Re: 39 people [Click View at top of screen]

[Guest guest]

Annette,

I had uveitis several years ago and could not read a newspaper or

drive my car for a while. One day I discovered that if you click

on " View " at the top left of the screen (next to File & Edit), you

can make the print larger. It was wonderful, and I was able to read

the on-line newspapers and everything else.

bg

> Hi Sue and Jill,

>

> I've been lurking on the MP list trying to see what

> relevance it has to PWME and PWCFS. It's been hard to

> keep up with as the list is very busy.

>

> As I have very limited ability to read from the screen

> and from paper I can't see if there is any relevance

> just yet. I am very happy however for the people who

> are finding success with the protocol.

>

> From the little I can see the ones having success are

> people who have a dx of CFS not an acute onset and

> have had some previous success with antibiotics and

> thyroid meds.

>

> If anyone has the time and energy I would greatly

> appreciate a precis on how this protocol could

> possibly be useful to acute onset M.E. and CFS for

> people who do not respond to antibiotics and are

> usually made worse (or remain the same) by typical CFS

> meds.

>

> Wishing everyone on the protocol better health!

>

> With warmest regards,

> Annette

>

>

>

>

>

> ___________________________________________________________ALL-NEW

Messenger - sooooo many all-new ways to express yourself

http://uk.messenger.

[Guest guest]

Hi BG,

Thanks for the hint. I was an IT Analyst by trade so

know all the shortcuts.

Changing the font makes no difference as it is not the

size which is the problem. Since the accident (I had a

head injury) I have trouble working out how to read

sentences.

The page (on screen or printed) has lost it's " sense " .

Difficult to explain but it is the positioning of

words and sentences I now cannot understand.

Sadly I am in the UK where PWME are treated very

badly. The doctors will not refer me to an appropriate

Consultant and I am too poor to see one privately.

Thanks anyway. I appreciate your reply. This will

probably be of use to others with poor eye-sight.

With warmest regards to you from,

Annette

___________________________________________________________ALL-NEW

Messenger - sooooo many all-new ways to express yourself

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[Guest guest]

Hi Annette,

Regarding head injuries, Dr, Walsh of the Pfeiffer Treatment Center

(Illinois) wrote last year:

" Many years ago, the great Carl Pfeiffer told me that head injury patients

often respond well to supplements of octacosanol (2,000 to 4,000 micrograms

daily), taken together with zinc, B-6, and Vitamin C (common daily dosages

50 mg Zn, 300 mg B-6 and 2,000 mg Vitamin C). He said that it helped repair

damage to myelin sheaths in the brain. I've used this many times over the

years with apparent excellent success, based on anecdotal case histories

(which of course have limited scientific value).

A few years ago, we collaborated with a doctor from the Schwab

Rehabilitation Hospital which specializes in head and spinal injuries. We

provided the above nutritional supplements to about a dozen persons with

severe brain injuries. About 2/3 of them reported very nice improvements.

One man who had been on a plateau after 2 years of Schwab's physical

therapies was able to walk again after 3 months of octacosanol, etc. Another

head injury client with aphasia was able to talk coherently after a few

months. " (June 2, 2003)

http://www.alternativementalhealth.com/articles/walshFL.htm#He

Best regards, Blake Graham

Re: Re: 39 people [Click " View " at top of

screen]

> Hi BG,

>

> Thanks for the hint. I was an IT Analyst by trade so

> know all the shortcuts.

>

> Changing the font makes no difference as it is not the

> size which is the problem. Since the accident (I had a

> head injury) I have trouble working out how to read

> sentences.

>

> The page (on screen or printed) has lost it's " sense " .

> Difficult to explain but it is the positioning of

> words and sentences I now cannot understand.

>

> Sadly I am in the UK where PWME are treated very

> badly. The doctors will not refer me to an appropriate

> Consultant and I am too poor to see one privately.

>

> Thanks anyway. I appreciate your reply. This will

> probably be of use to others with poor eye-sight.

>

> With warmest regards to you from,

> Annette

[Guest guest]

hi annette, sadly the persons with cfs , cfids in the us are treated

horribly ...even by mds who are suppose to understand cfids and help

patients..still sad state of affairs here also , suspect world wide .

yes i understand what u said about not understaning sentances due to the

nature /type of your brain injury..its also common in other disablities

from the group i belong to that covers anyone disabled ...feel better tealk

> [Original Message]

> From: Annette Barclay <annette_barclayuk@...>

> < >

> Date: 6/29/2004 12:44:30 PM

> Subject: Re: Re: 39 people [Click " View " at top of

screen]

>

> Hi BG,

>

> Thanks for the hint. I was an IT Analyst by trade so

> know all the shortcuts.

>

> Changing the font makes no difference as it is not the

> size which is the problem. Since the accident (I had a

> head injury) I have trouble working out how to read

> sentences.

>

> The page (on screen or printed) has lost it's " sense " .

> Difficult to explain but it is the positioning of

> words and sentences I now cannot understand.

>

> Sadly I am in the UK where PWME are treated very

> badly. The doctors will not refer me to an appropriate

> Consultant and I am too poor to see one privately.

>

> Thanks anyway. I appreciate your reply. This will

> probably be of use to others with poor eye-sight.

>

> With warmest regards to you from,

> Annette

>

>

>

>

>

>

> ___________________________________________________________ALL-NEW

Messenger - sooooo many all-new ways to express yourself

http://uk.messenger.

>

>

>

> This list is intended for patients to share personal experiences with

each other, not to give medical advice. If you are interested in any

treatment discussed here, please consult your doctor.

>