Re: toxic metals urine test

[Guest guest]

If there is as much interest as there seems to be in heavy metal poisoning (

mercury, lead, arsenic, cadmium ) we could have the group involved in a

simple project.

We could have your local doctor draw blood and urine before and after oral

chelation for these metals. I will them analyze the results that you send me,

and we can perhaps determine what is the heavy metal and chelation situation.

We need at least thirty patients to make the statistics significant.

If there is interest I will draw up a protocol.

Joy

Research Assistant to Dr Enlander

_www.enlander.com_ (http://www.enlander.com)

[Guest guest]

Joy

I will volunteer for this project. What would the chelator be?

mjh

In a message dated 1/10/2006 10:32:58 PM Eastern Standard Time,

DEnlander@... writes:

If there is as much interest as there seems to be in heavy metal poisoning

(

mercury, lead, arsenic, cadmium ) we could have the group involved in a

simple project.

We could have your local doctor draw blood and urine before and after oral

chelation for these metals. I will them analyze the results that you send

me,

and we can perhaps determine what is the heavy metal and chelation

situation.

We need at least thirty patients to make the statistics significant.

If there is interest I will draw up a protocol.

Joy

Research Assistant to Dr Enlander

_www.enlander.com_ (http://www.enlander.com)

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

In a message dated 1/10/2006 7:35:28 P.M. Pacific Standard Time,

foxhillers@... writes:

Joy

I will volunteer for this project. What would the chelator be?

great start, possibly BAL, as DMSA or others are not FDA approved for this

use . Local doctors would want FDA chelators and prefer oral chelation.

Joy

Assistant to Dr Enlander

_www.enlander.com_ (http://www.enlander.com)

[Guest guest]

In a message dated 1/10/2006 8:08:02 P.M. Pacific Standard Time,

mgrahn@... writes:

naturepath's supervision. I think he would be agreeable to drawing my blood

to send to you at whatever points you wanted it (at my expense of course). My

insurance won't pay for anything like this, were you expecting it to?

I do not know what insurance company do with naturopath bills but a

physician's bill may have a better reimbursement. Ask the insurance company

about

this.

Joy

Research assistant to Dr Enlander

_www.enlander.com_ (http://www.enlander.com/)

[Guest guest]

In a message dated 1/10/2006 8:19:44 P.M. Pacific Standard Time,

mgrahn@... writes:

can you tell us more about BAL? Is it good for mercury? and other metals as

well? My naturepath likes to work with DMSA.

If I could find an DMSA oral version I would be delighted

Joy

Research assistant to Dr Enlander

_www.enlander.com_ (http://www.enlander.com)

ps

Dr Enlander told me he used DMSA as an early kidney imaging agent

Enlander D, Weber PM, dos Remedios LV. Renal cortical. imaging in 35

patients: Superior quality with Tc-99m DMSA. J Nucl Med 1974; 15: 743–748.

[Guest guest]

Joy,

when I get my toxic metals results back from Drs Data I will know more about my

status. Then I do plan to do some DMSA chelation under the naturepath's

supervision. I think he would be agreeable to drawing my blood to send to you at

whatever points you wanted it (at my expense of course). My insurance won't pay

for anything like this, were you expecting it to? My funds are limited. So I

might be interested. I'm in Oregon.

Marcia

Re: toxic metals urine test

If there is as much interest as there seems to be in heavy metal poisoning (

mercury, lead, arsenic, cadmium ) we could have the group involved in a

simple project.

We could have your local doctor draw blood and urine before and after oral

chelation for these metals. I will them analyze the results that you send me,

and we can perhaps determine what is the heavy metal and chelation situation.

We need at least thirty patients to make the statistics significant.

If there is interest I will draw up a protocol.

Joy

Research Assistant to Dr Enlander

_www.enlander.com_ (http://www.enlander.com)

[Guest guest]

Joy,

can you tell us more about BAL? Is it good for mercury? and other metals as

well? My naturepath likes to work with DMSA.

Marcia

Re: toxic metals urine test

In a message dated 1/10/2006 7:35:28 P.M. Pacific Standard Time,

foxhillers@... writes:

Joy

I will volunteer for this project. What would the chelator be?

great start, possibly BAL, as DMSA or others are not FDA approved for this

use . Local doctors would want FDA chelators and prefer oral chelation.

Joy

Assistant to Dr Enlander

_www.enlander.com_ (http://www.enlander.com)

[Guest guest]

Re: toxic metals urine test

In a message dated 1/10/2006 8:08:02 P.M. Pacific Standard Time,

mgrahn@... writes:

naturepath's supervision. I think he would be agreeable to drawing my blood

to send to you at whatever points you wanted it (at my expense of course). My

insurance won't pay for anything like this, were you expecting it to?

I do not know what insurance company do with naturopath bills but a

physician's bill may have a better reimbursement. Ask the insurance company

about

this.

Joy

My insurnace won't pay with a naturepath and I dont' have a cfs Dr. Just a

regular MD who does once a year pap and checks my blood. She thinks we are all

nuts and won't do anything to do with cfs so I would have no options there. I

have no other Drs that would do this, so even if my insurance would pay it

(which I doubt), I would not have an 'MD' that would work along with it. Guess

that will let me out.

Marcia

[Guest guest]

Count me in!! Bob

> If there is as much interest as there seems to be in heavy metal

poisoning (

> mercury, lead, arsenic, cadmium ) we could have the group involved

in a

> simple project.

> We could have your local doctor draw blood and urine before and

after oral

> chelation for these metals. I will them analyze the results that

you send me,

> and we can perhaps determine what is the heavy metal and chelation

situation.

> We need at least thirty patients to make the statistics

significant.

> If there is interest I will draw up a protocol.

> Joy

> Research Assistant to Dr Enlander

> _www.enlander.com_ (http://www.enlander.com)

>

>

>

>

>

[Guest guest]

Isn't that what the DAN! group is using on the autistic kids? or are they using

strictly TD? I think my naturepath uses an oral. A friend of mine recently

purchased a whole bottle of oral DMSA.

Marcia

If I could find an DMSA oral version I would be delighted

Joy

Research assistant to Dr Enlander

_www.enlander.com_ (http://www.enlander.com)

ps

Dr Enlander told me he used DMSA as an early kidney imaging agent

Enlander D, Weber PM, dos Remedios LV. Renal cortical. imaging in 35

patients: Superior quality with Tc-99m DMSA. J Nucl Med 1974; 15: 743–748.

[Guest guest]

The DAN protocol for mercury detox is at the following URL:

http://www.autismwebsite.com/ari/dan/heavymetals.pdf

Plus, some of the videos on the DAN webcast discuss detox.

If my memory is correct, DMSA and DMPS are both recommended in oral,

rectal, or transdermal form. The advantage of the transdermal and

rectal forms is that they don't worsen dysbiosis and other gut

problems. They also use a form of vitamin B1 called TTFD for detox.

Vickie

>

> Isn't that what the DAN! group is using on the autistic kids? or

are they using strictly TD? I think my naturepath uses an oral. A

friend of mine recently purchased a whole bottle of oral DMSA.

>

> Marcia

>

>

> If I could find an DMSA oral version I would be delighted

> Joy

> Research assistant to Dr Enlander

> _www.enlander.com_ (http://www.enlander.com)

>

> ps

> Dr Enlander told me he used DMSA as an early kidney imaging agent

>

> Enlander D, Weber PM, dos Remedios LV. Renal cortical. imaging in

35

> patients: Superior quality with Tc-99m DMSA. J Nucl Med 1974; 15:

743†" 748.

>

>

>

>

>

[Guest guest]

Dear group,

Am new to the board so please forgive me if I

crosspost, etc. Have CFS, MCS, MS-which I call

multiple symtoms. RA, Lupus.

Am sure interested in the heavy metal poisoning

program. Feel that Toxins should be a part of the lab

tests. IGE, etc. Bob told me about this group, and

had an appt with neurologist today.

So am beat. I met a gal 28 before going in DX with

lupus. She had gotten out of the hospital a month

earler. Her liver enzymes were 800 something. Normal

is about 30. She also has CFS. Was telling her about

the toxins. Then she left and a Desert Storm Vet, who

was DX with MS at Fort Dix. Denied disability. He has

CFS, MS, fibro, RA. Saw there a JAMA magazine, are

supposedly 200 people DX with MS every week and 200+

with CFS. Too much of a coincidence.

Wanted to ask, if anyone here with the CFS become so

tired, and can't sleep. I know the pain plays a big

part in it. But when do get to sleep, am out 12-13

hrs.

Ann

________________

--- DEnlander@... wrote:

>

>

> If there is as much interest as there seems to be in

>heavy metal poisoning (

> mercury, lead, arsenic, cadmium ) we could have the

> group involved in a

> simple project.

> We could have your local doctor draw blood and urine

> before and after oral

> chelation for these metals. I will them analyze the

> results that you send me,

> and we can perhaps determine what is the heavy metal

> and chelation situation.

> We need at least thirty patients to make the

> statistics significant.

> If there is interest I will draw up a protocol.

> Joy

> Research Assistant to Dr Enlander

> _www.enlander.com_ (http://www.enlander.com)

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

> This list is intended for patients to share personal

> experiences with each other, not to give medical

> advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

[Guest guest]

Welcome to the group, Ann. I feel like sleep and food are my worst

enemies. I've been sleeping about 12 to 13 hours a day for the past

few months, but I occasionally have some days when I am awake all

night and only sleep about 4 hours. I am miserable but I can't

sleep. Sometimes, I get my days and nights mixed up.

If I make myself go to sleep at 8 or 9 p.m. every night, I sleep

better and my sleep becomes more regular. But I want to spend time

with my husband, watch TV, etc. Some things that help me get to

sleep are magnesium, taurine, L-theanine, melatonin, Benadryl,

Klonopine. Some people have problems with Klonopine, but I have

taken it for about 10 years and have never needed to increase the

dosage. Since I have chronic allergic reactions, Benadryl by itself

will usually put me to sleep. Staying asleep is another matter.

Wishing you better sleep!

Vickie

> >

> >

> > If there is as much interest as there seems to be in

> >heavy metal poisoning (

> > mercury, lead, arsenic, cadmium ) we could have the

> > group involved in a

> > simple project.

> > We could have your local doctor draw blood and urine

> > before and after oral

> > chelation for these metals. I will them analyze the

> > results that you send me,

> > and we can perhaps determine what is the heavy metal

> > and chelation situation.

> > We need at least thirty patients to make the

> > statistics significant.

> > If there is interest I will draw up a protocol.

> > Joy

> > Research Assistant to Dr Enlander

> > _www.enlander.com_ (http://www.enlander.com)

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> > This list is intended for patients to share personal

> > experiences with each other, not to give medical

> > advice. If you are interested in any treatment

> > discussed here, please consult your doctor.

> >

[Guest guest]

Welcome Ann. I take ambien and sometimes klonopin to help me sleep.

Before I got mold, I also use to sleep for a day but now I don't take

a nap. I am not sure what has changed.

Bob

> >

> >

> > If there is as much interest as there seems to be in

> >heavy metal poisoning (

> > mercury, lead, arsenic, cadmium ) we could have the

> > group involved in a

> > simple project.

> > We could have your local doctor draw blood and urine

> > before and after oral

> > chelation for these metals. I will them analyze the

> > results that you send me,

> > and we can perhaps determine what is the heavy metal

> > and chelation situation.

> > We need at least thirty patients to make the

> > statistics significant.

> > If there is interest I will draw up a protocol.

> > Joy

> > Research Assistant to Dr Enlander

> > _www.enlander.com_ (http://www.enlander.com)

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> > This list is intended for patients to share personal

> > experiences with each other, not to give medical

> > advice. If you are interested in any treatment

> > discussed here, please consult your doctor.

> >

[Guest guest]

Hi Ann

Welcome to the group. I, too, had little or no sleep for many years.

Counted the patterns in the wallpaper. I would usually get about 4.5 hours of

light sleep, some days sleeping not at all. Fatigue so profound I could hardly

stand much less function. Significant pain, too. Once or twice a month I,

too, would sleep about 12 hours.

What helped change that for me in 1999 a doc told me to take SAM-e and the

first 200 mg dose changed the sleep to six hours with some depth..

Magnesium+B6 also helped to improve the depth of sleep..

And now since last July, l-Tryptophan and GABA+inositol have increased my

sleep to almost eight hours of deep sleep.

I do not do well on the pharmaceutical sleep aides.

It used to be that if I woke up about 1.5 hours after falling asleep or

between 2 and 3 am, a hot fudge sundae on French vanilla ice cream would help me

fall asleep again. Haven't needed ice cream now for six months.

Hope this helps

mjh

In a message dated 1/11/2006 1:44:47 AM Eastern Standard Time,

ag4977@... writes:

Wanted to ask, if anyone here with the CFS become so

tired, and can't sleep. I know the pain plays a big

part in it. But when do get to sleep, am out 12-13

hrs.

Ann

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

> If I could find an DMSA oral version I would be delighted

> Joy

> Research assistant to Dr Enlander

--------------------------------

This is the only one I have been able to find so far:

http://www.vrp.com/det/8111.asp

-----------

Name: DMSA

Description: 100 mg, 45 capsules

(dimercapto succinic acid)

providing 65 mg succinic acid

Other Ingredients:

Microcrystalline cellulose and Hydroxypropyl methylcellulose (Vcap).

Contains no added starch, salt, wheat, gluten,

corn, coloring, or dairy products.

----------

It is available from these folks at a small discount (need to scroll

half way down the page:

http://www.vivagen.net/detoxprods.htm?

Jerry

[Guest guest]

Joy, I was just cleaning mailbox and found your post of 1/10/06 about sourcing

DMSA. VRP is a good source of oral DMSA. Mel

[Guest guest]

Mel? What's VRP?

the one in Champaign IL

>

> Joy, I was just cleaning mailbox and found your post of 1/10/06

about sourcing DMSA. VRP is a good source of oral DMSA. Mel

[Guest guest]

Thanks, Mel. How did your doctor appointment go? Learn anything new?

>

> , VRP is Vitamin Reaearch Products. Google vrp.com. Mel

>