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Helen,

Do you have a sense if someone is sitting up that such heart abnormalities

would still show? I am unable to stand more than 2-3 seconds, so I could only

sit up.

Thanks,

Jim

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Hi Jim:

Yes, they have seen abnormalities in people only sitting with their

feet down on the Impedance machine. Tried to check that with me but the

electrodes quit working. They didn't try to check me sitting with the

echo machine.

I was told to sit with my feet up and not to stand still. Walking a

little bit is okay, probably because movement keeps the blood from

pooling as rapidly as it does when one is standing still.

If you sit with your feet on the floor, blood can pool there and your

heart has to work against gravity. Dr. Cheney said something about the

heart not being able to cope with gravitational stress.

Helen

> Helen,

>

> Do you have a sense if someone is sitting up that such heart

abnormalities

> would still show? I am unable to stand more than 2-3 seconds, so I

could only

> sit up.

>

> Thanks,

>

> Jim

>

>

>

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Since the heart problems in CFS appear to be due to reduced filling (diastole)

of the left ventricule, decreased elasticity is a big part of that. The

ventricle actually has to distend in order to accept enough blood. As I

remember the increased load put on heart cells (often because of high blood

pressure but also occuring because of cell death) causes them to enlarge and

move around. When this occurs increased Ang II (and superoxide) production

results in increased collagen and fiber deposition in the gaps made when these

heart cells shifted. This causes the heart to enlarge (hypertrophy) and causes

it to stiffen and lose its elasticity.

The heart can make up for this reduced elasticity by forcing more blood into the

left ventricule when it distends. OVer time however the increased pressure put

on the left ventricule causes more enlargement as the heart cells try to adapt

to it. Its like a vicious circle - every attempt to adapt to the cardiac problem

exacerbates it in the long term. The increased pressure shuts down some of the

circulation in the blood vessels leading to the lungs - this is one of the

things that causes the hallmark symptom of shortened breath during exercise.

When you try to exercise your heart has to pump more blood - this increases the

pressure put on the left ventricule to distend - and the increased pressure cuts

off circulation to the lungs - and you cant catch your breath.

THe reason heart failure would be so anomalous in CFS is that it is for the most

part non-progressive. If CFS patients have a heart failure that is indeed

non-progressive can you imagine what an astounding thing this would be to the

cardiac world. That is, after all, exactly what they are looking for! Heart

failure patients take all sorts of drugs to ramp down the sympathetic nervous

system and others in order to stop the progression of heart failure. If Cheney

can prove this one think cardiac researchers would be ALL OVER CFS patients in

order to find out how they do this. THere is an ENORMOUS amount of money spent

on heart failure every year. CFS patients could be a sort of rosetta stone.

ONe way CFS patients might avoid heart failure is by their down regulation of

Ang II. CFS patients tend to have low blood volume but normal Ang II levels.

(Ang II raises blood volume). HEart failure patients have high Ang II levels

that not only increase their blood volume but do alot of other really negative

things. This could, however, mean that low blood volume in CFS is preventative!

It would be interesting to ask CHeney about this.

helen9jora <helenjora@...> wrote:

I am back from the Cheney clinic where I got a Vivid 7 echocardiogram

yesterday.

The test confirmed the findings of the Impedance Cardiogaph that my

heart function is abnormal when I am in a vertical position. I didn't

come back with any written data from the test. They said the motion

of the left wall of my heart was abnormal at 70% tilt. Nothing

discernible seemed to be wrong when I was supine, aside from a

slightly prolonged IVRT (?) for my age. They were talking about an

elasticity defect and I heard one of the technicians say something

about dysynchronous motion in an entire area of the heart.

Dr. Cheney was there talking to them re technical matters and in a

very kind way explaining a few things to me as the test progressed.

The technicians seemed surprised by what they were seeing in my test

but I don't know much specifically.

The pig heart cell drug is now awaiting FDA approval (imagine my joy

upon hearing that my fate rests with government bureaucrats) and

might be available around October 1st.

Helen

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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ONe way CFS patients might avoid heart failure is by their down

regulation of Ang II. CFS patients tend to have low blood volume but

normal Ang II levels.(Ang II raises blood volume). HEart failure

patients have high Ang II levels that not only increase their blood

volume but do alot of other really negative things. This could,

however, mean that low blood volume in CFS is preventative!

It would be interesting to ask CHeney about this.

Cort,

This might explain why some cfs patients have such a bad time

initially taking Benicar. It might mean that some patients need to

take the antibiotics for some time before taking Benicar, if, indeed,

they need to take Benicar at all. It is amazing how the body seems

able to do this balancing act that at least keeps one alive.

Ah, but isn't that the " good news " and the " bad news " in the old cfs

joke?

a

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Jim,

My supine( laying flat) cardiac output was 3.37 on the Vivid 7. So it

can show your problem laying down. I would guess that you would have a

low cardiac out put. Are you a patient of Dr Cheney's? If so, would you

back channel me?

L

On Jul 22, 2005, at 12:06 PM, jschm111@... wrote:

> Helen,

>

> Do you have a sense if someone is sitting up that such heart

> abnormalities

> would still show?  I am unable to stand more than 2-3 seconds, so I

> could only

> sit up.

>

> Thanks,

>

> Jim

>

>

>

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Helen,

Here's a discussion of the IVRT, taken from a Google search:

Isovolumic relaxation time (IVRT, IRT) - this (the time from aortic

valve closure to mitral valve opening) is measured by simultaneous

Doppler and M-mode echo, or better still by simultaneous

phonocardiogram and transmitral Doppler (Roelandi). If it's

prolonged, it indicates poor myocardial relaxation. A normal IRT is

about 70±12 ms, perhaps about 10ms longer in those over forty. With

abnormal relaxation, the value is usually in excess of 110ms, with

restrictive filling, under 60.

Rich

> I am back from the Cheney clinic where I got a Vivid 7

echocardiogram

> yesterday.

>

> The test confirmed the findings of the Impedance Cardiogaph that

my

> heart function is abnormal when I am in a vertical position. I

didn't

> come back with any written data from the test. They said the

motion

> of the left wall of my heart was abnormal at 70% tilt. Nothing

> discernible seemed to be wrong when I was supine, aside from a

> slightly prolonged IVRT (?) for my age. They were talking about an

> elasticity defect and I heard one of the technicians say something

> about dysynchronous motion in an entire area of the heart.

>

> Dr. Cheney was there talking to them re technical matters and in a

> very kind way explaining a few things to me as the test

progressed.

> The technicians seemed surprised by what they were seeing in my

test

> but I don't know much specifically.

>

> The pig heart cell drug is now awaiting FDA approval (imagine my

joy

> upon hearing that my fate rests with government bureaucrats) and

> might be available around October 1st.

>

> Helen

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No, that wasn't on the test results I got. He wants me to use the

Ultimate Meal and I think that has CoQ10 in it.

Helen

> Helen,

>

> Has Cheney tested your CoQ10 levels? Does he do that with his

patients do you know?

>

> Marcia

>

>

>

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Helen,

Does he have you/his patients doing anything now for glutathione replacement?

Does he still rec. ImmuneProRx? Injections? Or ????

thanks for all the info you are sharing on your testing and your treatment with

him, its very interesting to learn more about this! I hope he is able to help

you :-)

Marcia

Re: Cheney echocardiogram

No, that wasn't on the test results I got. He wants me to use the

Ultimate Meal and I think that has CoQ10 in it.

Helen

> Helen,

>

> Has Cheney tested your CoQ10 levels? Does he do that with his

patients do you know?

>

> Marcia

>

>

>

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Cort:

They didn't say anything about my heart being enlarged, but maybe it

is, I don't know. For sure I am out of breath at very slight

exertions.

As for asking Cheney about stuff, I have to back off on that. Got my

insurance statement today, for that June visit that cost me $2875, my

insurance kindly reimbursed me $101. How generous of them! I'd cuss,

but some might not wanna hear it.

I thought that since I had a cardiac diagnosis and a test was run,

that they'd actually pay something on the bill. A naive notion,

evidently.

Now I've gone and incurred another bill for the echo this week, and

who knows what will happen with that. But I won't be scheduling any

chats with Cheney for a long while, just can't afford it. I'll take

the pig heart cell medicine when it becomes available and see if I

feel better over time.

Helen

> I am back from the Cheney clinic where I got a Vivid 7

echocardiogram

> yesterday.

>

> The test confirmed the findings of the Impedance Cardiogaph that my

> heart function is abnormal when I am in a vertical position. I

didn't

> come back with any written data from the test. They said the motion

> of the left wall of my heart was abnormal at 70% tilt. Nothing

> discernible seemed to be wrong when I was supine, aside from a

> slightly prolonged IVRT (?) for my age. They were talking about an

> elasticity defect and I heard one of the technicians say something

> about dysynchronous motion in an entire area of the heart.

>

> Dr. Cheney was there talking to them re technical matters and in a

> very kind way explaining a few things to me as the test progressed.

> The technicians seemed surprised by what they were seeing in my

test

> but I don't know much specifically.

>

> The pig heart cell drug is now awaiting FDA approval (imagine my

joy

> upon hearing that my fate rests with government bureaucrats) and

> might be available around October 1st.

>

> Helen

>

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested

in any treatment discussed here, please consult your doctor.

>

>

>

>

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As for asking Cheney about stuff, I have to back off on that. Got my

insurance statement today, for that June visit that cost me $2875, my

insurance kindly reimbursed me $101. How generous of them! I'd cuss,

but some might not wanna hear it.

Oh Helen!!!

I sympathize with you dearly. CFS should come with a winning lottery ticket, I

know its so bittersweet to find out about things that might help us and then

have to sacrifice even more to try and 'reach it'.

I wouldn't blame you for cussin! :-/

Marcia

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Rich,

Thanks once again. Dr. Cheney asked me how old I was, which is 49,

almost 50, and my number was 87, I think. Can't quite remember. He

said it was 2 pts high for my age. But then I'm about to cross the

decade barrier, so who knows.

This IVRT was the only value that was abnormal on the Vivid 7 Echo

when I was supine, but it all went downhill when I was at 70%.

Helen

> > I am back from the Cheney clinic where I got a Vivid 7

> echocardiogram

> > yesterday.

> >

> > The test confirmed the findings of the Impedance Cardiogaph that

> my

> > heart function is abnormal when I am in a vertical position. I

> didn't

> > come back with any written data from the test. They said the

> motion

> > of the left wall of my heart was abnormal at 70% tilt. Nothing

> > discernible seemed to be wrong when I was supine, aside from a

> > slightly prolonged IVRT (?) for my age. They were talking about

an

> > elasticity defect and I heard one of the technicians say

something

> > about dysynchronous motion in an entire area of the heart.

> >

> > Dr. Cheney was there talking to them re technical matters and in

a

> > very kind way explaining a few things to me as the test

> progressed.

> > The technicians seemed surprised by what they were seeing in my

> test

> > but I don't know much specifically.

> >

> > The pig heart cell drug is now awaiting FDA approval (imagine my

> joy

> > upon hearing that my fate rests with government bureaucrats) and

> > might be available around October 1st.

> >

> > Helen

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Hi Marcia:

I am happy to share what Cheney tells me, just wish I had it together

to tape record him when I was there. It was a very expensive

conversation.

Yes, ImmunePro is on the protocol sheet he gave me. I asked him about

Goatien but he'd never heard of it. I have some of it left so I

taking it and putting lipoceutical glutathione in it. When that runs

out I think I will get those glutathione suppositories Rich

mentioned, because they aren't so expensive.

Like you I am shell-shocked today about expenses. At least my teeth

aren't so bad but I was mercury poisoned no doubt getting my fillings

out twenty years ago with no protection. I got composite, whatever

that is, in my molars which isn't supposed to work or last very long

but half of them are still going good for me despite all odds.

Last winter I went to see Wesley Shankland the cavitation expert who

is only two hours away and he ran those tests on me and I didn't have

cavitations. There is one area that bothers me but I guess it's just

low gum.

I just have fillings in most of my molars but not elsewhere. No root

canals. Figure I'll just have a tooth pulled if they start talking

root canal.

Are dentures bad, reactive, do you know?

Hoping for the best for you with your dental woes and expenses.

Helen

> > Helen,

> >

> > Has Cheney tested your CoQ10 levels? Does he do that with his

> patients do you know?

> >

> > Marcia

> >

> >

> >

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Isnt that what CFS is about- good news/bad news - they both seem to go together

so often!

pjeanneus <pj7@...> wrote:

ONe way CFS patients might avoid heart failure is by their down

regulation of Ang II. CFS patients tend to have low blood volume but

normal Ang II levels.(Ang II raises blood volume). HEart failure

patients have high Ang II levels that not only increase their blood

volume but do alot of other really negative things. This could,

however, mean that low blood volume in CFS is preventative!

It would be interesting to ask CHeney about this.

Cort,

This might explain why some cfs patients have such a bad time

initially taking Benicar. It might mean that some patients need to

take the antibiotics for some time before taking Benicar, if, indeed,

they need to take Benicar at all. It is amazing how the body seems

able to do this balancing act that at least keeps one alive.

Ah, but isn't that the " good news " and the " bad news " in the old cfs

joke?

a

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

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That's basically like having no health insurance at all! One wonders what you

are paying all that money for healthy insurance for? I didnt have health

insurance when I saw Cheney and I still remember and cringe at my $1800 phone

call ($500 to assess my e-mail beforehand). They will never pay for a good

portion of his fees. I saw an expensive thyroid specialist once - he charged

$375 an hour and the insurance company wouldn't pay above a certain amount per

hour - they consider it 'unreasonable' and, of course, they wont pay for long

visits but they should certainly pay for the bike ergometry (did you have that

done?) and the doctors assessment of that, etc. I think some people get very

good re-imbursements at least for the tests done with Cheney.

It sounds like there must be something on there you can contest. Cheney is

certainly well aware of the intricacies of insurance billing - maybe his office

can give you grounds to contest some of the non-payment (???)

helen9jora <helenjora@...> wrote:

Cort:

They didn't say anything about my heart being enlarged, but maybe it

is, I don't know. For sure I am out of breath at very slight

exertions.

As for asking Cheney about stuff, I have to back off on that. Got my

insurance statement today, for that June visit that cost me $2875, my

insurance kindly reimbursed me $101. How generous of them! I'd cuss,

but some might not wanna hear it.

I thought that since I had a cardiac diagnosis and a test was run,

that they'd actually pay something on the bill. A naive notion,

evidently.

Now I've gone and incurred another bill for the echo this week, and

who knows what will happen with that. But I won't be scheduling any

chats with Cheney for a long while, just can't afford it. I'll take

the pig heart cell medicine when it becomes available and see if I

feel better over time.

Helen

> I am back from the Cheney clinic where I got a Vivid 7

echocardiogram

> yesterday.

>

> The test confirmed the findings of the Impedance Cardiogaph that my

> heart function is abnormal when I am in a vertical position. I

didn't

> come back with any written data from the test. They said the motion

> of the left wall of my heart was abnormal at 70% tilt. Nothing

> discernible seemed to be wrong when I was supine, aside from a

> slightly prolonged IVRT (?) for my age. They were talking about an

> elasticity defect and I heard one of the technicians say something

> about dysynchronous motion in an entire area of the heart.

>

> Dr. Cheney was there talking to them re technical matters and in a

> very kind way explaining a few things to me as the test progressed.

> The technicians seemed surprised by what they were seeing in my

test

> but I don't know much specifically.

>

> The pig heart cell drug is now awaiting FDA approval (imagine my

joy

> upon hearing that my fate rests with government bureaucrats) and

> might be available around October 1st.

>

> Helen

>

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested

in any treatment discussed here, please consult your doctor.

>

>

>

>

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I just had a root canal that went really well. I believe you can actually have

cavitations even if you have your teeth pulled. Cheney was worried about a

possible cavitation where I'd had a tooth pulled. I could never afford to get

it checked. I spent so much money on those appointments I didnt have much left

over to get tests done.

My mother-in-law has had great resutls from taking flax seed oil for gums. I

have receding gums - my dentist told me to stop using a battery operated tooth

brush and not to brush so hard!

helen9jora <helenjora@...> wrote:

Hi Marcia:

I am happy to share what Cheney tells me, just wish I had it together

to tape record him when I was there. It was a very expensive

conversation.

Yes, ImmunePro is on the protocol sheet he gave me. I asked him about

Goatien but he'd never heard of it. I have some of it left so I

taking it and putting lipoceutical glutathione in it. When that runs

out I think I will get those glutathione suppositories Rich

mentioned, because they aren't so expensive.

Like you I am shell-shocked today about expenses. At least my teeth

aren't so bad but I was mercury poisoned no doubt getting my fillings

out twenty years ago with no protection. I got composite, whatever

that is, in my molars which isn't supposed to work or last very long

but half of them are still going good for me despite all odds.

Last winter I went to see Wesley Shankland the cavitation expert who

is only two hours away and he ran those tests on me and I didn't have

cavitations. There is one area that bothers me but I guess it's just

low gum.

I just have fillings in most of my molars but not elsewhere. No root

canals. Figure I'll just have a tooth pulled if they start talking

root canal.

Are dentures bad, reactive, do you know?

Hoping for the best for you with your dental woes and expenses.

Helen

> > Helen,

> >

> > Has Cheney tested your CoQ10 levels? Does he do that with his

> patients do you know?

> >

> > Marcia

> >

> >

> >

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Thanks, Cort:

I'm not paying for my insurance now, or not much. It's disability

retirement insurance from my former job and I'm lucky to have it. The

problem is that no one talks to a doctor for five hours and so they

only covered a baseline standard office visit. I didn't want to talk

to him that long but that's what happened. Now that I know my

insurance won't pay any of it, I'll push harder to keep conversations

to a minimum.

The only test he did was the impedance cardiography on this visit.

The echo test was done on the second visit. When I saw him in 95 and

did the bike test, my insurance picked up about half my visit, but

that's before they went to this preferred provider network, and of

course some specialist in NC won't be in the network.

Helen

> > I am back from the Cheney clinic where I got a Vivid 7

> echocardiogram

> > yesterday.

> >

> > The test confirmed the findings of the Impedance Cardiogaph that

my

> > heart function is abnormal when I am in a vertical position. I

> didn't

> > come back with any written data from the test. They said the

motion

> > of the left wall of my heart was abnormal at 70% tilt. Nothing

> > discernible seemed to be wrong when I was supine, aside from a

> > slightly prolonged IVRT (?) for my age. They were talking about

an

> > elasticity defect and I heard one of the technicians say

something

> > about dysynchronous motion in an entire area of the heart.

> >

> > Dr. Cheney was there talking to them re technical matters and in

a

> > very kind way explaining a few things to me as the test

progressed.

> > The technicians seemed surprised by what they were seeing in my

> test

> > but I don't know much specifically.

> >

> > The pig heart cell drug is now awaiting FDA approval (imagine my

> joy

> > upon hearing that my fate rests with government bureaucrats) and

> > might be available around October 1st.

> >

> > Helen

> >

> >

> >

> >

> > This list is intended for patients to share personal experiences

> with each other, not to give medical advice. If you are interested

> in any treatment discussed here, please consult your doctor.

> >

> >

> >

> >

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Guys'

You'd think cheney would be passionate about the finding's of his

echocardiograms- as opposed to charging 2800 for the privelidge.

> > > I am back from the Cheney clinic where I got a Vivid 7

> > echocardiogram

> > > yesterday.

> > >

> > > The test confirmed the findings of the Impedance Cardiogaph

that

> my

> > > heart function is abnormal when I am in a vertical position. I

> > didn't

> > > come back with any written data from the test. They said the

> motion

> > > of the left wall of my heart was abnormal at 70% tilt. Nothing

> > > discernible seemed to be wrong when I was supine, aside from a

> > > slightly prolonged IVRT (?) for my age. They were talking

about

> an

> > > elasticity defect and I heard one of the technicians say

> something

> > > about dysynchronous motion in an entire area of the heart.

> > >

> > > Dr. Cheney was there talking to them re technical matters and

in

> a

> > > very kind way explaining a few things to me as the test

> progressed.

> > > The technicians seemed surprised by what they were seeing in

my

> > test

> > > but I don't know much specifically.

> > >

> > > The pig heart cell drug is now awaiting FDA approval (imagine

my

> > joy

> > > upon hearing that my fate rests with government bureaucrats)

and

> > > might be available around October 1st.

> > >

> > > Helen

> > >

> > >

> > >

> > >

> > > This list is intended for patients to share personal

experiences

> > with each other, not to give medical advice. If you are

interested

> > in any treatment discussed here, please consult your doctor.

> > >

> > >

> > >

> > >

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Tony:

The office visit in June was for $2875, which involved five hours of

consultation including the cardiac impedance test. The echocardiogram

was done earlier this week and is a separate charge. I believe it was

$900 and I don't know what my insurance will do with that.

Cheney is definitely passionate about his new idea, but he's also

seeing one patient a day for office visits, and is certainly a

loquacious individual.

Helen

> > > > I am back from the Cheney clinic where I got a Vivid 7

> > > echocardiogram

> > > > yesterday.

> > > >

> > > > The test confirmed the findings of the Impedance Cardiogaph

> that

> > my

> > > > heart function is abnormal when I am in a vertical position.

I

> > > didn't

> > > > come back with any written data from the test. They said the

> > motion

> > > > of the left wall of my heart was abnormal at 70% tilt.

Nothing

> > > > discernible seemed to be wrong when I was supine, aside from

a

> > > > slightly prolonged IVRT (?) for my age. They were talking

> about

> > an

> > > > elasticity defect and I heard one of the technicians say

> > something

> > > > about dysynchronous motion in an entire area of the heart.

> > > >

> > > > Dr. Cheney was there talking to them re technical matters and

> in

> > a

> > > > very kind way explaining a few things to me as the test

> > progressed.

> > > > The technicians seemed surprised by what they were seeing in

> my

> > > test

> > > > but I don't know much specifically.

> > > >

> > > > The pig heart cell drug is now awaiting FDA approval (imagine

> my

> > > joy

> > > > upon hearing that my fate rests with government bureaucrats)

> and

> > > > might be available around October 1st.

> > > >

> > > > Helen

> > > >

> > > >

> > > >

> > > >

> > > > This list is intended for patients to share personal

> experiences

> > > with each other, not to give medical advice. If you are

> interested

> > > in any treatment discussed here, please consult your doctor.

> > > >

> > > >

> > > >

> > > >

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Sounds like a greedy little man to me.What is loquacious?

> > > > > I am back from the Cheney clinic where I got a Vivid 7

> > > > echocardiogram

> > > > > yesterday.

> > > > >

> > > > > The test confirmed the findings of the Impedance

Cardiogaph

> > that

> > > my

> > > > > heart function is abnormal when I am in a vertical

position.

> I

> > > > didn't

> > > > > come back with any written data from the test. They said

the

> > > motion

> > > > > of the left wall of my heart was abnormal at 70% tilt.

> Nothing

> > > > > discernible seemed to be wrong when I was supine, aside

from

> a

> > > > > slightly prolonged IVRT (?) for my age. They were talking

> > about

> > > an

> > > > > elasticity defect and I heard one of the technicians say

> > > something

> > > > > about dysynchronous motion in an entire area of the heart.

> > > > >

> > > > > Dr. Cheney was there talking to them re technical matters

and

> > in

> > > a

> > > > > very kind way explaining a few things to me as the test

> > > progressed.

> > > > > The technicians seemed surprised by what they were seeing

in

> > my

> > > > test

> > > > > but I don't know much specifically.

> > > > >

> > > > > The pig heart cell drug is now awaiting FDA approval

(imagine

> > my

> > > > joy

> > > > > upon hearing that my fate rests with government

bureaucrats)

> > and

> > > > > might be available around October 1st.

> > > > >

> > > > > Helen

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > This list is intended for patients to share personal

> > experiences

> > > > with each other, not to give medical advice. If you are

> > interested

> > > > in any treatment discussed here, please consult your doctor.

> > > > >

> > > > >

> > > > >

> > > > >

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Guest guest

get a dictionary!

Re: Cheney echocardiogram

Sounds like a greedy little man to me.What is loquacious?

> > > > > I am back from the Cheney clinic where I got a Vivid 7

> > > > echocardiogram

> > > > > yesterday.

> > > > >

> > > > > The test confirmed the findings of the Impedance

Cardiogaph

> > that

> > > my

> > > > > heart function is abnormal when I am in a vertical

position.

> I

> > > > didn't

> > > > > come back with any written data from the test. They said

the

> > > motion

> > > > > of the left wall of my heart was abnormal at 70% tilt.

> Nothing

> > > > > discernible seemed to be wrong when I was supine, aside

from

> a

> > > > > slightly prolonged IVRT (?) for my age. They were talking

> > about

> > > an

> > > > > elasticity defect and I heard one of the technicians say

> > > something

> > > > > about dysynchronous motion in an entire area of the heart.

> > > > >

> > > > > Dr. Cheney was there talking to them re technical matters

and

> > in

> > > a

> > > > > very kind way explaining a few things to me as the test

> > > progressed.

> > > > > The technicians seemed surprised by what they were seeing

in

> > my

> > > > test

> > > > > but I don't know much specifically.

> > > > >

> > > > > The pig heart cell drug is now awaiting FDA approval

(imagine

> > my

> > > > joy

> > > > > upon hearing that my fate rests with government

bureaucrats)

> > and

> > > > > might be available around October 1st.

> > > > >

> > > > > Helen

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > This list is intended for patients to share personal

> > experiences

> > > > with each other, not to give medical advice. If you are

> > interested

> > > > in any treatment discussed here, please consult your doctor.

> > > > >

> > > > >

> > > > >

> > > > >

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Guest guest

When I saw him he was very willing to try to work around my financial needs.

Unfortunately this only goes so far - he is very talkative - but you can give

him a time limit and he will try to stick to it.

I didn't want

to

> > talk

> > > to him that long but that's what happened. Now that I know my

> > > insurance won't pay any of it, I'll push harder to keep

> > conversations

> > > to a minimum.

> > >

> > > The only test he did was the impedance cardiography on this

> visit.

> > > The echo test was done on the second visit. When I saw him in

95

> > and

> > > did the bike test, my insurance picked up about half my visit,

> but

> > > that's before they went to this preferred provider network,

and

> of

> > > course some specialist in NC won't be in the network.

> > >

> > > Helen

> > >

> > >

> > >

> > > > > I am back from the Cheney clinic where I got a Vivid 7

> > > > echocardiogram

> > > > > yesterday.

> > > > >

> > > > > The test confirmed the findings of the Impedance

Cardiogaph

> > that

> > > my

> > > > > heart function is abnormal when I am in a vertical

position.

> I

> > > > didn't

> > > > > come back with any written data from the test. They said

the

> > > motion

> > > > > of the left wall of my heart was abnormal at 70% tilt.

> Nothing

> > > > > discernible seemed to be wrong when I was supine, aside

from

> a

> > > > > slightly prolonged IVRT (?) for my age. They were talking

> > about

> > > an

> > > > > elasticity defect and I heard one of the technicians say

> > > something

> > > > > about dysynchronous motion in an entire area of the heart.

> > > > >

> > > > > Dr. Cheney was there talking to them re technical matters

and

> > in

> > > a

> > > > > very kind way explaining a few things to me as the test

> > > progressed.

> > > > > The technicians seemed surprised by what they were seeing

in

> > my

> > > > test

> > > > > but I don't know much specifically.

> > > > >

> > > > > The pig heart cell drug is now awaiting FDA approval

(imagine

> > my

> > > > joy

> > > > > upon hearing that my fate rests with government

bureaucrats)

> > and

> > > > > might be available around October 1st.

> > > > >

> > > > > Helen

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > This list is intended for patients to share personal

> > experiences

> > > > with each other, not to give medical advice. If you are

> > interested

> > > > in any treatment discussed here, please consult your doctor.

> > > > >

> > > > >

> > > > >

> > > > >

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Guest guest

It means talkative. I've never gotten the impression from Cheney that

he is motivated by greed whatsoever.

> > > > > > I am back from the Cheney clinic where I got a Vivid 7

> > > > > echocardiogram

> > > > > > yesterday.

> > > > > >

> > > > > > The test confirmed the findings of the Impedance

> Cardiogaph

> > > that

> > > > my

> > > > > > heart function is abnormal when I am in a vertical

> position.

> > I

> > > > > didn't

> > > > > > come back with any written data from the test. They said

> the

> > > > motion

> > > > > > of the left wall of my heart was abnormal at 70% tilt.

> > Nothing

> > > > > > discernible seemed to be wrong when I was supine, aside

> from

> > a

> > > > > > slightly prolonged IVRT (?) for my age. They were talking

> > > about

> > > > an

> > > > > > elasticity defect and I heard one of the technicians say

> > > > something

> > > > > > about dysynchronous motion in an entire area of the

heart.

> > > > > >

> > > > > > Dr. Cheney was there talking to them re technical matters

> and

> > > in

> > > > a

> > > > > > very kind way explaining a few things to me as the test

> > > > progressed.

> > > > > > The technicians seemed surprised by what they were seeing

> in

> > > my

> > > > > test

> > > > > > but I don't know much specifically.

> > > > > >

> > > > > > The pig heart cell drug is now awaiting FDA approval

> (imagine

> > > my

> > > > > joy

> > > > > > upon hearing that my fate rests with government

> bureaucrats)

> > > and

> > > > > > might be available around October 1st.

> > > > > >

> > > > > > Helen

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > This list is intended for patients to share personal

> > > experiences

> > > > > with each other, not to give medical advice. If you are

> > > interested

> > > > > in any treatment discussed here, please consult your

doctor.

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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Guest guest

With 2800 dollars you could buy the right amount of antibiotics to

fix your bad heart.This would cover me comfortably for a year of

treatment, 'whihc I will improve with'.The other pain is what type

of herb and weed does he throw at this problem?Does he also sell the

supplements to band aid the problem.

You may want to bring up to him that mild anemia, low blood pressure

are also HIGH MARKERS for a heart infection- which he shows no

interest in tackling.

tony

> > > > > > > I am back from the Cheney clinic where I got a Vivid 7

> > > > > > echocardiogram

> > > > > > > yesterday.

> > > > > > >

> > > > > > > The test confirmed the findings of the Impedance

> > Cardiogaph

> > > > that

> > > > > my

> > > > > > > heart function is abnormal when I am in a vertical

> > position.

> > > I

> > > > > > didn't

> > > > > > > come back with any written data from the test. They

said

> > the

> > > > > motion

> > > > > > > of the left wall of my heart was abnormal at 70% tilt.

> > > Nothing

> > > > > > > discernible seemed to be wrong when I was supine,

aside

> > from

> > > a

> > > > > > > slightly prolonged IVRT (?) for my age. They were

talking

> > > > about

> > > > > an

> > > > > > > elasticity defect and I heard one of the technicians

say

> > > > > something

> > > > > > > about dysynchronous motion in an entire area of the

> heart.

> > > > > > >

> > > > > > > Dr. Cheney was there talking to them re technical

matters

> > and

> > > > in

> > > > > a

> > > > > > > very kind way explaining a few things to me as the

test

> > > > > progressed.

> > > > > > > The technicians seemed surprised by what they were

seeing

> > in

> > > > my

> > > > > > test

> > > > > > > but I don't know much specifically.

> > > > > > >

> > > > > > > The pig heart cell drug is now awaiting FDA approval

> > (imagine

> > > > my

> > > > > > joy

> > > > > > > upon hearing that my fate rests with government

> > bureaucrats)

> > > > and

> > > > > > > might be available around October 1st.

> > > > > > >

> > > > > > > Helen

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > This list is intended for patients to share personal

> > > > experiences

> > > > > > with each other, not to give medical advice. If you are

> > > > interested

> > > > > > in any treatment discussed here, please consult your

> doctor.

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

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Guest guest

As I said before I am allergic to seven classes of antibiotics, and

thus his treatment is the only viable avenue for me to pursue. Not to

mention that fact that I've had a high titer to EBV as the only

microbe I've tested positive for in the course of this illness, which

as a virus is not treatable by antibiotics.

You may well be right that antibiotics are the way out of this

illness for some, but that road is blocked for me.

I did have strep throat once, which is not this staph you talk about,

and you haven't addressed that either, when I asked you about it. I

am the first to admit I don't know much about bacteria, but I know

strep and staph are not the same kind.

I am not convinced that I have a chronic bacterial infection, there

is nothing in your presentation of your theory that is cohesive or

intelligible to me, but perhaps you laid it out more distinctly

before I came on this list. Also I have no training in science and

oftentimes can't follow your comments. Requests for clarification

have not been fulfilled in a manner that I can comprehend.

The mold theory makes more sense to me, given my allergy to

antibiotics.

Cheney does think that infection of some kind is at the root of the

problem but is more interested in pursuing terrain at this point in

time. I will be taking an antiviral on his program, I made a point to

ask about that on this last visit, because my gut instinct is that a

virus damaged my heart, and I fear it is still lurking in my body.

My problem is not with Cheney, I feel he gave me value for my time

there, but with my insurance company, whose services have declined

markedly in the last decade. I suspect that is true throughout this

country, after all we have better things to do with our resources

than help sick people, like pursue oil wars.

> > > > > > > > I am back from the Cheney clinic where I got a Vivid

7

> > > > > > > echocardiogram

> > > > > > > > yesterday.

> > > > > > > >

> > > > > > > > The test confirmed the findings of the Impedance

> > > Cardiogaph

> > > > > that

> > > > > > my

> > > > > > > > heart function is abnormal when I am in a vertical

> > > position.

> > > > I

> > > > > > > didn't

> > > > > > > > come back with any written data from the test. They

> said

> > > the

> > > > > > motion

> > > > > > > > of the left wall of my heart was abnormal at 70%

tilt.

> > > > Nothing

> > > > > > > > discernible seemed to be wrong when I was supine,

> aside

> > > from

> > > > a

> > > > > > > > slightly prolonged IVRT (?) for my age. They were

> talking

> > > > > about

> > > > > > an

> > > > > > > > elasticity defect and I heard one of the technicians

> say

> > > > > > something

> > > > > > > > about dysynchronous motion in an entire area of the

> > heart.

> > > > > > > >

> > > > > > > > Dr. Cheney was there talking to them re technical

> matters

> > > and

> > > > > in

> > > > > > a

> > > > > > > > very kind way explaining a few things to me as the

> test

> > > > > > progressed.

> > > > > > > > The technicians seemed surprised by what they were

> seeing

> > > in

> > > > > my

> > > > > > > test

> > > > > > > > but I don't know much specifically.

> > > > > > > >

> > > > > > > > The pig heart cell drug is now awaiting FDA approval

> > > (imagine

> > > > > my

> > > > > > > joy

> > > > > > > > upon hearing that my fate rests with government

> > > bureaucrats)

> > > > > and

> > > > > > > > might be available around October 1st.

> > > > > > > >

> > > > > > > > Helen

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > > This list is intended for patients to share personal

> > > > > experiences

> > > > > > > with each other, not to give medical advice. If you

are

> > > > > interested

> > > > > > > in any treatment discussed here, please consult your

> > doctor.

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

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