Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 On the other hand, after being on officinalis tincture maybe a couple of years, I only experience a recurrence of those nasty virii (EBV and CMV) when I significantly over extend myself. mjh In a message dated 1/19/2006 10:48:40 AM Eastern Standard Time, cortttt@... writes: Chia has recently published a paper - a synopsis of which will be in the next Phoenix Rising newsletter. http://phoenix-cfs.org/Phoenix%20Rising%20subscribe.htm Chia will not use antiviral or interferon on people who do not demonstrate evidence of infection. On the other hand the antivirals/IFN appear to work only about as long as they are being used - I think all the patients relapsed after stopping treatment. mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 I believe Chia has recently published a paper on this treatment, which I havent read. Do you know if the three cases you mention are discussed in that paper? > I would like to know if anyone has seen (or heard about someone who has > seen) dr Chia in Torrance, California. He uses antivirals and interfuron > to go after the viruses associated with FMS/CFS. So far I have heard of 3 > recoveries, but they were all sick for less than a year. The other 15 or 20 > people I've heard about either were not helped or were only helped > part-way....relapsing once treatment was discontinued. I happen to live in Torrance but it > seems a bit reckless to do long term antivirals and interfuron. > Joe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Chia has recently published a paper - a synopsis of which will be in the next Phoenix Rising newsletter. http://phoenix-cfs.org/Phoenix%20Rising%20subscribe.htm Chia will not use antiviral or interferon on people who do not demonstrate evidence of infection. On the other hand the antivirals/IFN appear to work only about as long as they are being used - I think all the patients relapsed after stopping treatment. <usenethod@...> wrote: I believe Chia has recently published a paper on this treatment, which I havent read. Do you know if the three cases you mention are discussed in that paper? > I would like to know if anyone has seen (or heard about someone who has > seen) dr Chia in Torrance, California. He uses antivirals and interfuron > to go after the viruses associated with FMS/CFS. So far I have heard of 3 > recoveries, but they were all sick for less than a year. The other 15 or 20 > people I've heard about either were not helped or were only helped > part-way....relapsing once treatment was discontinued. I happen to live in Torrance but it > seems a bit reckless to do long term antivirals and interfuron. > Joe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi, Joe, Cort, mjh and the group. I have communicated with Dr. Chia a couple of times about glutathione depletion (which suppresses the immune system and reactivates latent viruses) and about methylation cycle blocks (which stabilize the glutathione depletion). So far he still believes that going after the viruses with antivirals is the answer. It's interesting to hear that this has worked only for cases of short duration. Rich > I believe Chia has recently published a paper on this treatment, > which I havent read. Do you know if the three cases you mention are > discussed in that paper? > > > > I would like to know if anyone has seen (or heard about someone > who has > > seen) dr Chia in Torrance, California. He uses antivirals > and interfuron > > to go after the viruses associated with FMS/CFS. So far I have > heard of 3 > > recoveries, but they were all sick for less than a year. The > other 15 or 20 > > people I've heard about either were not helped or were only helped > > part-way....relapsing once treatment was discontinued. I happen to > live in Torrance but it > > seems a bit reckless to do long term antivirals and interfuron. > > Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 did he test you for an enterovirus? what tests did he run on you? thanks, jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 It looks like I joined this group at just the right time... I saw Dr. Chia a couple of weeks ago (for the first time) and he confirmed a diagnosis of CFS and Fibro. He wants me to start on the Interferon. I joined this group to see if I could get more info. My primary care physician happens to be in the same office as Dr. Chia and I saw him last week. He said Dr. Chia has been treating CFS patients for over 10 years, but he wasn't able to answer many of my questions about specifics (# of patients, recovery %, lengths of treaetment, etc.). I have a return appointment with Dr. Chia on Feb. 21, and I believe we'll be deciding if I'll try the interferon or not at that appointment. Any info that anyone can pass on would be greatly appreciated, especially if anyone out there has used the interferon or know someone who has for CFS/Fibro. As a little background, My fibro symptoms began just about a year ago, I've had periods of fatigue off and on (mostly off) for several years, but I'm not sure whether they would have been classified as CFS. I did ask about CFS a couple of times when I was having periods of fatigue, but no one ever seemed to think it was CFS, but in retrospect, Dr Chia thinks I may have had the virus even then. The fatigue became almost constant when all of the fibro pain issues began last January. Thanks to everyone in advance! > > I would like to know if anyone has seen (or heard about someone who has > seen) dr Chia in Torrance, California. He uses antivirals and interfuron > to go after the viruses associated with FMS/CFS. So far I have heard of 3 > recoveries, but they were all sick for less than a year. The other 15 or 20 > people I've heard about either were not helped or were only helped > part-way....relapsing once treatment was discontinued. I happen to live in Torrance but it > seems a bit reckless to do long term antivirals and interfuron. > Joe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Personally I am partial to a bacterial pathogenesis. And after being around (online) tons of folks using abx over the last year, and beating my brains out to try to understand what obstructions there might be to eradicating any bacteria causing CFS, I favor combo abx regimes with a nitroimidazole (tinidazole or metronidazole) as the centerpiece. But theres no statistical validation, that I know of, for these views. And it certainly doesnt work satisfactory (ie major improvement) for all comers. And I may have some prejudice from the fact that it has worked very, very well for me. Cpnhelp.org, eurolyme, lymenet.org forums, etc are of some use for learning about these things. But, why not go ahead and take a look at other stuff too. If you want to read Chias paper, email me and then I will be able to send you the .pdf - which I believe contains citations to all the previous writings on interferon treatment of CFS that he knew of. I wrote a message a few days ago suggesting INFa might be active against bacterial infection, in theory at least, since INFg seems to be active, according at least to some findings, against the bacterial infection M. avium complex. The caveat is that I have no idea if INFa would be comparable to INFg in that regard. Its also not perfectly clear from his paper whether Chia used INFa in addition to ribavirin on all his patients, but it looks that way. > > It looks like I joined this group at just the right time... I saw Dr. > Chia a couple of weeks ago (for the first time) and he confirmed a > diagnosis of CFS and Fibro. He wants me to start on the Interferon. > I joined this group to see if I could get more info. My primary care > physician happens to be in the same office as Dr. Chia and I saw him > last week. He said Dr. Chia has been treating CFS patients for over > 10 years, but he wasn't able to answer many of my questions about > specifics (# of patients, recovery %, lengths of treaetment, etc.). > I have a return appointment with Dr. Chia on Feb. 21, and I believe > we'll be deciding if I'll try the interferon or not at that > appointment. Any info that anyone can pass on would be greatly > appreciated, especially if anyone out there has used the interferon > or know someone who has for CFS/Fibro. > As a little background, My fibro symptoms began just about a year > ago, I've had periods of fatigue off and on (mostly off) for several > years, but I'm not sure whether they would have been classified as > CFS. I did ask about CFS a couple of times when I was having periods > of fatigue, but no one ever seemed to think it was CFS, but in > retrospect, Dr Chia thinks I may have had the virus even then. The > fatigue became almost constant when all of the fibro pain issues > began last January. > > Thanks to everyone in advance! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Can you tell us what tests he had you take and which ones had abnormal results? I dont know if you've subscribed but the next issue of Phoenix Rising a CFS newsletter will summarize a recent paper by Dr. Chia. http://www.phoenix-cfs.org/Phoenix%20Rising%20subscribe.htm Please keep us up to date. Its great to have someone else who'se actually seeing him . COrt <jmnycricket22@...> wrote: It looks like I joined this group at just the right time... I saw Dr. Chia a couple of weeks ago (for the first time) and he confirmed a diagnosis of CFS and Fibro. He wants me to start on the Interferon. I joined this group to see if I could get more info. My primary care physician happens to be in the same office as Dr. Chia and I saw him last week. He said Dr. Chia has been treating CFS patients for over 10 years, but he wasn't able to answer many of my questions about specifics (# of patients, recovery %, lengths of treaetment, etc.). I have a return appointment with Dr. Chia on Feb. 21, and I believe we'll be deciding if I'll try the interferon or not at that appointment. Any info that anyone can pass on would be greatly appreciated, especially if anyone out there has used the interferon or know someone who has for CFS/Fibro. As a little background, My fibro symptoms began just about a year ago, I've had periods of fatigue off and on (mostly off) for several years, but I'm not sure whether they would have been classified as CFS. I did ask about CFS a couple of times when I was having periods of fatigue, but no one ever seemed to think it was CFS, but in retrospect, Dr Chia thinks I may have had the virus even then. The fatigue became almost constant when all of the fibro pain issues began last January. Thanks to everyone in advance! > > I would like to know if anyone has seen (or heard about someone who has > seen) dr Chia in Torrance, California. He uses antivirals and interfuron > to go after the viruses associated with FMS/CFS. So far I have heard of 3 > recoveries, but they were all sick for less than a year. The other 15 or 20 > people I've heard about either were not helped or were only helped > part-way....relapsing once treatment was discontinued. I happen to live in Torrance but it > seems a bit reckless to do long term antivirals and interfuron. > Joe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Hi Jim, He did some bloodwork to check my titers for some of the echo viruses (I think I have that right, I could be wrong and I think the echo viruses are types of enteroviruses). My pcp had run the same tests back in May, I guess it helps that he works in the sam office as Dr. Chia, and Dr Chia wanted to rerun the tests to see if my levels changed. When I saw my doctor last week, the titers had remained relatively stable. I don't know exactly what that means in terms of trying the interferon treatments though... I guess I'll have to wait until I see Dr Chia again next month... Sorry I'm not much more help, I'm still really new to all this!! > > did he test you for an enterovirus? what tests did he run on you? > > thanks, > > jim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Pardon my questions, I'm still new to this stuff and am learning terms as I go along... What is abx? What type of drug (or supplement?) is nitroimidazole? I'd love to have a pdf copy of Chia's article sent to me, I'll email you for it. He did give me some copies of articles, but they looked like the same article published in a couple different places. Perhaps you have a different one. Thanks! > > > > It looks like I joined this group at just the right time... I saw > Dr. > > Chia a couple of weeks ago (for the first time) and he confirmed a > > diagnosis of CFS and Fibro. He wants me to start on the > Interferon. > > I joined this group to see if I could get more info. My primary > care > > physician happens to be in the same office as Dr. Chia and I saw > him > > last week. He said Dr. Chia has been treating CFS patients for > over > > 10 years, but he wasn't able to answer many of my questions about > > specifics (# of patients, recovery %, lengths of treaetment, > etc.). > > I have a return appointment with Dr. Chia on Feb. 21, and I > believe > > we'll be deciding if I'll try the interferon or not at that > > appointment. Any info that anyone can pass on would be greatly > > appreciated, especially if anyone out there has used the > interferon > > or know someone who has for CFS/Fibro. > > As a little background, My fibro symptoms began just about a year > > ago, I've had periods of fatigue off and on (mostly off) for > several > > years, but I'm not sure whether they would have been classified as > > CFS. I did ask about CFS a couple of times when I was having > periods > > of fatigue, but no one ever seemed to think it was CFS, but in > > retrospect, Dr Chia thinks I may have had the virus even then. > The > > fatigue became almost constant when all of the fibro pain issues > > began last January. > > > > Thanks to everyone in advance! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 As I tried to say in a previous post, he was checking me for differnt types of echovirus (I think). I'll request copies of my labs when I see him next month and get back to you. I know the results were set up in titers, like 1:80 or 1:160 indicating that they were able to find one part virus per 160 parts something else... The bigger the number after the colon the more abnormal the result. Does that make any sense at all?? Please bear with me, I'm still new at this and am learning the terms and what everything means... If I had come to him earlier in the process, Dr Chia probably would have run some other tests, but by the time I was referred to him, the rheumatologist and my primary care dr had already run tons of tests. I did subscribe to Phoenix Rising after seeing the link in a previous post about Dr. Chia. Thanks for making sure I knew about it, though. > > > > I would like to know if anyone has seen (or heard about someone > who has > > seen) dr Chia in Torrance, California. He uses antivirals > and interfuron > > to go after the viruses associated with FMS/CFS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Re: Dr Chia Pardon my questions, I'm still new to this stuff and am learning terms as I go along... What is abx? antibiotics Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 and , I also am partial to a bacterial cause, especially knowing I have both borrelia (Lyme disease) and mycoplasma. My EBV titre was elevated at first but that quickly resolved with antibiotics. I did try Zadaxin which is an experimental thymus hormone used to treat hepatitis. I did this because I thought borrelia might act in ways similar to a virus. However, Zadaxin was of absolutely no help at all. I took it for six months which is the standard use for hepatitis which I don't have. Would I try interferon? In my case, no. I clearly respond to Zithromax and minocycline. I have also tried metronidazole. It didn't help me, but I hear of others where it works nicely along with Zithromax and minocycline - not necessarily all at the same time. My experience - for what it is worth. a Carnes > > Personally I am partial to a bacterial pathogenesis. And after being > around (online) tons of folks using abx over the last year, and > beating my brains out to try to understand what obstructions there > might be to eradicating any bacteria causing CFS, I favor combo abx > regimes with a nitroimidazole (tinidazole or metronidazole) as the > centerpiece. But theres no statistical validation, that I know of, > for these views. And it certainly doesnt work satisfactory (ie major > improvement) for all comers. And I may have some prejudice from the > fact that it has worked very, very well for me. Cpnhelp.org, > eurolyme, lymenet.org forums, etc are of some use for learning about > these things. > > But, why not go ahead and take a look at other stuff too. If you > want to read Chias paper, email me and then I will be able to send > you the .pdf - which I believe contains citations to all the > previous writings on interferon treatment of CFS that he knew of. > > I wrote a message a few days ago suggesting INFa might be active > against bacterial infection, in theory at least, since INFg seems to > be active, according at least to some findings, against the > bacterial infection M. avium complex. The caveat is that I have no > idea if INFa would be comparable to INFg in that regard. Its also > not perfectly clear from his paper whether Chia used INFa in > addition to ribavirin on all his patients, but it looks that way. > > > > > > It looks like I joined this group at just the right time... I saw > Dr. > > Chia a couple of weeks ago (for the first time) and he confirmed a > > diagnosis of CFS and Fibro. He wants me to start on the > Interferon. > > I joined this group to see if I could get more info. My primary > care > > physician happens to be in the same office as Dr. Chia and I saw > him > > last week. He said Dr. Chia has been treating CFS patients for > over > > 10 years, but he wasn't able to answer many of my questions about > > specifics (# of patients, recovery %, lengths of treaetment, > etc.). > > I have a return appointment with Dr. Chia on Feb. 21, and I > believe > > we'll be deciding if I'll try the interferon or not at that > > appointment. Any info that anyone can pass on would be greatly > > appreciated, especially if anyone out there has used the > interferon > > or know someone who has for CFS/Fibro. > > As a little background, My fibro symptoms began just about a year > > ago, I've had periods of fatigue off and on (mostly off) for > several > > years, but I'm not sure whether they would have been classified as > > CFS. I did ask about CFS a couple of times when I was having > periods > > of fatigue, but no one ever seemed to think it was CFS, but in > > retrospect, Dr Chia thinks I may have had the virus even then. > The > > fatigue became almost constant when all of the fibro pain issues > > began last January. > > > > Thanks to everyone in advance! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 My young pre-teen cousin who lives in Torrance, CA, was sick for about a year, and was so fatigued he couldn't go to school. Dr. Chia treated him and he made a complete recovery. Sue , Upstate New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Wow, Sue, that is wonderful. Do you know if Chia found a viral cause, and did he treat the boy with interferon and antivirals? a > > My young pre-teen cousin who lives in Torrance, CA, was sick for about > a year, and was so fatigued he couldn't go to school. Dr. Chia treated > him and he made a complete recovery. > > Sue , > Upstate New York > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hi, . The titer on viral antibody testing is the highest dilution at which the antibody is still detected. So 1:80 means that they could still find it after a one to eighty dilution, but not after a higher dilution. Rich > > As I tried to say in a previous post, he was checking me for differnt > types of echovirus (I think). I'll request copies of my labs when I > see him next month and get back to you. I know the results were set > up in titers, like 1:80 or 1:160 indicating that they were able to > find one part virus per 160 parts something else... The bigger the > number after the colon the more abnormal the result. Does that make > any sense at all?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 That is wonderful and very encouraging to hear. Do you know the course of treatment Dr Chia used for your cousin? Was it interferon or something else? I'm extremely interested. > > My young pre-teen cousin who lives in Torrance, CA, was sick for about > a year, and was so fatigued he couldn't go to school. Dr. Chia treated > him and he made a complete recovery. > > Sue , > Upstate New York > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Thanks Rich, I was pretty sure it was something along those lines, but I couldn't figure out how to explain it as simply and clearly as you did. > > > > As I tried to say in a previous post, he was checking me for > differnt > > types of echovirus (I think). I'll request copies of my labs when I > > see him next month and get back to you. I know the results were set > > up in titers, like 1:80 or 1:160 indicating that they were able to > > find one part virus per 160 parts something else... The bigger the > > number after the colon the more abnormal the result. Does that make > > any sense at all?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Hi a, > Do you know if Chia found a viral cause, > and did he treat the boy with interferon and antivirals? I can't remember how he treated him, but I do think he thought it was " probably " a viral infection. In any case, he took it seriously and viewed the illness as an infection, after another doctor had referred the child to a useless psychiatrist. Sue , Upstate New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 wrote: >Subject: Re: Dr Chia <snip> > I'd love to have a pdf copy >of Chia's article sent to me, I'll email you for it. He did >give me some copies of articles, but they looked like the same >article published in a couple different places. Can you tell us the name of what you have. Have a few bits and pieces myself. Thanks. Tom K. > Perhaps you >have a different one. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Hi Tom, My articles are at home and I'm at work. I'll check tonight and post the titles tomorrow. > > >Subject: Re: Dr Chia > <snip> > > I'd love to have a pdf copy > >of Chia's article sent to me, I'll email you for it. He did > >give me some copies of articles, but they looked like the same > >article published in a couple different places. > > Can you tell us the name of what you have. Have a few bits and pieces > myself. > > Thanks. > > Tom K. > > > Perhaps you > >have a different one. Thanks! > Quote Link to comment Share on other sites More sharing options...
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