Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Enteric coated peppermint oil capsules for immediate relief. Long term, sweet dairy whey and psyllium husk, with lots of probiotics. But before I could tolerate the probiotics, I had to first be treated with BioSET to eliminate the allergy to probiotcs that I had developed. There are still many different probiotics that I can't take, that I haven't been able to clear with BioSET or other similar modalities, but I have several that I can take that I take lots of on a regular basis. (Kyo-dophilus and Kyo-dophilus 9, and the probiotics in EM-rejuvenating salts and Foundation Formula, which includes fish protein peptides) I still haven't been able to clear some types of prebiotics, such as arabinogalactin, pectin, or FOS. And I don't tolerate Primal Defense from Gardens of Life, at all. I also have to avoid foods that I'm allergic to. The right antibiotic will also alleviate my diarrhea, but it returns after several months once I stop the antibiotics. And some antibiotics seem to just cause diarrhea. Coconut oil also seems to help my diarrhea, though at first it made it much worse, and I had to start gradually on a small dose, and build up. Same thing with the sweet dairy whey. Enteric coated oregano oil worked for a while, till I developed an allergy to it. Permeability Factors (Tyler brand) also helped, but eventually it began to have an overstimulating effect on my nervous system, making me feel wired, anxious and irritable. And then it started making the diarrhea worse. Depends on what is causing the diarrhea. Disbiosis, food allergies, nerve damage and neurotoxins, parasites, viral infection, constipation (ironically, one symptom of constipation can actually be diarrhea. My son developed this problem when he was about 8, and had to be put on heavy laxatives for a month to clear out the problem) gall bladder or liver problems, lack of digestive enzymes or stomach acid, hernia's, and the list goes on and on. In my case, it was a combination of food allergies, disbiosis, lack of digestive enzymes and stomach acids, and ultimately, immune system imbalance and tick-borne infections. I'm still working on the immune system and tick borne infections. I still have occasional boughts of diarrhea, when I eat something I'm allergic to, or like right now, when I'm on antibiotics to treat another infection. lindaj@... What helps against diarrhea ? > I suffer from diarrhea now for more than 3 years (amongst all the > other ME-CFIDS symptoms, of course...) > > What are your best medications/therapies against this annoying > symptom? > > > thanks > fox > Switzerland > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Hi Fox I had this problem for years and then I did a stool test with Great Smokies and they found I had a bowel infection with pseudomonas bacteria. After a couple of weeks of the correct antibiotic the diarrhea completely cleared up. I continued taking the abx for a bit longer though just to be sure it had gone What helps against diarrhea ? > I suffer from diarrhea now for more than 3 years (amongst all the > other ME-CFIDS symptoms, of course...) > > What are your best medications/therapies against this annoying > symptom? > > > thanks > fox > Switzerland > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Like others have said, I would suspect an infection. I had diarrhea and cramping every night for over a year, and immodium saved me. But at some point (some antibiotic for ulcer or another purpose, I lose track) it stopped. Haven't had it for 3 or 4 years now. So something was obviously wrong that got fixed. Doris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 Hi Fox, I find that taking Betaine HCL with meals clears up my diarrhoea quite well. I use the Solgar brand. After meals I usually feel very uncomfortable (pain, distended stomach) without the Betaine HCL. I used to find that acidopholis supplements helped and live yoghurt but although I have tried different brands this no longer has any effect. Hope that this helps. With kindest regards, Annette ____________________________________________________________ Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now http://uk.messenger./download/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 The most serious symptom of diarrhea is a potassium deficiency. It is the usual cause of death from the more virulent diarrhea. Supplementig with potassium is imperative for the more virulent diarrheas such as cholera. ORT salts are used in this case. To see more about supplementing read; http://members.tripod.com/~charles_W/arthritis11.html and http://members.tripod.com/~charles_W/arthritis12.html Sincerely, Weber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 Have you considered using Pedialyte? Beach > I suffer from diarrhea now for more than 3 years (amongst all the > other ME-CFIDS symptoms, of course...) > > What are your best medications/therapies against this annoying > symptom? > > > thanks > fox > Switzerland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 WARNING: graphic details ahead. Don't read unless you have this problem! You have been warned. ;-) I have had CFIDS/FMS/CFS/ME/IBS for over twenty years, and diarrhea has been my constant companion for almost all that time. Sometimes to the point of fecal incontinence, if I had a cough. :-( One thing I came to realize was that many of my allergies, sensitivities, chemical reactions, what have you, could trigger diarrhea. I used to love browsing in second-hand bookstores, thrift shops, antique shops, and so forth. Now, almost the minute I walk in the door, the mold spores and dust mites hit me, and I have to go sprinting towards the nearest bathroom. With this in mind, I have implemented almost all the usual anti-mold and anti-dust mite measures. Allergy Control Products (1-800-422-DUST, or allergycontrolproducts.com) has an excellent catalog that is very instructional, with checklists and suggestions. I rarely go into such stores any more, but when I do, I wear a dust mask with a charcoal filter layer, and don't stay too long. The next step was taking a good, hard look at everything I put into my mouth - food, medicines, supplements, drinks. I have notebooks and notebooks of what I ingested and when, and what symptoms I had and when, what I did for them, when they got better and when they got worse, etc. It's the only way I know to be your own detective, which I had to do to get a handle on my migraines. It did help also with tracking down at least some of the causes for diarrhea attacks. Each person is individual in what they react to ( " your mileage may vary " ), but this is a partial list of my personal culprits: - coffee, including decaf, but instant decaf is fine (I think it has to do with the coffee oils) - commercially fried foods (sauteed at home is fine) - greasy sausage or other non-organic meat (I've determined it isn't the fat pe se, as I can eat fatty organic meats and lean conventional ones - therefore, it's some lipophilic toxin) - spicy foods (hot peppers, cayenne family, sometimes black pepper), although I'm fine with ginger, garlic, and wasabi - cherries in large amounts (they contain sorbitol, did you know?) - any polyol or sugar alcohol except erythritol, except in very small amounts (less than 10 grams per serving) - onions in large amounts (e.g., as a side dish rather than as a seasoning) - lactose (milk, cottage cheese, lowfat ice cream - I can handle small amounts of cream, cheese, sour cream, yoghurt) - too big a serving of tomato-based sauce (e.g. pasta with marinara sauce as a main dish) And, of course, don't forget the BRATT diet which is recommended for when you're getting over a stomach flu and just coming off the clear liquids: bananas, rice, applesauce, tea, and toast. (And of course, chicken soup!) First proteins: soft boiled or poached eggs, mild solid cheeses, boiled chicken. Stay away from salads, go for cooked stuff. Supplements containing magnesium are a big problem for me, especially the less organic forms such as magnesium oxide or hydroxide. Magnesium glycinate is the most easily absorbed form, and therefore the least likely to stick around in your gut absorbing water and causing diarrhea, but it's also very rare to find it in multivitamins or mineral combinations. If you need to take magnesium and malic acid for fibromyalgia, it's worth seeking out magnesium glycinate. I have stopped taking certain combo supplements because they had too much supplemental magnesium added (for example, a calcium/magnesium formula I used to take for osteoporosis - switched to a straight calcium formula, since I get some magnesium in my multivitamin and some from my diet). And it turns out that many medications have diarrhea as a listed side effect for a small percentage of people; well, I'm often in that small percentage that gets that side effect. And it turns out that you can develop a side effect of a medicine even after taking it for years with no problem, so you may want to look up all your current medications on rxlist.com. Fortunately, these side effects are often dose-dependent. For instance, I depend on Prozac, and need more in the winter than in the summer. I was having an unusually difficult winter with respect to the diarrhea, so I cut down to the summer dose a month early, and the diarrhea got much, much better! Of course, 3 wks later like clockwork the depression threw a wet grey blanket over me. But as an experiment, I tried taking a small dose (10 mg) of DHEA daily, and it was able to work with the smaller Prozac dose to lift the depression without turning my intestines inside out. When the diarrhea gets bad (as in, I can't leave the house), or REALLY BAD (as in, I can't go more than 12 ft from the toilet), I resort to Immodium. But too much of that and the intestines just stop in their tracks for a couple of days, immobilized (hence the name, I suspect!). The old Kaopectate (kaolin and pectin) was much milder, but the FDA forced them to reformula because the kaolin (which is a form of clay) had excessive lead levels. The new kaopectates aren't significantly different from pepto-bismol, and I don't do well with that much salicylate. I think the baby kaopectates are still salicylate-free, as are the veterinary ones. (When I'm in enough pain to justify taking an opioid, I do enjoy the side effect it has of counteracting the diarrhea ;-) ) Hope this helps! There is no replacement for getting a notebook and starting to write everything down. It takes a couple of months to really start spotting the patterns, but this should give you some ideas of what to look for. Cheers, -- el (andreafrankel at sbcglobal dot net) " wake now! Discover that YOU are the song that the morning brings... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 - Many thanks for your very informative msg. Wow - so the FDA has shut down the original Kaopectate (kaolin and pectin) because kaolin clay might have some lead in it.. Big deal - my grandfather used to make his own Kaopectate ca 1900-1940 by mixing boiled Missouri clay dirt and apple peels. According to my mother, born in 1908, it worked as well as the later commercial Kaopectate. I bet this is an old Native American medicine, and a darn good one. So if the commercial variety is no longer available, we can go back to their original apple peel and clay dirt mix and make our own. I have not tried to buy any for several years and did not know it was no longer available. The real clay and pectin formula always worked super! - Mort Caldwell in West Virginia CFS since 1994, age 63 Re: Re: What helps against diarrhea ? > WARNING: graphic details ahead. Don't read unless you have this > problem! You have been warned. ;-) > > I have had CFIDS/FMS/CFS/ME/IBS for over twenty years, and diarrhea has > been my constant companion for almost all that time. Sometimes to the > point of fecal incontinence, if I had a cough. :-( > > One thing I came to realize was that many of my allergies, > sensitivities, chemical reactions, what have you, could trigger > diarrhea. I used to love browsing in second-hand bookstores, thrift > shops, antique shops, and so forth. Now, almost the minute I walk in > the door, the mold spores and dust mites hit me, and I have to go > sprinting towards the nearest bathroom. With this in mind, I have > implemented almost all the usual anti-mold and anti-dust mite measures. > Allergy Control Products (1-800-422-DUST, or allergycontrolproducts.com) > has an excellent catalog that is very instructional, with checklists and > suggestions. I rarely go into such stores any more, but when I do, I > wear a dust mask with a charcoal filter layer, and don't stay too long. > > The next step was taking a good, hard look at everything I put into my > mouth - food, medicines, supplements, drinks. I have notebooks and > notebooks of what I ingested and when, and what symptoms I had and when, > what I did for them, when they got better and when they got worse, etc. > It's the only way I know to be your own detective, which I had to do to > get a handle on my migraines. It did help also with tracking down at > least some of the causes for diarrhea attacks. Each person is > individual in what they react to ( " your mileage may vary " ), but this is > a partial list of my personal culprits: > > - coffee, including decaf, but instant decaf is fine (I think it has to > do with the coffee oils) > - commercially fried foods (sauteed at home is fine) > - greasy sausage or other non-organic meat (I've determined it isn't the > fat pe se, as I can eat fatty organic meats and lean conventional ones - > therefore, it's some lipophilic toxin) > - spicy foods (hot peppers, cayenne family, sometimes black pepper), > although I'm fine with ginger, garlic, and wasabi > - cherries in large amounts (they contain sorbitol, did you know?) > - any polyol or sugar alcohol except erythritol, except in very small > amounts (less than 10 grams per serving) > - onions in large amounts (e.g., as a side dish rather than as a seasoning) > - lactose (milk, cottage cheese, lowfat ice cream - I can handle small > amounts of cream, cheese, sour cream, yoghurt) > - too big a serving of tomato-based sauce (e.g. pasta with marinara > sauce as a main dish) > > And, of course, don't forget the BRATT diet which is recommended for > when you're getting over a stomach flu and just coming off the clear > liquids: bananas, rice, applesauce, tea, and toast. (And of course, > chicken soup!) First proteins: soft boiled or poached eggs, mild > solid cheeses, boiled chicken. Stay away from salads, go for cooked stuff. > > Supplements containing magnesium are a big problem for me, especially > the less organic forms such as magnesium oxide or hydroxide. Magnesium > glycinate is the most easily absorbed form, and therefore the least > likely to stick around in your gut absorbing water and causing diarrhea, > but it's also very rare to find it in multivitamins or mineral > combinations. If you need to take magnesium and malic acid for > fibromyalgia, it's worth seeking out magnesium glycinate. I have > stopped taking certain combo supplements because they had too much > supplemental magnesium added (for example, a calcium/magnesium formula I > used to take for osteoporosis - switched to a straight calcium formula, > since I get some magnesium in my multivitamin and some from my diet). > > And it turns out that many medications have diarrhea as a listed side > effect for a small percentage of people; well, I'm often in that small > percentage that gets that side effect. And it turns out that you can > develop a side effect of a medicine even after taking it for years with > no problem, so you may want to look up all your current medications on > rxlist.com. Fortunately, these side effects are often dose-dependent. > For instance, I depend on Prozac, and need more in the winter than in > the summer. I was having an unusually difficult winter with respect to > the diarrhea, so I cut down to the summer dose a month early, and the > diarrhea got much, much better! Of course, 3 wks later like clockwork > the depression threw a wet grey blanket over me. But as an experiment, > I tried taking a small dose (10 mg) of DHEA daily, and it was able to > work with the smaller Prozac dose to lift the depression without turning > my intestines inside out. > > When the diarrhea gets bad (as in, I can't leave the house), or REALLY > BAD (as in, I can't go more than 12 ft from the toilet), I resort to > Immodium. But too much of that and the intestines just stop in their > tracks for a couple of days, immobilized (hence the name, I suspect!). > The old Kaopectate (kaolin and pectin) was much milder, but the FDA > forced them to reformula because the kaolin (which is a form of clay) > had excessive lead levels. The new kaopectates aren't significantly > different from pepto-bismol, and I don't do well with that much > salicylate. I think the baby kaopectates are still salicylate-free, as > are the veterinary ones. (When I'm in enough pain to justify taking an > opioid, I do enjoy the side effect it has of counteracting the diarrhea > ;-) ) > > Hope this helps! There is no replacement for getting a notebook and > starting to write everything down. It takes a couple of months to > really start spotting the patterns, but this should give you some ideas > of what to look for. > > Cheers, > > -- > > > > el (andreafrankel at sbcglobal dot net) > > " wake now! Discover that YOU are the song that the morning brings... " > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 , have you experiemented with Bentonite clay? would it work like the Kaolin, do you think? I ask, because I have a Tibetan friend visiting and he's experiencing diarrhea, and I've got some bentonite clay. penny > - > > Many thanks for your very informative msg. Wow - so the FDA has shut down > the original > Kaopectate (kaolin and pectin) because kaolin clay might have some lead in > it.. Big deal - my grandfather used to make his own Kaopectate ca 1900-1940 > by mixing boiled Missouri clay dirt and apple peels. According to my > mother, born in 1908, it worked as well as the later commercial Kaopectate. > > I bet this is an old Native American medicine, and a darn good one. So if > the commercial variety is no longer available, we can go back to their > original apple peel and clay dirt mix and make our own. I have not tried to > buy any for several years and did not know it was no longer available. The > real clay and pectin formula always worked super! > > - Mort Caldwell in West Virginia > CFS since 1994, age 63 > > > > > > Re: Re: What helps against diarrhea ? > > > > WARNING: graphic details ahead. Don't read unless you have this > > problem! You have been warned. ;-) > > > > I have had CFIDS/FMS/CFS/ME/IBS for over twenty years, and diarrhea has > > been my constant companion for almost all that time. Sometimes to the > > point of fecal incontinence, if I had a cough. :-( > > > > One thing I came to realize was that many of my allergies, > > sensitivities, chemical reactions, what have you, could trigger > > diarrhea. I used to love browsing in second-hand bookstores, thrift > > shops, antique shops, and so forth. Now, almost the minute I walk in > > the door, the mold spores and dust mites hit me, and I have to go > > sprinting towards the nearest bathroom. With this in mind, I have > > implemented almost all the usual anti-mold and anti-dust mite measures. > > Allergy Control Products (1-800-422-DUST, or allergycontrolproducts.com) > > has an excellent catalog that is very instructional, with checklists and > > suggestions. I rarely go into such stores any more, but when I do, I > > wear a dust mask with a charcoal filter layer, and don't stay too long. > > > > The next step was taking a good, hard look at everything I put into my > > mouth - food, medicines, supplements, drinks. I have notebooks and > > notebooks of what I ingested and when, and what symptoms I had and when, > > what I did for them, when they got better and when they got worse, etc. > > It's the only way I know to be your own detective, which I had to do to > > get a handle on my migraines. It did help also with tracking down at > > least some of the causes for diarrhea attacks. Each person is > > individual in what they react to ( " your mileage may vary " ), but this is > > a partial list of my personal culprits: > > > > - coffee, including decaf, but instant decaf is fine (I think it has to > > do with the coffee oils) > > - commercially fried foods (sauteed at home is fine) > > - greasy sausage or other non-organic meat (I've determined it isn't the > > fat pe se, as I can eat fatty organic meats and lean conventional ones - > > therefore, it's some lipophilic toxin) > > - spicy foods (hot peppers, cayenne family, sometimes black pepper), > > although I'm fine with ginger, garlic, and wasabi > > - cherries in large amounts (they contain sorbitol, did you know?) > > - any polyol or sugar alcohol except erythritol, except in very small > > amounts (less than 10 grams per serving) > > - onions in large amounts (e.g., as a side dish rather than as a > seasoning) > > - lactose (milk, cottage cheese, lowfat ice cream - I can handle small > > amounts of cream, cheese, sour cream, yoghurt) > > - too big a serving of tomato-based sauce (e.g. pasta with marinara > > sauce as a main dish) > > > > And, of course, don't forget the BRATT diet which is recommended for > > when you're getting over a stomach flu and just coming off the clear > > liquids: bananas, rice, applesauce, tea, and toast. (And of course, > > chicken soup!) First proteins: soft boiled or poached eggs, mild > > solid cheeses, boiled chicken. Stay away from salads, go for cooked > stuff. > > > > Supplements containing magnesium are a big problem for me, especially > > the less organic forms such as magnesium oxide or hydroxide. Magnesium > > glycinate is the most easily absorbed form, and therefore the least > > likely to stick around in your gut absorbing water and causing diarrhea, > > but it's also very rare to find it in multivitamins or mineral > > combinations. If you need to take magnesium and malic acid for > > fibromyalgia, it's worth seeking out magnesium glycinate. I have > > stopped taking certain combo supplements because they had too much > > supplemental magnesium added (for example, a calcium/magnesium formula I > > used to take for osteoporosis - switched to a straight calcium formula, > > since I get some magnesium in my multivitamin and some from my diet). > > > > And it turns out that many medications have diarrhea as a listed side > > effect for a small percentage of people; well, I'm often in that small > > percentage that gets that side effect. And it turns out that you can > > develop a side effect of a medicine even after taking it for years with > > no problem, so you may want to look up all your current medications on > > rxlist.com. Fortunately, these side effects are often dose- dependent. > > For instance, I depend on Prozac, and need more in the winter than in > > the summer. I was having an unusually difficult winter with respect to > > the diarrhea, so I cut down to the summer dose a month early, and the > > diarrhea got much, much better! Of course, 3 wks later like clockwork > > the depression threw a wet grey blanket over me. But as an experiment, > > I tried taking a small dose (10 mg) of DHEA daily, and it was able to > > work with the smaller Prozac dose to lift the depression without turning > > my intestines inside out. > > > > When the diarrhea gets bad (as in, I can't leave the house), or REALLY > > BAD (as in, I can't go more than 12 ft from the toilet), I resort to > > Immodium. But too much of that and the intestines just stop in their > > tracks for a couple of days, immobilized (hence the name, I suspect!). > > The old Kaopectate (kaolin and pectin) was much milder, but the FDA > > forced them to reformula because the kaolin (which is a form of clay) > > had excessive lead levels. The new kaopectates aren't significantly > > different from pepto-bismol, and I don't do well with that much > > salicylate. I think the baby kaopectates are still salicylate- free, as > > are the veterinary ones. (When I'm in enough pain to justify taking an > > opioid, I do enjoy the side effect it has of counteracting the diarrhea > > ;-) ) > > > > Hope this helps! There is no replacement for getting a notebook and > > starting to write everything down. It takes a couple of months to > > really start spotting the patterns, but this should give you some ideas > > of what to look for. > > > > Cheers, > > > > -- > > > > > > > > el (andreafrankel at sbcglobal dot net) > > > > " wake now! Discover that YOU are the song that the morning brings... " > > > > > > > > > > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2004 Report Share Posted May 4, 2004 penny wrote: >, have you experiemented with Bentonite clay? would it work >like the Kaolin, do you think? I ask, because I have a Tibetan >friend visiting and he's experiencing diarrhea, and I've got some >bentonite clay. > > Nope, never tried it. What I did was ask a friend of mine who is a veterinarian with his own practice. He checked his various suppliers, and found a source of a veterinary product which was just kaolin and pectin, nothing objectionable added, came to $18 for a gallon, I believe! I don't think he'd be up for getting it for everybody, but if you have a friend or neighbor who is a veterinarian, ask them about it. -- el (andreafrankel at sbcglobal dot net) " wake now! Discover that YOU are the song that the morning brings... " Quote Link to comment Share on other sites More sharing options...
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