Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 (I cross posted this on the marshall protcol list, but would also appreciate input from CFS_experimental list members) Hello All, Well things continue to go very well on the Benicar and low dose minocycline. I saw my Doctor yesterday, who is very impressed, interested and excited to see the changes in me, and is going to try to get Benicar into Australia for local distribution (even if it is only for the Marshall Protocol) and start more of his patients on it. We went over my blood test results yesterday (no D tests unfortunately) and my CBC results are all good, my liver function all good, etc. My ESR has actually come up from a low of 1-2 on all previous tests to a 7 since starting the Benicar! Which is great, when considering the work of Dave Berg indicated that very low sed rates were indicative of hypercoagulation. What concerns both me and my doctor, however, is that my serrum Ferritin is quite high. Its 517 ng/ml. ThHe top of the reference range is 300. I have not been taking any supplements that contain Iron, and apart from eating a decent amount of red meat dont understand what this means. My Doctor said it can be elevated due to inflammation and infection, as well as a range of other medical conditions, and that we will do another blood test in a few weeks to see if it goes down by itself. I was wondering if anyone knew the significance of this result? Thanks very much, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 > > What concerns both me and my doctor, however, is that my serrum > Ferritin is quite high. Its 517 ng/ml. ThHe top of the reference range > is 300. I have not been taking any supplements that contain Iron, and > apart from eating a decent amount of red meat dont understand what > this means. My Doctor said it can be elevated due to inflammation and > infection, as well as a range of other medical conditions, and that we > will do another blood test in a few weeks to see if it goes down by > itself. I was wondering if anyone knew the significance of this > result? > > Thanks very much, > > . One thing that should be checked is the potential for hereditary hemochromatosis. This is an iron storage disorder that is commonly missed in diagnosis, and can lead to many of the symptoms of CFS, as well as liver cancer, diabetes, heart disease, and many other issues. The good thing about it, is it is very easy to treat if found before organ damage occurs. All you need is regular blood draws to deplete the stored iron. My son has both hemochromatosis and Lyme disease, and believe me, we would much rather have the iron prblems than the Lyme. You can read more here: http://www.irondisorders.org/ http://www.americanhs.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Hi, If I remember correctly high ferritin could be sign of b12 deficiency.You might wish to check that. Nil Re: Help Needed - Interpreting High Serum Ferritin --- In , " Light " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 > > One thing that should be checked is the potential for hereditary > hemochromatosis. This is an iron storage disorder that is commonly > missed in diagnosis, and can lead to many of the symptoms of CFS, as > well as liver cancer, diabetes, heart disease, and many other issues. > > The good thing about it, is it is very easy to treat if found before > organ damage occurs. All you need is regular blood draws to deplete > the stored iron. > > My son has both hemochromatosis and Lyme disease, and believe me, we > would much rather have the iron prblems than the Lyme. > > You can read more here: > http://www.irondisorders.org/ > http://www.americanhs.org/ > > Thanks for this. Im not sure that it is Hemochromatosis yet, (we need to do more blood tests), but I will keep people posted on what ends up happening. Sincerely . Quote Link to comment Share on other sites More sharing options...
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