Re: Berg of Hemex Labs answers questions of chronic illness patients

[Guest guest]

Hi Bg,

It does sound promising, but just wonder what the latest results

are since the interview 3 years ago.

And reading the interview, it was kind of deja vu all over again,

and I mean this respectfully -- but here's another doctor or phd

who thinks this one (or two or three) things are the cause, and

that's it. It also wasn't clear to me if he thinks ALL of us have

hypercoagulation problems or not.

I BLEED easily -- probably from the vitamin e and garlic (and

onions!) I take or eat almost every day. In my foggy brain, I

believe I emailed Berg, or Brewer -- or Lerner? -- about 10

months ago, and mentioned this and he replied -- " I have an

answer for that! " Now of course I can't remember the answer.

I checked Dr. Brewer's site, and his paper on the theory is

featured, but again, it's copyrighted 2000 -- so wonder if anything

has changed in the last 3-4 years. I'll do a web search and see if

I can pull up testimonials for his protocol.

Thanks for posting this!

Does your doctor consult with Brewer?

Dan

>

>

> Group,

>

> The site below takes you to notes from an on-line interview put

> together by

> Ken Lassesen. He and his whole family have had various

types of

> hypercoagulation illnesses, and he has become very

knowledgeable in

> this area. Berg is the speaker who is answering

questions for

> the group.

>

> My primary care physician has been following the work of Dr.

ph

> Brewer, infectious disease specialist in Kansas City, MO

> www.plazamedicine.com It seems Brewer and Berg of

Hemex Labs

> serendipitously got together at a meeting and worked out a

new

> paradigm treatment. By putting together the infectious disease

> aspects of these chronic illnesses with the known blood

science,

> people have some pretty promising guidelines to read and

learn

> from.

>

> The following is what Berg had to say on this subject:

>

> http://www.lassesen.com/cfids/berg_3-23-01.htm

>

> bg

[Guest guest]

Now that I know what I do about hypercoagulation, I would NEVER use easy

bleeding as the basis for deciding one doesn't have hypercoagulation

problems. In fact, that can be one of the most prominent symptoms of

hypercoagulation problems, because the hypercoagulation is occurring

internally at such a rate that it is using up all the clotting factors in

the blood, causing a person to bleed excessively when they have external

injuries. And it can also occur because the body is fighting the

hypercoagulation problems by increasing blood factors that prevent clotting.

The clots are still forming in the microcirculation, lining the arteries and

veins and causing damage and blockage. But the person thinks they don't have

a problem because they bleed easily.

The external bleeding doesn't tell you what's lining the arteries in your

heart and brain, where the excess fibrin forms. And all it takes is one clot

to cause enough damage to cause a break in a blood vessel somewhere, and

then the excessive internal bleeding causes serious damage. This is what

often happens when someone has a stroke. The excessive bleeding is what

kills them, not the clot that caused the rupture. But the underlying problem

was the hypercoagulation problems that lead to the clot that caused the

rupture.

Garlic and vitamin E affect one aspect of the clotting process, but they

generally don't address the problem of fibrin formation and excess

fibrinogen, which is generally the common hypercoagulation factor that

people with pathogen driven illnesses have. Garlic and vitamin E generally

just affect platelet aggregation.

Just for the record, I saw Dr. Brewer in 2002, expecting him to order an

ISAC test for me, and he didn't. Instead, he ordered a few routine tests to

test for coagulation, and totally missed my hypercoagulation problems. I

recently had the ISAC test done, and it found I had a very serious

hypercoagulation problem, and apparently I've had it for a very long time.

He also hyperfocused on his theories about HHV6a, and totally ignored all my

tick-bite history, bulls-eye rashes, and failed to do any pathogen testing

on me, and it was him that gave me a diagnosis of CFS that's majorly

complicated my ability to get adequate medical care, since. As a result, he

missed my Lyme infection, which I recently tested positive to on a Western

Blot, both IgG and IgM. So I've spent years longer delaying treatment,

because he was too ego-oriented about his own pet theories about CFS, and

seemed determined to put everyone on the transfer factor that is made by a

company that he owns stock in, and didn't want to listen to me during the

appointment. Needless to say, it's left me pretty skeptical of him.

lindaj@...

Re: Berg of Hemex Labs answers questions

of chronic illness patients

> I BLEED easily -- probably from the vitamin e and garlic (and

> onions!) I take or eat almost every day. In my foggy brain, I

> believe I emailed Berg, or Brewer -- or Lerner? -- about 10

> months ago, and mentioned this and he replied -- " I have an

> answer for that! " Now of course I can't remember the answer.

>

[Guest guest]

Dan,

My primary care physician (PCP) is a follower of Dr. Brewer's work,

testing, theories, whatever, at this time. So, it looks like his

work is in full force. The video my physician had me order from

the Dallas-Ft. Worth Support Group was of a seminar put on there by

Dr. Brewer, during which he told about immume system depression

occuring and HHV6, EBV, CMV becoming reactivated because of this.

He also discussed the extremely large percent of FM/CFIDS patients

testing positive for hypercoagulation. (To me it seems like we are

genetically predisposed to hypercoagulation when triggered by

organisms.)

I was diagnosed with hypercoagulation several years ago. After

doing well on low-dose antibiotic therapy for a rheumatic diagnosis

for a number of years, I developed CMV and EBV on testing. Also,

testing showed my natural killer cells quite low. Dr. Brewer's work

came to the attention of my physician and he now has me taking

Immune64 to build up my immune system.

I can't remember exactly what I read about APS (anti-phospholipid

[antibody] syndrome) frequency in these diagnoses, but in my own

case, (though I didn't know what it was then) that was my first

encounter with an extreme reaction to depressed immune reaction. It

was when I was the mother of three very young children and was

expecting my fourth. I'd just had a nasty bout of flu and APS

reactions occurred and varicose veins suddenly started in one leg

even before I'd gained any weight hardly at all. This had never

happened before. I had no reason then to know what had triggered

it.

Years later, at the onset of my ongoing chronic illness, I again

developed blood flow problems in that same leg. The Hemex Coag Panel

showed only one of the 4 tests anywhere close to normal. My

physician said it would have been abnormal also if I had not been

taking flaxseed oil/yogurt (a sulphurated protein that gets EFA's

from flaxseed oil into the cells for repair) for several years.

I was feeling pretty awful for the past year, and decided to give

Phosphotidylserine (PS) a try for neuro-cognitive help, as I'd read

tons of information about

it --controlled studies, neurologists' and teaching medical doctor's

cudoes about it. Well, guess what???? When I started taking it, I

started having all sorts of weird symptoms. Never suspected it to

be the PS; thought it was just whatever had been going on. Bottom

line here -- I read in The Detoxx System Work that people with

neurological and autoimmune disorders should avoid this as it can

cause problems. Talk about an ahaa!!!!!! moment. I could not

believe all those things I read -- and only one warning in

approximately 5 years of having read this many times. The reason I

had the reaction was because apparently I really do have Anti-

phospholipid Antibody Syndrome.

Don't know how all of this will turn out, but for now, I'm giving

the new protocol my best effort -- and staying away from PS and

anything similar. Someone (on this board, I think) said they also

had a reaction to Phosphotidylcholine. The Detoxx group has only

good things to say about it; but then apparently there is at least

one out there who could not take it.

bg

> >

> >

> > Group,

> >

> > The site below takes you to notes from an on-line interview put

> > together by

> > Ken Lassesen. He and his whole family have had various

> types of

> > hypercoagulation illnesses, and he has become very

> knowledgeable in

> > this area. Berg is the speaker who is answering

> questions for

> > the group.

> >

> > My primary care physician has been following the work of Dr.

> ph

> > Brewer, infectious disease specialist in Kansas City, MO

> > www.plazamedicine.com It seems Brewer and Berg of

> Hemex Labs

> > serendipitously got together at a meeting and worked out a

> new

> > paradigm treatment. By putting together the infectious disease

> > aspects of these chronic illnesses with the known blood

> science,

> > people have some pretty promising guidelines to read and

> learn

> > from.

> >

> > The following is what Berg had to say on this subject:

> >

> > http://www.lassesen.com/cfids/berg_3-23-01.htm

> >

> > bg

[Guest guest]

Ken or and All,

I had the following tests done through Quest. There was no

indication of coagulation from these tests. Did you have these

preliminary tests done and did they appear " normal " ? How much is an

ISAC test and does it matter if you're on antibiotics?

fibrinogen activity

thrombin-anithrombin

fibrin split product

sedimentation rate

prothrombin fragment

[Guest guest]

It doesn't matter if you are on antibiotics. They say it is best to test your

blood the way it is most of the time. I am always on antibiotics and my results

were accurate.

Of your normal tests, my sed rate was always 0 or 1. On the others, I don't

think they are conclusive. You can have either platelet clotting issues, or

fibrin clotting issues. For fibrin clotting issues the real indication is the

measurement of your fibrin level, which you didn't have done. But I am not sure

if I have ever heard of someone with hypercoagulation that had a normal sed

rate. But that doesn't mean they don't exist.

Doris

----- Original Message -----

From: earnest4321

Ken or and All,

I had the following tests done through Quest. There was no

indication of coagulation from these tests. Did you have these

preliminary tests done and did they appear " normal " ? How much is an

ISAC test and does it matter if you're on antibiotics?

fibrinogen activity

thrombin-anithrombin

fibrin split product

sedimentation rate

prothrombin fragment