Re: My CFS Diabetes Insipidus is GONE!

[Guest guest]

What wonderful news!

I've long syspected Diabetes Insipidus in myself and will check into it for

myself.

Thanks for posting

mjh

In a message dated 1/31/2006 8:34:30 AM Eastern Standard Time,

davidhall@... writes:

Hi, All.

Just got my test result today for a 24hr urine collection and my result is

2400 mL with a reference range of 700-2400 mL by Great Smokies Lab

standards. A 24hr urine collection I did through them back in 2002 showed my

result

for this test to be 3700 mL, 35% above the highest level of normal adult urine

excretion per day.

Barring malignancy of the kidneys, which I didn't then nor now have, this

result is a major sign for diabetes insipidus. Other signs can be neurological

problems, which are of course universal to PWCs.

Also, Dr Cheney is quoted that in general, " People with CFS piss their

brains out! " . Hence, I've cleared up my CFS diabetes insipidus.

How did I do this? 1) Daily use of RenewPro over the last nine months for

repleting test verified low glutathione, 2) Heavy metal chelation therapy, in

particular for my case bi-monthly IV EDTA/DMPS chelation over the last two

months(still proceding), and 3) Effectively countering gut dysbiosis through

the use of Garden of Lifes " Fungal Defense " within the last 30 days.

I've not changed my daily liquid intake habits since before my first 24 hour

urine collection measure in 2002. My test result I got today is predicted

by Rich's glutathione depletion hypothesis for CFS(He's not paying me to say

this and I'm no cult-like science guru worshipper either! Sorry, Rich).

Two other objective improvements that have also occurred by following

treatment consistent with this hypothesis for CFS are 1) My orthostatic

intolerance, OI, is cleared up by virtue of a very long standing sitting BP of

100/70

and a standing BP of 70/55, which now has shifted to a consistent sitting BP of

127/85 and a standing BP of 137/88, and 2) A dramatic reduction or really

almost a complete elimination of treatment for hypothyroidism by use of a daily

dose of 150 mcg of Levothyroxine thyroid medciation needing to be brought

down to now just .15 mcg daily use of this med..

My use of the supplements beta glucan for immunomodulation and Gookinaid for

salt/blood volume support have also been completely eliminated, no need any

longer. GONE!

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

In a message dated 1/31/2006 4:55:38 PM Eastern Standard Time,

richvank@... writes:

I had high hopes for that guru cult thing, , but I guess it

isn't meant to be! (;-)

You've made my day!

Rich

Rich

You would need to wear a toga and sandals......

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

>

> Hi, All.

>

>

>

> Just got my test result today for a 24hr urine collection and my

result is

> 2400 mL with a reference range of 700-2400 mL by Great Smokies Lab

standards. A 24hr urine collection I did through them back in 2002

showed my result for this test to be 3700 mL, 35% above the highest

level of normal adult urine excretion per day.

>

>

>

> Barring malignancy of the kidneys, which I didn't then nor now

have, this result is a major sign for diabetes insipidus. Other

signs can be neurological problems, which are of course universal to

PWCs.

>

>

>

> Also, Dr Cheney is quoted that in general, " People with CFS piss

their brains out! " . Hence, I've cleared up my CFS diabetes

insipidus.

>

>

>

> How did I do this? 1) Daily use of RenewPro over the last nine

months for repleting test verified low glutathione, 2) Heavy metal

chelation therapy, in particular for my case bi-monthly IV EDTA/DMPS

chelation over the last two months(still proceding), and 3)

Effectively countering gut dysbiosis through the use of Garden of

Lifes " Fungal Defense " within the last 30 days.

>

>

>

> I've not changed my daily liquid intake habits since before my

first 24 hour urine collection measure in 2002. My test result I

got today is predicted by Rich's glutathione depletion hypothesis

for CFS(He's not paying me to say this and I'm no cult-like science

guru worshipper either! Sorry, Rich).

>

>

>

> Two other objective improvements that have also occurred by

following treatment consistent with this hypothesis for CFS are 1)

My orthostatic intolerance, OI, is cleared up by virtue of a very

long standing sitting BP of 100/70 and a standing BP of 70/55, which

now has shifted to a consistent sitting BP of 127/85 and a standing

BP of 137/88, and 2) A dramatic reduction or really almost a

complete elimination of treatment for hypothyroidism by use of a

daily dose of 150 mcg of Levothyroxine thyroid medciation needing to

be brought down to now just .15 mcg daily use of this med..

>

>

>

> My use of the supplements beta glucan for immunomodulation and

Gookinaid for salt/blood volume support have also been completely

eliminated, no need any longer. GONE!

>

>

>

>

>

Although my kidneys where the reverse of yours with a serum creatine

kinase higher level than norm, your thyroid issues interest me.. do

you know if you had autoimmune hypothroidism and if so do you still

have antibodies?..Certainly good news and the BP very important

change. Dianne

[Guest guest]

,

Congratulations! this is awesome news!! Gives me hope for doing metal chelation!

Thanks for sharing all this.

Marcia

My CFS Diabetes Insipidus is GONE!

Hi, All.

Just got my test result today for a 24hr urine collection and my result is

2400 mL with a reference range of 700-2400 mL by Great Smokies Lab standards.

A 24hr urine collection I did through them back in 2002 showed my result for

this test to be 3700 mL, 35% above the highest level of normal adult urine

excretion per day.

Barring malignancy of the kidneys, which I didn't then nor now have, this

result is a major sign for diabetes insipidus. Other signs can be neurological

problems, which are of course universal to PWCs.

Also, Dr Cheney is quoted that in general, " People with CFS piss their brains

out! " . Hence, I've cleared up my CFS diabetes insipidus.

How did I do this? 1) Daily use of RenewPro over the last nine months for

repleting test verified low glutathione, 2) Heavy metal chelation therapy, in

particular for my case bi-monthly IV EDTA/DMPS chelation over the last two

months(still proceding), and 3) Effectively countering gut dysbiosis through the

use of Garden of Lifes " Fungal Defense " within the last 30 days.

I've not changed my daily liquid intake habits since before my first 24 hour

urine collection measure in 2002. My test result I got today is predicted by

Rich's glutathione depletion hypothesis for CFS(He's not paying me to say this

and I'm no cult-like science guru worshipper either! Sorry, Rich).

Two other objective improvements that have also occurred by following

treatment consistent with this hypothesis for CFS are 1) My orthostatic

intolerance, OI, is cleared up by virtue of a very long standing sitting BP of

100/70 and a standing BP of 70/55, which now has shifted to a consistent sitting

BP of 127/85 and a standing BP of 137/88, and 2) A dramatic reduction or really

almost a complete elimination of treatment for hypothyroidism by use of a daily

dose of 150 mcg of Levothyroxine thyroid medciation needing to be brought down

to now just .15 mcg daily use of this med..

My use of the supplements beta glucan for immunomodulation and Gookinaid for

salt/blood volume support have also been completely eliminated, no need any

longer. GONE!

[Guest guest]

Hi, .

Hooray! I'm so happy for you!

I also appreciate your posting your results, because I think the

approach you used could help quite a few other PWCs.

For others, it seems to be necessary to deal with sulfur metabolism

problems (methylation cycle, transsulfuration pathway, and

sulfoxidation) in addition to the things you did to build

glutathione.

I had high hopes for that guru cult thing, , but I guess it

isn't meant to be! (;-)

You've made my day!

Rich

>

> Hi, All.

>

>

>

> Just got my test result today for a 24hr urine collection and my

result is

> 2400 mL with a reference range of 700-2400 mL by Great Smokies Lab

standards. A 24hr urine collection I did through them back in 2002

showed my result for this test to be 3700 mL, 35% above the highest

level of normal adult urine excretion per day.

>

>

>

> Barring malignancy of the kidneys, which I didn't then nor now

have, this result is a major sign for diabetes insipidus. Other

signs can be neurological problems, which are of course universal to

PWCs.

>

>

>

> Also, Dr Cheney is quoted that in general, " People with CFS piss

their brains out! " . Hence, I've cleared up my CFS diabetes

insipidus.

>

>

>

> How did I do this? 1) Daily use of RenewPro over the last nine

months for repleting test verified low glutathione, 2) Heavy metal

chelation therapy, in particular for my case bi-monthly IV EDTA/DMPS

chelation over the last two months(still proceding), and 3)

Effectively countering gut dysbiosis through the use of Garden of

Lifes " Fungal Defense " within the last 30 days.

>

>

>

> I've not changed my daily liquid intake habits since before my

first 24 hour urine collection measure in 2002. My test result I

got today is predicted by Rich's glutathione depletion hypothesis

for CFS(He's not paying me to say this and I'm no cult-like science

guru worshipper either! Sorry, Rich).

>

>

>

> Two other objective improvements that have also occurred by

following treatment consistent with this hypothesis for CFS are 1)

My orthostatic intolerance, OI, is cleared up by virtue of a very

long standing sitting BP of 100/70 and a standing BP of 70/55, which

now has shifted to a consistent sitting BP of 127/85 and a standing

BP of 137/88, and 2) A dramatic reduction or really almost a

complete elimination of treatment for hypothyroidism by use of a

daily dose of 150 mcg of Levothyroxine thyroid medciation needing to

be brought down to now just .15 mcg daily use of this med..

>

>

>

> My use of the supplements beta glucan for immunomodulation and

Gookinaid for salt/blood volume support have also been completely

eliminated, no need any longer. GONE!

>

>

>

>

>

[Guest guest]

Hi, Kurt.

Good question. I purposely left out subjective symptoms for my first post on

this thread so not to confuse the clear objective improvements and why they

happened.

Anyway, to keep it simple my subject experience of improvement and where it

remains lacking goes like this:

1) Flu-like feeling and sense of overall weakness...Gone.

2) The sense that physical exertion will cause me to get a new infection or make

me weaker...Gone.

3) Feeling that it's hard to do physical exercise...Still present, which I now

mostly attribute to lingering brain symptoms and being out of shape for having

little capacity for exercise over several years.

4) Problem with concentration...A ways to go but some improvement(Have been able

to read a book a month for the past four months, where my rate for the last ten

years has been about two books a year).

5) Problem with brain pain and irritation...Still remains with only very modest

improvement so far and this is my biggest hurdle yet to overcome as a PWC.

6) Insomnia, needing to use sleep meds. and unrefreshing sleep...Still remains

and is directly connected to item number 5.

That synopisizes my subjective symptom status as a PWC at present and I suspect

that my newly improved cardioavascular function, newly improved thyroid function

and newly improved glutathione status over time will contribute to better brain

function, vascular perfusion and healing neuroplastic changes.

Remaining on my treatment course, adding more exercise slowly at an increasing

rate through time and looking for other modes(non-pharmacological) I may not be

aware of now to improve brain function I suspect will aid this cause. I am not

yet able to say " former PWC " , but it looks like headway is being made at

chopping away at the base of this illness so eventually the whole damn thing

will come crashing down!

Problem " Kurt (web) " <kurt@i

....> wrote:

>

> ,

>

> How have your CFS symptoms changed during this time?

>

> --Kurt

>

> Hi, All.

>

>

> Just got my test result today for a 24hr urine collection and my result

> is

> 2400 mL with a reference range of 700-2400 mL by Great Smokies Lab

> standards. A 24hr urine collection I did through them back in 2002

> showed my result for this test to be 3700 mL, 35% above the highest

> level of normal adult urine excretion per day.

>

>

>

> Barring malignancy of the kidneys, which I didn't then nor now have,

> this result is a major sign for diabetes insipidus. Other signs can be

> neurological problems, which are of course universal to PWCs.

>

>

>

> Also, Dr Cheney is quoted that in general, " People with CFS piss their

> brains out! " . Hence, I've cleared up my CFS diabetes insipidus.

>

>

>

> How did I do this? 1) Daily use of RenewPro over the last nine months

> for repleting test verified low glutathione, 2) Heavy metal chelation

> therapy, in particular for my case bi-monthly IV EDTA/DMPS chelation

> over the last two months(still proceding), and 3) Effectively countering

> gut dysbiosis through the use of Garden of Lifes " Fungal Defense " within

> the last 30 days.

>

>

>

> I've not changed my daily liquid intake habits since before my first 24

> hour urine collection measure in 2002. My test result I got today is

> predicted by Rich's glutathione depletion hypothesis for CFS(He's not

> paying me to say this and I'm no cult-like science guru worshipper

> either! Sorry, Rich).

>

>

>

> Two other objective improvements that have also occurred by following

> treatment consistent with this hypothesis for CFS are 1) My orthostatic

> intolerance, OI, is cleared up by virtue of a very long standing sitting

> BP of 100/70 and a standing BP of 70/55, which now has shifted to a

> consistent sitting BP of 127/85 and a standing BP of 137/88, and 2) A

> dramatic reduction or really almost a complete elimination of treatment

> for hypothyroidism by use of a daily dose of 150 mcg of Levothyroxine

> thyroid medciation needing to be brought down to now just .15 mcg daily

> use of this med..

>

>

>

> My use of the supplements beta glucan for immunomodulation and Gookinaid

> for salt/blood volume support have also been completely eliminated, no

> need any longer. GONE!

>

>

>

>

>

[Guest guest]

Hi, Dianne.

Yes. Like many PWCs I was diagnosed with autoimmune hypothyroidism(Hashimoto's)

at one point and put on thyroid medication. This dx in PWCs is often not based

on antibodies or even abnornal thyroid hormone level output, which is usually in

the normal ranges or only slightly out of range in us.

The dx has been a clinical one based on symptoms, but I think the accurate dx

should be called something like hydrogen peroxide hypothyodism(HPH) secondary to

glutathione depletion. I think Rich has it right about low glutathione allowing

increased hydrogen peroxide levels which screw-up the functionality of the

thyroid and its hormones more than their availability.

" Dianne " <boyzee12000@y...> wrote:

> <davidhall@w...> wrote:

> >

> > Hi, All.

> >

> >

> >

> > Just got my test result today for a 24hr urine collection and my

> result is

> > 2400 mL with a reference range of 700-2400 mL by Great Smokies Lab

> standards. A 24hr urine collection I did through them back in 2002

> showed my result for this test to be 3700 mL, 35% above the highest

> level of normal adult urine excretion per day.

> >

> >

> >

> > Barring malignancy of the kidneys, which I didn't then nor now

> have, this result is a major sign for diabetes insipidus. Other

> signs can be neurological problems, which are of course universal to

> PWCs.

> >

> >

> >

> > Also, Dr Cheney is quoted that in general, " People with CFS piss

> their brains out! " . Hence, I've cleared up my CFS diabetes

> insipidus.

> >

> >

> >

> > How did I do this? 1) Daily use of RenewPro over the last nine

> months for repleting test verified low glutathione, 2) Heavy metal

> chelation therapy, in particular for my case bi-monthly IV EDTA/DMPS

> chelation over the last two months(still proceding), and 3)

> Effectively countering gut dysbiosis through the use of Garden of

> Lifes " Fungal Defense " within the last 30 days.

> >

> >

> >

> > I've not changed my daily liquid intake habits since before my

> first 24 hour urine collection measure in 2002. My test result I

> got today is predicted by Rich's glutathione depletion hypothesis

> for CFS(He's not paying me to say this and I'm no cult-like science

> guru worshipper either! Sorry, Rich).

> >

> >

> >

> > Two other objective improvements that have also occurred by

> following treatment consistent with this hypothesis for CFS are 1)

> My orthostatic intolerance, OI, is cleared up by virtue of a very

> long standing sitting BP of 100/70 and a standing BP of 70/55, which

> now has shifted to a consistent sitting BP of 127/85 and a standing

> BP of 137/88, and 2) A dramatic reduction or really almost a

> complete elimination of treatment for hypothyroidism by use of a

> daily dose of 150 mcg of Levothyroxine thyroid medciation needing to

> be brought down to now just .15 mcg daily use of this med..

> >

> >

> >

> > My use of the supplements beta glucan for immunomodulation and

> Gookinaid for salt/blood volume support have also been completely

> eliminated, no need any longer. GONE!

> >

> >

> >

> >

> >

>

>

> Although my kidneys where the reverse of yours with a serum creatine

> kinase higher level than norm, your thyroid issues interest me.. do

> you know if you had autoimmune hypothroidism and if so do you still

> have antibodies?..Certainly good news and the BP very important

> change. Dianne

>

[Guest guest]

Hi, Cort.

johnson <cortttt@y...> wrote:

>

> Congratulations, Was the renewpro the first whey protein you had tried?

***No, I tried ImmunoCal and ImmunoPro in the past.

Is that believed to be the most effective one?

***Well, I certainly think so now. But ImmunePro is the original model for

RenewPro though RenewPro is less bulky, mixes much more easily and has a better

taste. I think the different before is I didn't use ImmunePro anywhere as long

in time. I recall using it for a few months after a failed three month attempt

with ImmunoCal recommended by Dr Cheney. Five months of no discernible results

on products

Dr Cheney thought might work had me lose confidence in using them any further at

the time.

What exactly is the test? You said 24 hour urine collection- what was so high?

The 24 hour urine collection test is something done for the material needed to

produce comprehensive date on urinary amino acid levels, intermediate

metabolites and other biomarkers.

Total urine volume output in a 24 hr period is a biomarker itself and indicative

of kidney function status.

How have you been feeling?

If you've been feeling better when did it start and can you attribute it to one

item? or do you think its a multiple approach?

***For my answer to these check my response post to Kurt today, post # 90019.

When you say you pissed your diabetes insipidus out do you mean you pissed out

the heavy metals causing it? (Are you monitoring heavy metals?)

***I didn't say pissed out my diabetes insipidus. I was quoting Dr Cheney who

said PWCs piss their brains out. In saying this, it is obvious to me he is

essence acknowledging wide spread diabetes insipidus in this patient population.

Why he uses the word brain in this statement is not only in regard to lost blood

volume as result of excessive fluid excretion, but also resultant loss of

taurine due to taurine wasting in urine from the kidneys and loss of magnesium

due to magnesium wasting as well. Both are important to brain function.

***I have monitored heavy metals, which is tricky to do in such a way to have

confidence in the results(barring autopsy type tests for which I think I'll take

a pass for now!). The best way to do this is doing sequential tests, each after

different rounds of chelation, to hopefully discern a trend. But I think the 24

urine collection test is another mode to give a fair indication of the kidneys

clearing mercury and/or other heavy metals that can block vasopressin hormone

binding there which would lower or keep low body fluid retention. I'm obviously

retaining fluid now at healthy levels, which is a good sign my chosen approach

is working.

Congratulations again, I hope you continue to improve!

Thanks,

[Guest guest]

> > <davidhall@w...> wrote:

> > >

> > > Hi, All.

> > > Just got my test result today for a 24hr urine collection and my

> > result is

> > > 2400 mL with a reference range of 700-2400 mL by Great Smokies Lab

> > standards. A 24hr urine collection I did through them back in 2002

> > showed my result for this test to be 3700 mL, 35% above the highest

> > level of normal adult urine excretion per day.

Personally I had quite a sudden resolution to DI when I was sick,

going from a very inconvenient 8-9 liters a day down to a very normal

2.5 liters a day in a few days. The excessive urine volume had been

ongoing for at least 5 years prior to that and the newly normal urine

volume has been ongoing for 7.5 years now.

At the time I was exquisitely sensitive to any high sulfur food,

rigorously excluded them from the diet and would have a frightening

and horrible worsening for days to weeks if I ate or took anything

remotely related to whey. At that time I also had measured low

glutathione as 100% of all sick people with all illnesses have, but

high plasma cysteine as about 33-50% of heavy metal toxic people

have. The plasma cysteine turns out to be the relevant measure, not

glutathione levels.

My DI remission (and remission of most other symptoms) was achieved by

chelating with alpha lipoic acid and DMSA on a 3-4 hour protocol.

Andy

[Guest guest]

Hi, Andy.

Do you have a reference to support the part below about " 100% of all

sick people with all illnesses " having low glutathione?

Also, do you have a reference to support 33 to 50% of heavy metal

toxic people having high cysteine?

Rich

--- In , " andrewhallcutler "

<AndyCutler@...> wrote

At that time I also had measured low

> glutathione as 100% of all sick people with all illnesses have, but

> high plasma cysteine as about 33-50% of heavy metal toxic people

> have. The plasma cysteine turns out to be the relevant measure, not

> glutathione levels.

>

> Andy

>

[Guest guest]

I have found both b12 and tryptophan to be helpful with the remaining

brain/sleep symptoms you mention.

I have parallel improvements and parallel lags although I have gotten there

very differently. I have also had significant decrease in musculoskeletal

pains and also great improvement in digestion.

Adrienne

Re: My CFS Diabetes Insipidus is GONE!

Hi, Kurt.

Good question. I purposely left out subjective symptoms for my first post

on this thread so not to confuse the clear objective improvements and why

they happened.

Anyway, to keep it simple my subject experience of improvement and where it

remains lacking goes like this:

1) Flu-like feeling and sense of overall weakness...Gone.

2) The sense that physical exertion will cause me to get a new infection or

make me weaker...Gone.

3) Feeling that it's hard to do physical exercise...Still present, which I

now mostly attribute to lingering brain symptoms and being out of shape for

having little capacity for exercise over several years.

4) Problem with concentration...A ways to go but some improvement(Have been

able to read a book a month for the past four months, where my rate for the

last ten years has been about two books a year).

5) Problem with brain pain and irritation...Still remains with only very

modest improvement so far and this is my biggest hurdle yet to overcome as a

PWC.

6) Insomnia, needing to use sleep meds. and unrefreshing sleep...Still

remains and is directly connected to item number 5.

That synopisizes my subjective symptom status as a PWC at present and I

suspect that my newly improved cardioavascular function, newly improved

thyroid function and newly improved glutathione status over time will

contribute to better brain function, vascular perfusion and healing

neuroplastic changes.

Remaining on my treatment course, adding more exercise slowly at an

increasing rate through time and looking for other

modes(non-pharmacological) I may not be aware of now to improve brain

function I suspect will aid this cause. I am not yet able to say " former

PWC " , but it looks like headway is being made at chopping away at the base

of this illness so eventually the whole damn thing will come crashing down!

Problem " Kurt (web) " <kurt@i

....> wrote:

>

> ,

>

> How have your CFS symptoms changed during this time?

>

> --Kurt

>

> Hi, All.

>

>

> Just got my test result today for a 24hr urine collection and my result

> is

> 2400 mL with a reference range of 700-2400 mL by Great Smokies Lab

> standards. A 24hr urine collection I did through them back in 2002

> showed my result for this test to be 3700 mL, 35% above the highest

> level of normal adult urine excretion per day.

>

>

>

> Barring malignancy of the kidneys, which I didn't then nor now have,

> this result is a major sign for diabetes insipidus. Other signs can be

> neurological problems, which are of course universal to PWCs.

>

>

>

> Also, Dr Cheney is quoted that in general, " People with CFS piss their

> brains out! " . Hence, I've cleared up my CFS diabetes insipidus.

>

>

>

> How did I do this? 1) Daily use of RenewPro over the last nine months

> for repleting test verified low glutathione, 2) Heavy metal chelation

> therapy, in particular for my case bi-monthly IV EDTA/DMPS chelation

> over the last two months(still proceding), and 3) Effectively countering

> gut dysbiosis through the use of Garden of Lifes " Fungal Defense " within

> the last 30 days.

>

>

>

> I've not changed my daily liquid intake habits since before my first 24

> hour urine collection measure in 2002. My test result I got today is

> predicted by Rich's glutathione depletion hypothesis for CFS(He's not

> paying me to say this and I'm no cult-like science guru worshipper

> either! Sorry, Rich).

>

>

>

> Two other objective improvements that have also occurred by following

> treatment consistent with this hypothesis for CFS are 1) My orthostatic

> intolerance, OI, is cleared up by virtue of a very long standing sitting

> BP of 100/70 and a standing BP of 70/55, which now has shifted to a

> consistent sitting BP of 127/85 and a standing BP of 137/88, and 2) A

> dramatic reduction or really almost a complete elimination of treatment

> for hypothyroidism by use of a daily dose of 150 mcg of Levothyroxine

> thyroid medciation needing to be brought down to now just .15 mcg daily

> use of this med..

>

>

>

> My use of the supplements beta glucan for immunomodulation and Gookinaid

> for salt/blood volume support have also been completely eliminated, no

> need any longer. GONE!

>

>

>

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Hi, Adrienne.

" Adrienne " <duckblossm@...> wrote:

>

> I have found both b12 and tryptophan to be helpful with the remaining

> brain/sleep symptoms you mention.

***Thanks for offering suggestions, but what I'm dealing with regarding these

symptoms isn't remotely impacted by these two treatments nor many other several

methods I've given quite the fair shot.

[Guest guest]

What about the thyroid. I assume you've had your thyroid tested before this?

What made you start on the thyroid?

I know you've had severe CFS for quite awhile. Would you be interested in

doing a short writeup concerning your recent success? I'd like to put a

treatment section on the website with protocols that people have found

effective. Its particularly interesting when people who've had CFS for a long

time find some success. It would have

1) how long you've had CFS

2) what prompted you to go on your present protocol?

3) What is your current protocol?

4) Changes in any laboratory measures?

5) Changes in symptoms

6) On a scale of one to ten with 10 being perfectly healthy what were you

before and what are you now?

Please let me know.

davidhall2020 <davidhall@...> wrote:

Hi, Cort.

johnson <cortttt@y...> wrote:

>

> Congratulations, Was the renewpro the first whey protein you had tried?

***No, I tried ImmunoCal and ImmunoPro in the past.

Is that believed to be the most effective one?

***Well, I certainly think so now. But ImmunePro is the original model for

RenewPro though RenewPro is less bulky, mixes much more easily and has a better

taste. I think the different before is I didn't use ImmunePro anywhere as long

in time. I recall using it for a few months after a failed three month attempt

with ImmunoCal recommended by Dr Cheney. Five months of no discernible results

on products

Dr Cheney thought might work had me lose confidence in using them any further at

the time.

What exactly is the test? You said 24 hour urine collection- what was so high?

The 24 hour urine collection test is something done for the material needed to

produce comprehensive date on urinary amino acid levels, intermediate

metabolites and other biomarkers.

Total urine volume output in a 24 hr period is a biomarker itself and indicative

of kidney function status.

How have you been feeling?

If you've been feeling better when did it start and can you attribute it to one

item? or do you think its a multiple approach?

***For my answer to these check my response post to Kurt today, post # 90019.

When you say you pissed your diabetes insipidus out do you mean you pissed out

the heavy metals causing it? (Are you monitoring heavy metals?)

***I didn't say pissed out my diabetes insipidus. I was quoting Dr Cheney who

said PWCs piss their brains out. In saying this, it is obvious to me he is

essence acknowledging wide spread diabetes insipidus in this patient population.

Why he uses the word brain in this statement is not only in regard to lost blood

volume as result of excessive fluid excretion, but also resultant loss of

taurine due to taurine wasting in urine from the kidneys and loss of magnesium

due to magnesium wasting as well. Both are important to brain function.

***I have monitored heavy metals, which is tricky to do in such a way to have

confidence in the results(barring autopsy type tests for which I think I'll take

a pass for now!). The best way to do this is doing sequential tests, each after

different rounds of chelation, to hopefully discern a trend. But I think the 24

urine collection test is another mode to give a fair indication of the kidneys

clearing mercury and/or other heavy metals that can block vasopressin hormone

binding there which would lower or keep low body fluid retention. I'm obviously

retaining fluid now at healthy levels, which is a good sign my chosen approach

is working.

Congratulations again, I hope you continue to improve!

Thanks,

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

Yes Cort, I too would be interested to hear more of the thyroid

improvements made..although I have made huge improvements this year

following a fairly basic vitamin mineral and herb way of life... my

thyroid (hashimotos) has not been so clever and the weight increase has

been dramatic which is just not healthy and maybe holding back progress

somewhat. The only response I get from my GP is oh don't worry the

antibodies will eventually all burn out..whatever that is suppose to

mean..can picture a big poof and they disappear...also I would like to

know how I can get my creatine kinase level lower at least my

cholesterol is really fine.something has to be fine doesn't it...BW

Dianne

[Guest guest]

Hi, Cort.

johnson <cortttt@...> wrote:

>

> What about the thyroid. I assume you've had your thyroid tested before this?

What made you start on the thyroid?

***Oh yes, I've had my thyroid tested many times before my RenewPro anchored

protocol for CFS. My thyroid levels virtually always tested in the normal

ranges, except for a few times when my TSH levels showed slight elevation.

***A doc I had in 1997 thought that despite my normal thyroid test results

giving thyroid medication was warranted clinically, based on my presenting

symptoms and illness history. This is when I first started taking thyroid meds.

and another doc I had in 1999 declared to me, " You have Hashimoto's " , also based

on clinical grounds as he wanted me to change from armor thyroid to synthroid

medication for treatment.

***As you likely know, this diagnosis for CFS patients is common and virtually

always made on clinical grounds despite the seeming contradiction that CFS

patients generally have normal results on thyroid tests. My recognition of

thyroid improvement while using RenewPro for glutatione repletion started

happening at month four while on this product, when I noticed a sudden onset of

heart tachycardia in the middle of my sleep after taking my long standing daily

dose of 150mcg of levothyroxine just before bed.

***The tachycardia continued to return in the middle of my sleeps for a few days

and I realized I might need to cut my levothyroxine dose down to eliminate this

symptom. I cut the dose in half to 75mcg before bed and the sleep time

tachycardia went away virtually right away.

***Long story short, this pattern of tachycardia onset happened again

while on the 75mcg thyroid med. dose two months later, which forced my hand

again to cut dosage in half with consequent relief from tachycardia.

A few months later, same pattern and to now where my Levothyroxine use is at a

meager .15mcg with no tachycardia.

***I think its a very fair conclusion to make that my thyroid function has just

about if not completely normalized as result of RenewPro use. Like I mentioned

to someone earlier in this thread, it may be more accurate to call the

hypothyrodism often diagnosed in CFS as Hydrogen Peroxide Hypothyroidism(HPH)

secondary to glutathione depletion, not autoimmunity mechanism based

Hashimoto's.

***Van Konynenburg Hypothyroidism(VKH) is another thought?...Again, no cult

inference should be made from the fact that I always where a beaded neglace

around my neck, adorned with and holding a small picture frame at my chest with

a photo of him in it!

> I know you've had severe CFS for quite awhile. Would you be interested in

doing a short writeup concerning your recent success?

***Sure, but let me get back to you on this next week so I may provide another

objective measure of improvement. I will be going to my docs office and I want

them to get my temperature.

***I have had the classic PWC low body temperature at an average, in my case, of

96.6 for the last thirteen years, if not longer. My hunch, which is predicted

by Rich's glutathione depletion hypothesis for CFS, is that it has come up to or

at least closer to 98.6.

I'd like to put a treatment section on the website with protocols that people

have found effective. Its particularly interesting when people who've had CFS

for a long time find some success. It would have

>

> 1) how long you've had CFS

> 2) what prompted you to go on your present protocol?

> 3) What is your current protocol?

> 4) Changes in any laboratory measures?

> 5) Changes in symptoms

> 6) On a scale of one to ten with 10 being perfectly healthy what were you

before and what are you now?

>

>

> Please let me know.

[Guest guest]

Hi, .

I'm pretty sure that one won't fly! Hypothyroidism is a bad enough

tongue twister without adding a horrendously difficult name in front

of it.

I am a little concerned about you, though, . Perhaps when your

CFS is totally a thing of the past, you should look into some of

those deprogramming sessions!

Rich

> ***Van Konynenburg Hypothyroidism(VKH) is another

thought?...Again, no cult inference should be made from the fact

that I always where a beaded neglace around my neck, adorned with

and holding a small picture frame at my chest with a photo of him in

it!

[Guest guest]

Thats an amazing story!

davidhall2020 <davidhall@...> wrote: Hi, Cort.

johnson <cortttt@...> wrote:

>

> What about the thyroid. I assume you've had your thyroid tested before this?

What made you start on the thyroid?

***Oh yes, I've had my thyroid tested many times before my RenewPro anchored

protocol for CFS. My thyroid levels virtually always tested in the normal

ranges, except for a few times when my TSH levels showed slight elevation.

***A doc I had in 1997 thought that despite my normal thyroid test results

giving thyroid medication was warranted clinically, based on my presenting

symptoms and illness history. This is when I first started taking thyroid meds.

and another doc I had in 1999 declared to me, " You have Hashimoto's " , also based

on clinical grounds as he wanted me to change from armor thyroid to synthroid

medication for treatment.

***As you likely know, this diagnosis for CFS patients is common and virtually

always made on clinical grounds despite the seeming contradiction that CFS

patients generally have normal results on thyroid tests. My recognition of

thyroid improvement while using RenewPro for glutatione repletion started

happening at month four while on this product, when I noticed a sudden onset of

heart tachycardia in the middle of my sleep after taking my long standing daily

dose of 150mcg of levothyroxine just before bed.

***The tachycardia continued to return in the middle of my sleeps for a few days

and I realized I might need to cut my levothyroxine dose down to eliminate this

symptom. I cut the dose in half to 75mcg before bed and the sleep time

tachycardia went away virtually right away.

***Long story short, this pattern of tachycardia onset happened again

while on the 75mcg thyroid med. dose two months later, which forced my hand

again to cut dosage in half with consequent relief from tachycardia.

A few months later, same pattern and to now where my Levothyroxine use is at a

meager .15mcg with no tachycardia.

***I think its a very fair conclusion to make that my thyroid function has just

about if not completely normalized as result of RenewPro use. Like I mentioned

to someone earlier in this thread, it may be more accurate to call the

hypothyrodism often diagnosed in CFS as Hydrogen Peroxide Hypothyroidism(HPH)

secondary to glutathione depletion, not autoimmunity mechanism based

Hashimoto's.

***Van Konynenburg Hypothyroidism(VKH) is another thought?...Again, no cult

inference should be made from the fact that I always where a beaded neglace

around my neck, adorned with and holding a small picture frame at my chest with

a photo of him in it!

> I know you've had severe CFS for quite awhile. Would you be interested in

doing a short writeup concerning your recent success?

***Sure, but let me get back to you on this next week so I may provide another

objective measure of improvement. I will be going to my docs office and I want

them to get my temperature.

***I have had the classic PWC low body temperature at an average, in my case, of

96.6 for the last thirteen years, if not longer. My hunch, which is predicted

by Rich's glutathione depletion hypothesis for CFS, is that it has come up to or

at least closer to 98.6.

I'd like to put a treatment section on the website with protocols that people

have found effective. Its particularly interesting when people who've had CFS

for a long time find some success. It would have

>

> 1) how long you've had CFS

> 2) what prompted you to go on your present protocol?

> 3) What is your current protocol?

> 4) Changes in any laboratory measures?

> 5) Changes in symptoms

> 6) On a scale of one to ten with 10 being perfectly healthy what were you

before and what are you now?

>

>

> Please let me know.

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

> >

> > What about the thyroid. I assume you've had your thyroid tested

before this? What made you start on the thyroid?

>

>

>

> ***Oh yes, I've had my thyroid tested many times before my

RenewPro anchored protocol for CFS. My thyroid levels virtually

always tested in the normal ranges, except for a few times when my

TSH levels showed slight elevation.

>

>

>

> ***A doc I had in 1997 thought that despite my normal thyroid test

results giving thyroid medication was warranted clinically, based

on my presenting symptoms and illness history. This is when I first

started taking thyroid meds. and another doc I had in 1999 declared

to me, " You have Hashimoto's " , also based on clinical grounds as he

wanted me to change from armor thyroid to synthroid medication for

treatment.

>

>

> ***As you likely know, this diagnosis for CFS patients is common

and virtually always made on clinical grounds despite the seeming

contradiction that CFS patients generally have normal results on

thyroid tests. My recognition of thyroid improvement while using

RenewPro for glutatione repletion started happening at month four

while on this product, when I noticed a sudden onset of heart

tachycardia in the middle of my sleep after taking my long standing

daily dose of 150mcg of levothyroxine just before bed.

>

>

>

> ***The tachycardia continued to return in the middle of my sleeps

for a few days and I realized I might need to cut my levothyroxine

dose down to eliminate this symptom. I cut the dose in half to

75mcg before bed and the sleep time tachycardia went away virtually

right away.

>

>

>

> ***Long story short, this pattern of tachycardia onset happened

again

> while on the 75mcg thyroid med. dose two months later, which

forced my hand again to cut dosage in half with consequent relief

from tachycardia.

> A few months later, same pattern and to now where my Levothyroxine

use is at a meager .15mcg with no tachycardia.

>

>

>

> ***I think its a very fair conclusion to make that my thyroid

function has just about if not completely normalized as result of

RenewPro use. Like I mentioned to someone earlier in this thread,

it may be more accurate to call the hypothyrodism often diagnosed in

CFS as Hydrogen Peroxide Hypothyroidism(HPH) secondary to

glutathione depletion, not autoimmunity mechanism based Hashimoto's.

>

>

>

> ***Van Konynenburg Hypothyroidism(VKH) is another

thought?...Again, no cult inference should be made from the fact

that I always where a beaded neglace around my neck, adorned with

and holding a small picture frame at my chest with a photo of him in

it!

>

>

>

> > I know you've had severe CFS for quite awhile. Would you be

interested in doing a short writeup concerning your recent success?

>

>

>

> ***Sure, but let me get back to you on this next week so I may

provide another objective measure of improvement. I will be going

to my docs office and I want them to get my temperature.

>

>

>

> ***I have had the classic PWC low body temperature at an average,

in my case, of 96.6 for the last thirteen years, if not longer. My

hunch, which is predicted by Rich's glutathione depletion hypothesis

for CFS, is that it has come up to or at least closer to 98.6.

>

>

>

> I'd like to put a treatment section on the website with protocols

that people have found effective. Its particularly interesting when

people who've had CFS for a long time find some success. It would

have

> >

> > 1) how long you've had CFS

> > 2) what prompted you to go on your present protocol?

> > 3) What is your current protocol?

> > 4) Changes in any laboratory measures?

> > 5) Changes in symptoms

> > 6) On a scale of one to ten with 10 being perfectly healthy

what were you before and what are you now?

> >

> >

> > Please let me know.

>

>

>

>

Regarding your Under active thyroid.....

You never mentioned about antibodies..did you have show in your

blood tests..if so..what was the before and after results?

Thanks Dianne

I do understand the fast hearts beats you can get from thyroid issues

>

[Guest guest]

Hi, Dianne.

" Dianne " <boyzee12000@...> wrote:

> Regarding your Under active thyroid.....

> You never mentioned about antibodies..did you have show in your

> blood tests..if so..what was the before and after results?

> Thanks Dianne

>

> I do understand the fast hearts beats you can get from thyroid issues

***I have had thyroid antibodies test normal and somewhat elavated, then to

normal again, at different times in the past. Those old results are in storage

and I suppose the reason I forgot to mention them is that they're a mute point.

***I don't plan to look at them again or do follow-up on any of the thyroid

testing again if I can help it! Hypothyroidism is more of a clinical(not test

based) diagnosis anyway.

***I think my results from RenewPro use creating my need to virtually eliminate

all thyroid med. use are the best after treatment test I've ever had for this

issue.