Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Hi, n, where did you buy your D-ribose? Is one brand better than another? I am already taking CoQ10 and Magnesium, but I want to add the L-carnitine and D-ribose. The L carnitine was easy to find. These supplents supposedly help mitochondria in all the muscles, as well as heart muscles. Thanks, Vickie On Tue, 30 Aug 2005 20:43:42 +0000 " n Tait " <mariontait@...> writes: > Hi > > Have been trying the treatment plan as outlined in Dr Myhill's > article and having read the book she recommends by Dr Sinatra, The Sinatra > Solution. 300mg Co enzyme Q10, 200mg L carnitine, 400-800mg Magnesium, 15 > grams D ribose. I was already taking 100 mg Q10 so that was already in my > symstem. After 1 week must say I am noticing the effects. I am really quite > ill so any improvement is something. Very sensitive to even vitamin pills > so was very wary as the d ribose is a sugar and though it might cause my > rotten gut to blow up but have noticed no problems and usually things affect me > within a couple of days. Energy levels are a little better and have not > crashed in the afternoons. It has not given me the horrible hype that some > things give me which just actually just make things worse. Early days but just > thought I would post in case anyone was thingking of trying the D ribose > > n > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Hi n, Thanks for your post about Dr. Sinatra's protocol. I, too, bought his book and plan to try his protocol. Like you, I am sensitive to vitamins, so it will take a while for me be able to take the five he recommends. Keep us posted. bb <<<<<<<<<<<<<<<<<<<<<<<<>>>>>>>>>>>>>>>>>>>>>>>>> --- n Tait <mariontait@...> wrote: > Hi > > Have been trying the treatment plan as outlined in > Dr Myhill's article and > having read the book she recommends by Dr Sinatra, > The Sinatra Solution. > 300mg Co enzyme Q10, 200mg L carnitine, 400-800mg > Magnesium, 15 grams D > ribose. I was already taking 100 mg Q10 so that was > already in my symstem. > After 1 week must say I am noticing the effects. I > am really quite ill so > any improvement is something. Very sensitive to even > vitamin pills so was > very wary as the d ribose is a sugar and though it > might cause my rotten gut > to blow up but have noticed no problems and usually > things affect me within > a couple of days. Energy levels are a little better > and have not crashed in > the afternoons. It has not given me the horrible > hype that some things give > me which just actually just make things worse. Early > days but just thought I > would post in case anyone was thingking of trying > the D ribose > > n > > > ____________________________________________________ Start your day with - make it your home page http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Hi n, Good news. I'm an 'about to be' patient of DR M, and likewise have real problems with supplememnts. Please do keep us up-dated. Are you also using the L carnitine and magnesium or have you simply introduced the D ribose sp far? Also are you in the uk and a patient of DR M, as there is a very new very small group for patients using her protocol? Rosie Hi Have been trying the treatment plan as outlined in Dr Myhill's article and having read the book she recommends by Dr Sinatra, The Sinatra Solution. 300mg Co enzyme Q10, 200mg L carnitine, 400-800mg Magnesium, 15 grams D ribose. I was already taking 100 mg Q10 so that was already in my symstem. After 1 week must say I am noticing the effects. I am really quite ill so any improvement is something. Very sensitive to even vitamin pills so was very wary as the d ribose is a sugar and though it might cause my rotten gut to blow up but have noticed no problems and usually things affect me within a couple of days. Energy levels are a little better and have not crashed in the afternoons. It has not given me the horrible hype that some things give me which just actually just make things worse. Early days but just thought I would post in case anyone was thingking of trying the D ribose n This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Hi Rosie Alas , I am not a patient of Dr M as she is not taking new patients but decided to go it alone. I am taking the whole treatment plan as she has outlined and as in Dr Sinatra's book. Very poorly so will have to see if it helps, so far a bit encouraged. Am going to see Perrin the osteopath next week as he mentions all the stuff I have with the bad upper back and the pain under the ribs ect. The cost is astronomical!! I could not beleive it £250 pounds, but I heard myself saying yes to the appointment. I hope I get champagene and caviar, don't know what I am especting but that is the sort of thing you do when desperate. n >From: " Rosie " <rosiecox@...> >Reply- >< > >Subject: RE: D Ribose >Date: Wed, 31 Aug 2005 09:45:33 +0100 > >Hi n, > >Good news. I'm an 'about to be' patient of DR M, and likewise have real >problems with supplememnts. Please do keep us up-dated. Are you also >using the L carnitine and magnesium or have you simply introduced the D >ribose sp far? > >Also are you in the uk and a patient of DR M, as there is a very new >very small group for patients using her protocol? > >Rosie > > > >Hi > >Have been trying the treatment plan as outlined in Dr Myhill's article >and >having read the book she recommends by Dr Sinatra, The Sinatra Solution. > >300mg Co enzyme Q10, 200mg L carnitine, 400-800mg Magnesium, 15 grams D >ribose. I was already taking 100 mg Q10 so that was already in my >symstem. >After 1 week must say I am noticing the effects. I am really quite ill >so >any improvement is something. Very sensitive to even vitamin pills so >was >very wary as the d ribose is a sugar and though it might cause my rotten >gut >to blow up but have noticed no problems and usually things affect me >within >a couple of days. Energy levels are a little better and have not crashed >in >the afternoons. It has not given me the horrible hype that some things >give >me which just actually just make things worse. Early days but just >thought I >would post in case anyone was thingking of trying the D ribose > >n > > > > > >This list is intended for patients to share personal experiences with >each other, not to give medical advice. If you are interested in any >treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Hi n, I tried the perrin protocol for about 18 months with an osteopath who had been trained by him but was local to me. I'm afraid to say it did absolutely nothing at all. I don't want to negate any positive feelings you may have about the treatment, as it might work for you, though another pwme was seeing the same osteopath at the same time and she felt it actually made her feel worse. To me it came into the category of' great on paper, useless in theory' Funnily I've heard very little about it since I tried it in 1999/2000, and wondered if it had rather melted away because of lack of success. It may be worth your while, before parting with a lot of money to ask them if they can put you in touch with people who have benefited - or perhaps contact one of the ME charities and see id they have any greater positive feedback. Hope all continues to go well with the D ribose, Rosie Hi Rosie Alas , I am not a patient of Dr M as she is not taking new patients but decided to go it alone. I am taking the whole treatment plan as she has outlined and as in Dr Sinatra's book. Very poorly so will have to see if it helps, so far a bit encouraged. Am going to see Perrin the osteopath next week as he mentions all the stuff I have with the bad upper back and the pain under the ribs ect. The cost is astronomical!! I could not beleive it £250 pounds, but I heard myself saying yes to the appointment. I hope I get champagene and caviar, don't know what I am especting but that is the sort of thing you do when desperate. n >From: " Rosie " <rosiecox@...> >Reply- >< > >Subject: RE: D Ribose >Date: Wed, 31 Aug 2005 09:45:33 +0100 > >Hi n, > >Good news. I'm an 'about to be' patient of DR M, and likewise have real >problems with supplememnts. Please do keep us up-dated. Are you also >using the L carnitine and magnesium or have you simply introduced the D >ribose sp far? > >Also are you in the uk and a patient of DR M, as there is a very new >very small group for patients using her protocol? > >Rosie > > > >Hi > >Have been trying the treatment plan as outlined in Dr Myhill's article >and >having read the book she recommends by Dr Sinatra, The Sinatra Solution. > >300mg Co enzyme Q10, 200mg L carnitine, 400-800mg Magnesium, 15 grams D >ribose. I was already taking 100 mg Q10 so that was already in my >symstem. >After 1 week must say I am noticing the effects. I am really quite ill >so >any improvement is something. Very sensitive to even vitamin pills so >was >very wary as the d ribose is a sugar and though it might cause my rotten >gut >to blow up but have noticed no problems and usually things affect me >within >a couple of days. Energy levels are a little better and have not crashed >in >the afternoons. It has not given me the horrible hype that some things >give >me which just actually just make things worse. Early days but just >thought I >would post in case anyone was thingking of trying the D ribose > >n > > > > > >This list is intended for patients to share personal experiences with >each other, not to give medical advice. If you are interested in any >treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2005 Report Share Posted September 1, 2005 Hi i got the ribose from aviform, don't know if this is the cheapest as have not had a really good search. It seems much cheaper in the USA but always seem to end up paying so much in tax and the time in takes have given up. marion >From: Vickie <vickie_taylor@...> >Reply- > >Subject: D Ribose >Date: Tue, 30 Aug 2005 17:02:10 -0500 > >Hi, n, where did you buy your D-ribose? Is one brand better than >another? I am already taking CoQ10 and Magnesium, but I want to add the >L-carnitine and D-ribose. >The L carnitine was easy to find. > >These supplents supposedly help mitochondria in all the muscles, as well >as heart muscles. Thanks, Vickie > >On Tue, 30 Aug 2005 20:43:42 +0000 " n Tait " <mariontait@...> >writes: > > Hi > > > > Have been trying the treatment plan as outlined in Dr Myhill's > > article and having read the book she recommends by Dr Sinatra, The >Sinatra > > Solution. 300mg Co enzyme Q10, 200mg L carnitine, 400-800mg >Magnesium, 15 > > grams D ribose. I was already taking 100 mg Q10 so that was already in >my > > symstem. After 1 week must say I am noticing the effects. I am really >quite > > ill so any improvement is something. Very sensitive to even vitamin >pills > > so was very wary as the d ribose is a sugar and though it might cause >my > > rotten gut to blow up but have noticed no problems and usually things >affect me > > within a couple of days. Energy levels are a little better and have not > > > crashed in the afternoons. It has not given me the horrible hype that >some > > things give me which just actually just make things worse. Early days >but just > > thought I would post in case anyone was thingking of trying the D >ribose > > > > n > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 I asked who was using D Ribose and what were the effects It made me sleepy Steve On Mar 8, 2010, at 8:34 AM, aidabettybp@... wrote: > I hope we r talking of the same pills and no they didn't make me > sleepy . > Max-GxL and they r natural have no side effects what so ever. > Sent via BlackBerry from T-Mobile > > Re: Enterovirus sackie B as the >> cause of CFS >>> >>> Â >>> >>> >>>> Who else uses D Ribose here and what are your results? >>>> >>>> Steve >>> >>> Minor higher energy at first, then diminishing returns >>> after about a week. I reserve D-ribose for occasional use. >>> In actual practice, I may use it once a month or every 2 mo. >>> >>> I have probable lifelong mito dysfunction based on severe >>> symptoms in the first days and weeks of life, was always at >>> the very bottom of the class athletically, plus >>> " high lactate + high pyruvate " on OA test. High oxidative >>> stress levels from 2009 could be from lifelong atopic >>> tendencies, Hashi autoimmune, plus mito. >>> >>> Looking forward to the Myhill mito testing set becoming >>> available in the US. Elements of this set can be gotten thru >>> Doctor's Data (DNA oxidative stress; erythrocytes glutathione >>> (I think Rich may be skeptical of their accuracy on this?); >>> and Hepatic Detox profile for phase 1 and 2 liver detox). >>> But the measuring of mito status/function is not here in the >>> US yet, that I'm aware of - correct me if you have other info?! >>> >>> Do I recall right that Cheney (DVD lecture 2009) brushes >>> off D-ribose, no longer sees it as useful in CFS? >>> >>> Carol W. >>> >>> >>> >>> >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 Does anyone know if D ribose will feed gut pathogens (ie. yeast or parasites)? From: stangah@... Date: Mon, 8 Mar 2010 09:41:59 -0800 Subject: Re: D Ribose I asked who was using D Ribose and what were the effects It made me sleepy Steve On Mar 8, 2010, at 8:34 AM, aidabettybp@... wrote: > I hope we r talking of the same pills and no they didn't make me > sleepy . > Max-GxL and they r natural have no side effects what so ever. > Sent via BlackBerry from T-Mobile > > Re: Enterovirus sackie B as the >> cause of CFS >>> >>> Â >>> >>> >>>> Who else uses D Ribose here and what are your results? >>>> >>>> Steve >>> >>> Minor higher energy at first, then diminishing returns >>> after about a week. I reserve D-ribose for occasional use. >>> In actual practice, I may use it once a month or every 2 mo. >>> >>> I have probable lifelong mito dysfunction based on severe >>> symptoms in the first days and weeks of life, was always at >>> the very bottom of the class athletically, plus >>> " high lactate + high pyruvate " on OA test. High oxidative >>> stress levels from 2009 could be from lifelong atopic >>> tendencies, Hashi autoimmune, plus mito. >>> >>> Looking forward to the Myhill mito testing set becoming >>> available in the US. Elements of this set can be gotten thru >>> Doctor's Data (DNA oxidative stress; erythrocytes glutathione >>> (I think Rich may be skeptical of their accuracy on this?); >>> and Hepatic Detox profile for phase 1 and 2 liver detox). >>> But the measuring of mito status/function is not here in the >>> US yet, that I'm aware of - correct me if you have other info?! >>> >>> Do I recall right that Cheney (DVD lecture 2009) brushes >>> off D-ribose, no longer sees it as useful in CFS? >>> >>> Carol W. >>> >>> >>> >>> >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 It made me jittery. I tried reducing the dosage several times, but it still made me jittery. After a year I quit the product and felt better. Kathi > >>> > >>> I use it and have not been impressed > >>> Debbie G > >>> > >>> > >>> > >>> > >>> ________________________________ > >>> From: cbwillis9 <cbwillis9@> > >>> > >>> Sent: Sun, March 7, 2010 12:51:31 PM > >>> Subject: Re: Enterovirus sackie B as the > >> cause of CFS > >>> > >>> Â > >>> > >>> > >>>> Who else uses D Ribose here and what are your results? > >>>> > >>>> Steve > >>> > >>> Minor higher energy at first, then diminishing returns > >>> after about a week. I reserve D-ribose for occasional use. > >>> In actual practice, I may use it once a month or every 2 mo. > >>> > >>> I have probable lifelong mito dysfunction based on severe > >>> symptoms in the first days and weeks of life, was always at > >>> the very bottom of the class athletically, plus > >>> " high lactate + high pyruvate " on OA test. High oxidative > >>> stress levels from 2009 could be from lifelong atopic > >>> tendencies, Hashi autoimmune, plus mito. > >>> > >>> Looking forward to the Myhill mito testing set becoming > >>> available in the US. Elements of this set can be gotten thru > >>> Doctor's Data (DNA oxidative stress; erythrocytes glutathione > >>> (I think Rich may be skeptical of their accuracy on this?); > >>> and Hepatic Detox profile for phase 1 and 2 liver detox). > >>> But the measuring of mito status/function is not here in the > >>> US yet, that I'm aware of - correct me if you have other info?! > >>> > >>> Do I recall right that Cheney (DVD lecture 2009) brushes > >>> off D-ribose, no longer sees it as useful in CFS? > >>> > >>> Carol W. > >>> > >>> > >>> > >>> > >>> > >>> > >>> > >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 from my experience, if i take ribose at the wrong time, it makes me jittery as well. a blood sugar thing i think. anyway, i take it about 20 minutes before eating and that does the trick. i take it before an activity, and also after to try to replenish. it seems to help me. jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 What activity do you need to replenish from Jim Steve On Mar 8, 2010, at 6:27 PM, Jim wrote: > from my experience, if i take ribose at the wrong time, it makes me > jittery as well. a blood sugar thing i think. anyway, i take it > about 20 minutes before eating and that does the trick. i take it > before an activity, and also after to try to replenish. it seems to > help me. > > jim > > " Some men measure their lives by days and years other by love affairs passions and tears but the truest measure under the Sun is what in life for others have done? " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 sadly it doesn't take much at all to be considered doing an activity for me anymore. something as simple as light cleaning for a couple minutes, or if i'm able to be driven to an appointment. i seem to pay a little less and recoup a lottle better with ribose, tho i can't be 100% sure. jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 Although it is supposed to be a simple sugar and not feed yeast I have found this to be quite the opposite. A small amount of Ribose would cause my stomach to bloat up in the same way that a glass of orange juice would. I also experienced very upset blood sugar levels and hypoglycaemia, probably partly from the alcohol produced from the yeast acting on the ribose. I have since read that there are some people who metabolize ribose back to simple sugars. In either case I think this would result in it not having it's desired effect. The only way to see is to try a small bit and see how you react. > > > Does anyone know if D ribose will feed gut pathogens (ie. yeast or parasites)? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 Ribose works well for me. Especially in the beginning, it got me out of a rut of constant crashing. On 9 Mar 2010, at 02:27, Jim wrote: from my experience, if i take ribose at the wrong time, it makes me jittery as well. a blood sugar thing i think. anyway, i take it about 20 minutes before eating and that does the trick. i take it before an activity, and also after to try to replenish. it seems to help me. jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 Does it make any of you sleepy? Thanks Steve On Mar 9, 2010, at 8:45 AM, xlynx wrote: > Ribose works well for me. Especially in the beginning, it got me out > of a rut of constant crashing. > > On 9 Mar 2010, at 02:27, Jim wrote: > > from my experience, if i take ribose at the wrong time, it makes me > jittery as well. a blood sugar thing i think. anyway, i take it > about 20 minutes before eating and that does the trick. i take it > before an activity, and also after to try to replenish. it seems to > help me. > > jim > > Quote Link to comment Share on other sites More sharing options...
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