, a bit more on IgeneX - just for help

[Guest guest]

wrote:

Next point

is that if one has been sick for many years then the IgG is not likely to

show

up pos any longer. The IgM is then the one that is likely to show up (as in

my case for instance). So he agreed he needed to update the IGeneX website

and

change the part where it says the patient might get IgG done first to see if

they have ever been pos and then if pos, get IgM performed--that is only

applicable for newly infected patients (perhaps a few weeks from onset of

infection). So if you have been sick a long time and are really poor then

just get

IGeneX IgM done. I forget the price of one WB but I think it is under $100,

so I

think this is essential testing for any CFSer to try to rule out lyme as a

contributing agent to their CFS. Then I asked him about follow up testing

and

he agreed IgM could be done in the future to monitor progress and that if

one

has killed off lyme for instance it should be neg after 2 months. Print

this

out if you wish and your doctor can read it.

PJ suggests:

I have probably had Lyme since 1972, certainly since 1995 and have been on

antibiotics for years. I still had a very positive IgG western blot at

IgeneX. I'm not disagreeing with what you wrote, just adding that you can be

sick a long time with borrelia. Also, Medicare covers the bill at IgeneX.

The only difficulty is getting the test kit and finding a lab that will draw

the blood for you. If your doctor's office still does this you are in luck.

Quest charges $20 IF you get the kit for free from IgeneX.

a Carnes