Guest guest Posted September 17, 2004 Report Share Posted September 17, 2004 My New Dr. is suggesting I try these new treatments Cholystyramine to help bind neurotoxins & Xyrem to help for sleep & growth hormone for Fibromyalgia Heparin to see if it helps thin my blood of Fibrins if my blood has that & to help my Fibro instead of taking the Hemex blood test which is expensive. Thyroid Releasing Hormone Nasal Spray to help with Multiple Chemical Sensitivities. Anyone have any experience with any of this to share before I decide to try it? Thanks, C.J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2004 Report Share Posted September 17, 2004 Hi CJ, Have you heard of or tried Taurox SB 7x. A doc who is very recommended from the EPD group, recommended it to me. I've only tried it 3 days and already I feel like I can eat any thing. He says he is going to follow up with 4 SRT shots. (I've never heard of SRT, but the guy has CFS him self and has a very large practice and looks better than good.) Ron Its seems ampligen is going to cure everyone once and for all. I don't suppose any one can guess how long it takes to go from passing the third phass of FDA approval to being approved. http://www.chronicfatiguesyndromesupport.com/library/showarticle.cfm/id/5346 Re: Cholestyramine, Xyrem, Heparin, TRH Nasal spray My New Dr. is suggesting I try these new treatments Cholystyramine to help bind neurotoxins & Xyrem to help for sleep & growth hormone for Fibromyalgia Heparin to see if it helps thin my blood of Fibrins if my blood has that & to help my Fibro instead of taking the Hemex blood test which is expensive. Thyroid Releasing Hormone Nasal Spray to help with Multiple Chemical Sensitivities. Anyone have any experience with any of this to share before I decide to try it? Thanks, C.J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2004 Report Share Posted September 17, 2004 I suspect we have the same Doctor. He recently prescribed TRH nasal spray for me too. I haven't had much chance to try it yet, but my initial impression was that it did help clear up the brain fog after chemical exposure. Help, not necessarily a miracle cure. I also suspected that it made me a bit wired and shaky. It's possible that it was caused by something else, but I'm not sure yet. But if it does help clear brain fog / vision without too many side effects, that would be quite a plus. I found some info about TRH at the following web sites: http://www.ncchem.com/review_mcs.htm (MCS treatment) http://www.ncf-net.org/forum/99gold.htm (Goldstein came up with the idea originally - for CFS in general, not necessarily MCS) -- in AZ Re: Cholestyramine, Xyrem, Heparin, TRH Nasal spray My New Dr. is suggesting I try these new treatments Thyroid Releasing Hormone Nasal Spray to help with Multiple Chemical Sensitivities. Anyone have any experience with any of this to share before I decide to try it? Thanks, C.J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2004 Report Share Posted September 17, 2004 Hi , I live in CA & am seeing Dr. Gordon, so I guess we do not have the same Dr. But it seems they are all sharing the latest info & treatment ideas. Thanks for your feedback. Quote Link to comment Share on other sites More sharing options...
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