confirmation on natural gas poisoning

[Guest guest]

Hi all,

The other day, just a week before my move is happening out of this place, I

found out that indeed I have a big gas leak in my building. The gas company

came and confirmed what I -- and the other tenants -- already knew but could

never get an admission of. I'm fairly sure it has been here for the whole seven

years I have lived in this house. I had had CFIDS for five years when I moved

in here, and I'd say I was in the moderate category (at about a 60-70 percent

reduction in functionality) -- certainly not mild, but certainly not aware of

how much worse it could get. I also had EXTREMELY mild chemical

sensitivities at that point. Soon after moving here, I began to develop

full-blown MCS,

and my CFIDS got a thousand times worse -- I'd say I plummeted pretty

dramatically over several years. The problem was, it literally became

impossible to

leave as I just got too sick and too isolated and had no help and no safe refuge

(nobody's house or apartment I could even visit, as I became so reactive to

everything). So, though the other tenants and I called the gas company again

and again and they always came and found nothing, I just took it as yet another

thing in this house/city that seemed to be making me sicker. Now, with the

confirmation of the leak (which ws bad enough that they shut off the gas until

a private contractor could be brought in), I KNOW that I have sustained

serious damage from the chemicals in the gas (methane, etc.) and also most

likely

from carbon monoxide as well (the fumes from the basement leak into my 1st-floor

apartment).

I know Dr. Cheney talks about CO poisoning aggravating CFIDS (which seems

pretty obvious to me), but I'm not sure what to do. CO poisoning can be

irreversible. The best treatment seems to be HBOT and supplemental oxygen (the

latter

of which I have been doing for years). I did some research and found there

actually is an HBOT facility near where I'm moving, and if my MCS gets a little

better I might be able to go there and get treatments. However, I'd really

love any other suggestions -- both on how to take medical action to detoxify

myself and also on how to find clinical articles supporting the natural

gas-CO-MCS-CFIDS connections in case I need to pursue this legally. I'm

actually

feeling fairly positive about the FIR heaters and oxygen right now; I feel like

those have been partly responsible for my ability to move out of here, finally,

after seven years of trying and being too ill.

Any suggestions of supplements, treatments, etc., or links to

abstracts/articles about physiological abnormalities associated with CO &

natural gas

poisoning) would be very welcome.

(Please backchannel to me as well as posting, if possible, as my computer

access will be a little sketchy during this move and I don't want to lose track

of any posts).

Thanks,

Peggy

[Guest guest]

Peggy,

Wow! I'm so sorry that this problem went on for so long, but glad

that a resolution of it is coming for you.

As you know, we have always thought that the root of your illness

was some kind of toxicity, starting with your earlier pesticide

exposure while biking in agricultural areas. This new revelation is

very consistent with what you've reported in the past about your

illness. It just seems so ironic that a person like yourself, who

was initially challenged with toxins, ended up living in a place

that exposed you chronically to another toxin! Just what your body

did not need!

When you say there was a gas leak, I'm not sure whether you mean a

flue gas leak (that is, the exhaust from the heating system that is

supposed to be carried to the outside by a flue or chimney), or a

leak of the gas supply to the heating system (that is, the natural

gas line). I suspect that it is the former, since a natural gas

leak can usually be smelled fairly easily because of the mercaptan

they add to the gas for this purpose. So I'm guessing that the

issue is chronic carbon monoxide poisoning. I think it would be

very helpful if you could get a measurement of your

carboxyhemoglobin level. This is usually part of a blood gases

test, and either a venous or an arterial blood gases test would be

satisfactory for this. This would give real evidence about the

degree of your carbon monoxide poisoning.

If you do in fact have chronic carbon monoxide poisoning, then the

oxygen treatments you discussed are the way to go. A guy who has

made chronic carbon monoxide poisoning his specialty is Albert

Donnay, and his website is www.mcsrr.org.

Carbon monoxide binds to hemoglobin, myoglobin and cytochrome

oxidase in the body, blocking their transport of oxygen. If you

have had chronic exposure, it may take some time to get the carbon

monoxide out, and you may have to replace some of these molecules

before it is completely gone. These substances all include iron, so

I think it will be important to make sure you are getting enough

iron in your diet.

Well, at least I think this is some good news at last for you,

Peggy, though I think it is tragic that it went on so long.

Rich

> Hi all,

>

> The other day, just a week before my move is happening out of this

place, I

> found out that indeed I have a big gas leak in my building. The

gas company

> came and confirmed what I -- and the other tenants -- already knew

but could

> never get an admission of. I'm fairly sure it has been here for

the whole seven

> years I have lived in this house. I had had CFIDS for five years

when I moved

> in here, and I'd say I was in the moderate category (at about a 60-

70 percent

> reduction in functionality) -- certainly not mild, but certainly

not aware of

> how much worse it could get. I also had EXTREMELY mild chemical

> sensitivities at that point. Soon after moving here, I began to

develop full-blown MCS,

> and my CFIDS got a thousand times worse -- I'd say I plummeted

pretty

> dramatically over several years. The problem was, it literally

became impossible to

> leave as I just got too sick and too isolated and had no help and

no safe refuge

> (nobody's house or apartment I could even visit, as I became so

reactive to

> everything). So, though the other tenants and I called the gas

company again

> and again and they always came and found nothing, I just took it

as yet another

> thing in this house/city that seemed to be making me sicker. Now,

with the

> confirmation of the leak (which ws bad enough that they shut off

the gas until

> a private contractor could be brought in), I KNOW that I have

sustained

> serious damage from the chemicals in the gas (methane, etc.) and

also most likely

> from carbon monoxide as well (the fumes from the basement leak

into my 1st-floor

> apartment).

>

> I know Dr. Cheney talks about CO poisoning aggravating CFIDS

(which seems

> pretty obvious to me), but I'm not sure what to do. CO poisoning

can be

> irreversible. The best treatment seems to be HBOT and

supplemental oxygen (the latter

> of which I have been doing for years). I did some research and

found there

> actually is an HBOT facility near where I'm moving, and if my MCS

gets a little

> better I might be able to go there and get treatments. However,

I'd really

> love any other suggestions -- both on how to take medical action

to detoxify

> myself and also on how to find clinical articles supporting the

natural

> gas-CO-MCS-CFIDS connections in case I need to pursue this

legally. I'm actually

> feeling fairly positive about the FIR heaters and oxygen right

now; I feel like

> those have been partly responsible for my ability to move out of

here, finally,

> after seven years of trying and being too ill.

>

> Any suggestions of supplements, treatments, etc., or links to

> abstracts/articles about physiological abnormalities associated

with CO & natural gas

> poisoning) would be very welcome.

>

> (Please backchannel to me as well as posting, if possible, as my

computer

> access will be a little sketchy during this move and I don't want

to lose track

> of any posts).

>

> Thanks,

> Peggy

[Guest guest]

CO poisoning is treated effectively by hyperbaric oxygen therapy, which is

an amazing therapy!

confirmation on natural gas poisoning

> Hi all,

>

> The other day, just a week before my move is happening out of this place,

I

> found out that indeed I have a big gas leak in my building. The gas

company

> came and confirmed what I -- and the other tenants -- already knew but

could

> never get an admission of. I'm fairly sure it has been here for the whole

seven

> years I have lived in this house. I had had CFIDS for five years when I

moved

> in here, and I'd say I was in the moderate category (at about a 60-70

percent

> reduction in functionality) -- certainly not mild, but certainly not aware

of

> how much worse it could get. I also had EXTREMELY mild chemical

> sensitivities at that point. Soon after moving here, I began to develop

full-blown MCS,

> and my CFIDS got a thousand times worse -- I'd say I plummeted pretty

> dramatically over several years. The problem was, it literally became

impossible to

> leave as I just got too sick and too isolated and had no help and no safe

refuge

> (nobody's house or apartment I could even visit, as I became so reactive

to

> everything). So, though the other tenants and I called the gas company

again

> and again and they always came and found nothing, I just took it as yet

another

> thing in this house/city that seemed to be making me sicker. Now, with

the

> confirmation of the leak (which ws bad enough that they shut off the gas

until

> a private contractor could be brought in), I KNOW that I have sustained

> serious damage from the chemicals in the gas (methane, etc.) and also most

likely

> from carbon monoxide as well (the fumes from the basement leak into my

1st-floor

> apartment).

>

> I know Dr. Cheney talks about CO poisoning aggravating CFIDS (which seems

> pretty obvious to me), but I'm not sure what to do. CO poisoning can be

> irreversible. The best treatment seems to be HBOT and supplemental oxygen

(the latter

> of which I have been doing for years). I did some research and found

there

> actually is an HBOT facility near where I'm moving, and if my MCS gets a

little

> better I might be able to go there and get treatments. However, I'd

really

> love any other suggestions -- both on how to take medical action to

detoxify

> myself and also on how to find clinical articles supporting the natural

> gas-CO-MCS-CFIDS connections in case I need to pursue this legally. I'm

actually

> feeling fairly positive about the FIR heaters and oxygen right now; I feel

like

> those have been partly responsible for my ability to move out of here,

finally,

> after seven years of trying and being too ill.

>

> Any suggestions of supplements, treatments, etc., or links to

> abstracts/articles about physiological abnormalities associated with CO &

natural gas

> poisoning) would be very welcome.

>

> (Please backchannel to me as well as posting, if possible, as my computer

> access will be a little sketchy during this move and I don't want to lose

track

> of any posts).

>

> Thanks,

> Peggy

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

Nil,

As said, it is possible in the U.S. to buy carbon monoxide

detectors. I don't know if they are available in Turkey. There are

quite a few sites on the web about them, including some that compare

different models and makes of detectors. Albert

Donnay (www.mcsrr.org) sells some that are made in Canada. I

haven't seen them, but having met Albert and having corresponded

with him over the years, I would bet that he has looked into the

possibilities pretty thoroughly before he chose which ones to sell.

The one he recommends for houses is listed on his site for $79 U.S.

There are probably less expensive models, but this one gives a

readout of the level over quite a wide range. Chronic carbon

monoxide poisoning has been Albert's big issue, and at least at one

time he believed that it is responsible for all CFS, which I don't

agree with, but I do agree that it is very important in a subset of

PWCs. Albert believes that the writer Edgar Poe suffered from

carbon monoxide poisoning from the gas lights used in his time.

Rich

> Rich,

>

> Thanks for clarifying that out. I also was wondering that?

> " When you say there was a gas leak, I'm not sure whether you mean

a

> flue gas leak (that is, the exhaust from the heating system that

is

> supposed to be carried to the outside by a flue or chimney), "

>

> but did not have the energy to ask.

>

> I also live just above the exhaust system of the heating system of

our apartment and I have got severly worse since I moved into this

apartment.I was thinking on various possibilities like the

formaldehyde finisihing I had done when I moved,etc,.I am now

thinking if this could be reason why I got worse here. Is there any

ways for me to understand if there is a leakage at exhaust system of

our heater?There is no detectable smell but the leakage might be

slow.

>

> Thanks.

>

> Nil

[Guest guest]

HI PEGGY GOOD LUCK ON YOUR MOVE..... HOPE U HAVE ALOT OF HELP WITH IT AS

HARD ENUF AS IS.TEALK

> [Original Message]

> From: <Peggomatic@...>

> < >

> Date: 7/28/2004 10:03:34 AM

> Subject: confirmation on natural gas poisoning

>

> Hi all,

>

> The other day, just a week before my move is happening out of this place,

I

> found out that indeed I have a big gas leak in my building. The gas

company

> came and confirmed what I -- and the other tenants -- already knew but

could

> never get an admission of. I'm fairly sure it has been here for the

whole seven

> years I have lived in this house. I had had CFIDS for five years when I

moved

> in here, and I'd say I was in the moderate category (at about a 60-70

percent

> reduction in functionality) -- certainly not mild, but certainly not

aware of

> how much worse it could get. I also had EXTREMELY mild chemical

> sensitivities at that point. Soon after moving here, I began to develop

full-blown MCS,

> and my CFIDS got a thousand times worse -- I'd say I plummeted pretty

> dramatically over several years. The problem was, it literally became

impossible to

> leave as I just got too sick and too isolated and had no help and no safe

refuge

> (nobody's house or apartment I could even visit, as I became so reactive

to

> everything). So, though the other tenants and I called the gas company

again

> and again and they always came and found nothing, I just took it as yet

another

> thing in this house/city that seemed to be making me sicker. Now, with

the

> confirmation of the leak (which ws bad enough that they shut off the gas

until

> a private contractor could be brought in), I KNOW that I have sustained

> serious damage from the chemicals in the gas (methane, etc.) and also

most likely

> from carbon monoxide as well (the fumes from the basement leak into my

1st-floor

> apartment).

>

> I know Dr. Cheney talks about CO poisoning aggravating CFIDS (which seems

> pretty obvious to me), but I'm not sure what to do. CO poisoning can be

> irreversible. The best treatment seems to be HBOT and supplemental

oxygen (the latter

> of which I have been doing for years). I did some research and found

there

> actually is an HBOT facility near where I'm moving, and if my MCS gets a

little

> better I might be able to go there and get treatments. However, I'd

really

> love any other suggestions -- both on how to take medical action to

detoxify

> myself and also on how to find clinical articles supporting the natural

> gas-CO-MCS-CFIDS connections in case I need to pursue this legally. I'm

actually

> feeling fairly positive about the FIR heaters and oxygen right now; I

feel like

> those have been partly responsible for my ability to move out of here,

finally,

> after seven years of trying and being too ill.

>

> Any suggestions of supplements, treatments, etc., or links to

> abstracts/articles about physiological abnormalities associated with CO &

natural gas

> poisoning) would be very welcome.

>

> (Please backchannel to me as well as posting, if possible, as my computer

> access will be a little sketchy during this move and I don't want to lose

track

> of any posts).

>

> Thanks,

> Peggy

>

>

>

> This list is intended for patients to share personal experiences with

each other, not to give medical advice. If you are interested in any

treatment discussed here, please consult your doctor.

>