Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Hi Blake, I actually went to 's Tahoma Clinic for 5-6 sessions back in late 2001 -- which just happened to be the beginning of my current downturn. I'm not blaming his clinic for my relapse at all, but at the same time, their treatments did absolutely nothing for me. I had IV vitamin therapy, electrodermal testing, bought supplements that " tested " well for me, etc.. In hindsight, it was all extreeeeemely overpriced ( gets a cut off of the sale of any products, yet his other doctors get no cut), and I felt NO benefit from any of the recommendations. I belong to a local CFIDS support group, and others from the group have also reported the same poor results. I also know of a gentlemen who flew across country for treatment at 's clinic, and was very disappointed. Perhaps if one went for 6 months or so, and spent $5,000+, they may see a benefit, but I have yet to hear of one person who has recommended for CFIDS. I know he's made a great contribution to the world of naturopathic medicine, and I'm sure has helped a lot of people with a variety of conditions. But somewhere during the last 10-15 years (maybe after he won his case against the FDA), his ego ballooned along with his fame. The fact that he charges $10 for a two-page(!) report is testament to that. Just my two cents. d. > Dear list, > > Has anyone on this list seen Dr. 's 'medical brief' on CFS?? > > http://www.tahoma-clinic.com/secure/print.shtml > > If so was it useful and does it add anything new/original? > > Regards, Blake Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 Does anyone know anything about Dr. 's samento study for CFS , which he says is really lyme. > > Dear list, > > Has anyone on this list seen Dr. 's 'medical brief' on CFS?? > > http://www.tahoma-clinic.com/secure/print.shtml > > If so was it useful and does it add anything new/original? > > Regards, Blake Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2004 Report Share Posted October 22, 2004 > Does anyone know anything about Dr. 's samento study for CFS , > which he says is really lyme. > Hi, I am really not at all aware that Andy had done a study on Samento for CFS/ME. He was certainly an advocate of its use for those of his patients whose ME profile matched that of chronic or neurological Lyme. Many Lyme patients do swear by it I know and a few of his patients responded well to it but many saw no improvement. Personally, it never helped me. I know that Dr has now moved on to the big guns - ie antibiotics big time. It is important to stress that he is not saying that ME is classical Lyme disease but rather that chronic lyme disease along with a host of other tick born disease along with other as yet unidentified cell wall deficient bacteria can be a very important contributing problem in much treatment resistant ME. It is my guess only, that Samento is appropriate as a naturopathic option, a kind of first step or in conjuction with other approaches. Perhaps if your symptoms are not so severe. It certainly has a reputation in the Lyme community as one of the best " alternative " approaches. My gut instinct is that if the problem is severe and there is no response to the Samento then antibiotics is the next thing to explore. Peace, Nuala Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2004 Report Share Posted October 23, 2004 --- Hi Nuala, You are too modest to mention what I thought was one of the best articles I've ever read about ME, your husbands article in The Sunday Express. I made that point myself on the internet when it first appeared. Your are definitely one of our ME celebrities here in the U.K! Chris , Chief executive of AFME said recently no celebrities want to go public with the disease here, so we really need you! Dr is a absolute star for PWME. I met him recently at a Samento conference he attended. Other websites with patients of Dr can be found on at Eurolyme and ME-CFS-FMS_infections as well as www.accidentalpatient.com and some marshall protocol sites. Its great to hear your good news. Next time hopefully you will be well enough to write your own article for the press! Healing thoughts, Wallace In , " nualab67 " <Harry.Bingham@b...> wrote: > > > Does anyone know anything about Dr. 's samento study > for CFS , > > which he says is really lyme. > > > > Hi, > > I am really not at all aware that Andy had done a study on > Samento for CFS/ME. He was certainly an advocate of its use for > those of his patients whose ME profile matched that of chronic or > neurological Lyme. Many Lyme patients do swear by it I know and a few > of his patients responded well to it but many saw no improvement. > > Personally, it never helped me. I know that Dr has now moved > on to the big guns - ie antibiotics big time. It is important to > stress that he is not saying that ME is classical Lyme disease but > rather that chronic lyme disease along with a host of other tick born > disease along with other as yet unidentified cell wall deficient > bacteria can be a very important contributing problem in much > treatment resistant ME. > > It is my guess only, that Samento is appropriate as a naturopathic > option, a kind of first step or in conjuction with other approaches. > Perhaps if your symptoms are not so severe. It certainly has a > reputation in the Lyme community as one of the best " alternative " > approaches. My gut instinct is that if the problem is severe and > there is no response to the Samento then antibiotics is the next > thing to explore. > > Peace, > Nuala Quote Link to comment Share on other sites More sharing options...
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