Genovations not legal in NY

[Guest guest]

Hi, Jill.

" jill1313 " <jenbooks13@h...> wrote:

>

> Great Smokies tells me that I cannot, if I am a legal resident of New

> York, get their tests no matter what (genovations). It doesn't matter

> where I Travel to or which doctors, they are not legally allowed to

> order these tests even if my doctor wants to and even if I pay for

> them totally myself. A woman at Great Smokies named Susie told me this

> and said unless I have a legal residence elsewhere there is no way I

> can get these tests.

>

> Is this true?

***I'm not the one to ask this question. But I'm sure there must be a creative

way around this if it is so.

> If so I have to find who else does this kind of testing.

***It's not too common just yet and the real cool thing about Genovations are

the reports that go along with the specific SNPs they test in you. They give

really great nutritional, supplement and instances of drugs that may support you

health through time based on your SNPs. Amy Yasko testing, which sounds

similar, apparently does provide these reports.

I have never run across this before.

***I heard this is true for IgeneX testing for lyme in some states. It does

sound ridiculous though no matter what testing is being blocked from free

citizens who cannot be physical hurt by these very simple tests.

Not covered by insurance would be

one thing, but to legally prevent me from having these tests, I'm hard

pressed to believe this could be, but she insists it is so and was not

able in any way to give me any more specific information and would not

> give me the email of the head of Great Smokies, but I'll get it I

> suppose just to ask more about this.

***You don't strike me as a gal that would be stopped by this. I know its

frustrating but you'll figure a way out to get your SNPs tested. Who has the

locus of control, you or some lobbyist years back who got some state assemblyman

to slip through a partronizing litte piece of legislation antithetical to

" autonomous adult citizens who can think for themselves with their purchasing

dollars when nothing close to a safety issue is involved " ?

***Anyway, back on our heads...I have three gene variants found by genovations

testing that clearly related to the topic at hand:

1) MTHFR, heterozygote, which is responsible for producing folate and important

to completing the methylation cycle.

2) COMT, heterozygote, which important to breaking down catecholamines, in

particular interest is noradrenaline to PWMEs. This SNP for COMT allows

adrenaline to hang around, not broken down, longer in persons body and as you

may recall upregulated adrenlaline depletes glutathione.

3) GSTM1, null, which means I have no producion of this enzyme important to

phase II detox and for the transfer of glutathione in and out of cells(if I

recall correctly).

Also from the one of the austism conferences these three polymorphic variants of

seven they discuss in autism I have. A quote from the study synopsizing this

are as follows:

" Polymorphic variants in transcobalamin II (TCII), methylene- tetrahydrofolate

reductase (MTHFR), methionine synthase reductase (MTRR),

catecholamine-O-methyltransferase (COMT), and

glutathione-S-

transferase (GST) M1/T1 were evaluated in 233 autistic children and 183

controls.

The results indicated that mean levels of methionine, cysteine, total

glutathione, and the ratio of oxidized to reduced glutathione were significantly

decreased among the autistic children.

The frequency of MTHFR 677CT/1298AG heterozygosity, TCII 776GG, COMT 1947GG, and

the GST M1/T1 double null genotype was increased in the autistic children

relative to controls.

We hypothesize that an increased vulnerability to oxidative stress

(environmental and/or intracellular) may contribute to the development and

clinical manifestations of autism.

Supported by the Autism Research Institute, San Diego , CA "

[Guest guest]

Correction...Meant to say Amy Yasko testing apparently does NOT provide the

excellent test reports like Genovations does. I recall someone stating on this

list that she instead provides interpretation of your SNP test results through

phone consultation at $400 per hour.

" davidhall2020 " <davidhall@w...> wrote:

> " jill1313 " <jenbooks13@h...> wrote:

> > If so I have to find who else does this kind of testing.

>

>

>

> ***It's not too common just yet and the real cool thing about Genovations are

the reports that go along with the specific SNPs they test in you. They give

really great nutritional, supplement and instances of drugs that may support you

health through time based on your SNPs. Amy Yasko testing, which sounds

similar, apparently does provide these reports.

[Guest guest]

Thanx david. You're right there has to be a way around this.

> >

> > Great Smokies tells me that I cannot, if I am a legal resident of New

> > York, get their tests no matter what (genovations). It doesn't matter

> > where I Travel to or which doctors, they are not legally allowed to

> > order these tests even if my doctor wants to and even if I pay for

> > them totally myself. A woman at Great Smokies named Susie told me this

> > and said unless I have a legal residence elsewhere there is no way I

> > can get these tests.

> >

> > Is this true?

>

>

>

> ***I'm not the one to ask this question. But I'm sure there must be

a creative way around this if it is so.

>

>

>

>

> > If so I have to find who else does this kind of testing.

>

>

>

> ***It's not too common just yet and the real cool thing about

Genovations are the reports that go along with the specific SNPs they

test in you. They give really great nutritional, supplement and

instances of drugs that may support you health through time based on

your SNPs. Amy Yasko testing, which sounds similar, apparently does

provide these reports.

>

>

>

> I have never run across this before.

>

>

>

> ***I heard this is true for IgeneX testing for lyme in some states.

It does sound ridiculous though no matter what testing is being

blocked from free citizens who cannot be physical hurt by these very

simple tests.

>

>

>

> Not covered by insurance would be

> one thing, but to legally prevent me from having these tests, I'm hard

> pressed to believe this could be, but she insists it is so and was not

> able in any way to give me any more specific information and would not

> > give me the email of the head of Great Smokies, but I'll get it I

> > suppose just to ask more about this.

>

>

>

> ***You don't strike me as a gal that would be stopped by this. I

know its frustrating but you'll figure a way out to get your SNPs

tested. Who has the locus of control, you or some lobbyist years back

who got some state assemblyman to slip through a partronizing litte

piece of legislation antithetical to " autonomous adult citizens who

can think for themselves with their purchasing dollars when nothing

close to a safety issue is involved " ?

>

>

>

> ***Anyway, back on our heads...I have three gene variants found by

genovations testing that clearly related to the topic at hand:

>

>

>

> 1) MTHFR, heterozygote, which is responsible for producing folate

and important to completing the methylation cycle.

> 2) COMT, heterozygote, which important to breaking down

catecholamines, in particular interest is noradrenaline to PWMEs.

This SNP for COMT allows adrenaline to hang around, not broken down,

longer in persons body and as you may recall upregulated adrenlaline

depletes glutathione.

> 3) GSTM1, null, which means I have no producion of this enzyme

important to phase II detox and for the transfer of glutathione in and

out of cells(if I recall correctly).

>

>

>

> Also from the one of the austism conferences these three polymorphic

variants of seven they discuss in autism I have. A quote from the

study synopsizing this are as follows:

>

>

>

> " Polymorphic variants in transcobalamin II (TCII), methylene-

tetrahydrofolate reductase (MTHFR), methionine synthase reductase

(MTRR), catecholamine-O-methyltransferase (COMT), and

> glutathione-S-

> transferase (GST) M1/T1 were evaluated in 233 autistic children and

183 controls.

> The results indicated that mean levels of methionine, cysteine,

total glutathione, and the ratio of oxidized to reduced glutathione

were significantly decreased among the autistic children.

> The frequency of MTHFR 677CT/1298AG heterozygosity, TCII 776GG, COMT

1947GG, and the GST M1/T1 double null genotype was increased in the

autistic children relative to controls.

> We hypothesize that an increased vulnerability to oxidative stress

(environmental and/or intracellular) may contribute to the development

and clinical manifestations of autism.

> Supported by the Autism Research Institute, San Diego , CA "

>

>

>

>

>

[Guest guest]

There are many labs not licensed by NY State. I have been wondering how other

people get tested. So far I've found the Bowen lab, and the lab Rich recommends

for testing glutathione levels, as well as Genovations don't accept New Yorkers

(even if we pay). I think that is why there are less alternative practitioners

here. I don't know if NY is just behind in visiting labs or it is a deliberate

strategy. I am stymied as far as mercury, lyme testing and genetic testing. It

seemed Rich got as much info from metametrix tests, so I am wondering if that is

the way to go. (don't know if they're licensed or price). Kathy

RE: From: " jill1313 "

Subject: Genovations not legal in NY

Great Smokies tells me that I cannot, if I am a legal resident of New

York, get their tests no matter what (genovations). It doesn't matter

where I Travel to or which doctors, they are not legally allowed to

order these tests even if my doctor wants to and even if I pay for

them totally myself. A woman at Great Smokies named Susie told me this

and said unless I have a legal residence elsewhere there is no way I

can get these tests.

Is this true

[Guest guest]

In a message dated 1/6/2006 11:19:02 A.M. Pacific Standard Time,

jenbooks13@... writes:

Great Smokies tells me that I cannot, if I am a legal resident of New

York, get their tests no matter what (genovations). It doesn't matter

where I Travel to or which doctors, they are not legally allowed to

order these tests even if my doctor wants to and even if I pay for

them totally myself. A woman at Great Smokies named Susie told me this

and said unless I have a legal residence elsewhere there is no way I

can get these tests.

Is this true?

If so I have to find who else does this kind of testing.

I have never run across this before. Not covered by insurance would be

one thing, but to legally prevent me from having these tests, I'm hard

pressed to believe this could be, but she insists it is so and was not

able in any way to give me any more specific information and would not

give me the email of the head of Great Smokies, but I'll get it I

suppose just to ask more about this.

We have sent bowel motion samples to Great Smokies and have got reports sent

to our New York office.

There is a problem sending samples to Igenex for lymes testing, Dr Enlander

prefers them to the local commercial labs. He knows the founders of Igenex

from his Stanford days, they are located nearby in Palo Alto. The State of New

York have preventing Igenex from doing certain tests in New York.

Joy

Research Assistant to Dr Enlander

_www.enlander.com_ (http://www.enlander.com/)

[Guest guest]

Hi, Kathy.

On the Metametrix website, it says that they are licensed by the

State of New York.

New York has been a tough state for alternative medicine. Dr.

Serafina Corsello lost her license there, and I think she's an

excellent doctor. I've heard they don't allow dark field, live cell

blood microscopy in New York, either. That's the same state where

the board went after doctors treating long-term Lyme disease, also.

Dr. Joe Burrascano was hassled for a long time, but I think he

eventually won. You have my sympathies.

Rich

>

> There are many labs not licensed by NY State. I have been

wondering how other people get tested. So far I've found the Bowen

lab, and the lab Rich recommends for testing glutathione levels, as

well as Genovations don't accept New Yorkers (even if we pay). I

think that is why there are less alternative practitioners here. I

don't know if NY is just behind in visiting labs or it is a

deliberate strategy. I am stymied as far as mercury, lyme testing

and genetic testing. It seemed Rich got as much info from

metametrix tests, so I am wondering if that is the way to go.

(don't know if they're licensed or price). Kathy

>

> RE: From: " jill1313 "

> Subject: Genovations not legal in NY

>

> Great Smokies tells me that I cannot, if I am a legal resident of

New

> York, get their tests no matter what (genovations). It doesn't

matter

> where I Travel to or which doctors, they are not legally allowed to

> order these tests even if my doctor wants to and even if I pay for

> them totally myself. A woman at Great Smokies named Susie told me

this

> and said unless I have a legal residence elsewhere there is no way

I

> can get these tests.

>

> Is this true

>

>

[Guest guest]

On Jan 7, 2006, at 3:10 PM, rvankonynen wrote:

> New York has been a tough state for alternative medicine. Dr.

> Serafina Corsello lost her license there, and I think she's an

> excellent doctor. I've heard they don't allow dark field, live cell

> blood microscopy in New York, either. That's the same state where

> the board went after doctors treating long-term Lyme disease, also.

> Dr. Joe Burrascano was hassled for a long time, but I think he

> eventually won. You have my sympathies.

California's almost this bad, too -- surprising, considering its

reputation for embracing alternative practices.

Yet, that reputation may have everything to do with it. The

California Medical Association has been very, very active at lobbying

to get laws passed against anything or anyone operating outside

standard paradigms. They are ruthless in harassing alternative

doctors, and have frequently lobbied county DAs and other agencies to

put them out of business.

From what I can tell, the CMA isn't nearly as aggressive with non-

medical practitioners (acupuncturists, chiropractors, Chinese

medicine consultants, etc.) But the handful of MDs I've known who

tried to treat from other paradigms have found that their

" conventional " colleagues have made their lives a living hell.

Apparently, doctors lose their licenses in California for practicing

outside the lines all the time.

Tim Guilford and I actually talked about this at some length. He's an

MD out of UT Austin, and had a " normal " practice in the Bay Area for

a couple of decades before veering off into alternative paradigms.

(IIRC, he had a family member who got a life-threatening illness, and

was more harmed than helped by conventional treatments before he

found alternative means of effecting healing. That was his conversion

point.) These days, his practice is strictly word-of-mouth: he has no

website, advertises nowhere, and belongs to none of the professional

groups where other alternative doctors gather for mutual support. " I

might as well just paint a target on my forehead, " he told me. " If

they can find me, and find out what I'm doing, they'll do their best

to put me in jail. "

A lot of California doctors in Guilford's shoes have just packed it

in and moved over the line to the Nevada side of Lake Tahoe, since

Nevada has much more relaxed laws governing alternative medicine (and

most of the doctors who might object are clustered way down south in

Las Vegas.) Thus, Reno and the Tahoe area have become an unexpectedly

rich area for doctors experimenting with a wide range of therapies --

some legitimately promising, others simply quackery. If you want it,

you can find it there.

More controversially, these same CMA members have managed to keep

naturopaths at bay for some years. Oregon and Washington both have

large and legal communities of naturopathic practitioners (the top

school of naturopathy, Bastyr, is in Seattle). But they're not

welcome in California unless they can find a regular MD to

" supervise " them.

Still, I'm stunned that the state of New Jersey will dictate what

labs its residents can use. That's just insane. Not even California

has gone that far (Guilford did a raft of Great Smokies tests while I

was seeing him).

Sara

[Guest guest]

Sorry if it was not clear, GENOVATIONS tests are not legal.

>

>

> In a message dated 1/6/2006 11:19:02 A.M. Pacific Standard Time,

> jenbooks13@h... writes:

>

> Great Smokies tells me that I cannot, if I am a legal resident of New

> York, get their tests no matter what (genovations). It doesn't matter

> where I Travel to or which doctors, they are not legally allowed to

> order these tests even if my doctor wants to and even if I pay for

> them totally myself. A woman at Great Smokies named Susie told me this

> and said unless I have a legal residence elsewhere there is no way I

> can get these tests.

>

> Is this true?

>

> If so I have to find who else does this kind of testing.

>

> I have never run across this before. Not covered by insurance would be

> one thing, but to legally prevent me from having these tests, I'm hard

> pressed to believe this could be, but she insists it is so and was not

> able in any way to give me any more specific information and would not

> give me the email of the head of Great Smokies, but I'll get it I

> suppose just to ask more about this.

>

>

> We have sent bowel motion samples to Great Smokies and have got

reports sent

> to our New York office.

> There is a problem sending samples to Igenex for lymes testing, Dr

Enlander

> prefers them to the local commercial labs. He knows the founders of

Igenex

> from his Stanford days, they are located nearby in Palo Alto. The

State of New

> York have preventing Igenex from doing certain tests in New York.

>

> Joy

> Research Assistant to Dr Enlander

> _www.enlander.com_ (http://www.enlander.com/)

>

>

>

>

[Guest guest]

Hi ,

> Correction...Meant to say Amy Yasko testing apparently does NOT

> provide the excellent test reports like Genovations does. I recall

> someone stating on this list that she instead provides interpretation

> of your SNP test results through phone consultation at $400 per hour.

I think she charges $300 per hour for a " genetic analysis and review " ,

and I'm not sure it's by phone. The scary thing is that you don't know

ahead of time how many hours it's going to take! ( " Usually not more

than four, " I was told. " ) On the other hand, if she helps a lot, if

she saves lives, it's worth it.

Anyway, we're still awaiting the genetic test results. MarkM, have you

gotten yours?

Sue ,

Upstate New York