Why I was banned from the MP website

March 17, 2005

I am sorry to hear this a. It is something we hear to often

these days. Moderators, administrators leaving or being banned

because of their concern for others. Hopefully you will let us pick

your brains here. I have asked so many questions that I could no

answers to, not a one. Last time I spoke about hypercoagualtion the

posts were removed and Trevor informed me by PM that I would be

banned if I continued with questions like these that only serve to

confuse these very sick people.

Sorry for your mishap, but maybe it will be better for us. By the

way, they are making it sound as if you resigned by choice.

>

> I would like to state that I have been banned from the Marshall

> Protocol website where I used to be a moderator. I have no further

> connection with this website or with Dr. Trevor Marshall.

>

> I was banned because I expressed concern for a patient who had

been

> vomiting three days, had elevated kidney tests, and needed IV

fluids.

> This patient's doctor had stated these things. When I encouraged

this

> patient to follow the doctor's directions, and that minocycline

and

> Benicar both can affect kidney function, my post was deleted.

>

> When I protested the deletion of my cautionary message I was

banned.

>

> Dr. Marshall wrote me the following warning:

> " There is no way that any of us should be talking in such a manner

> such as might induce a mother to believe that IV fluids are either

> necessary or desirable. "

>

> I replied on this:

> " I did not suggest IV fluids. Her doctor called her and left a

> message on her answering machine to BRING HIM IN FOR IV FLUIDS. I

> suggested she do that NOW. This boy had extreme vomiting for three

> days, elevated markers for kidney malfunction which had existed in

> the past, and needed electrolytes. He remained so dizzy he could

not

> stand. I gave this woman NO advice her doctors had not already

given

> her…Yet my post was the one deleted. "

>

> I am still on the Marshall Protocol and had encouraging

conversations

> with doctors at the Chicago conference. I will be writing an

article

> on this for the Wisconsin CFIDS organization that should come out

in

> May of this year. I also will be posting some observations about

the

> protocol that should be of use to patients on the protocol.

>

> I feel that in order to protect myself and other patients I must

> distance myself from the MP website. I find that I frequently

> disagree with the advice given there, and several of my posts have

> been deleted in the past because of this.

>

> I hear it has been posted at the MP website that they will not

> discuss why I was banned to protect my privacy. The information I

> have stated above is the reason I was banned. I am not trying to

> protect my privacy. They are trying to hide the reason why I was

> banned.

>

> a Carnes

March 17, 2005

Hi a,

Isn't it interesting about these " bannings " ? I too was banned from a

website pretending to be a place where people " help each other " .

I was banned from my own blog at CureZone because I was talking about

cilantro for chelating Mercury and other heavy metals, which I did

myself, successfully. When some fool who had never done it posted on

their blog about how to chelate with cilantro, they " recommended " 1/2

cup a day of cilantro for 5 weeks. This is a killer " recommendation " .

1/2 cup of cilantro a day would have killed me - of that I have no

doubt, and I said so. Thus, I was banned permanently from the site.

I am thinking these sites that are community-oriented, help-each-

other is just a cover for Big Pharma. If enough people who are trying

natural remedies get sick and die, they will have every excuse in the

world to push their drugs on us - including Benicar, and halt or

limit the natural remedies sold in health food stores, the " Codex " .

Ok, that may be a bit extreme, but isn't it strange that those of us

posting cautions are the ones being banned? I think so.

*Sue*

>

> I would like to state that I have been banned from the Marshall

> Protocol website where I used to be a moderator. I have no further

> connection with this website or with Dr. Trevor Marshall.

>

> I was banned because I expressed concern for a patient who had been

> vomiting three days, had elevated kidney tests, and needed IV

fluids.

> This patient's doctor had stated these things. When I encouraged

this

> patient to follow the doctor's directions, and that minocycline and

> Benicar both can affect kidney function, my post was deleted.

>

> When I protested the deletion of my cautionary message I was

banned.

>

> Dr. Marshall wrote me the following warning:

> " There is no way that any of us should be talking in such a manner

> such as might induce a mother to believe that IV fluids are either

> necessary or desirable. "

>

> I replied on this:

> " I did not suggest IV fluids. Her doctor called her and left a

> message on her answering machine to BRING HIM IN FOR IV FLUIDS. I

> suggested she do that NOW. This boy had extreme vomiting for three

> days, elevated markers for kidney malfunction which had existed in

> the past, and needed electrolytes. He remained so dizzy he could

not

> stand. I gave this woman NO advice her doctors had not already

given

> her…Yet my post was the one deleted. "

>

> I am still on the Marshall Protocol and had encouraging

conversations

> with doctors at the Chicago conference. I will be writing an

article

> on this for the Wisconsin CFIDS organization that should come out

in

> May of this year. I also will be posting some observations about

the

> protocol that should be of use to patients on the protocol.

>

> I feel that in order to protect myself and other patients I must

> distance myself from the MP website. I find that I frequently

> disagree with the advice given there, and several of my posts have

> been deleted in the past because of this.

>

> I hear it has been posted at the MP website that they will not

> discuss why I was banned to protect my privacy. The information I

> have stated above is the reason I was banned. I am not trying to

> protect my privacy. They are trying to hide the reason why I was

> banned.

>

> a Carnes

March 18, 2005

I noticed that the " Skeptics Corner " where you could discuss concerns

about the treatment has been deleted altogether. Red flag #279.....

I know of a few people with active Lyme that have done well. Another

ex-moderator of that website posted on Lymenet a while back that he

voluntarily quit because he wanted to compile a patient database to

see patient outcomes for various illnesses. He volunteered to do it

himself if I remember correctly but the moderator/owner resused to

agree to it.

For anyone interested, here is a recent discussion on Lymenet

regarding that website and the moderator/owner:

http://flash.lymenet.org/ubb/Forum1/HTML/032528.html

PB

March 18, 2005

This explanation would also answer some of the other strange events

that surround that case. The involvement of the NIH, FDA, (Meg is / was

an employee of NIH). Strict compliance to ridged regime.

compliance in shut down of group, and legal offence (levying distress)

etc. I have seen the likes too many times over in such so-called

patient self-help groups. Harm-arrogant behind such groups. Im sure it

is very common.

>

> Hi a,

> Isn't it interesting about these " bannings " ? I too was banned from a

> website pretending to be a place where people " help each other " .

> I was banned from my own blog at CureZone because I was talking about

> cilantro for chelating Mercury and other heavy metals, which I did

> myself, successfully. When some fool who had never done it posted on

> their blog about how to chelate with cilantro, they " recommended " 1/2

> cup a day of cilantro for 5 weeks. This is a killer " recommendation " .

> 1/2 cup of cilantro a day would have killed me - of that I have no

> doubt, and I said so. Thus, I was banned permanently from the site.

>

> I am thinking these sites that are community-oriented, help-each-

> other is just a cover for Big Pharma. If enough people who are trying

> natural remedies get sick and die, they will have every excuse in the

> world to push their drugs on us - including Benicar, and halt or

> limit the natural remedies sold in health food stores, the " Codex " .

>

> Ok, that may be a bit extreme, but isn't it strange that those of us

> posting cautions are the ones being banned? I think so.

> *Sue*

>

>>

>> I would like to state that I have been banned from the Marshall

>> Protocol website where I used to be a moderator. I have no further

>> connection with this website or with Dr. Trevor Marshall.

>>

>> I was banned because I expressed concern for a patient who had been

>> vomiting three days, had elevated kidney tests, and needed IV

> fluids.

>> This patient's doctor had stated these things. When I encouraged

> this

>> patient to follow the doctor's directions, and that minocycline and

>> Benicar both can affect kidney function, my post was deleted.

>>

>> When I protested the deletion of my cautionary message I was

> banned.

>>

>> Dr. Marshall wrote me the following warning:

>> " There is no way that any of us should be talking in such a manner

>> such as might induce a mother to believe that IV fluids are either

>> necessary or desirable. "

>>

>> I replied on this:

>> " I did not suggest IV fluids. Her doctor called her and left a

>> message on her answering machine to BRING HIM IN FOR IV FLUIDS. I

>> suggested she do that NOW. This boy had extreme vomiting for three

>> days, elevated markers for kidney malfunction which had existed in

>> the past, and needed electrolytes. He remained so dizzy he could

> not

>> stand. I gave this woman NO advice her doctors had not already

> given

>> her…Yet my post was the one deleted. "

>>

>> I am still on the Marshall Protocol and had encouraging

> conversations

>> with doctors at the Chicago conference. I will be writing an

> article

>> on this for the Wisconsin CFIDS organization that should come out

> in

>> May of this year. I also will be posting some observations about

> the

>> protocol that should be of use to patients on the protocol.

>>

>> I feel that in order to protect myself and other patients I must

>> distance myself from the MP website. I find that I frequently

>> disagree with the advice given there, and several of my posts have

>> been deleted in the past because of this.

>>

>> I hear it has been posted at the MP website that they will not

>> discuss why I was banned to protect my privacy. The information I

>> have stated above is the reason I was banned. I am not trying to

>> protect my privacy. They are trying to hide the reason why I was

>> banned.

>>

>> a Carnes

>

> This list is intended for patients to share personal experiences with

> each other, not to give medical advice. If you are interested in any

> treatment discussed here, please consult your doctor.

>

March 18, 2005

In some cases its the arrogance of the under-informed. Notice how careful most

doctors are in stating their findings, in qualifying their ideas. That must be

bred into them at medical school - or maybe its just a realization of how

incredibly complex the body is. You apparently didn't see that in Marshall or

in other patients groups that are so SURE they're right.

Colourbleu <colourbleu@...> wrote: