Re: Has anyone ever seen this site by the Hillebrand's?

[Guest guest]

Hi Jennie,

No, it doesn't make sense. And Hillenbrand will not provide any proof that is

does work --

it's all theory. She also removes questions from her message board that asks

for proof or

disagrees with her " discovery " . Doesn't want anyone rockin' the boat.

Keep in mind she's not a doctor, yet she's claiming to have found a cure for

fibro, and

offers advice on prescription drugs to people desperate to get well. (Also

recommends

TUMS, a calcium supplement loaded with artificial colors and flavors. Not

good.)

If anything, her so-called protocol just suppresses symptoms for some people

with too

much stomach acid, it does nothing to actually treat or cure fibromyalgia.

Just my two cents,

Dan

>

> http://www.fibrofix.com/DISCOVERIES.html

>

> Does it make any sense to those of you who understand the chemistry

> and physiology of fibro better than I do?

>

> You can see the rest of their site by clicking on the HOME button at

> the bottom of the page.

>

[Guest guest]

Thanks for posting this. Search old posts here for " guai " and you will

find more info.

Here's another web site on guai:

http://f4.grp.fs.com/v1/8F64QzZLxVnOJ9JwXmextf3zGKmbG0KWI7NHQmGxP_g

XErhe3zJrqK7-rCSeB9Gd0Cb4eKmScRQ6SDboTHVysBIJzWeubA/RTFWeb%

20Fibroguai.htm

>

> http://www.fibrofix.com/DISCOVERIES.html

>

> Does it make any sense to those of you who understand the chemistry

> and physiology of fibro better than I do?

>

> You can see the rest of their site by clicking on the HOME button at

> the bottom of the page.

>

[Guest guest]

I can't get this to open:

http://f4.grp.fs.com/v1/8F64QzZLxVnOJ9JwXmextf3zGKmbG0KWI7NHQmGxP

_gXErhe3zJrqK7-rCSeB9Gd0Cb4eKmScRQ6SDboTHVysBIJzWeubA/RTFWeb%

20Fibroguai.htm

I get a 404 error page. Is there a shorter link?

> >

> > http://www.fibrofix.com/DISCOVERIES.html

> >

> > Does it make any sense to those of you who understand the

chemistry

> > and physiology of fibro better than I do?

> >

> > You can see the rest of their site by clicking on the HOME button

at

> > the bottom of the page.

> >

>

[Guest guest]

Sorry, I don't know how to post the whole URL so that it's an active

link...you'll have to copy and paste the url into your browser to

make it work, or you could google the article:

FIBROMYALGIA AND GUAIFENESIN: The right drug for the wrong reason, by

Napier

There appears to be lots of info out there on guai, I don't know how

good this info is.

Guai is just one part of the protocol on the fibrofix website, but it

seems to be key.

> > >

> > > http://www.fibrofix.com/DISCOVERIES.html

> > >

> > > Does it make any sense to those of you who understand the

> chemistry

> > > and physiology of fibro better than I do?

> > >

> > > You can see the rest of their site by clicking on the HOME

button

> at

> > > the bottom of the page.

> > >

> >

>

[Guest guest]

Thank you. I did try to copy and paste into the browser, and I

couldn't get that to go anywhere besides another 404 page. I'll try

this. Thanks.

> > > >

> > > > http://www.fibrofix.com/DISCOVERIES.html

> > > >

> > > > Does it make any sense to those of you who understand the

> > chemistry

> > > > and physiology of fibro better than I do?

> > > >

> > > > You can see the rest of their site by clicking on the HOME

> button

> > at

> > > > the bottom of the page.

> > > >

> > >

> >

>

[Guest guest]

This person's site has many inaccuracies.

First, there is no evidence that guaifenesin reduces acid in the

body. On the contrary, guaifenesin is metabolized by the body into

a form of lactic acid!

Secondly, the connection between fibromyalgia and hyaluronic is

sketchy at best. Several much more recent studies on this issue

(in several different countries), all show the same thing. That a

rise in serum hyaluronic acid only occurs in people with

fibromyalgia during the morning hours, similar to some forms of

arthritis, but that it's normal the rest of the day. And even the

elevated levels are still within the normal range, and not

necessarily significant. Since the elevated levels occur in the

morning, it is probably due to increased physical activity, which

increases lymph flow and hyaluronic clearance. The raised levels

are not necessarily due to increased production in the body. People

with conditions that definitely cause increased hyaluronic acid,

have raised levels throughout the day.

This is not to say that guaifenesin can't help fibromyalgia, but

that's it's almost certainly not causing a lowering of acid. See my

web page for full information:

http://web.mit.edu/london/www/guai.html

> >

> > http://www.fibrofix.com/DISCOVERIES.html

> >

> > Does it make any sense to those of you who understand the

chemistry

> > and physiology of fibro better than I do?

> >

> > You can see the rest of their site by clicking on the HOME

button at

> > the bottom of the page.

> >

>

[Guest guest]

Hi Mark,

Your guaifenesin website if stuffed full of information! This, for

example:

> Also, studies on the muscles of vitamin D deficient patients, show a

> reduction of ATP levels, similar to that of fibromyalgia patients...

> In some cases, the deficiency leads to myopathy, with quite severe

> muscle weakness, especially affecting the legs and ability to walk.

Thanks for all your good work.

Sue ,

Upstate New York

--------------

> This is not to say that guaifenesin can't help fibromyalgia, but

> that's it's almost certainly not causing a lowering of acid. See my

> web page for full information:

>

> http://web.mit.edu/london/www/guai.html