Guest guest Posted January 7, 2005 Report Share Posted January 7, 2005 Hi Natasha, Personally, I've found that changing my diet always helps. If I eat too much " junk " , or even a " healthy " sweet or higher carb food, like pumpkin pie (which is pretty low in sugar) I pay for it the next day, feeling like I have a hangover. But if I eat more potatoes, or green beans, and lately zucchini, even with rice pasta or rice, and especially if I add green onions, regular onions, or garlic -- the pain almost completely goes away. I'd HIGHLY recommend looking into Chinese Medicine -- not really for the herbal formulations, but for food recommendations. There's a great book called " Chinese System of Food Cures " -- it's about 10 years old, but a lot of surprising info in there. ONIONS, well-cooked, will take away a headache (at least for me) every time. Maybe it's because they're high in quercetin recommended by the Marshall folks??? Dan > Hi: > I am so very sorry for all of you that do suffer with glaucoma: It would seem that CFS/ME/CFIDS/FM winds its way throughout our bodies whichever way it pleases with so many of us having many of the same symptoms yet varys in so many ways. > > I was curious as to what people have found that helps when one has severe pain. I don't have it all the time but when I do I really do. I've gotten to the point where the advils, tylenols, naprosyns, etc just don't really work and besides that my stomach really can't take much more of that. > > Hope everyone had a good Christmas but personally I'm glad it's over with as it's just too hectic, etc. > > Thanks, > n. > > > > GLAUCOMA and CFIDS? HELP... > > > > > Hello all, > > I had an extensive eye exam yesterday, and the doctor wants to follow > up next week with a visual field test. (I did the Shoemaker online > test a year or two back and came back with flying colors -- > neurotoxins present...) > > Anyway, I have read that vitamin C can help, but other than that, the > prognosis looks bad, and damn, I have enough to worry about as it > is. I'm only 47 and don't want to go blind. > > Has anyone heard or read of any cutting edge nutritional therapy that > has some proven benefits for eyes? > > I'm assuming this may be related to my overall arterial health > (hypercoagulation?) but have no idea, because my doc clinic won't pay > for the necessary tests... > > Any suggestions or encouragement would be HIGHLY appreciated! > > Thanks in advance, > > Dan > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 ditto on clearing up diet. i am in the process of going back to what i did when i first got ill in 1990. macrobiotic or close to it. i was quite ill when i first got sick and got better. now, could have been coincidence. but i'm sure when we eat processed foods, etc. -- our bodies spend more energy trying to get nutrients out of what we eat. OF COURSE, when we're really ill -- it becomes a catch-22. i'm lucky if i can get anything to eat as who wants to cook. but if you can, clean up your diet. i recall reading a lot about it also helping joint/muscle pain. not so many toxins in body. > > Hi Natasha, > > Personally, I've found that changing my diet always helps. If I eat > too much " junk " , or even a " healthy " sweet or higher carb food, like > pumpkin pie (which is pretty low in sugar) I pay for it the next day, > feeling like I have a hangover. > > But if I eat more potatoes, or green beans, and lately zucchini, even > with rice pasta or rice, and especially if I add green onions, > regular onions, or garlic -- the pain almost completely goes away. > > I'd HIGHLY recommend looking into Chinese Medicine -- not really for > the herbal formulations, but for food recommendations. There's a > great book called " Chinese System of Food Cures " -- it's about 10 > years old, but a lot of surprising info in there. > > ONIONS, well-cooked, will take away a headache (at least for me) > every time. Maybe it's because they're high in quercetin recommended > by the Marshall folks??? > > Dan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2005 Report Share Posted January 8, 2005 hi natasha -- it's " tuna " (my dog's name, or one of them) aka laurel. YES i know that feeling of just getting to the microwave. part of the " problem " besides being ill might be the PWCs are very prone to " allergies and sensitivities to noise/sound, odors, chemicals and medications " (source: http://www.cfids.org/about- cfids/symptoms.asp). sorry about the emergency room visit. have you been diagnosed with low blood pressure or othostatic intolerance -- http://www.cfids.org/about-cfids/orthostatic-intolerance.asp i've come to realize for myself drinking water (although it's SO boring) is important. i don't have the extreme extreme pain i used to or very rarely, thankfully. but i mostly treat to put me to sleep -- benadryl by prescription (insurance pays for it that way), valerian root, kava kava. i do know that i sure don't feel like i have the energy much lately but i am going to get myself back to doing yoga 6 days a week. i have a tape that takes only 20 minutes. and it REALLY helped with pain. it all sucks, in many ways, as it's a catch-22. limited exercise helps but who has the energy to change the dynamic? i do own a LOT of heat/cold pads from target (9.99 with blue cover). and use some for hot, some for cold. and that also does help. you know -- i realized i said i don't have the same extreme pain. but for months in 2004 i had EXTREME off-the-scale pain in my hips. hot baths helped a lot. and then ice packs. it wasn't day after day so i got some respite but some days it was pretty almost intolerable. i would imagine heavy-duty pain medications work on single use, like codeine does but i don't have any direct experience. keep us posted please, laurel > To all, Dan, Tuna, Sleepless, etc: > > Thank you for responding to my plea of help for my severe pain. I honetly don't > like to take the dopey (Lortab, Oxycodiene, etc) pain meds if I don't have to but > there are times that I have had to-Prior to moving to this State I had Drs that were > very understanding and very aware of my pain and also knew that I would not over > take the heavy duty pills (if I took them for more than 2 or 3 days I couldn't sleep > at all and didn't like the horrible " reved " up feeling). > > I also do agree that diet is so important and have tried to maintain that. When I first got sick in the early 80's NOTHING worked and I would be in the hospital quite a few times. I've never gotten rid of the pain but now with this mega relapse I'm lucky if I get to the microwave and just zap something and besides that, things are so expensive. I still will try, when able to get healthy food and the good vitamins, etc. > > I did spend the afternoon at the emergency room getting IV fluids as apparently I > was way over dehydrated and have very low potassium. The pharmacist told me of another way of taking the potassium pill if need be. > > Is there any medical info on taking the heavy duty stuff only when needed. The State that I've now moved to (been here almost 3 years) just doesn't get it. As I said, where I lived before the Drs were very aware of my intolerance of taking the heavy duty stuff for any length of time and I would even bring in the bottle of pills after 6- 8 months of filling it to show them just how much I'd taken. > > Again, thank you to all for your help and support, not only to me but all of us out there, > N. Quote Link to comment Share on other sites More sharing options...
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