Re: Breckenrdige Passed Away

[Guest guest]

Dear ,

I wrote a private email of support to during the night of Friday to

Saturday, in answer to his last message on this board looking for help and a

new place to live. You should find it somewhere. It probably arrived too

late to cheer him up somewhat... It's very nice of you to let us know about

him and what happened. was lucky to have a friend like you. He was

brilliant and helpful, and I liked him much. We will miss him a lot, we miss

him already. All my sympathy is with you, his family and his friends.

Sylvie

(Paris, France)

[Guest guest]

This is a real shock, and he seemed to have such a handle on ME

research. What a loss.

Rosie

Subject: Re: Breckenrdige Passed Away

I cant believe it.

This saddens me most deeply.

I loved the wonderful report he did from Dr. Enlander.

He will surely be missed.

In our thoughts and prayers.

Hope your in a better place .

>

> I cannot begin to express to how difficult this is to convey,

> however, my friend of the past 15 years, Breckenridge (a very

> frequenty poster here, and well known in the CFS community) passed

> away overnight on December 16. From what I can gather, his last

> activity online was here, posting of a argument he had with his

> parents the day before. The cause of death is being determined - we

> are awaiting the results of the autopsy. I don't want to begin to

> speculate what the cause is, be it suicide, accidental drug

> overdose, or of other natural causes, but I will post what was

> determined as soon as I know.

>

> I just wanted to make everyone aware of this so you do not wonder

> why he no longer posts.

>

> I know he was very much into CFS research and experimenting with a

> variety of drugs in hopes to cure his illness - all I can say is

> please, PLEASE be careful.

>

> May your prayers and thoughts be with 's family.

>

> ,

> Lifelong friend of JLB

>

This list is intended for patients to share personal experiences with

each other, not to give medical advice. If you are interested in any

treatment discussed here, please consult your doctor.

[Guest guest]

I am deeply shocked and saddened to hear of 's death. It is a very

great loss to the group. I read his posts with interest, his ideas were

always thought provoking and refreshing.

He made a real contribution to our understanding of this disease and

it's treatment, which gave us all hope.

It is dreadful to think of him suffering so much.

Take care.

Jo.

On Sunday, December 18, 2005, at 08:21 PM, jasonlbreckenridge wrote:

> I cannot begin to express to how difficult this is to convey,

> however, my friend of the past 15 years, Breckenridge (a very

> frequenty poster here, and well known in the CFS community) passed

> away overnight on December 16. From what I can gather, his last

> activity online was here, posting of a argument he had with his

> parents the day before. The cause of death is being determined - we

> are awaiting the results of the autopsy. I don't want to begin to

> speculate what the cause is, be it suicide, accidental drug

> overdose, or of other natural causes, but I will post what was

> determined as soon as I know.

>

> I just wanted to make everyone aware of this so you do not wonder

> why he no longer posts.

>

> I know he was very much into CFS research and experimenting with a

> variety of drugs in hopes to cure his illness - all I can say is

> please, PLEASE be careful.

>

> May your prayers and thoughts be with 's family.

>

> ,

> Lifelong friend of JLB

>

>

>

>

>

>

> This list is intended for patients to share personal experiences with

> each other, not to give medical advice. If you are interested in any

> treatment discussed here, please consult your doctor.

>

[Guest guest]

Thank you , its very important to us to know what happened to , he was

part of our 'family' here. I'm sorry that you lost such a dear friend. Please

do feel free to keep posting tho, we appreciate it!

Marcia

Re: Breckenrdige Passed Away

My name is and I have been s friend for the past 15 years.

We grew up together and attended the same schools, college, and held

the same jobs. I knew was a member of many CFS discussion groups

online, which he devoted his life to after discovering the illness he

had, and I knew he would want me to inform those he was close to

online of his passing. We've had the same passwords to our accounts

for years (ever since the Internet became popular.. 94 or so?). I

posted under his name because 1) he was a member of forums I was not a

member of and 2) why would anyone believe someone from a different

screename. I didn't come online and post word of his death to create a

controversy, but simply to let those who he was close to, taught, and

learned from of his death.

Like I said, I will post for you all the results of the autopsy, as

well as links to our cities newspapers obit section for you all to

reference.

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

I am so sad and shocked that passed away. I used to love reading

his posts. He was so smart and had so many good insights into this

disease, and was so eager to share. I pray he is at peace.

Michele G

> >

> > I cannot begin to express to how difficult this is to convey,

> > however, my friend of the past 15 years, Breckenridge (a very

> > frequenty poster here, and well known in the CFS community) passed

> > away overnight on December 16. From what I can gather, his last

> > activity online was here, posting of a argument he had with his

> > parents the day before. The cause of death is being determined - we

> > are awaiting the results of the autopsy. I don't want to begin to

> > speculate what the cause is, be it suicide, accidental drug

> > overdose, or of other natural causes, but I will post what was

> > determined as soon as I know.

> >

> > I just wanted to make everyone aware of this so you do not wonder

> > why he no longer posts.

> >

> > I know he was very much into CFS research and experimenting with a

> > variety of drugs in hopes to cure his illness - all I can say is

> > please, PLEASE be careful.

> >

> > May your prayers and thoughts be with 's family.

> >

> > ,

> > Lifelong friend of JLB

> >

>

[Guest guest]

I cannot believe it. was so determined to get well. We'd

exchanged some really nice emails lately. He was so excited about

his new ideas for a study and sent me a copy of his hypothesis. In

his last message about Dr Enlander, he mentioned Dr Enlander was

interested on getting funding for a study based on his ideas. He had

such a good mind for the scientific details of research. I've saved

the email of his hypothesis in case no one else has a copy, and I've

copied his web page with the work he did on categorising the

proteins in the anti-ciguatoxin plants because the site will lapse

eventually.

I was without a computer for the last few days, and just got access

now and went straight to check my email and this list. I was hoping

to hear from him as I'd said he could set up a paypal account and

I'd try to get my blog readers and others I know to help him out. I

just can't believe this. It's too heartbreaking for words.

Peace be with you .

>

> I cannot begin to express to how difficult this is to convey,

> however, my friend of the past 15 years, Breckenridge (a

very

> frequenty poster here, and well known in the CFS community) passed

> away overnight on December 16. From what I can gather, his last

> activity online was here, posting of a argument he had with his

> parents the day before. The cause of death is being determined -

we

> are awaiting the results of the autopsy. I don't want to begin to

> speculate what the cause is, be it suicide, accidental drug

> overdose, or of other natural causes, but I will post what was

> determined as soon as I know.

>

> I just wanted to make everyone aware of this so you do not wonder

> why he no longer posts.

>

> I know he was very much into CFS research and experimenting with a

> variety of drugs in hopes to cure his illness - all I can say is

> please, PLEASE be careful.

>

> May your prayers and thoughts be with 's family.

>

> ,

> Lifelong friend of JLB

>

[Guest guest]

Why don't you upload 's stuff to the FILES section of this

group? What is the url of his website? And, also the url to your

blog?

thanks

mjh

> >

> > I cannot begin to express to how difficult this is to convey,

> > however, my friend of the past 15 years, Breckenridge (a

> very

> > frequenty poster here, and well known in the CFS community)

passed

> > away overnight on December 16. From what I can gather, his last

> > activity online was here, posting of a argument he had with his

> > parents the day before. The cause of death is being determined -

> we

> > are awaiting the results of the autopsy. I don't want to begin to

> > speculate what the cause is, be it suicide, accidental drug

> > overdose, or of other natural causes, but I will post what was

> > determined as soon as I know.

> >

> > I just wanted to make everyone aware of this so you do not wonder

> > why he no longer posts.

> >

> > I know he was very much into CFS research and experimenting with

a

> > variety of drugs in hopes to cure his illness - all I can say is

> > please, PLEASE be careful.

> >

> > May your prayers and thoughts be with 's family.

> >

> > ,

> > Lifelong friend of JLB

> >

>

[Guest guest]

OK, I might just wait a few days and then contact his friend just to

make sure it's ok to put something from private correspondence with

him up here. The webpage is here:

http://www.geocities.com/jasonlbreckenridge/

My blog is not-CFS related, just a music blog that probably won't

interest most here. But I get quite a few hits and the readers are

sympathetic to my CFS, so I thought anything anyone could spare might

help. If a memorial fund gets set up, I'll put something up about it.

> > >

> > > I cannot begin to express to how difficult this is to convey,

> > > however, my friend of the past 15 years, Breckenridge (a

> > very

> > > frequenty poster here, and well known in the CFS community)

> passed

> > > away overnight on December 16. From what I can gather, his last

> > > activity online was here, posting of a argument he had with his

> > > parents the day before. The cause of death is being determined -

> > we

> > > are awaiting the results of the autopsy. I don't want to begin to

> > > speculate what the cause is, be it suicide, accidental drug

> > > overdose, or of other natural causes, but I will post what was

> > > determined as soon as I know.

> > >

> > > I just wanted to make everyone aware of this so you do not wonder

> > > why he no longer posts.

> > >

> > > I know he was very much into CFS research and experimenting with

> a

> > > variety of drugs in hopes to cure his illness - all I can say is

> > > please, PLEASE be careful.

> > >

> > > May your prayers and thoughts be with 's family.

> > >

> > > ,

> > > Lifelong friend of JLB

> > >

> >

>

[Guest guest]

This list will seem so dull without , I really looked forward to his

posts. This is such sad news, what a terrible waste of a young life.

Rest in peace

n[uK]

>From: " " <christine.emmanuel@...>

>Reply-

>

>Subject: Re: Breckenrdige Passed Away

>Date: Tue, 20 Dec 2005 11:33:51 -0000

>

>OK, I might just wait a few days and then contact his friend just to

>make sure it's ok to put something from private correspondence with

>him up here. The webpage is here:

>http://www.geocities.com/jasonlbreckenridge/

>

>My blog is not-CFS related, just a music blog that probably won't

>interest most here. But I get quite a few hits and the readers are

>sympathetic to my CFS, so I thought anything anyone could spare might

>help. If a memorial fund gets set up, I'll put something up about it.

>

>

>

>

> > > >

> > > > I cannot begin to express to how difficult this is to convey,

> > > > however, my friend of the past 15 years, Breckenridge (a

> > > very

> > > > frequenty poster here, and well known in the CFS community)

> > passed

> > > > away overnight on December 16. From what I can gather, his last

> > > > activity online was here, posting of a argument he had with his

> > > > parents the day before. The cause of death is being determined -

> > > we

> > > > are awaiting the results of the autopsy. I don't want to begin to

> > > > speculate what the cause is, be it suicide, accidental drug

> > > > overdose, or of other natural causes, but I will post what was

> > > > determined as soon as I know.

> > > >

> > > > I just wanted to make everyone aware of this so you do not wonder

> > > > why he no longer posts.

> > > >

> > > > I know he was very much into CFS research and experimenting with

> > a

> > > > variety of drugs in hopes to cure his illness - all I can say is

> > > > please, PLEASE be careful.

> > > >

> > > > May your prayers and thoughts be with 's family.

> > > >

> > > > ,

> > > > Lifelong friend of JLB

> > > >

> > >

> >

>

>

>

>

[Guest guest]

I, too, will miss . His enthusiasm was contagious.

LaRue (U.S.)

Re: Breckenrdige Passed Away

> >Date: Tue, 20 Dec 2005 11:33:51 -0000

> >

> >OK, I might just wait a few days and then contact his friend just to

> >make sure it's ok to put something from private correspondence with

> >him up here. The webpage is here:

> >http://www.geocities.com/jasonlbreckenridge/

> >

> >My blog is not-CFS related, just a music blog that probably won't

> >interest most here. But I get quite a few hits and the readers are

> >sympathetic to my CFS, so I thought anything anyone could spare might

> >help. If a memorial fund gets set up, I'll put something up about it.

> >

> >

> >

> >

> > > > >

> > > > > I cannot begin to express to how difficult this is to convey,

> > > > > however, my friend of the past 15 years, Breckenridge (a

> > > > very

> > > > > frequenty poster here, and well known in the CFS community)

> > > passed

> > > > > away overnight on December 16. From what I can gather, his last

> > > > > activity online was here, posting of a argument he had with his

> > > > > parents the day before. The cause of death is being determined -

> > > > we

> > > > > are awaiting the results of the autopsy. I don't want to begin to

> > > > > speculate what the cause is, be it suicide, accidental drug

> > > > > overdose, or of other natural causes, but I will post what was

> > > > > determined as soon as I know.

> > > > >

> > > > > I just wanted to make everyone aware of this so you do not wonder

> > > > > why he no longer posts.

> > > > >

> > > > > I know he was very much into CFS research and experimenting with

> > > a

> > > > > variety of drugs in hopes to cure his illness - all I can say is

> > > > > please, PLEASE be careful.

> > > > >

> > > > > May your prayers and thoughts be with 's family.

> > > > >

> > > > > ,

> > > > > Lifelong friend of JLB

> > > > >

> > > >

> > >

> >

> >

> >

> >

>

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

I am still reeling from the shock. contributed so much to this

group. I will miss him and will never forget him. He was so incredibly bright.

Always on the track of cutting edge research. So full of enthusiasm and ideas.

He was almost the same age as my son, and I couldn't help thinking maternally

about him and how it could so easily have been my son cursed with CFS and on the

same quest to reclaim his life.

's desperate plea for help.... heartwrenching to read. It breaks my

heart that young people with CFS are dying and yet still the powers that be

still do little or nothing to fund research and to promote awareness of the

utter devastation and profound suffering caused by this illness.

That people are dying because of CFS is a tragedy, that our children are dying

because of CFS is too cruel.

I feel that I have lost a cherished friend and companion on the quest for a

cure for CFS. I feel deep deep sorrow at his death and the circumstances that

led to it. His light shone so brightly. He has touched all of us with his

enthusiasm and his dedicated research. I hope he had an inkling how much we

valued and admired him.

'Some people come into our lives and leave footprints on our hearts and we are

never the same.' anon

Jan (Australia)

n Tait <mariontait@...> wrote:

This list will seem so dull without , I really looked forward to his

posts. This is such sad news, what a terrible waste of a young life.

Rest in peace

n[uK]

>From: " " <christine.emmanuel@...>

>Reply-

>

>Subject: Re: Breckenrdige Passed Away

>Date: Tue, 20 Dec 2005 11:33:51 -0000

>

>OK, I might just wait a few days and then contact his friend just to

>make sure it's ok to put something from private correspondence with

>him up here. The webpage is here:

>http://www.geocities.com/jasonlbreckenridge/

>

>My blog is not-CFS related, just a music blog that probably won't

>interest most here. But I get quite a few hits and the readers are

>sympathetic to my CFS, so I thought anything anyone could spare might

>help. If a memorial fund gets set up, I'll put something up about it.

>

>

>

>

> > > >

> > > > I cannot begin to express to how difficult this is to convey,

> > > > however, my friend of the past 15 years, Breckenridge (a

> > > very

> > > > frequenty poster here, and well known in the CFS community)

> > passed

> > > > away overnight on December 16. From what I can gather, his last

> > > > activity online was here, posting of a argument he had with his

> > > > parents the day before. The cause of death is being determined -

> > > we

> > > > are awaiting the results of the autopsy. I don't want to begin to

> > > > speculate what the cause is, be it suicide, accidental drug

> > > > overdose, or of other natural causes, but I will post what was

> > > > determined as soon as I know.

> > > >

> > > > I just wanted to make everyone aware of this so you do not wonder

> > > > why he no longer posts.

> > > >

> > > > I know he was very much into CFS research and experimenting with

> > a

> > > > variety of drugs in hopes to cure his illness - all I can say is

> > > > please, PLEASE be careful.

> > > >

> > > > May your prayers and thoughts be with 's family.

> > > >

> > > > ,

> > > > Lifelong friend of JLB

> > > >

> > >

> >

>

>

>

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

> RE: Re: Breckenrdige Passed Away

>

>

> I am still reeling from the shock. contributed so

>much to this group. I will miss him and will never forget

>him. He was so incredibly bright. Always on the track of

>cutting edge research. So full of enthusiasm and ideas. He

>was almost the same age as my son, and I couldn't help

>thinking maternally about him and how it could so easily have

>been my son cursed with CFS and on the same quest to reclaim his life.

>

> 's desperate plea for help.... heartwrenching to read.

> It breaks

>my heart that young people with CFS are dying and yet still

>the powers that be still do little or nothing to fund research

Nor, unfortunately, do most patients or their families and friends. And

most CFS groups don't raise anything for research either.

Not a welcome message (and I'm sure it makes me very popular!) but somebody

needs to remind people of this I think.

Tom

>and to promote awareness of the utter devastation and profound

>suffering caused by this illness.

>

> That people are dying because of CFS is a tragedy, that our

>children are dying because of CFS is too cruel.

>

> I feel that I have lost a cherished friend and companion on

>the quest for a cure for CFS. I feel deep deep sorrow at his

>death and the circumstances

>that led to it. His light shone so brightly. He has touched

>all of us

>with his enthusiasm and his dedicated research. I hope he had

>an inkling how much we valued and admired him.

>

> 'Some people come into our lives and leave footprints on our

>hearts and we are never the same.' anon

>

> Jan (Australia)

[Guest guest]

I'm going away for the holidays and will not be on line after tonight for a

while so I want to wish everyone merry christmas, happy channukah, and happy

any and everything else. WIshing us all a better and healthier year this coming

year. Food for thought... there's a woman named Schweitzer.. i think ....

In 1992 we had a rally in Washington DC and lobbied. There were not many of

us there, . People were too sick to come. But it left us feeling empowered and

hopeful. She was a former professor at Yale, if memory serves me right. She

and I met on a message board on Prodigy that my son found when he was a little

boy at the time. She was in a wheel chair at the time, and it was my first

time out of my bed in many years..I was very , very sick. I saw on line that she

testified for Congress recently and told patient's stories. I guess she is

still actively trying to get the govt to help. If anyone knows how to contact

her to get 's story out to Congress or wherever she speaks next, it would

be a good idea. Burns was also active at the time and knew her as well.

Anyway, happy holidays everyone.

Carol in NY

[Guest guest]

Hi Tom,

There is a sunny side to the research situation that

you describe, and it is us. It used to be that it

would take a long time for new information about a

disease to filter down from the scientists and doctors

to sufferers like us. Without the web and this group,

I wouldn't know a fraction of what I have learned

about my CFS. We will learn what we need to know to

get well, and it will be years before we would have

learned it from doctors. We can pass that information

on to other groups and before you know it, it will be

common knowlege among the people who need to know it.

The research may be slow in coming, but we get it

first and use it first. (A little sunshine on a

cloudy day)

bb

...................................................

--- Tom Kindlon <tomkindlon@...> wrote:

> > RE: Re:

> Breckenrdige Passed Away

> >

> >

> > I am still reeling from the shock.

> contributed so

> >much to this group. I will miss him and will never

> forget

> >him. He was so incredibly bright. Always on the

> track of

> >cutting edge research. So full of enthusiasm and

> ideas. He

> >was almost the same age as my son, and I couldn't

> help

> >thinking maternally about him and how it could so

> easily have

> >been my son cursed with CFS and on the same quest

> to reclaim his life.

> >

> > 's desperate plea for help....

> heartwrenching to read.

> > It breaks

> >my heart that young people with CFS are dying and

> yet still

> >the powers that be still do little or nothing to

> fund research

>

> Nor, unfortunately, do most patients or their

> families and friends. And

> most CFS groups don't raise anything for research

> either.

> Not a welcome message (and I'm sure it makes me very

> popular!) but somebody

> needs to remind people of this I think.

>

> Tom

>

> >and to promote awareness of the utter devastation

> and profound

> >suffering caused by this illness.

> >

> > That people are dying because of CFS is a

> tragedy, that our

> >children are dying because of CFS is too cruel.

> >

> > I feel that I have lost a cherished friend and

> companion on

> >the quest for a cure for CFS. I feel deep deep

> sorrow at his

> >death and the circumstances

> >that led to it. His light shone so brightly. He

> has touched

> >all of us

> >with his enthusiasm and his dedicated research. I

> hope he had

> >an inkling how much we valued and admired him.

> >

> > 'Some people come into our lives and leave

> footprints on our

> >hearts and we are never the same.' anon

> >

> > Jan (Australia)

>

>

>

__________________________________

for Good - Make a difference this year.

http://brand./cybergivingweek2005/

[Guest guest]

In my personal opinion, it is far too soon to be alerting the Media, Congress,

etc about . We DO NOT know how he died, and we DO NOT know his full

circumstances ( medications, home, family, etc.)

We know him in the personal way that is allowed through internet, and this list,

and through our own experience with this Hellish disease.

I don't have a problem with the natural tendancy to speculate, and our serious

need to discuss similarities that could be dangerous, or save us.

But I believe we need to pause for a couple of weeks before going further than

that.

When we have gathered a full enough picture, through sources available and

appropriate, actions could be taken that he would be proud of,to honor him, and

help us.

I also would want to proceed carefully, not to do anything that would interfere

with Dr. Englander's work or plans for the studies that will include 's

name.

Something great can be done, but with more information and care.

Just my thoughts

Katrina

>

> I'm going away for the holidays and will not be on line after tonight for a

> while so I want to wish everyone merry christmas, happy channukah, and happy

> any and everything else. WIshing us all a better and healthier year this

coming

> year. Food for thought... there's a woman named Schweitzer.. i think ....

> In 1992 we had a rally in Washington DC and lobbied. There were not many of

> us there, . People were too sick to come. But it left us feeling empowered and

> hopeful. She was a former professor at Yale, if memory serves me right. She

> and I met on a message board on Prodigy that my son found when he was a little

> boy at the time. She was in a wheel chair at the time, and it was my first

> time out of my bed in many years..I was very , very sick. I saw on line that

she

> testified for Congress recently and told patient's stories. I guess she is

> still actively trying to get the govt to help. If anyone knows how to contact

> her to get 's story out to Congress or wherever she speaks next, it would

> be a good idea. Burns was also active at the time and knew her as well.

> Anyway, happy holidays everyone.

> Carol in NY

>

>

>