Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 I'm a new member here, have had CFIDS since 1990, also possibly have late- stage Lyme. Have been getting good results with Immunoprop capsules daily and Hepapressin injections once a week. Most recent bloodwork shows that my immune system is bouncing back (slowly, we have to be patient) from severe HHV-6, cytomegalovirus and Epstein-barr exposures since starting these two medications more than six months ago. This protocol is prescribed by my doctor in Manhattan, Enlander, who I recommend for anyone looking for an internist who UNDERSTANDS the illness. He is the first doctor I have seen in 15 years who actually is helping me. I ride the train for an hour and ten minutes, then take the subway 30 blocks to get to his office. This journey is not easy, but he is worth the trip and worth the price I pay (total exhaustion) the day after the journey! I notice that I INSTANTLY feel better after getting a hepapressin injection, and this feeling of well-being lasts well into the day. Just wanted to put this info out there, maybe other CFIDS sufferers can get their own doctors to order these medications. My insurance pays for the injections but not for the capsules, which are not that expensive. My husband gives me the shots, it's no big deal. Good luck to all, please respond if you've had experience with these meds as well. Thanks -- tlog55 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 ---Yes I am getting good results from this method also. The injection gives me energy and lasts for five to six days when I am ready for my next injection. I agree Dr E spends time with me, seems like he spends time with everyone, how can that be ? I know he is very busy he treats doormen at 6.45am In , " tlog55 " <tlog55@y...> wrote: > > I'm a new member here, have had CFIDS since 1990, also possibly have late- > stage Lyme. Have been getting good results with Immunoprop capsules daily > and Hepapressin injections once a week. Most recent bloodwork shows that > my immune system is bouncing back (slowly, we have to be patient) from > severe HHV-6, cytomegalovirus and Epstein-barr exposures since starting > these two medications more than six months ago. This protocol is prescribed > by my doctor in Manhattan, Enlander, who I recommend for anyone > looking for an internist who UNDERSTANDS the illness. He is the first doctor > I have seen in 15 years who actually is helping me. I ride the train for an hour > and ten minutes, then take the subway 30 blocks to get to his office. This > journey is not easy, but he is worth the trip and worth the price I pay (total > exhaustion) the day after the journey! > > I notice that I INSTANTLY feel better after getting a hepapressin injection, and > this feeling of well-being lasts well into the day. Just wanted to put this info out > there, maybe other CFIDS sufferers can get their own doctors to order these > medications. My insurance pays for the injections but not for the capsules, > which are not that expensive. My husband gives me the shots, it's no big deal. > Good luck to all, please respond if you've had experience with these meds as > well. > > Thanks -- tlog55 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Were does one find capsules of hepapressin? Is this available on line? Sylvie > > ---Yes I am getting good results from this method also. > The injection gives me energy and lasts for five to six days when I > am ready for my next injection. I agree Dr E spends time with me, > seems like he spends time with everyone, how can that be ? I know he > is very busy he treats doormen at 6.45am >> I notice that I INSTANTLY feel better after getting a hepapressin > injection, and >> this feeling of well-being lasts well into the day. Just wanted to > put this info out >> there, maybe other CFIDS sufferers can get their own doctors to > order these >> medications. My insurance pays for the injections but not for the > capsules, >> which are not that expensive. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2006 Report Share Posted January 27, 2006 I second that! I developed severe unexplained spinal lumbar/sacrum inflammation overnight last June. No treatment, including two epidural steroid injections (actually made me sicker), worked. It was so bad that I couldn't make any movement without excrutiating pains. I was pretty much an invalid. Thanks to Dr. Enlander's Hepapressin shots and Immunoprop, my condition has improved. When pain flares up, a shot makes HUGE difference in a matter of hour or two. So on really bad weeks, my body really aches for more frequent shots. They are life-saver in my case. I don't know about others but my sed rate is very high, rheumatoid factor and CRP are out-of-this- worldly high. If spinal inflammation wasn't under control, God knows what might happen. Wonder how many people have big time unexplained inflammation problem and how you deal with it? Tina > > > > I'm a new member here, have had CFIDS since 1990, also possibly > have late- > > stage Lyme. Have been getting good results with Immunoprop capsules > daily > > and Hepapressin injections once a week. Most recent bloodwork shows > that > > my immune system is bouncing back (slowly, we have to be patient) > from > > severe HHV-6, cytomegalovirus and Epstein-barr exposures since > starting > > these two medications more than six months ago. This protocol is > prescribed > > by my doctor in Manhattan, Enlander, who I recommend for > anyone > > looking for an internist who UNDERSTANDS the illness. He is the > first doctor > > I have seen in 15 years who actually is helping me. I ride the > train for an hour > > and ten minutes, then take the subway 30 blocks to get to his > office. This > > journey is not easy, but he is worth the trip and worth the price I > pay (total > > exhaustion) the day after the journey! > > > > I notice that I INSTANTLY feel better after getting a hepapressin > injection, and > > this feeling of well-being lasts well into the day. Just wanted to > put this info out > > there, maybe other CFIDS sufferers can get their own doctors to > order these > > medications. My insurance pays for the injections but not for the > capsules, > > which are not that expensive. My husband gives me the shots, it's > no big deal. > > Good luck to all, please respond if you've had experience with > these meds as > > well. > > > > Thanks -- tlog55 > > > Quote Link to comment Share on other sites More sharing options...
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