Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 Colo ,You are patent who is very well on it ? Re: Samento who tried ? I take samento and responded to it within three days, whilst on a very low dose. Yes I did get pain but not the tendon pain that a describes, the levels of quinolines in samnento are very low. The pain I had was the same as that described by lyme patients when they have die off due to their antibiotics working. My doctor put me on samento first to lower the bacterial load, it helps to modulate the immune system too, and over time I have learned to appreciate that benefit form it too. Some lyme patients are doing very well on samento. Cheers, Tansy > www.health4youonline.com/article_% 20lyme_disease_its_evolving_and_the_ti > me_is.htm > www.health4youonline.com/newsletter_samento_lyme_disease.htm > www.health4youonline.com/samento-testimonials.htm > www.samento.com.ec/sciencelib/sarticles/toascirev.pdf > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2004 Report Share Posted June 15, 2004 Hello a ,meeting again . Do u mean that samento destroys tissue ? Re: Samento who tried ? Wrotek, I know you are looking at the Marshall Protocol. Based on my history with a diagnosis of Lyme disease I was put on quionolones for two months. During that time I developed severe tendon and muscle problems. This was three years ago. I remain almost unable to walk with severe leg and tendon pain. Samento is a natural plant product with the same or similar chemical properties as quinolone antibiotics. The tendon pain that SOME PATIENTS get from these feels just like a flare up of Lyme symptoms. IT IS NOT. It is severe damage to tissues that sometimes never heals. May I humbly suggest that you start some form of the Marshall Protocol -whatever your doctor will allow. YOu could start on 100 mg of minocycline every other day for a couple of months. You could avoid sunlight. Then you could gradually add in another antibiotic at very low dose. I am inclined to think that the reason the protocol makes sense is the low dose pulsed antibiotics. I know an outstanding Lyme doctor who is a retired pathologist in central Europe. If you email me I will send you his email and you can ask him for a doctor to treat you. He had dinner with Dr. Trevor Marshall when Marshall was over there for a medical conference. I am sorry I am drawing a blank on which city this man lives in, I think Belgrade. Please email me. a Carnes pj7@... This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 Wrotek, I know you are looking at the Marshall Protocol. Based on my history with a diagnosis of Lyme disease I was put on quionolones for two months. During that time I developed severe tendon and muscle problems. This was three years ago. I remain almost unable to walk with severe leg and tendon pain. Samento is a natural plant product with the same or similar chemical properties as quinolone antibiotics. The tendon pain that SOME PATIENTS get from these feels just like a flare up of Lyme symptoms. IT IS NOT. It is severe damage to tissues that sometimes never heals. May I humbly suggest that you start some form of the Marshall Protocol -whatever your doctor will allow. YOu could start on 100 mg of minocycline every other day for a couple of months. You could avoid sunlight. Then you could gradually add in another antibiotic at very low dose. I am inclined to think that the reason the protocol makes sense is the low dose pulsed antibiotics. I know an outstanding Lyme doctor who is a retired pathologist in central Europe. If you email me I will send you his email and you can ask him for a doctor to treat you. He had dinner with Dr. Trevor Marshall when Marshall was over there for a medical conference. I am sorry I am drawing a blank on which city this man lives in, I think Belgrade. Please email me. a Carnes pj7@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 I take samento and responded to it within three days, whilst on a very low dose. Yes I did get pain but not the tendon pain that a describes, the levels of quinolines in samnento are very low. The pain I had was the same as that described by lyme patients when they have die off due to their antibiotics working. My doctor put me on samento first to lower the bacterial load, it helps to modulate the immune system too, and over time I have learned to appreciate that benefit form it too. Some lyme patients are doing very well on samento. Cheers, Tansy > www.health4youonline.com/article_% 20lyme_disease_its_evolving_and_the_ti > me_is.htm > www.health4youonline.com/newsletter_samento_lyme_disease.htm > www.health4youonline.com/samento-testimonials.htm > www.samento.com.ec/sciencelib/sarticles/toascirev.pdf > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 Hi Wrotek I am better than I was. I have ill for decades so accept it is going to take time. The herxing became so strong I had to stop for a while, then go back onto a lower dose, recently I have been able to tolerate increasing my dose but am going more slowly this time. Most of us adjust our dose according to how things are going. There are two to which others who have been using samento for some time and who feel it is working for them contribute, you can find these at – samento/ ME-CFS-FMS_infections/ Also Eurolyme which you have recently joined. My doctor has found a good number of his patients respond well to samento, others need to add antibiotics to their protocol, whilst some do better on just antibiotics. There is as yet no one protocol that works for everyone, it would be simpler for all of us if there were. Very often my doctor will start his patients on samento for a while before prescribing any antibiotics. An increasing number of LLMDs seem to be adding samento to their antibiotic protocols so it can even be used as an adjunct to antibiotics. Cheers, Tansy > > www.health4youonline.com/article_% > 20lyme_disease_its_evolving_and_the_ti > > me_is.htm > > www.health4youonline.com/newsletter_samento_lyme_disease.htm > > www.health4youonline.com/samento-testimonials.htm > > www.samento.com.ec/sciencelib/sarticles/toascirev.pdf > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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