Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 I have had CFS for 9 years now and always got 2-3 colds a year. SInce I did some form of energy work (Network Spinal Analysis ) last year I have not been sick in over a year. You would think this is good but I feel like I am dying. I am much much more exhausted all the time. Does anyone know what could have happened to me? Is it that my immune system is overactive now? I don't get it. Or am I just too weak to mount a defense? Thanks, Suz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 OK, I will take a guess at this. Here are two possibilities. 1. If this therapy worked for you, then your immune system could be working better. In fact, one of the 'research-based' claims I found in a quick search was that people who get 2-3 colds per year may have none if NSA works for them. The problem is that the research with this therapy was probably not conducted on PWC, but with healthy people who did not feel worse for losing the colds. Since you have CFS, the 'better functioning' immune system is probably draining some resources that you don't have. Maybe B12, for example, or some minerals. So that would may a PWC even more fatigued. 2. Another possible explanation is that something else is involved, and it is not NSA, but rather you have picked up an immune-modulating bug, like HHV6 or Borrelia, for example, which have this same effect on people. The timing could just be a coincidence. If you have CFS you will get new bugs now and then.stands to reason. My choice is the second explanation, but I would not rule out the first (not entirely anyway). A lot of interesting things seem to happen with energetics, I have experienced this repeatedly myself. Also, I can't help but observe that NSA may be harming patients and not helping them if people stop having normal colds. Maybe the procedure 'misprograms' something in the brain and shuts down part of the immune system, which would lead to improved symptoms because the immune is not fighting. Incidentally, I have read that we need 2-3 colds (which induce a T1 response) per year to help avoid cancer, we need the detox. The idea that we need a cure for the common cold is a misnomer. What we need are fewer toxins in the environment. Modern medicine racing to the wrong fire yet again (but the meter is running so who cares, right? :-0 ). Have you read through www.keephopealive.org <http://www.keephopealive.org/> ? Lots of info on why the immune gets stuck on T2, and why CFS and AIDS patients often don't get normal colds. Some AIDS patients actually try to induce allergic responses that are known to activate T1, so they can have a cold and get the immune working right again. A very interesting site. --Kurt How come I never get " sick " ? I have had CFS for 9 years now and always got 2-3 colds a year. SInce I did some form of energy work (Network Spinal Analysis ) last year I have not been sick in over a year. You would think this is good but I feel like I am dying. I am much much more exhausted all the time. Does anyone know what could have happened to me? Is it that my immune system is overactive now? I don't get it. Or am I just too weak to mount a defense? Thanks, Suz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2005 Report Share Posted April 14, 2005 -Kurt, Thanks for replying. I really do believe it was the NSA because on the first entrainment (session) my vulvodynia flared really bad. From the second entrainment on I continued to get worse and worse. I became more and more tired w/each one. It got to the point where I could no longer get myself out there for treatment. I also developed some strange rash, a sore throat w/white spots, etc. I still have the sore throat w/white spots a year later. I did NSA for 8 weeks, 3 times a week. The Chiro doing the treatment kept telling me that my body was improving and finding the problems, and next it would fix them and I would feel better. Well, like I said I got too sick to continue. I know it did something to my immune system because I always have gotten colds until this treatment. I will check out the website and info you posted. I appreciate your help. I wish I could reverse this somehow. This treatment made me 100 times worse than I was. Take care, Suz -- In , " Kurt (web) " <kurt@i...> wrote: > OK, I will take a guess at this. Here are two possibilities. > > 1. If this therapy worked for you, then your immune system could be > working better. In fact, one of the 'research-based' claims I found in > a quick search was that people who get 2-3 colds per year may have none > if NSA works for them. The problem is that the research with this > therapy was probably not conducted on PWC, but with healthy people who > did not feel worse for losing the colds. Since you have CFS, the > 'better functioning' immune system is probably draining some resources > that you don't have. Maybe B12, for example, or some minerals. So that > would may a PWC even more fatigued. > > 2. Another possible explanation is that something else is involved, and > it is not NSA, but rather you have picked up an immune-modulating bug, > like HHV6 or Borrelia, for example, which have this same effect on > people. The timing could just be a coincidence. If you have CFS you > will get new bugs now and then.stands to reason. > > My choice is the second explanation, but I would not rule out the first > (not entirely anyway). A lot of interesting things seem to happen with > energetics, I have experienced this repeatedly myself. > > Also, I can't help but observe that NSA may be harming patients and not > helping them if people stop having normal colds. Maybe the procedure > 'misprograms' something in the brain and shuts down part of the immune > system, which would lead to improved symptoms because the immune is not > fighting. Incidentally, I have read that we need 2-3 colds (which > induce a T1 response) per year to help avoid cancer, we need the detox. > The idea that we need a cure for the common cold is a misnomer. What we > need are fewer toxins in the environment. Modern medicine racing to the > wrong fire yet again (but the meter is running so who cares, right? :-0 > ). > > Have you read through www.keephopealive.org > <http://www.keephopealive.org/> ? Lots of info on why the immune gets > stuck on T2, and why CFS and AIDS patients often don't get normal colds. > Some AIDS patients actually try to induce allergic responses that are > known to activate T1, so they can have a cold and get the immune working > right again. A very interesting site. > --Kurt > > > How come I never get " sick " ? > > I have had CFS for 9 years now and always got 2-3 colds a year. SInce I > did some form of energy work (Network Spinal Analysis ) last year I have > not been sick in over a year. You would think this is good but I feel > like I am dying. I am much much more exhausted all the time. Does > anyone know what could have happened to me? > > Is it that my immune system is overactive now? I don't get it. Or am I > just too weak to mount a defense? > > Thanks, > Suz > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2005 Report Share Posted April 15, 2005 Kurt, I agree with you about the immune system getting stuck in TH2 mode. Since having CFS I rarely ever get colds. My CFS specialist told me that when I did actually start getting colds again.......this would be a good sign. I did notice the few times over a 10 yr. span that I got a cold..........my body felt much better over-all. Tammy Kurt wrote: > > Have you read through www.keephopealive.org > <http://www.keephopealive.org/> ? Lots of info on why the immune gets > stuck on T2, and why CFS and AIDS patients often don't get normal colds. > Some AIDS patients actually try to induce allergic responses that are > known to activate T1, so they can have a cold and get the immune working > right again. A very interesting site. > --Kurt > > > How come I never get " sick " ? > > I have had CFS for 9 years now and always got 2-3 colds a year. SInce I > did some form of energy work (Network Spinal Analysis ) last year I have > not been sick in over a year. You would think this is good but I feel > like I am dying. I am much much more exhausted all the time. Does > anyone know what could have happened to me? > > Is it that my immune system is overactive now? I don't get it. Or am I > just too weak to mount a defense? > > Thanks, > Suz > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2005 Report Share Posted April 15, 2005 Hi Suz Let me give you my doctors response to this same question, because I didn't get sick either, but felt like I had the flu constantly. He said that as the pathogens multiply our immune system gets more and more turned on, until it is running at full warp speed. We start feeling crappier because our immune system is frantically attacking in an effort to irradicate these CWDs who have hidden in our normal cells, thus the attack is actually on us. Since the immune system is so fired up, most other bateria and viruses don't stand a chance, they are wiped out by this over active immune system before they even know what hit them. Really a pretty simple explanation but makes a whole lot of sense. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2005 Report Share Posted April 15, 2005 Jellybelly, Thanks for replying. What are CWDs? That does make sense. Except I have high EBV IGG tiers and I would think they wouldn't be so high if my immune system was able to keep it in check. Maybe that is wrong. Did your doc recommend anything? Do we want to stimulate it more in order to help it knock some of these infections out or do we want to calm it down? Thanks for your help. What are you doing now for this awful exhaustion/flu feeling? Take care, Suz > > Hi Suz > > Let me give you my doctors response to this same question, because I > didn't get sick either, but felt like I had the flu constantly. He > said that as the pathogens multiply our immune system gets more and > more turned on, until it is running at full warp speed. We start > feeling crappier because our immune system is frantically attacking in > an effort to irradicate these CWDs who have hidden in our normal > cells, thus the attack is actually on us. > > Since the immune system is so fired up, most other bateria and viruses > don't stand a chance, they are wiped out by this over active immune > system before they even know what hit them. Really a pretty simple > explanation but makes a whole lot of sense. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2005 Report Share Posted April 15, 2005 CWD means Cell Wall Deficient. Many of the pathogens that make us so sick have no cell walls. Because of this they MUST inhabit other normal cells to survive. It is almost a certainty that EBV is not your only problem, but these CWDs are very hard to detect and takes some very new tests to find them and even that isn't 100%. The numbers are growing in mass though and it is again very likely you have at least one. My doctors recommendation is to irradicate them. That is what I have done and thankfully after being sick for 24 years I am now in about 95% remission with his helpf and direction. There are several things that need to be done, they kind of need to be done together and over time progress can be made. First you need to really understand why you are sick. I am going to point you to a website where myself and others have accumulated lots of research over the years. I try to find stuff that is easy to understand for all of us brain fogged. The first place this link will take you to is an article on the 2 major parts of the immune system and how one of them ends up in hyper drive. Then just look around from there. Feel free to ask me any questions and I can try to point you in the direction of an answer. http://cure2003.conforums.com/index.cgi? board=cure & action=display & num=1090448718 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2005 Report Share Posted April 15, 2005 Dang, I keep forgetting that the links here just take you to the board, not the exact spot. Go to the " Look for the Cure " topic then go down to " An Easy Explanation of the roles of Th1 and Th2 " There is another article below that on Th1/Th2. Sorry. > > CWD means Cell Wall Deficient. Many of the pathogens that make us so > sick have no cell walls. Because of this they MUST inhabit other > normal cells to survive. It is almost a certainty that EBV is not > your only problem, but these CWDs are very hard to detect and takes > some very new tests to find them and even that isn't 100%. The > numbers are growing in mass though and it is again very likely you > have at least one. > > My doctors recommendation is to irradicate them. That is what I have > done and thankfully after being sick for 24 years I am now in about > 95% remission with his helpf and direction. There are several things > that need to be done, they kind of need to be done together and over > time progress can be made. First you need to really understand why > you are sick. I am going to point you to a website where myself and > others have accumulated lots of research over the years. I try to > find stuff that is easy to understand for all of us brain fogged. > The first place this link will take you to is an article on the 2 > major parts of the immune system and how one of them ends up in > hyper drive. Then just look around from there. Feel free to ask me > any questions and I can try to point you in the direction of an > answer. > > http://cure2003.conforums.com/index.cgi? > board=cure & action=display & num=1090448718 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2005 Report Share Posted April 15, 2005 Doris One shoe definetly won't fit everyone, way to many variables. Not everyone with way turned on immune systems have allergies or at least not like everyone else. My dad possibly had Lupus which is a way turned on immune system, but his allergies weren't to bad. He did get sick in a fairly average way. One doc I know who had treated well over 400 Lupus patients, didn't have even one with cancer. That led him to believe that people with Lupus and an over active immune system aren't prone to cancer, but they are clearly very sick. My mom, has MS, she has all kinds of allergies, bad asthma and gets sick all the time. Although she seems to be approaching a period where she isn't getting sick that often. There seems to be a pattern in those with CFS. Start out catching everything, fevers, swollen glands, they catch it all. Then as they get sicker in the way that they always feel cruddy, they seem to not actually ever catch things. Swollen glands stop and no fevers. Last time I ran a fever was after Mycoplasma Pnuemonia (CWD) 24 years ago. My glands never swell. There was a time I really wished for a runny nose just so I could stay in bed and look obviously sick. EBV, CMV, and HHV6 are not problems that I deal with. I have been exposed to EBV though. Allergies as most people know them are foreign to me. I don't think it means I don't have allergies though. More variations. In the case of an autoimmune type of reaction my doctors explanations makes sense to me. But the immune system is complex and there are new thoughts surfacing every day. > Sounds great, except explain: Why can the immune system be so " turned on " that you don't get a cold or flu, and yet it is not " turned on " enough to kill the internal pathogens? EBV, CMV, HHV6, bacteria, etc. Also the " turned on " theory says you get a lot of allergies which has never held for me either. > > I remember before they knew to look for viruses, they said we didn't have any but our cytokines were " turned on " and those are what give you the flu-like symptoms. Now that they look for viruses and bacteria they find a lot of them. They are really the cause of the symptoms, at least have been for me. > > Doris > ----- Original Message ----- > From: jellybelly92008 > Let me give you my doctors response to this same question, because I > didn't get sick either, but felt like I had the flu constantly. He > said that as the pathogens multiply our immune system gets more and > more turned on, until it is running at full warp speed. We start > feeling crappier because our immune system is frantically attacking in > an effort to irradicate these CWDs who have hidden in our normal > cells, thus the attack is actually on us. > > Since the immune system is so fired up, most other bateria and viruses > don't stand a chance, they are wiped out by this over active immune > system before they even know what hit them. Really a pretty simple > explanation but makes a whole lot of sense. > > Quote Link to comment Share on other sites More sharing options...
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