Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 can you say what the lyme protocol would be? jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Hello, I just joined this group. I have CFIDS, Lyme Disease, Fibromyalgia, hypercoagulable blood disorder and a host of other diagnoses. Been sick and survived for 20 years. I just started on thymus injections last night. The protocol calls for 6 weeks of daily injections followed by 4 weeks off, and that is repeated until the immune system returns to normal. I am concerned about herxing myself into a hospital, so I'm going to do a highly reduced treatment and take 3 thymus injections weekly. Does anyone have experience with this treatment? My doctor recommended it because my NK cell count is at 6. They also gave me a Lyme protocol. I'm not sure which treatment I should pursue first but definitely think my health is too fragile to endure both thymus and the Lyme protocol at the same time. I am thinning my blood with nattokinase, tumeric and olive leaf and just started taking vitamin D after reading Ken Lassesen's website. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 I am curious about this. What is the product name, and how is it injected (IM)? I have never heard of this. I take atrium-biotech frozen thymus--its helpful but very expensive, and only temporary. > > Hello, > > I just joined this group. I have CFIDS, Lyme Disease, Fibromyalgia, hypercoagulable blood > disorder and a host of other diagnoses. Been sick and survived for 20 years. > > I just started on thymus injections last night. The protocol calls for 6 weeks of daily > injections followed by 4 weeks off, and that is repeated until the immune system returns > to normal. I am concerned about herxing myself into a hospital, so I'm going to do a > highly reduced treatment and take 3 thymus injections weekly. Does anyone have > experience with this treatment? My doctor recommended it because my NK cell count is at > 6. > > They also gave me a Lyme protocol. I'm not sure which treatment I should pursue first but > definitely think my health is too fragile to endure both thymus and the Lyme protocol at > the same time. I am thinning my blood with nattokinase, tumeric and olive leaf and just > started taking vitamin D after reading Ken Lassesen's website. > > > > Deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Deb, Stimulating the thymus seems a reasonable place to start restoring immunity. Proboost is an oral product that enhances thymus function. For Natural killer cells I like Low dose (4.5) naltrexone. However, it seems to me that the immune system having been impaired for twenty years, there must be a reason, that something has suppressed your immune functions. Your thymus isn't on vacation, but likely held captive. Have you had other immune system parameters tested...like natural killer cell function? More important, have you been tested for heavy metals...mercury, lead, etc.?I would suggest starting with tests for glutathione and selenium. I think you need a diagnosis before treatment is prescribed. I would not delay in finding a physician literate in treating chronic immune dysfunction for, as my lyme doctor said, the only thing with a NK count less than 6 is a corpse.As for the hypercoagulation, I have used natto, ginkgo biloba, vitamin E, garlic and others, usually in combination animal derrived anticoagulants. The best, cheapest source I've found to date is Doctors Best at iHerb.com ...MUCH cheaper than your price. Good luck, Mel PS: Welcome. I hope you find help here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 She said she has lyme etc...so infections are suppressing her system. Proboost is made with maltodextrin, which is a no-no for anybody with upregulated glutamate, which is common in lyme and coinfections. I don't see why they take a good immune booster and mix it with a bad filler.... Low dose naltrexone, I've heard that lymies get worse on it. Of course, that COULD be a herx, i.e. dieoff. > > Deb, Stimulating the thymus seems a reasonable place to start restoring immunity. Proboost is an oral product that enhances thymus function. For Natural killer cells I like Low dose (4.5) naltrexone. However, it seems to me that the immune system having been impaired for twenty years, there must be a reason, that something has suppressed your immune functions. Your thymus isn't on vacation, but likely held captive. Have you had other immune system parameters tested...like natural killer cell function? More important, have you been tested for heavy metals...mercury, lead, etc.?I would suggest starting with tests for glutathione and selenium. I think you need a diagnosis before treatment is prescribed. I would not delay in finding a physician literate in treating chronic immune dysfunction for, as my lyme doctor said, the only thing with a NK count less than 6 is a corpse.As for the hypercoagulation, I have used natto, ginkgo biloba, vitamin E, garlic and others, usually in combination > animal derrived anticoagulants. The best, cheapest source I've found to date is Doctors Best at iHerb.com ...MUCH cheaper than your price. Good luck, Mel PS: Welcome. I hope you find help here. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Deb, I took Zadaxin which is a synthetic thymus hormone that is injected for six months. It is marketed to treat viral infections such as hepatitis and AIDS. Also, the Chinese used it for the SARS epidemic. I have Lyme disease and mycoplasma. The Zadaxin injections did NOTHING for me. My hunch is that the thymus simply stimulates the part of the immune system that is already in overdrive yet cannot get to the sequestered borrelia. My personal opinion, based on my history would be to go with the Lyme protocol. I might add that I am partial to minocycline and Zithromax with perhaps adding Flagyl. Again, this is based on my experience and that of many Lyme patients who tried or are trying the Marshall Protocol. I do NOT agree with his reduction of vitamin D, but I do agree with his selection of antibiotics which include minocycline, Zithromax, clindamycin and Septrim. The first two often can be taken for long periods of time without side effects, especially the Zithromax. Such doctors as Gabe Mirkin and Franco follow this approach, and you can look them up on the internet for their summaries. Personally I would be very cautios about any quinolones such as Cipro, Levaquin, Avelox. They can be very effective against Lyme but the patient must always be aware that they can cause serious tendon damage and CNS damage that will feel like a herx or exacerbation of the borrelia when, in fact, it is severe and sometimes unrepairable damage from the quinolone which is toxic for SOME patients. Again you can research this online if you are concerned. a Carnes > > Hello, > > I just joined this group. I have CFIDS, Lyme Disease, Fibromyalgia, hypercoagulable blood > disorder and a host of other diagnoses. Been sick and survived for 20 years. > > I just started on thymus injections last night. The protocol calls for 6 weeks of daily > injections followed by 4 weeks off, and that is repeated until the immune system returns > to normal. I am concerned about herxing myself into a hospital, so I'm going to do a > highly reduced treatment and take 3 thymus injections weekly. Does anyone have > experience with this treatment? My doctor recommended it because my NK cell count is at > 6. > > They also gave me a Lyme protocol. I'm not sure which treatment I should pursue first but > definitely think my health is too fragile to endure both thymus and the Lyme protocol at > the same time. I am thinning my blood with nattokinase, tumeric and olive leaf and just > started taking vitamin D after reading Ken Lassesen's website. > > > > Deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 Jill, The product is called Good Aging Cell Fluid and it comes out of Germany, the Laboratoire Wittiber GmbH in Hamburg. It is a powder. You inject double distilled water into it and inject it IM. It costs $900.00 for 30 vials. I've also purchased sublingual frozen porcine thymus. Deb > > > > Hello, > > > > I just joined this group. I have CFIDS, Lyme Disease, Fibromyalgia, > hypercoagulable blood > > disorder and a host of other diagnoses. Been sick and survived for > 20 years. > > > > I just started on thymus injections last night. The protocol calls > for 6 weeks of daily > > injections followed by 4 weeks off, and that is repeated until the > immune system returns > > to normal. I am concerned about herxing myself into a hospital, so > I'm going to do a > > highly reduced treatment and take 3 thymus injections weekly. Does > anyone have > > experience with this treatment? My doctor recommended it because my > NK cell count is at > > 6. > > > > They also gave me a Lyme protocol. I'm not sure which treatment I > should pursue first but > > definitely think my health is too fragile to endure both thymus and > the Lyme protocol at > > the same time. I am thinning my blood with nattokinase, tumeric and > olive leaf and just > > started taking vitamin D after reading Ken Lassesen's website. > > > > > > > > Deb > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 Right, that's the thymus I've used. I would say its moderately helpful, but IVIG is more helpful...and hyperbaric oxygen the most helpful. Magnesium also extremely helpful. I wonder why your doctor is suggesting this rather than treating the underlying infections? I'm just curious. > > > > > > Hello, > > > > > > I just joined this group. I have CFIDS, Lyme Disease, Fibromyalgia, > > hypercoagulable blood > > > disorder and a host of other diagnoses. Been sick and survived for > > 20 years. > > > > > > I just started on thymus injections last night. The protocol calls > > for 6 weeks of daily > > > injections followed by 4 weeks off, and that is repeated until the > > immune system returns > > > to normal. I am concerned about herxing myself into a hospital, so > > I'm going to do a > > > highly reduced treatment and take 3 thymus injections weekly. Does > > anyone have > > > experience with this treatment? My doctor recommended it because my > > NK cell count is at > > > 6. > > > > > > They also gave me a Lyme protocol. I'm not sure which treatment I > > should pursue first but > > > definitely think my health is too fragile to endure both thymus and > > the Lyme protocol at > > > the same time. I am thinning my blood with nattokinase, tumeric and > > olive leaf and just > > > started taking vitamin D after reading Ken Lassesen's website. > > > > > > > > > > > > Deb > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 On Feb 1, 2006, at 1:14 PM, jill1313 wrote: > I am curious about this. What is the product name, and how is it > injected (IM)? I have never heard of this. I take atrium-biotech > frozen thymus--its helpful but very expensive, and only temporary. Many of us here are on ProBoost, which is an oral thymus. (It's OTC, and you can buy it online.) My NK cell level was at 3, and this was my doctor's first choice for me. That's because it's probably less expensive than frozen, and almost certainly less intrusive than injections. I think he wanted to try easiest, cheapest treatment first before resorting to high-cost, high- hassle ones, it's been a good solution for me. Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 Deb, I didn " t think to mention it when writing about thymus, but I have been haveing some positive response with an immune stimulator, AHCC 500 mg (Now), which is from mushrooms. It enhances activity of macrophages and natural killer cells. Also, there is a product, ProBoost, that enhances thymus activity. Mel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Sara, Did ProBoost increase your Natural Killer Cell activity? Mel Quote Link to comment Share on other sites More sharing options...
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