interfering with my

brain

inflammation and pain too.

I definetely feel I react to calcium(glycine, too) and the glutamate.

What does someone like me do to replace all the calcium every month(due to

very heavy menstral bleeding) loss but has terrible reactions to these

excitotoxins.

Boy I think I am really getting somewhere here.

Rich . . . can you help out here, too.

All thses glutamates, glycine and calcium are really causing losts of brain

problems with pain, light shows, and brain damage. I am trying to cut back to

protect my brain, but the rest of my body may really need it I feel stuck.

I understand Dr. Amy Yasko recognizes this as a problem too by reading her

website at www.autismanswer.com. and some of her books.

I am just so overwhelmed with all this info and having difficultly thinking.

I know I am getting somewhere but still can't seem to put it all together.

Please help.

Thanks, Sue T

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Sue,

I also have a major problem with calcium and glutamine but I didn't know that

there was a connection to glycine. I just bought some TMG but haven't taken it

yet. I will check out Dr. Amy Yasko's site but if anyone has any additional

information on this, I'd love to hear it.

Thanks

bf

Re: Autism: could calcium be the missing link or

pure coi...

Hi mjh,

After I take my multimineral which has almost equal amounts of cal citrate

and mag citrate I get stiff muscles in shoulders and neck and also the bad

headache and eye pain.

I am going to try and get some calcium from chamomile, nettles, and chervil.

I am also on a low glutamate diet now, to which is helping a bit. I cut back on

protein to help stop the ammonia.

I take mag citrate separate on an empty stomach cause I need additional and

that is fine.

Dr. Amy Yasko posted that if you have heavy periods to stop Vitamin C and

she does not recommend to take a calcium supplement form if you have brain

symptoms like mine, plus cut back on glutamates and glycine.

I think she is on track with this one like you to so degree.

Thanks for your help.

Sue T

foxhillers@... wrote:

Hiya Sue T

Remember that Calcium needs to be in balance with Magnesium. You might try

to take some additional Magnesium on an empty stomach for a while and see

what transpires. You might consider trying Mg hyroxide or citrate form

rather

than an amino acid chelate.

See Blaylock's book Excitotoxins it can be very helpful. Just avoid the

glycines, DMG and TMG as well as glutamates in any form for a while and watch

your body's reponse. If you eat processed or prepared foods, watch for

ingredients like 'natural flavorings " as these can be code words for MSG

(mono

sodium glutamate).

Sulfites should be considered, too.

Are you eating wild salmon very regularly or other coldwater fish sources of

omega-3 fatty acids? Do you take fish oil? Enough of it? In addition to

providing good nutrients to the brain and heart, it is also

anti-inflammatory.

Just some more for you to think about.....

mjh

In a message dated 2/6/2006 10:13:10 AM Eastern Standard Time,

morabshadow@... writes:

Hi mjh,

Thanks for all the info. I could not read it all but certainly get the

" drift.

Well . . . . I can tell you that I have been experiementing with my

multiminerals lately and it seems like they are definetely interfering with

my brain

inflammation and pain too.

I definetely feel I react to calcium(glycine, too) and the glutamate.

What does someone like me do to replace all the calcium every month(due to

very heavy menstral bleeding) loss but has terrible reactions to these

excitotoxins.

Boy I think I am really getting somewhere here.

Rich . . . can you help out here, too.

All thses glutamates, glycine and calcium are really causing losts of brain

problems with pain, light shows, and brain damage. I am trying to cut back to

protect my brain, but the rest of my body may really need it I feel stuck.

I understand Dr. Amy Yasko recognizes this as a problem too by reading her

website at www.autismanswer.com. and some of her books.

I am just so overwhelmed with all this info and having difficultly thinking.

I know I am getting somewhere but still can't seem to put it all together.

Please help.

Thanks, Sue T

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Autism: could calcium be the missing link or pure

coi...

> After I take my multimineral which has almost equal amounts of cal citrate and

mag citrate I

> get stiff muscles in shoulders and neck and also the bad headache and eye

pain.

Sue,

I have had really bad reactions (migraine headaches, depression,

irritability, fatigue) to every mineral citrate I have taken. I have

read that citrates are derived from mold. I also cannot take anything

that contains citric acid for the same reason.

[Guest guest]

Hi, Sue.

O.K., so Amy says to cut back on vitamin C if you have heavy

periods. Do you know what her reasoning is on that?

I wonder if the citrate could be a problem for you. I realize that

the citrate level on your most recent Organix test was normal, but

there were some high levels for metabolites later on in the Krebs

cycle, suggesting a problem with a backup at Co Q-10 or cytochrome

oxidase, so maybe your citrate has come up, too, since you've been

taking the citrated minerals. Your plan to switch to dietary means

of getting calcium should test this possibility.

I've gotta study her stuff!

Rich

>

> Hi mjh,

>

> After I take my multimineral which has almost equal amounts of

cal citrate and mag citrate I get stiff muscles in shoulders and

neck and also the bad headache and eye pain.

>

> I am going to try and get some calcium from chamomile, nettles,

and chervil. I am also on a low glutamate diet now, to which is

helping a bit. I cut back on protein to help stop the ammonia.

>

> I take mag citrate separate on an empty stomach cause I need

additional and that is fine.

>

> Dr. Amy Yasko posted that if you have heavy periods to stop

Vitamin C and she does not recommend to take a calcium supplement

form if you have brain symptoms like mine, plus cut back on

glutamates and glycine.

> I think she is on track with this one like you to so degree.

>

> Thanks for your help.

> Sue T

[Guest guest]

> I was just looking at my chervil bed a few days ago

Hi, mjh.

Do you have a cranberry bog, too, like Martha ? (:-) I get the

impression that you have quite a spread, from all the things you are

growing. It sort of reminds me of the old Peanuts comic strip, with

all the marvelous things Snoopy purportedly had in his doghouse.

Rich

[Guest guest]

Sue,

I also am having lots of brain problems with supplements.After reading your

notes on calcium and magnesium glycinate and another list member's notes on

citrates I am even more confused on this subject. I had been using mag

glycinate and calcium citrate lately. My brain problems increased and I

don't know if any of these have caused this. I am using pro-quality

supplements with minimal or at least harmful excipients so I don't think it

is due to additives.I am quite frustrated on this subject at this point.I

think I have to simplify my supplements as much as I can. There is only one

thing that helps me at this point.being careful on how I feed myself and

various intestinal cleaning including coffee enemas.

best wishes

nil

Re: Autism: could calcium be the missing link

or pure coi...

> Hi mjh,

>

> After I take my multimineral which has almost equal amounts of cal

> citrate and mag citrate I get stiff muscles in shoulders and neck and also

> the bad headache and eye pain.

>

> I am going to try and get some calcium from chamomile, nettles, and

> chervil. I am also on a low glutamate diet now, to which is helping a bit.

> I cut back on protein to help stop the ammonia.

>

> I take mag citrate separate on an empty stomach cause I need additional

> and that is fine.

>

> Dr. Amy Yasko posted that if you have heavy periods to stop Vitamin C and

> she does not recommend to take a calcium supplement form if you have brain

> symptoms like mine, plus cut back on glutamates and glycine.

> I think she is on track with this one like you to so degree.

>

> Thanks for your help.

> Sue T

>

>

> foxhillers@... wrote:

>

>

> Hiya Sue T

>

> Remember that Calcium needs to be in balance with Magnesium. You might

> try

> to take some additional Magnesium on an empty stomach for a while and see

> what transpires. You might consider trying Mg hyroxide or citrate form

> rather

> than an amino acid chelate.

>

> See Blaylock's book Excitotoxins it can be very helpful. Just avoid the

> glycines, DMG and TMG as well as glutamates in any form for a while and

> watch

> your body's reponse. If you eat processed or prepared foods, watch for

> ingredients like 'natural flavorings " as these can be code words for MSG

> (mono

> sodium glutamate).

>

> Sulfites should be considered, too.

>

> Are you eating wild salmon very regularly or other coldwater fish sources

> of

> omega-3 fatty acids? Do you take fish oil? Enough of it? In addition to

> providing good nutrients to the brain and heart, it is also

> anti-inflammatory.

>

> Just some more for you to think about.....

> mjh

>

>

>

>

> In a message dated 2/6/2006 10:13:10 AM Eastern Standard Time,

> morabshadow@... writes:

>

> Hi mjh,

>

> Thanks for all the info. I could not read it all but certainly get the

> " drift.

>

> Well . . . . I can tell you that I have been experiementing with my

> multiminerals lately and it seems like they are definetely interfering

> with my brain

> inflammation and pain too.

>

> I definetely feel I react to calcium(glycine, too) and the glutamate.

>

> What does someone like me do to replace all the calcium every month(due

> to

> very heavy menstral bleeding) loss but has terrible reactions to these

> excitotoxins.

>

> Boy I think I am really getting somewhere here.

> Rich . . . can you help out here, too.

>

> All thses glutamates, glycine and calcium are really causing losts of

> brain

> problems with pain, light shows, and brain damage. I am trying to cut

> back to

> protect my brain, but the rest of my body may really need it I feel

> stuck.

>

> I understand Dr. Amy Yasko recognizes this as a problem too by reading

> her

> website at www.autismanswer.com. and some of her books.

> I am just so overwhelmed with all this info and having difficultly

> thinking.

> I know I am getting somewhere but still can't seem to put it all

> together.

>

> Please help.

>

> Thanks, Sue T

>

>

>

>

>

> mjh

> " The Basil Book "

> http://foxhillfarm.us/FireBasil/

>

>

>

[Guest guest]

Hi , Rich, and mjh, Nil, and All,

Thanks for everyones response.

. .Thanks for your reply on the mineral citrate relationship to mold. .

.. . it feels like a mold sinus issue that has worked its way into my brain

brain.

Which brand or type of minerals do you use that works for you?

mjh. . . yes the Vit C and fish oil do thin the blood (I also have a Vitamin

K deficiency. too) which can be a problem if you bleed a lot but good for

inflammation.

Rich . . . do you think I should cut back on the COQ10 . . I am taking 400 mg

once a day. I agree I have lots of oxidative stress and I find my brain is

becoming more and more sensitive especially from taking the Iron infusions for

low ferritin. I have got to something for this sensitive brain!! I have cut back

on all sulfur until I get Dr. Yasko genetic testing back. I was getting hives,

low adrenals, and exhaustion in the afternoon. I think I moved along too quickly

with the DAN! supplements.

Thanks to everyone,

Sue T

<dathomas@...> wrote:

Autism: could calcium be the missing link or pure

coi...

> After I take my multimineral which has almost equal amounts of cal citrate and

mag citrate I

> get stiff muscles in shoulders and neck and also the bad headache and eye

pain.

Sue,

I have had really bad reactions (migraine headaches, depression,

irritability, fatigue) to every mineral citrate I have taken. I have

read that citrates are derived from mold. I also cannot take anything

that contains citric acid for the same reason.

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Hi, Sue.

O.K., sorry about the worsening brain issues. The genetic testing

should help to pin down where your sulfur metabolism block might be.

On the Co Q10, under the circumstances, I would say yes, it's probably

a good idea to drop back on it. It's hard to know what's doing what

because there are so many possibilities. Taking things one at a time

more slowly is probably a good idea, so you can tell what is having

what effect. There have been a few people on the list who reported

that they do not tolerate Co Q-10 well, so I think it is a possible

suspect. I think the only way to find out is to do what you're

doing. Drop back on things, and then resume them one at a time, more

slowly. The genetic test results should be a big help.

Rich

> Rich . . . do you think I should cut back on the COQ10 . . I am

taking 400 mg once a day. I agree I have lots of oxidative stress and

I find my brain is becoming more and more sensitive especially from

taking the Iron infusions for low ferritin. I have got to something

for this sensitive brain!! I have cut back on all sulfur until I get

Dr. Yasko genetic testing back. I was getting hives, low adrenals, and

exhaustion in the afternoon. I think I moved along too quickly with

the DAN! supplements.

>

> Thanks to everyone,

> Sue T >

[Guest guest]

Sue,

my coQ10 levels were VERY low on my Metametrix testing. Their recommendations

for dosage for me to take is 150mg day. I think the amt you are taking is pretty

huge. I have trouble with it but have been taking 100 to 150 mgs anyway. I've

had a real setback this last week and been very sick myself, too tired to write

about it now but wanted to share that coq10 dose from Metametrix with you. I'd

try and get it down to the 150mg or so dose if not lower.

Marcia

Re: Autism: could calcium be the missing link or

pure coi...

Hi, Sue.

O.K., sorry about the worsening brain issues. The genetic testing

should help to pin down where your sulfur metabolism block might be.

On the Co Q10, under the circumstances, I would say yes, it's probably

a good idea to drop back on it. It's hard to know what's doing what

because there are so many possibilities. Taking things one at a time

more slowly is probably a good idea, so you can tell what is having

what effect. There have been a few people on the list who reported

that they do not tolerate Co Q-10 well, so I think it is a possible

suspect. I think the only way to find out is to do what you're

doing. Drop back on things, and then resume them one at a time, more

slowly. The genetic test results should be a big help.

Rich

> Rich . . . do you think I should cut back on the COQ10 . . I am

taking 400 mg once a day. I agree I have lots of oxidative stress and

I find my brain is becoming more and more sensitive especially from

taking the Iron infusions for low ferritin. I have got to something

for this sensitive brain!! I have cut back on all sulfur until I get

Dr. Yasko genetic testing back. I was getting hives, low adrenals, and

exhaustion in the afternoon. I think I moved along too quickly with

the DAN! supplements.

>

> Thanks to everyone,

> Sue T >

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

.. I have got to something for this sensitive brain!! I have cut back on all

sulfur until I get Dr. Yasko genetic testing back. I was getting hives, low

adrenals, and exhaustion in the afternoon. I think I moved along too quickly

with the DAN! supplements.

Thanks to everyone,

Sue T

Hi Sue,

Sorry to hear you are having such a setback :-( My probs now days seem to be so

much with my brain as well. It feels swollen/pressure, which leads to more

anxiety/worries, balance probs, worse concentration probs, the whole thing just

isn't working well at all. I started coming down with a cold last tues night,

sore throat and all that. Then weds night I ended up with severe bloody diahrea

and bad intestinal pain and for almost 30hrs could barely get up to the bathroom

without getting hot and sweaty and feeling like passing out. It was very scary

actually. The diah. stopped after one night, then took 2 more days for another

BM ( because I couldn't eat a couple days with such bad intestinal pain) to see

there was still blood probs for a couple more days. I think thats clearing up

now. Had fever almost 3 days and now am just at the tail end of the coughing,

congestion, almost no voice left and still intestinal pain and cramping. I have

NO idea what I've just had.

Right now I'm about as discouraged as you can get. I've tried so hard trying so

many things and its always one step forward two steps back it seems. One thing I

did realize, while down and out and too severely sick to access the net, was

that I can't keep up with this list anymore. I've spent the last couple days

trying to catch up and it made my brain go crazy, trying to read through all the

myriads of messages, many that didn't relate to cfs, and by nature of the size

and volume of the list, the same questions get repeated over and over and over.

I can't handle it. I've tried to answer questions for people when I can, but

sometimes the question was just answered the day before. I do appreciate Rich

jumping in and answering as much as he does because its exhausting to sick

people to try and keep doing it repeatedly. I feel torn, as this list is my

main source of info yet at the same time I beleive its sucking my health down

even further because it consumes so much time/energy now. I think I'd be

healtier if I'd spend the time resting/napping for awhile. When I have felt

better I've been stuck on the puter reading and writing endlessly. So I'm going

to take a break for awhile and try and use the time to get my gut healed back

up. its a horrible mess right now, something I haven't had to deal with in many

years. I'm having to go all the way back to square one as right now I can't

tolerate any supplements at all. I had taken most the DAN! protocol supps but

not in the rec. order because I'd started doing this over a year ago before any

of this info came out. (TMG because it was rec. by Pall) but didn't know

to do the 'right order' of anything. I've tried to add more of their protocol

and right now its all come crashing down around me. I've taken magnes. for about

15yrs, tried every sort there is, none made much of a diff but I took it anyway.

Took it yesterday with some b6 and ended up with a migraine headache and

miserable (I don't usually get that many headaches). So, I'll continue my coQ10

because I worry about my heart through all this. Other than that right now I'm

just going to do probiotics and am drinking aloe vera to try and heal my gut and

then regroup. I've experienced times in the past that I've felt the oral

supplements eventually just become part of the toxic burden for my body to deal

with and remove and stopped things for awhile and usually feel better w/o them

for awhile. I'd like to get some Sparx when he makes the new forumula w/o the

lecithin (which makes me dizzy) and also has folinic instead of folic acid.

I'll continue the Myers and glut IV's when I can get them and proceed slowly

with the dental work. Right now my gut, my head and brain are a mess. The list

has left my life feeling totally overwhelmed by the time its taken out of my

life and energy trying to comprehend it with such an impaired brain and I didn't

really realizie how bad it was dragging me down until I got so sick I could not

get online. It was a huge sense of relief to this brain, it creates SO much

more fatigue trying to read/understand and retain info when your brain doesn't

function. Hopefully spending the time napping will help me recoup and maybe

even clean the house up when I feel better, something else that never gets done

while on the net so much :-(

Marcia

[Guest guest]

Hi, Marcia.

I don't know if you'll see this message, since you're taking a

break, but I'm sorry about what you're going through. Sounds like

taking a break from the treatments and the list is a smart idea. I

think we still have a lot to learn about how fast to go with these

treatments. Slower is probably better, though I realize that

everyone would like to be healthy again as fast as possible. I hope

you get some good rest and that your head clears and your gut

settles down.

Yes, the activity on the list has been at a fever pitch lately. I'm

probably responsible for some of that. I will have to decrease the

time I spend on the list for a while, too, because I need to do some

serious studying.

Take care,

Rich

>

> . I have got to something for this sensitive brain!! I have cut

back on all sulfur until I get Dr. Yasko genetic testing back. I was

getting hives, low adrenals, and exhaustion in the afternoon. I

think I moved along too quickly with the DAN! supplements.

>

> Thanks to everyone,

> Sue T

>

>

> Hi Sue,

>

> Sorry to hear you are having such a setback :-( My probs now days

seem to be so much with my brain as well. It feels swollen/pressure,

which leads to more anxiety/worries, balance probs, worse

concentration probs, the whole thing just isn't working well at

all. I started coming down with a cold last tues night, sore throat

and all that. Then weds night I ended up with severe bloody diahrea

and bad intestinal pain and for almost 30hrs could barely get up to

the bathroom without getting hot and sweaty and feeling like passing

out. It was very scary actually. The diah. stopped after one night,

then took 2 more days for another BM ( because I couldn't eat a

couple days with such bad intestinal pain) to see there was still

blood probs for a couple more days. I think thats clearing up now.

Had fever almost 3 days and now am just at the tail end of the

coughing, congestion, almost no voice left and still intestinal pain

and cramping. I have NO idea what I've just had.

>

> Right now I'm about as discouraged as you can get. I've tried so

hard trying so many things and its always one step forward two steps

back it seems. One thing I did realize, while down and out and too

severely sick to access the net, was that I can't keep up with this

list anymore. I've spent the last couple days trying to catch up and

it made my brain go crazy, trying to read through all the myriads of

messages, many that didn't relate to cfs, and by nature of the size

and volume of the list, the same questions get repeated over and

over and over. I can't handle it. I've tried to answer questions

for people when I can, but sometimes the question was just answered

the day before. I do appreciate Rich jumping in and answering as

much as he does because its exhausting to sick people to try and

keep doing it repeatedly. I feel torn, as this list is my main

source of info yet at the same time I beleive its sucking my health

down even further because it consumes so much time/energy now. I

think I'd be healtier if I'd spend the time resting/napping for

awhile. When I have felt better I've been stuck on the puter

reading and writing endlessly. So I'm going to take a break for

awhile and try and use the time to get my gut healed back up. its a

horrible mess right now, something I haven't had to deal with in

many years. I'm having to go all the way back to square one as

right now I can't tolerate any supplements at all. I had taken most

the DAN! protocol supps but not in the rec. order because I'd

started doing this over a year ago before any of this info came

out. (TMG because it was rec. by Pall) but didn't know to do

the 'right order' of anything. I've tried to add more of their

protocol and right now its all come crashing down around me. I've

taken magnes. for about 15yrs, tried every sort there is, none made

much of a diff but I took it anyway. Took it yesterday with some b6

and ended up with a migraine headache and miserable (I don't usually

get that many headaches). So, I'll continue my coQ10 because I

worry about my heart through all this. Other than that right now I'm

just going to do probiotics and am drinking aloe vera to try and

heal my gut and then regroup. I've experienced times in the past

that I've felt the oral supplements eventually just become part of

the toxic burden for my body to deal with and remove and stopped

things for awhile and usually feel better w/o them for awhile. I'd

like to get some Sparx when he makes the new forumula w/o the

lecithin (which makes me dizzy) and also has folinic instead of

folic acid. I'll continue the Myers and glut IV's when I can get

them and proceed slowly with the dental work. Right now my gut, my

head and brain are a mess. The list has left my life feeling totally

overwhelmed by the time its taken out of my life and energy trying

to comprehend it with such an impaired brain and I didn't really

realizie how bad it was dragging me down until I got so sick I could

not get online. It was a huge sense of relief to this brain, it

creates SO much more fatigue trying to read/understand and retain

info when your brain doesn't function. Hopefully spending the time

napping will help me recoup and maybe even clean the house up when I

feel better, something else that never gets done while on the net so

much :-(

>

> Marcia

>

>

>

[Guest guest]

Hi Marcia,

I was just going through some of my old emails and realized I had never wrote

back to you . . my brain is so foggy.

I hope you are doing better both mentally and physically.

The last flu you had sounded terrible. I have not had a flu or cold in 7

years. Forgot what it is like. I just always feel crappy.

I am still waiting for my Yasko test results. I have slowed downed on DAN!

supplements for now except for the B's and antioxidants till I see my results.

Rich is learning a lot about Yasko's work. I am to brain dead to absorb too

much so I am hoping he can help. I also have a couple of her books. I feel I am

not going to jam my brain with info till I can make better sense of it with by

having my own results to compare to.

Did you order the testing . . . sorry I can not remember?

Again . . I am sorry I did not write back to you last month. I have been so

overwhelmed(At least I did not delete the other email(the long one)

Take care and best wishes,

Sue T

Marcia <mgrahn@...> wrote:

Sue,

my coQ10 levels were VERY low on my Metametrix testing. Their recommendations

for dosage for me to take is 150mg day. I think the amt you are taking is pretty

huge. I have trouble with it but have been taking 100 to 150 mgs anyway. I've

had a real setback this last week and been very sick myself, too tired to write

about it now but wanted to share that coq10 dose from Metametrix with you. I'd

try and get it down to the 150mg or so dose if not lower.

Marcia

Re: Autism: could calcium be the missing link or

pure coi...

Hi, Sue.

O.K., sorry about the worsening brain issues. The genetic testing

should help to pin down where your sulfur metabolism block might be.

On the Co Q10, under the circumstances, I would say yes, it's probably

a good idea to drop back on it. It's hard to know what's doing what

because there are so many possibilities. Taking things one at a time

more slowly is probably a good idea, so you can tell what is having

what effect. There have been a few people on the list who reported

that they do not tolerate Co Q-10 well, so I think it is a possible

suspect. I think the only way to find out is to do what you're

doing. Drop back on things, and then resume them one at a time, more

slowly. The genetic test results should be a big help.

Rich

> Rich . . . do you think I should cut back on the COQ10 . . I am

taking 400 mg once a day. I agree I have lots of oxidative stress and

I find my brain is becoming more and more sensitive especially from

taking the Iron infusions for low ferritin. I have got to something

for this sensitive brain!! I have cut back on all sulfur until I get

Dr. Yasko genetic testing back. I was getting hives, low adrenals, and

exhaustion in the afternoon. I think I moved along too quickly with

the DAN! supplements.

>

> Thanks to everyone,

> Sue T >

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.