Re: Need help to figure out new acid burning type symptom

[Guest guest]

The only comment i can make is listen to your body, if it says " No, "

then stop. Maybe later it will say " Yes. " This may sound silly but I

mean it. The body is a mystery but it will tell you what it wants or

doesnt want.

[Guest guest]

,

As you may know, burning skin is one of my worst problems with CFS.

I have found that mine is histamine related. You might try benadryl,

to see if this lessens your reaction. Or alternatively, try taking

niacin to see if it worsens it. Regular niacin causes the release

of histamine.

I use doxepin or allegra to help with my burning skin. Too, if I eat

almost anything at all, it will have a temporary effect on my skin

condition. Just a thought.

Zippy

========================================================

> Over the past week I've developed a new symptom that is driving me

up the

> wall, and I can't figure out what is going on, though I've figured

out some

> things that help. I get this burning sensation in the back of my

neck and

> head and shoulders, and feel like I have waves of heart burn, and

become

> very light headed, and somewhat out of breath. I don't look any

different in

> the mirror. My pulse rate and blood pressure doesn't change. There

is no

> visible flushing or anything. It all happens all together, about a

half an

> hour after I take Recancostat, or a sublingual glutathione

supplement. It's

> a little bit like having acid poured into my veins, and it slowly

kind of

> spreads out and intensifies, and then slowly fades away over about

an hour.

>

> The only ingredient that the Recancostat and the sublingual

glutathione have

> in common is reduced glutathione. It doesn't make sense to me,

because I

> used to use Recancostat without any problems, but dropped it

because it was

> rather expensive. But I decided recently that I needed to do more

to build

> glutathione levels, and so added it back, along with a sublingual

> glutathione. Either one will do it, and even if I don't take both

in the

> same day, it still happens.

>

> I've been experimenting around trying to find something to stop the

reaction

> because it is intensely uncomfortable, and if I lay down it gets

worse. I

> can only handle being up for just so long. The sensation only stops

when I

> eat some cottage cheese. So far that's the only thing I've found

that seems

> to help. Within a few minutes of eating the cottage cheese, the

symptoms

> will begin to subside. Without the cottage cheese, it can go on for

a couple

> hours. Taking Tums doesn't help, so I am assuming that it's not the

calcium

> in the cottage cheese. Drinking milk also doesn't help, even though

milk

> also has protein. Drinking calcium fortified orange juice seems to

make it

> worse. I've tried to muscle test myself to figure out what's going

on, but

> I'm just more confused, because it says I'm too alkaline, and I

need the

> protein to become more acidic, which doesn't make sense to me,

because if

> protein was what helped, then milk should help. So I can't really

put much

> stock in my muscle testing answers, and I'm trying to just figure

this out

> without depending on that.

>

> Some years ago while I was in the hospital for severe morning

sickness, I

> reacted this way to a medication that I was given for nausea, only

more

> intensely. I literally felt like I was suffocating, and doing

things for

> hyperventilation only intensified the sensation. They never did

figure out

> what was happening, and after an hour it just disappeared. Now to

have a

> milder version of this happen to me is puzzling me. It's not like an

> allergic reaction. It's not the type of Fibromyalgia burning pain

that I

> have had in the past, which is more of a sunburn-type sensation.

This is

> more of how one feels when they get Lyme-away on their hands, and

it starts

> to eat through the skin, like acid burning. The heart burn

sensation feels

> like heart burn. But antacids don't seem to help. And to describe

it as an

> acid burn seems to fit as best as I can explain.

>

> Any ideas? Comments?

>

>

> lindaj@h...

[Guest guest]

I've had burning skin that was connected with Fibromyalgia for years. Taking

hydroxycobalamin always worked on alleviating it. But this new burning

feeling is different,. and hydroxycobalamin doesn't seem to have the

slightest impact on it. My burning skin pain that is connected with

Fibromyalgia is generally like a sunburn type pain. This new burning pain

feels more like acid being pumped through my blood vessels, and starts

around my stomach, up my esophagus, (like heart burn) and then spreads out

to the rest of my body, back, shoulders, head, arms, and then legs and feet,

starting about a half an hour after I've taken the glutathione, and

spreading over just a few minutes. It is very different than the burning

sensations that I've had in the past.

I'm allergic to Benadryl, both in lotions, and in pills, liquids, without

dyes, in capsules, you name it. Benadryl induces hives in me, within minutes

to hours of exposure to it, and it can take a week or longer for the hives

to subside. I've taken quercetin to reduce histamine, and generally

quercetin helps a lot with my allergies. But it doesn't seem to make any

difference. I'm on 24 hour Allegra. And I can't take other antihistamines

because of autonomic system dysfunction or neurological problems with them.

So far Allegra is the only one that I've tried that I can tolerate. I

haven't tried Singulair, though. But it doesn't feel like a histamine

reaction to me. I use DMSO, which induces histamine, and has a kind of

itching/burning sensation, but it's not the same type of burn. Really the

only thing I can think of is acid being poured through my veins. It is a

very toxic feeling. I just don't know how to describe this, because it's so

different than the types of pain that I've had in the past, but I'm having

to use the same adjectives to describe it, and it just doesn't fit quite

right.

I'm thinking that perhaps the glutathione is detoxifying and my body is

beginning to dump toxins as the levels are being changed. And the toxins are

making it feel like it is burning. But I don't understand why the

Recancostat didn't used to do this to me, or why taking ImmunePro has never

caused this type of reaction. Why now? Why not earlier? And why does cottage

cheese alleviate it? Why not milk? Why not calcium supplements, or some

other form of protein? Why only cottage cheese? Certainly cottage cheese

doesn't reduce histamine levels. If it were the calcium in the cottage

cheese, why wouldn't Tums, coral calcium or calcium citrate work? Why

wouldn't calcium fortified orange juice, or milk work? If it's the protein,

why wouldn't some other form of protein work? If it were just food, than any

food should work. But the only food that makes a difference is the cottage

cheese. This is driving me crazy, and sounds absolutely crazy to me. And I

don't have a clue to explain it.

This evening I'll try niacin during it, and see what that does.

lindaj@...

Re: Need help to figure out new acid burning

type symptom

> ,

>

> As you may know, burning skin is one of my worst problems with CFS.

> I have found that mine is histamine related. You might try benadryl,

> to see if this lessens your reaction. Or alternatively, try taking

> niacin to see if it worsens it. Regular niacin causes the release

> of histamine.

>

> I use doxepin or allegra to help with my burning skin. Too, if I eat

> almost anything at all, it will have a temporary effect on my skin

> condition. Just a thought.

>

> Zippy

[Guest guest]

Hi ,

I wonder if your burning pain after taking glutathione could be the

result of an overflow of toxins being released from your liver, which

the glutathione is helping to detox. The toxins that are more than your

body can eliminate get pumped through your blood vessels causing them

to feel temporarily inflammed. This would explain why muscle testing

indicated that you need glutathione--to help eliminate these toxins.

I've read that shoulder and neck pain is often related to liver

congestion and toxicity. Maybe taking a smaller dose of glutathione

would help and drinking more warm water to flush the toxins out,

before the pain would normally start, might help.

Here's a paragragh from a site that talks about liver disease and pain

throughout the body. Our bodies can react in many different ways to

toxins. (I'm not suggesting that you have liver disease, which is the

title of this article, but Kane and others have made it clear that

PWC's have liver sludge and congestion.)

http://adultpain.nursing.uiowa.edu/MedGen/Livernt.htm

Liver Disease and Pain, Patient & Family Version, Deb Tarara RN

" The body has systems of nerves that are connected to all body parts,

inside and out. These nerves send messages along certain paths that

lead to the brain. Some of the nerves are sensitive to stretching or

spasm (like cramps). Others relay messages of change in temperature,

swelling, pressure, and toxins that are produced in infections. Pain

in the shoulder area may be felt even though it starts in the abdomen "

Hope this is helpful,

Sandy Olson

" " <lindaj@h...> wrote:

This new burning pain feels more like acid being pumped through my

blood vessels, and starts around my stomach, up my esophagus, (like

heart burn) and then spreads out to the rest of my body, back,

shoulders, head, arms, and then legs and feet, starting about a half

an hour after I've taken the glutathione, and spreading over just a

few minutes.

[Guest guest]

That's the impression that I've gotten, as well, that it seems to be

connected with some sort of dumping of toxins as the glutathione gets into

my system. And come to think of it, the sensation seems to spread from my

upper abdomen area. I had associated it with stomach/esophagus, but the area

does seem to be my liver.

I've been doing detoxification things for years, and I do a lot of liver

support stuff. I take Natrol's Premium Liver formula, and use SAM-e. I used

to drink Detox AM tea daily, until I had to stop because of an allergy to

legumes. (If I recall, it has red clover in it) I also take a number of

antioxidant support formula's. (Cyto-Redoxin, Emergen-C, EM-X, grape seed

extract, alpha lipoic acid) (I muscle test everything to determine what I

need to take, and then try to do what my body says to do) There's a lot of

other stuff I do as well.

But I just thought of something just now. Last time I saw my BioSET

practitioner, she treated me for glutathione and phase II liver pathways. I

would bet that is what has changed how my body handles glutathione. And so

when I added the Recancostat recently, and then the sublingual glutathione,

it's actually doing something now that wasn't being done before.

As for drinking water, I've tried drinking water when I start feeling it

burn, but it doesn't seem to help at all. Like I said, the only thing I have

found that seems to help is eating cottage cheese, and I don't have a clue

why cottage cheese, and not something else. Everything I can think of that

cottage cheese provides could be substituted with something else, like

calcium supplements, or some other source of protein. It just doesn't make

sense, unless cottage cheese has some specific effect on liver function. I

know that it's used mixed with flax seed oil in some sort of detoxification

process for treating cancer, but off the top of my head I can't recall who

does it. (The effects of being kept awake every night longer than I'm used

to, for this whole past week.)

lindaj@...

Re: Need help to figure out new acid burning

type symptom

> Hi ,

>

> I wonder if your burning pain after taking glutathione could be the

> result of an overflow of toxins being released from your liver, which

> the glutathione is helping to detox. The toxins that are more than your

> body can eliminate get pumped through your blood vessels causing them

> to feel temporarily inflammed. This would explain why muscle testing

> indicated that you need glutathione--to help eliminate these toxins.

>

> I've read that shoulder and neck pain is often related to liver

> congestion and toxicity. Maybe taking a smaller dose of glutathione

> would help and drinking more warm water to flush the toxins out,

> before the pain would normally start, might help.

>

> Here's a paragragh from a site that talks about liver disease and pain

> throughout the body. Our bodies can react in many different ways to

> toxins. (I'm not suggesting that you have liver disease, which is the

> title of this article, but Kane and others have made it clear that

> PWC's have liver sludge and congestion.)

>

> http://adultpain.nursing.uiowa.edu/MedGen/Livernt.htm

>

> Liver Disease and Pain, Patient & Family Version, Deb Tarara RN

>

> " The body has systems of nerves that are connected to all body parts,

> inside and out. These nerves send messages along certain paths that

> lead to the brain. Some of the nerves are sensitive to stretching or

> spasm (like cramps). Others relay messages of change in temperature,

> swelling, pressure, and toxins that are produced in infections. Pain

> in the shoulder area may be felt even though it starts in the abdomen "

>

> Hope this is helpful,

> Sandy Olson

>

> " " <lindaj@h...> wrote:

> This new burning pain feels more like acid being pumped through my

> blood vessels, and starts around my stomach, up my esophagus, (like

> heart burn) and then spreads out to the rest of my body, back,

> shoulders, head, arms, and then legs and feet, starting about a half

> an hour after I've taken the glutathione, and spreading over just a

> few minutes.

>

>

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

I don't know about the cottage cheese either. The only thing that

comes to mind which is farfetched is that they use cottage cheese and

flax oil for cancer. But the combo is important, so I don't know

what cottage cheese alone would do.

Maybe you're right and you're handling glutathione differently.

Perhaps then you should do some liver cleansing? I don't do things

like coffee enemas but they are said to be good for helping flush out

toxins, helping the liver dump. Or just some gentle liver cleanses?

And/or some adsorbers like bentonite, charcoal, etc?

[Guest guest]

,

Cottage cheese is considered a " protein carrier " that gets the

essential fatty acids into the cells when it is being used with

flaxseed oil liquid (health store plain yogurt is also a recommended

carrier). (www.arthritistrust.org -- article, " Essential Fatty

Acids Are Essential. " )

I'm wondering what (if anything) it may be " carrying " in your

present protocol/condition.

By the way, the combination (flaxseed oil liquid with either cottage

cheese or plain yogurt) is highly regarded for reducing

inflammation. Freshly ground flaxseed added is also very good for

the intestines. Adding some powdered acidophilus should help the gut

issues, too. You can open some capsules and stir the contents in or

purchase Solary Multidophilus Powder (more economical this way).

You were wondering why the cottage cheese alone is helping. I'm

wondering if perhaps the amino acids in the cc are having a positive

effect. Will investigate this, too. I'm a poster girl for some

unbelievably good results using the above combination -- so good I

will be using it the rest of my life.

bg

> > This new burning pain feels more like acid being pumped through

my

> > blood vessels, and starts around my stomach, up my esophagus,

(like

> > heart burn) and then spreads out to the rest of my body, back,

> > shoulders, head, arms, and then legs and feet, starting about a

half

> > an hour after I've taken the glutathione, and spreading over

just a

> > few minutes.

> >

> >

> >

> >

> >

> > This list is intended for patients to share personal experiences

with each

> other, not to give medical advice. If you are interested in any

treatment

> discussed here, please consult your doctor.

> >

[Guest guest]

hi linda a long shot to your promblem..i get a similiar reaction when but

milder when i take a substance too full of pesticides or other chemicals...

i also used to get weird skin burning when i was too toxic and detoxifying

faster than my body could handle.

so maybe you are herxing too much from too much glutathione .. tealk

> [Original Message]

> From: <lindaj@...>

> < >

> Date: 6/15/2004 1:37:27 AM

> Subject: Need help to figure out new acid burning

type symptom

>

> Over the past week I've developed a new symptom that is driving me up the

> wall, and I can't figure out what is going on, though I've figured out

some

> things that help. I get this burning sensation in the back of my neck and

> head and shoulders, and feel like I have waves of heart burn, and become

> very light headed, and somewhat out of breath. I don't look any different

in

> the mirror. My pulse rate and blood pressure doesn't change. There is no

> visible flushing or anything. It all happens all together, about a half an

> hour after I take Recancostat, or a sublingual glutathione supplement.

It's

> a little bit like having acid poured into my veins, and it slowly kind of

> spreads out and intensifies, and then slowly fades away over about an

hour.

>

> The only ingredient that the Recancostat and the sublingual glutathione

have

> in common is reduced glutathione. It doesn't make sense to me, because I

> used to use Recancostat without any problems, but dropped it because it

was

> rather expensive. But I decided recently that I needed to do more to build

> glutathione levels, and so added it back, along with a sublingual

> glutathione. Either one will do it, and even if I don't take both in the

> same day, it still happens.

>

> I've been experimenting around trying to find something to stop the

reaction

> because it is intensely uncomfortable, and if I lay down it gets worse. I

> can only handle being up for just so long. The sensation only stops when I

> eat some cottage cheese. So far that's the only thing I've found that

seems

> to help. Within a few minutes of eating the cottage cheese, the symptoms

> will begin to subside. Without the cottage cheese, it can go on for a

couple

> hours. Taking Tums doesn't help, so I am assuming that it's not the

calcium

> in the cottage cheese. Drinking milk also doesn't help, even though milk

> also has protein. Drinking calcium fortified orange juice seems to make it

> worse. I've tried to muscle test myself to figure out what's going on,

but

> I'm just more confused, because it says I'm too alkaline, and I need the

> protein to become more acidic, which doesn't make sense to me, because if

> protein was what helped, then milk should help. So I can't really put much

> stock in my muscle testing answers, and I'm trying to just figure this out

> without depending on that.

>

> Some years ago while I was in the hospital for severe morning sickness, I

> reacted this way to a medication that I was given for nausea, only more

> intensely. I literally felt like I was suffocating, and doing things for

> hyperventilation only intensified the sensation. They never did figure out

> what was happening, and after an hour it just disappeared. Now to have a

> milder version of this happen to me is puzzling me. It's not like an

> allergic reaction. It's not the type of Fibromyalgia burning pain that I

> have had in the past, which is more of a sunburn-type sensation. This is

> more of how one feels when they get Lyme-away on their hands, and it

starts

> to eat through the skin, like acid burning. The heart burn sensation feels

> like heart burn. But antacids don't seem to help. And to describe it as an

> acid burn seems to fit as best as I can explain.

>

> Any ideas? Comments?

>

>

> lindaj@...

>

>

>

>

>

> This list is intended for patients to share personal experiences with

each other, not to give medical advice. If you are interested in any

treatment discussed here, please consult your doctor.

>