Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 So I don't get what your point is. > > > > You avoided molds. > > Or are you saying you only got well taking CSM? I thought it was abx > that have helped you, that and avoiding molds. > > > > CSM wasn't around when I started mold avoidance. > I did try Doxy in '99 and CSM in 2001 but the relief I get from > avoiding mycotoxins is so much better than anything else that I just > concentrated on extreme avoidance alone - while I await definitive > information on what the heck is going on with this damned illness. > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 Hi I really don't think having an allergy to mold and a sensitivity to mold toxins have anything to do with each other. The mold and the toxins are quite different. Doris ----- Original Message ----- My mold IgG from Marinkovich was so off the charts that I can't imagine I don't have the mold genes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 , did you get any of the other tests like MMP9, MSH, C3a, etc? (I didn't.) Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 Hi Who is Marinkovitch? Is that your doctor or does he have a book? Now if I have Shoemaker right, he would say that because your MSH is low (due to the mold toxins), that is why you are unable to fight all these other infections and fungi and they are taking over. Especially because MSH mostly protects the mucous membranes including sinuses, lungs and gut. I will be very interested to see how your numbers on things like MSH change as you continue to improve. The c3a stuff he talks about sounds like me, and the one thing he mentions to treat the worst cases of it is heparin. Since I have been on heparin for about 5 years, that may have had something to do with the fact that I was able to get better. I also have the staph but it has been getting better. I've been using grapefruit seed extra for a long time, plus irrigating with the grossan irrigator. Several months ago my doctor gave me an allicin (garlic) nasal spray that helped more, and now he has me trying tea tree oil which he says has been proven in real, scientific studies to kill antibiotic resistant staph in hospitals. Doris ----- Original Message ----- Yep! I do have the genes for Lyme susceptibility and a tendency to low MSH with neurotoxin damage. And, I'm not sure about " chronic " fungal infections, as they seem to have been there, and now are not. Marinkovitch talks about three kinds of reactions to mold. Allergies, colonization (infection), and toxicity reactions due to neurotoxic elements. The colonization, he thinks, is most common on the skin and mucous membranes, sinuses, lungs, and gut. It is more likely on areas that have previous injury. I had very specific sinus, gut and lung symptoms that he felt were colonizations, but that I also was showing toxicity reactions. That the people who were colonized were the ones who stay sick even when they get away from the mold exposure, because really they carry the exposure with them. That is when he treats with antifungals. The asthma like symptoms that he felt showed a lung infection went away on Sporanox, and have never returned. Also, the sinus, and mouth pain that went with a possible sinus infection have not come back, in spite of this more recent exposure. It is possible that differnt fungal organisms are more or less likley to colonize, and this exposure may have been with a different species than the last. Interestingly, Candida species are the one fungal species I do NOT have trouble with, shown by the much lower IgG as well as by symptoms, in spite of two years of Lyme treatment. This more recent exposure, I did not have the symptoms I had with the colonization. It felt more like the toxicity that lingered in the last exposure. That is why I became interested in Shoemaker's ideas. Marinkovitch doesn't really have a treatment for toxicity, at least the last I heard. And, of course, Shoemaker doesn't believe that colonization is very common. He was very surprised when I told him what happened for me in treatment. > > I can't decide whether the chronic fungal infection, which is > downstream from lyme infection, is simply opportunistic, or because > lyme downregulates toll like receptors and in some of us who have > vulnerable genes makes us very vulnerable to fungus, OR whether ticks > have fungal organisms in them too. Wouldn't put it past the suckers You might find it worth reading Shoemaker's newer book. He has a pretty detailed theory on the chemistry of how Lyme or mold can make us more vulnerable to damage from other neurotoxin producers. He has come a long way from Desperation Medicine. He is looking at multiple endocrine/cytokine pathways that can be disrupted, and has a variety of interventions now. He doesn't have everything figured out, by any means. And he still believes three weeks of antibiotics will treat Lyme. In spite of that, the theory at least hangs together, and I am pleased with the improvements I am seeing. I still have very low VEGF, non-existent MSH, dysregulated cortisol and ADH, and high C3a complement. I'm not sure how long it will take to kick the Staph. But I'm down to 40mg of oxycontin a day, from 200. I'm planning how to wean off Topamax, once I finish weaning down the oxy. I'm sleeping better, and very slowly gaining strength back. I'm pretty happy with that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2005 Report Share Posted October 15, 2005 I don't believe it is impossible to remove the toxins by yourself. In fact I'm sure of it, because otherwise everyone who ever got sick from working in a sick building and didn't see Shoemaker would still be sick. I just think that your body has to be in good shape to do it yourself, and if you have certain genetics it is harder for you to do it. Personally once I didn't have constant exposure, I got better on my own without CSM, and I have a mold gene. So assuming my illness had anything to do with mold as it appears to, I know your body can eliminate neurotoxins. I think Shoemaker would say that only the 2 really bad gene types are unable to eliminate toxins on their own. Your point about infections is interesting, because I always have had infections as my primary symptom producers. Do toxins allow the infections to grow, or do the infections cause the toxic intolerance? I would guess either is possible. Although people in sick buildings, for example, they don't have infections, they just have toxins. So I think you're talking mainly about PWC's. I find it interesting that you specifically don't want to read his book. I usually want to read more about things I agree with as well as don't agree with. Because how do you really know whether you agree with the theories or not if you don't read them? And despite every post I have ever read on the subject, nothing comes close to the amount of information in the book. Doris ----- Original Message ----- Well it's really good youre improving and persisting. I just avoid Shoemaker for now. For various reasons I somewhat distrust his approach and I don't really want to read his book. Now, maybe someday I'll regret that and wish I'd done it sooner . But for now, no. If I'm going to pay for anything it would be the Yasko/Gordon protocol. Everything they say makes such good sense to me. A lot of stuff Shoemaker says doesn't. For instance, I do not think the body is unable to eliminate neurotoxins, I think CSM is mostly symptomatic treatment. Once you eliminate the infections, the endotoxins go, too. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.