RE: Things that Have Helped me the MOst

[Guest guest]

In a message dated 6/16/2004 9:33:58 PM Central Standard Time,

jenbooks13@... writes:

> I just tried a little today, so I can't report fully until I try a

> whole bottle, and monitor it over a few months, also doing liver

> enzymes since you had a problem with that (I want to be cautious).

>

Who administer this for you? Yes, WHAT a waste; guess your insurance will

help you throw it away. I have been on GAMMA for 10 years and never had a liver

enzyme problem.Carole

[Guest guest]

Glad to know that Gamma is helping you.

One thing you might want to keep in mind is I did not have any

subclass deficiency. Still my doc wanted to try this for me. So may

be thats why I got elevated liver enzymes.

Do you have a subclass deficiency?

BTW, is lyme/naturalhealthcare a group?

Thanks,

Gayathri.

> 4) Perhaps gamma? I feel about it much as I did when I first tried

> hyperbaric, but we'll have to see. I feel it shifted me to a

> different place--a place I remember from years ago. Hyperbaric did

> the same. I feel more " in " my body. Or should I say my body

becomes

> more transparent, as bodies should be.

[Guest guest]

I have no subclass deficiency as far as I know. I had testing done

some years ago.

However, the immune system is complex and subtle, and there could be

genetic vulnerabilities one doesn't know about that mean one does not

mount an aggressive enough response against certain pathogens.

I just tried a little today, so I can't report fully until I try a

whole bottle, and monitor it over a few months, also doing liver

enzymes since you had a problem with that (I want to be cautious).

I am hopeful about it, but we'll see !

Yes that's a group (lyme and natural healthcare. I don't

remember if some of the words are stuck together, tell me if you

can't find it)

[Guest guest]

> Who administer this for you? Yes, WHAT a waste; guess your

insurance will

> help you throw it away. I have been on GAMMA for 10 years and never

had a liver

> enzyme problem.Carole

Please see my previous post. There is no need to be hostile, say my

situation sounds crazy, and WHAT a waste etc...

Gayrathi had liver enzyme elevation from gamma. If you look in the

medical literature that is a possible side effect. Most side effects,

if there are any, are self limiting and mild. In any case, I am

going to monitor it for that reason.

[Guest guest]

Greetings...I am new to this forum and have come in late on things you are

discussing.

I have CFS which is caused by diagnosed sarcoidosis, and seeing your list of

things helpful to you am wondering what they are,if they might be helpful to

sarc patients and how to get them..am not on any medication, thankfully and

have found some vitamins definately not helpful..i.e.vitamin D !

what is hyperbaric oxygen therapy? andGamma? etc etc...and chocolate ! what

does glutathione do?

many thanks....Marilyn

Things that Have Helped me the MOst

1) Hyperbaric oxygen therapy

2) Vitamin/Mineral IV's PARTICULARLY THE MAGNESIUM, makes a big

difference

3) Glutathione

4) Perhaps gamma? I feel about it much as I did when I first tried

hyperbaric, but we'll have to see. I feel it shifted me to a

different place--a place I remember from years ago. Hyperbaric did

the same. I feel more " in " my body. Or should I say my body becomes

more transparent, as bodies should be.

5) Hate to say it, but a drug as well, temezapem.

Oh yeah, I also should add in, PURE CHOCOLATE! It saves my life

I had my neurotransmitters tested by Neuroscience, Inc. My gaba was

slightly high, probably from the temezpaem, which I tend to take 1/3

capsule at about 4-6 a.m., when I awake from my own sleep. My

epinephrine and norepipephrine were VERY high. But I'm pretty sure

that's because I mainline chocolate as part of self-medicating. I eat

sharfffen berger unsweetened chocolate (which also has vanilla in

it). I don't have any sugar because of candida. It has a huge

effect on my mental alertness, mood and energy. But the

catecholamines in chocolate, the amounts that I eat, are precursors

for epi/norepi and so I guess I'm peeing out the extra.

My serotonin was a bit low but not enough for me to do anything about

it. Dopamine and PEA were normal. So basically my nt's are okay.

Which was interesting. One has to do these tests to pinpoint where

the problem is so for me its still basically chronic infection. WHich

would probably indicate why in spite of slyme I've been able to keep

writing and focussing/concentrating and still appreciate life.

I think I will post this over on lyme/naturalhealthcare too.

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

chocolate??? has lead in it!!!

ask a truck driver who hauls a full load of it? they need a hazard

sign on the truck!!!

find a good kinesoligist to test it to your body,

people who crave chocolate are usally short on magnesium.

roger

jill1313 wrote:

>

> 1) Hyperbaric oxygen therapy

> 2) Vitamin/Mineral IV's PARTICULARLY THE MAGNESIUM, makes a big

> difference

> 3) Glutathione

> 4) Perhaps gamma? I feel about it much as I did when I first tried

> hyperbaric, but we'll have to see. I feel it shifted me to a

> different place--a place I remember from years ago. Hyperbaric did

> the same. I feel more " in " my body. Or should I say my body becomes

> more transparent, as bodies should be.

> 5) Hate to say it, but a drug as well, temezapem.

>

> Oh yeah, I also should add in, PURE CHOCOLATE! It saves my life

> I had my neurotransmitters tested by Neuroscience, Inc. My gaba was

> slightly high, probably from the temezpaem, which I tend to take 1/3

> capsule at about 4-6 a.m., when I awake from my own sleep. My

> epinephrine and norepipephrine were VERY high. But I'm pretty sure

> that's because I mainline chocolate as part of self-medicating. I eat

> sharfffen berger unsweetened chocolate (which also has vanilla in

> it). I don't have any sugar because of candida. It has a huge

> effect on my mental alertness, mood and energy. But the

> catecholamines in chocolate, the amounts that I eat, are precursors

> for epi/norepi and so I guess I'm peeing out the extra.

>

> My serotonin was a bit low but not enough for me to do anything about

> it. Dopamine and PEA were normal. So basically my nt's are okay.

> Which was interesting. One has to do these tests to pinpoint where

> the problem is so for me its still basically chronic infection. WHich

> would probably indicate why in spite of slyme I've been able to keep

> writing and focussing/concentrating and still appreciate life.

>

> I think I will post this over on lyme/naturalhealthcare too.

>

>

[Guest guest]

> chocolate??? has lead in it!!!

> ask a truck driver who hauls a full load of it? they need a hazard

> sign on the truck!!!

> find a good kinesoligist to test it to your body,

> people who crave chocolate are usally short on magnesium.

> roger

I don't believe in kinesiology, it's so practitioner biased. I never

use it. I've *never* found it accurate.

It's somewhat reductive to say " short on magnesium. " I do supplement

with magnesium IV. Chocolate has a lot of stimulants in it,

catecholamines, other stuff. I think that's probably what I crave--

as does most of the world. In addition, it's got some very healthy

flavanoids, if you check out the newest research on cocoa, strong

antioxidants; and the oleic acid (fat) is monounsaturated so

relatively healthy. I know about the lead but I'll risk it--it's not

like I'm eating HUGE amounts relatively speaking. Yes, in terms of

chocolate, but not in terms of the amount of lead I'd be getting. A

little chocolate goes a long way.

[Guest guest]

Are you on the marshall protocol group? That protocol is

apparently pretty good for sarc--it's low dose minocycline plus

benicar, an anti-inflammatory.

Okay, here's what these things " are " as best as I can explain:

1) Hyperbaric oxygen is breathing 02 under pressure so that 02 is

pushed into your tissues, which is very healing for many conditions.

It's too exhausting for me to explain it all here but we have a

group, lyme and mild hyperbaric (for home chambers) which has good

info in the archives and in the files section, you might join that

group and read through it.

2) Gamma is Gamma globulin, which can be obtained in IM shots (which

some people on this list are using) or if you're lucky (insurance) or

rich, IV. The latter is much stronger but I hear from people on this

list that the IM is also useful. I'm not sure if it would be useful

in sarc or not. Basically you're boosting your immune system and

also balancing it, with immunoglobulins pooled from the population at

large

3) Glutathione is usually given in a " push " IV, in saline, about 1000-

1400 mg or so. It is what the body uses to detoxify, and in chronic

illness it is usually helpful.

4) Chocolate--I think that's probably somewhat unique to me. I don't

know that it would help everybody. Although it certainly is one of

the world's favorite foods.

[Guest guest]

thank you for this response

Re: Things that Have Helped me the MOst

Are you on the marshall protocol group? That protocol is

apparently pretty good for sarc--it's low dose minocycline plus

benicar, an anti-inflammatory.

Okay, here's what these things " are " as best as I can explain:

1) Hyperbaric oxygen is breathing 02 under pressure so that 02 is

pushed into your tissues, which is very healing for many conditions.

It's too exhausting for me to explain it all here but we have a

group, lyme and mild hyperbaric (for home chambers) which has good

info in the archives and in the files section, you might join that

group and read through it.

2) Gamma is Gamma globulin, which can be obtained in IM shots (which

some people on this list are using) or if you're lucky (insurance) or

rich, IV. The latter is much stronger but I hear from people on this

list that the IM is also useful. I'm not sure if it would be useful

in sarc or not. Basically you're boosting your immune system and

also balancing it, with immunoglobulins pooled from the population at

large

3) Glutathione is usually given in a " push " IV, in saline, about 1000-

1400 mg or so. It is what the body uses to detoxify, and in chronic

illness it is usually helpful.

4) Chocolate--I think that's probably somewhat unique to me. I don't

know that it would help everybody. Although it certainly is one of

the world's favorite foods.

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.