Re: Cheney echocardiogram

July 24, 2005

Helen

I just got a little taken aback by the charge you incured. If you

took away the insurance company and people paid what they could

afford these rediculously high prices can't continue. It's starting

to get to the point the insurance industry and the doctor aren't on

the same page and people may have to go back to the old days in

which it was a pay as you go similar to what happened to you.

Strep and staph are exactly identical looking bugs. coccus describes

them both -streptococcus = round bacteria so does staphylococcus=

round bacteria.

The fact that your allergic to everything tells me your bacteria

gets triggered by it's surroundings, like moldy places stimulate

bacteria making them think they are under threat.

Anyways good luck with your mission I just get a little tweaked by

doctors that never use antibiotics, antifungals , and even viral

drugs are off the menu. you'd be the first I heard that got em from

cheney.

It's great that we went from nothing showed as really wrong, to a

point where we need transplantation due to the mess the heart is in.

Does he use potassium for the heart problem? I notice this is

frequently prescribed by most docs to patients with heart conditions.

tony

> > > > > > > > > I am back from the Cheney clinic where I got a

Vivid

> 7

> > > > > > > > echocardiogram

> > > > > > > > > yesterday.

> > > > > > > > >

> > > > > > > > > The test confirmed the findings of the Impedance

> > > > Cardiogaph

> > > > > > that

> > > > > > > my

> > > > > > > > > heart function is abnormal when I am in a vertical

> > > > position.

> > > > > I

> > > > > > > > didn't

> > > > > > > > > come back with any written data from the test.

They

> > said

> > > > the

> > > > > > > motion

> > > > > > > > > of the left wall of my heart was abnormal at 70%

> tilt.

> > > > > Nothing

> > > > > > > > > discernible seemed to be wrong when I was supine,

> > aside

> > > > from

> > > > > a

> > > > > > > > > slightly prolonged IVRT (?) for my age. They were

> > talking

> > > > > > about

> > > > > > > an

> > > > > > > > > elasticity defect and I heard one of the

technicians

> > say

> > > > > > > something

> > > > > > > > > about dysynchronous motion in an entire area of

the

> > > heart.

> > > > > > > > >

> > > > > > > > > Dr. Cheney was there talking to them re technical

> > matters

> > > > and

> > > > > > in

> > > > > > > a

> > > > > > > > > very kind way explaining a few things to me as the

> > test

> > > > > > > progressed.

> > > > > > > > > The technicians seemed surprised by what they were

> > seeing

> > > > in

> > > > > > my

> > > > > > > > test

> > > > > > > > > but I don't know much specifically.

> > > > > > > > >

> > > > > > > > > The pig heart cell drug is now awaiting FDA

approval

> > > > (imagine

> > > > > > my

> > > > > > > > joy

> > > > > > > > > upon hearing that my fate rests with government

> > > > bureaucrats)

> > > > > > and

> > > > > > > > > might be available around October 1st.

> > > > > > > > >

> > > > > > > > > Helen

> > > > > > > > >

> > > > > > > > > This list is intended for patients to share

personal

> > > > > > experiences

> > > > > > > > with each other, not to give medical advice. If you

> are

> > > > > > interested

> > > > > > > > in any treatment discussed here, please consult your

> > > doctor.

> > > > > > > > >

July 24, 2005

Hi Tony,

Just following your posts on bugs and antibiotics.

When I take antib's I usually get pain around my

heart. Is this indicative of anything do you think?

I live in the UK and reply on the NHS for medical

treatment. Sadly, too poor to see private doctors

after over 20 years of M.E.

With warmest regards,

Annette

___________________________________________________________

Messenger - NEW crystal clear PC to PC calling worldwide with voicemail

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July 24, 2005

Tony:

You are right it is a lot of money and I can't afford it again.

The medical situation in this country is a mess and just keeps

getting worse. We will be launching two insurance appeals here this

summer, since the doctor the local hospital told us to go to for the

broken arm couldn't fix it, and referred us to a surgeon in Columbus

who did fix it. But he's not in the all mighty network and so the

insurance has declined to pay. We've got a better case on that one

than on the Cheney visit, because no doctor will sit and talk to you

for hours like he does.

Okay, it's streptococcus and staphlococcus and they look alike. I

will take your word for that as I was never able to get the

microscope to focus in college biology, perhaps due to my extreme

myopia, which certainly limited anything I was going to do in the

lab. Uh, didn't major in science.

But are they closely related? If one has strep throat, does that

imply a co-existing staph infection? That's one of the things you've

mentioned I'm confused about. I thought staph killed people outright

in the pre-antibiotic days.

My grandfather was allergic to a lot of antibiotics, all but one, so

I suppose that's where I got it. But he lived to be 99 and I remember

when he was 90 and I was 30, he could outwalk me because I had CFIDS

and he didn't. No one will give me antibiotics, if that is the road

out of here, I'm screwed.

I will be taking iso-something or other as an antiviral, plus

hawthorne, plus the pig heart cell material when it's available. He

hasn't specifically mentioned potassium other than to take minerals

in water like the Blasi salts which he was pleased to hear about and

preferred it to his homebrew or Gookinaid. My potassium just tested

low, so I need to address that. I wonder if it is low because I have

a heart problem or because I over-urinate for whatever reason.

He stressed that what would help me the most right now was magnesium

and I've been doing magnesium injections, working up to one per

night. It's 1/4 ml lidocaine, 1/2 ml magnesium sulfate, and 1 1/2 ml

taurine. This is supposed to offset some of the damage the heart

incurs, I think the free radical cascade.

But he's never mentioned transplants. Whatever happened to him is

different than what he is seeing in his patients, he draws that

distinction clearly.

Thanks for your good wishes. I will need them.

Helen

> > > > > > > > > > I am back from the Cheney clinic where I got a

> Vivid

> > 7

> > > > > > > > > echocardiogram

> > > > > > > > > > yesterday.

> > > > > > > > > >

> > > > > > > > > > The test confirmed the findings of the Impedance

> > > > > Cardiogaph

> > > > > > > that

> > > > > > > > my

> > > > > > > > > > heart function is abnormal when I am in a

vertical

> > > > > position.

> > > > > > I

> > > > > > > > > didn't

> > > > > > > > > > come back with any written data from the test.

> They

> > > said

> > > > > the

> > > > > > > > motion

> > > > > > > > > > of the left wall of my heart was abnormal at 70%

> > tilt.

> > > > > > Nothing

> > > > > > > > > > discernible seemed to be wrong when I was supine,

> > > aside

> > > > > from

> > > > > > a

> > > > > > > > > > slightly prolonged IVRT (?) for my age. They were

> > > talking

> > > > > > > about

> > > > > > > > an

> > > > > > > > > > elasticity defect and I heard one of the

> technicians

> > > say

> > > > > > > > something

> > > > > > > > > > about dysynchronous motion in an entire area of

> the

> > > > heart.

> > > > > > > > > >

> > > > > > > > > > Dr. Cheney was there talking to them re technical

> > > matters

> > > > > and

> > > > > > > in

> > > > > > > > a

> > > > > > > > > > very kind way explaining a few things to me as

the

> > > test

> > > > > > > > progressed.

> > > > > > > > > > The technicians seemed surprised by what they

were

> > > seeing

> > > > > in

> > > > > > > my

> > > > > > > > > test

> > > > > > > > > > but I don't know much specifically.

> > > > > > > > > >

> > > > > > > > > > The pig heart cell drug is now awaiting FDA

> approval

> > > > > (imagine

> > > > > > > my

> > > > > > > > > joy

> > > > > > > > > > upon hearing that my fate rests with government

> > > > > bureaucrats)

> > > > > > > and

> > > > > > > > > > might be available around October 1st.

> > > > > > > > > >

> > > > > > > > > > Helen

> > > > > > > > > >

> > > > > > > > > > This list is intended for patients to share

> personal

> > > > > > > experiences

> > > > > > > > > with each other, not to give medical advice. If

you

> > are

> > > > > > > interested

> > > > > > > > > in any treatment discussed here, please consult

your

> > > > doctor.

> > > > > > > > > >

July 24, 2005

Helen,

Could you e-mail me, please?

I am trying to get figure out how much

I will owe Dr. Cheney this year. I believe

my e-mail is visible. The instant messenger

window wouldn't seem to pop up for me to send

you a backchannel message (or maybe I don't

know how to use this new feature?)

Best,

Zippy

July 24, 2005

I believe potassium is prescribed when diuretics, which deplete potassium, are

given. Diuretics are usually used for heart failure, where there is a build-up

of fluids.

Adrienne