Re: is cfs contagious/sexually transmitted?

[Guest guest]

I got it from a boyfriend who had a viral infection. A girlfriend of mine

gave it to her boyfriend, when she also had sudden onset from a virus. One other

ex of mine is sure that he got it from me.

[Guest guest]

I've been sick for 15 years, married the whole time. My husband has no signs

of illness.

a not-for profit yoga of immunity - http://www.immunics.org/

join a !group, cure CFS - go to immunicsBuddies_CFS-ME at

http://www./

" Housework done incorrectly still blesses the family. "

http://www.flylady.net/

Re: Re: is cfs contagious/sexually transmitted?

I got it from a boyfriend who had a viral infection. A girlfriend of mine

gave it to her boyfriend, when she also had sudden onset from a virus. One

other

ex of mine is sure that he got it from me.

[Guest guest]

Hi Walter,

I once read a book on hypothyroidism. The author made an excellent case for

testing the spouse. Not because hypothyroidism is contagious but because "

birds of a feather , stick together " and tend to marry each other too !!!

While labels such as CFS FMS are based on symptoms. It's obvious to the

clinicians which deal with these conditions continually to see siblings getting

the label more than the spouses.

>

> I have posed this question to several other discussion groups. 95% of the

responses are " No, it is not contagious " . But there are 2 or 3 people who said

they transmitted CFS to their girlfriends. what do you people on this

discussion group think, can CFS be transmitted to another person? sexually?

>

> Thanks

>

> Walter

>

[Guest guest]

hi all -

guess it depends what the cause of the CFIDS is. Yesterday, my CFIDS doc's

associate was almost positive I have lyme disease and new tests are underway

(Igenex and Bowen). He mentioned that about 80% of his CFIDS patients,

especially those who have been ill long term and who haven't responded to a

variety of treatments, are now getting diagnosed with lyme as the tests get more

accurate. (he's never pushed this as a diagnosis for all CFIDS patients, far

from)

Lyme spirochetes are found in sperm, so it can definitely be transmitted

sexually. I don't know about the bugs that tend to come with lyme, but if they

are blood-borne , they can be transmitted the same way. I had a boyfriend who

got sick about year before I did, with all the classic CFIDS symptoms - did I

get it from him? good chance I did.

Judith G

[Guest guest]

Dr. Lyda Mattman says it is.

[Guest guest]

Hi Walter,

I definitely transmitted it to my wife sexually. Of course, back in

1992, the doctors called it mono, until it lasted beyond a couple of

years.

- don

> I have posed this question to several other discussion groups.

95% of

> the responses are " No, it is not contagious " . But there are 2 or 3

people

> who said they transmitted CFS to their girlfriends. what do you

people on

> this discussion group think, can CFS be transmitted to another

person?

> sexually?

>

> Thanks

>

> Walter

[Guest guest]

> I was recently diagnosed as having Borreliosis after 7 yrs of a CFS

> diagnosis. My doctor in the UK is using a special technique of

electron

> microscopy which he developed with the vet/microbiologist Walter

Tarello.

Hi

Do you mean dark-field microscopy? Dark-field microscopy is a type of

ordinary light microscopy. Electron microscopy uses electrons.

Sue Spencer

(diagnosed by a UK doctor using dark-field microscopy who works with

Tarello)

[Guest guest]

This issue has always been of interest to me since I was dating someone with

Lyme at the time I got sick. I have never had a positive Lyme test, but of

course I can't rule it out since the tests are so useless for so many people.

The last time this issue came up on the list, someone sent me some

information about sexual transmission and Lyme, but I would really like more

info. in

the way of studies, etc., on this issue.

In my own life, though, I just don't see any evidence that *I* am contagious.

Nobody in close contact with me has ever gotten sick. However, several

other people who were in college with me (small town, small college) got sick

when

I did, or within a few years. In such a small population (college of 3000

people), I know of at least 4 people who became ill, including a professor, and

I'm sure there were others I never knew about. So I have always wondered

about a cluster at that time.

Peggy

www.angelfire.com/ri/strickenbk

[Guest guest]

Hi

Why don't you send a blood sample to Dr to test. It'd have to be

sent overnight delivery and that would cost a fair bit but the actual test

only costs about £100 so overall it might not work out too expensive

compared to other tests.

is cfs contagious/sexually transmitted?

> , it is good to have you on this list to report his findings. Sounds

> like what he sees with his microscope is same as what Bowen shows, as even

> healthy friends of his show them, just in lower numbers. For those of us

who can't

> get to UK to have him as a doc, might you ask him if he thinks the new

test at

> Immunosciences is a worthwhile test? Rich reported on it and then I

called

> Dr. Ari there and reported my discussion with him. I could dig up Rich's

post

> if you'd like. I already did IGeneX LDA/PCR and even provoked it with two

abx

> but still got a neg, but did get pos on Bowen and IGeneX IgM WB. I just

> wanted more proof that what I have may be a borellia based illness being

that I've

> been to two LLMD's now and neither diagnosed me as lyme. I have heard a

> CFSer before look into lyme and say " You know, I used to think that I'd

love to

> know if I was lyme so that I would finally know what caused me to be sick

but

> after reading about lyme I don't think I'd want to have it afterall " . I

think

> this argument is not logical b/c while it may be true that long term

chronic

> lyme is a SOB to conquer, so is this " CFS " --in other words, we (with

exception

> of a few) ain't getting cured anyway and so I might as well know what is

> causing my illness as at least that way I can maybe better address it and

have proof

> to others who might think it's all in my head.

>

>

> In a message dated 4/2/2004 10:04:31 AM Eastern Standard Time,

> writes:

> I think it is highly likely that many cases of CFS are contagious as the

> evidence is growing that many cases of CFS are Borreliosis/Lyme

>

> I was recently diagnosed as having Borreliosis after 7 yrs of a CFS

> diagnosis. My doctor in the UK is using a special technique of electron

> microscopy which he developed with the vet/microbiologist Walter Tarello.

> There can be no false positives with this test as he actually sees the

> borrelia spirochetes exit the dying blood cells.

>

> I recently asked him how many of his CFS/ME patients are now being

diagnosed

> as having Borreliosis and he told me this

>

> ''On microscopy all are positive for Borrelia - like spiros. This is what

Dr

> Bill Harvey finds on serial/repeated Western Blot testing - all 547 of his

> CFS/ME patients are positive for Borrelia burgdorferi''

>

> Since Lyme is sexually transmissable and some LLMDs even think it is

> transmissable in tears/saliva people are at risk of catching lyme related

> CFS. Many of my doctors patients partners are also positive for Lyme but

> the numbers of spiros they have in their blood is minimal and so it is not

> considered an active infection. It seems that some people can be infected

> and yet never develop the full blown infection.

>

> It may be time for people to pursue this possible cause of CFS further

>

>

>

[Guest guest]

I'd like to do that! Would he do this for a US patient? How do I

go about finding out how to do this? Would I get mailed back

photographs of these spiro creatures that might appear? Thanks.

> Hi

>

> Why don't you send a blood sample to Dr to test. It'd have

to be

> sent overnight delivery and that would cost a fair bit but the

actual test

> only costs about £100 so overall it might not work out too

expensive

> compared to other tests.

>

>

> is cfs contagious/sexually

transmitted?

>

>

> > , it is good to have you on this list to report his

findings. Sounds

> > like what he sees with his microscope is same as what Bowen

shows, as even

> > healthy friends of his show them, just in lower numbers. For

those of us

> who can't

> > get to UK to have him as a doc, might you ask him if he thinks

the new

> test at

> > Immunosciences is a worthwhile test? Rich reported on it and

then I

> called

> > Dr. Ari there and reported my discussion with him. I could dig

up Rich's

> post

> > if you'd like. I already did IGeneX LDA/PCR and even provoked

it with two

> abx

> > but still got a neg, but did get pos on Bowen and IGeneX IgM

WB. I just

> > wanted more proof that what I have may be a borellia based

illness being

> that I've

> > been to two LLMD's now and neither diagnosed me as lyme. I have

heard a

> > CFSer before look into lyme and say " You know, I used to think

that I'd

> love to

> > know if I was lyme so that I would finally know what caused me

to be sick

> but

> > after reading about lyme I don't think I'd want to have it

afterall " . I

> think

> > this argument is not logical b/c while it may be true that long

term

> chronic

> > lyme is a SOB to conquer, so is this " CFS " --in other words, we

(with

> exception

> > of a few) ain't getting cured anyway and so I might as well know

what is

> > causing my illness as at least that way I can maybe better

address it and

> have proof

> > to others who might think it's all in my head.

> >

> >

> > In a message dated 4/2/2004 10:04:31 AM Eastern Standard Time,

> > writes:

> > I think it is highly likely that many cases of CFS are

contagious as the

> > evidence is growing that many cases of CFS are Borreliosis/Lyme

> >

> > I was recently diagnosed as having Borreliosis after 7 yrs of a

CFS

> > diagnosis. My doctor in the UK is using a special technique of

electron

> > microscopy which he developed with the vet/microbiologist Walter

Tarello.

> > There can be no false positives with this test as he actually

sees the

> > borrelia spirochetes exit the dying blood cells.

> >

> > I recently asked him how many of his CFS/ME patients are now

being

> diagnosed

> > as having Borreliosis and he told me this

> >

> > ''On microscopy all are positive for Borrelia - like spiros.

This is what

> Dr

> > Bill Harvey finds on serial/repeated Western Blot testing - all

547 of his

> > CFS/ME patients are positive for Borrelia burgdorferi''

> >

> > Since Lyme is sexually transmissable and some LLMDs even think

it is

> > transmissable in tears/saliva people are at risk of catching

lyme related

> > CFS. Many of my doctors patients partners are also positive for

Lyme but

> > the numbers of spiros they have in their blood is minimal and so

it is not

> > considered an active infection. It seems that some people can be

infected

> > and yet never develop the full blown infection.

> >

> > It may be time for people to pursue this possible cause of CFS

further

> >

> >

> >

[Guest guest]

Hi

I'm sure he would do it for a US patient - cannot see any reason why not. I

guess it would be best to email his office and find out. You can contact him

on chronobiologyuk@...

His office send you the kit which consists simply of slides and a needle to

prick your finger with. You drip the blood on the slides and return it to

him by the following afternoon. I think you get your results in about a

week or so? It may be a while before he can do the actual test though

because he's indundated with work here atm

He doesn't send you pictures of the spiros but you can look at some pictures

of the spiros he's been finding in other CFS patients on Eurolyme which is a

site. They are in the files under ME patients I believe. He also

tells you if you have any co-infections such as babesia

Go for it

is cfs contagious/sexually

transmitted?

>

>

> > , it is good to have you on this list to report his

findings. Sounds

> > like what he sees with his microscope is same as what Bowen

shows, as even

> > healthy friends of his show them, just in lower numbers. For

those of us

> who can't

> > get to UK to have him as a doc, might you ask him if he thinks

the new

> test at

> > Immunosciences is a worthwhile test? Rich reported on it and

then I

> called

> > Dr. Ari there and reported my discussion with him. I could dig

up Rich's

> post

> > if you'd like. I already did IGeneX LDA/PCR and even provoked

it with two

> abx

> > but still got a neg, but did get pos on Bowen and IGeneX IgM

WB. I just

> > wanted more proof that what I have may be a borellia based

illness being

> that I've

> > been to two LLMD's now and neither diagnosed me as lyme. I have

heard a

> > CFSer before look into lyme and say " You know, I used to think

that I'd

> love to

> > know if I was lyme so that I would finally know what caused me

to be sick

> but

> > after reading about lyme I don't think I'd want to have it

afterall " . I

> think

> > this argument is not logical b/c while it may be true that long

term

> chronic

> > lyme is a SOB to conquer, so is this " CFS " --in other words, we

(with

> exception

> > of a few) ain't getting cured anyway and so I might as well know

what is

> > causing my illness as at least that way I can maybe better

address it and

> have proof

> > to others who might think it's all in my head.

> >

> >

> > In a message dated 4/2/2004 10:04:31 AM Eastern Standard Time,

> > writes:

> > I think it is highly likely that many cases of CFS are

contagious as the

> > evidence is growing that many cases of CFS are Borreliosis/Lyme

> >

> > I was recently diagnosed as having Borreliosis after 7 yrs of a

CFS

> > diagnosis. My doctor in the UK is using a special technique of

electron

> > microscopy which he developed with the vet/microbiologist Walter

Tarello.

> > There can be no false positives with this test as he actually

sees the

> > borrelia spirochetes exit the dying blood cells.

> >

> > I recently asked him how many of his CFS/ME patients are now

being

> diagnosed

> > as having Borreliosis and he told me this

> >

> > ''On microscopy all are positive for Borrelia - like spiros.

This is what

> Dr

> > Bill Harvey finds on serial/repeated Western Blot testing - all

547 of his

> > CFS/ME patients are positive for Borrelia burgdorferi''

> >

> > Since Lyme is sexually transmissable and some LLMDs even think

it is

> > transmissable in tears/saliva people are at risk of catching

lyme related

> > CFS. Many of my doctors patients partners are also positive for

Lyme but

> > the numbers of spiros they have in their blood is minimal and so

it is not

> > considered an active infection. It seems that some people can be

infected

> > and yet never develop the full blown infection.

> >

> > It may be time for people to pursue this possible cause of CFS

further

> >

> >

> >

[Guest guest]

Is that all they are doing is just a simple finger prick to study

it? Interesting. I'll try to look for this Eurolyme group to see

pics. Thanks!

> > Hi

> >

> > Why don't you send a blood sample to Dr to test. It'd

have

> to be

> > sent overnight delivery and that would cost a fair bit but the

> actual test

> > only costs about £100 so overall it might not work out too

> expensive

> > compared to other tests.

> >

> >

> > is cfs contagious/sexually

> transmitted?

> >

> >

> > > , it is good to have you on this list to report his

> findings. Sounds

> > > like what he sees with his microscope is same as what Bowen

> shows, as even

> > > healthy friends of his show them, just in lower numbers. For

> those of us

> > who can't

> > > get to UK to have him as a doc, might you ask him if he thinks

> the new

> > test at

> > > Immunosciences is a worthwhile test? Rich reported on it and

> then I

> > called

> > > Dr. Ari there and reported my discussion with him. I could dig

> up Rich's

> > post

> > > if you'd like. I already did IGeneX LDA/PCR and even provoked

> it with two

> > abx

> > > but still got a neg, but did get pos on Bowen and IGeneX IgM

> WB. I just

> > > wanted more proof that what I have may be a borellia based

> illness being

> > that I've

> > > been to two LLMD's now and neither diagnosed me as lyme. I

have

> heard a

> > > CFSer before look into lyme and say " You know, I used to think

> that I'd

> > love to

> > > know if I was lyme so that I would finally know what caused me

> to be sick

> > but

> > > after reading about lyme I don't think I'd want to have it

> afterall " . I

> > think

> > > this argument is not logical b/c while it may be true that long

> term

> > chronic

> > > lyme is a SOB to conquer, so is this " CFS " --in other words, we

> (with

> > exception

> > > of a few) ain't getting cured anyway and so I might as well

know

> what is

> > > causing my illness as at least that way I can maybe better

> address it and

> > have proof

> > > to others who might think it's all in my head.

> > >

> > >

> > > In a message dated 4/2/2004 10:04:31 AM Eastern Standard Time,

> > > writes:

> > > I think it is highly likely that many cases of CFS are

> contagious as the

> > > evidence is growing that many cases of CFS are Borreliosis/Lyme

> > >

> > > I was recently diagnosed as having Borreliosis after 7 yrs of a

> CFS

> > > diagnosis. My doctor in the UK is using a special technique of

> electron

> > > microscopy which he developed with the vet/microbiologist

Walter

> Tarello.

> > > There can be no false positives with this test as he actually

> sees the

> > > borrelia spirochetes exit the dying blood cells.

> > >

> > > I recently asked him how many of his CFS/ME patients are now

> being

> > diagnosed

> > > as having Borreliosis and he told me this

> > >

> > > ''On microscopy all are positive for Borrelia - like spiros.

> This is what

> > Dr

> > > Bill Harvey finds on serial/repeated Western Blot testing - all

> 547 of his

> > > CFS/ME patients are positive for Borrelia burgdorferi''

> > >

> > > Since Lyme is sexually transmissable and some LLMDs even think

> it is

> > > transmissable in tears/saliva people are at risk of catching

> lyme related

> > > CFS. Many of my doctors patients partners are also positive

for

> Lyme but

> > > the numbers of spiros they have in their blood is minimal and

so

> it is not

> > > considered an active infection. It seems that some people can

be

> infected

> > > and yet never develop the full blown infection.

> > >

> > > It may be time for people to pursue this possible cause of CFS

> further

> > >

> > >

> > >

[Guest guest]

Wouldn't a single smear sample from a simple finger-prick be

contaminated with external parasites/microbes, necrotic tissue cells,

fats, etc.???

Kezzi. . .

The Samento FAQ

http://samento-faq.eu.kz

Re: is cfs contagious/sexually

transmitted?

>>> Is that all they are doing is just a simple finger

prick to study it? Interesting. I'll try to look for this

Eurolyme group to see pics. Thanks!

[Guest guest]

,

I concur. I am a good example of this. I believe I was infected with

borrelia in 1972 following multiple flea bites - fleas that had been

on a dog with arthritis so bad it could not walk. My son was born a

year later and was completely healthy until 1 year ago when he

developed severe migraine-like headaches. He tested positive for

borrelia which he has probably carried for years. Now my husband has

tested positive. His only symptom is a lump in a tendon on the back

of his neck which is very painful. We don't know how we all got

infected. Certainly we all were exposed to many ticks in South

Carolina over the years. I'm the only one who ever got a bull's eye

rash.

I keep saying, " We must get better tests for infections. "

Also, we must come to terms with the fact that it is MOST likely that

borrelia is sexually transmitted. Syphillis, another spirokete,

certainly is, so why not Lyme? We have got to quit kidding ourselves.

a Carnes

> Hi

>

> I think it is highly likely that many cases of CFS are contagious

as the

> evidence is growing that many cases of CFS are Borreliosis/Lyme

>

> I was recently diagnosed as having Borreliosis after 7 yrs of a CFS

> diagnosis. My doctor in the UK is using a special technique of

electron

> microscopy which he developed with the vet/microbiologist Walter

Tarello.

> There can be no false positives with this test as he actually sees

the

> borrelia spirochetes exit the dying blood cells.

>

> I recently asked him how many of his CFS/ME patients are now being

diagnosed

> as having Borreliosis and he told me this

>

> ''On microscopy all are positive for Borrelia - like spiros. This

is what Dr

> Bill Harvey finds on serial/repeated Western Blot testing - all 547

of his

> CFS/ME patients are positive for Borrelia burgdorferi''

>

> Since Lyme is sexually transmissable and some LLMDs even think it is

> transmissable in tears/saliva people are at risk of catching lyme

related

> CFS. Many of my doctors patients partners are also positive for

Lyme but

> the numbers of spiros they have in their blood is minimal and so it

is not

> considered an active infection. It seems that some people can be

infected

> and yet never develop the full blown infection.

>

> It may be time for people to pursue this possible cause of CFS

further

>

>

[Guest guest]

, I just did email Dr. so we'll see if he gets back to me

on this. I do wonder though if virtually all his CFS patients are

showing up with these spirochetes in them has he tested non-CFS

patients who are healthy and seen that they do not have these same

spirochetes? It would seem that if normal folks do not have them

then this test would in fact be highly indicative of us having lyme

as the cause of our CFS b/c if everyone else has these spirochetes in

them then it is more difficult to implicate them as the cause of CFS

any more than say nanobacteria which was found in most people, CFS or

not. Know what I mean? I think the one problem about Bowen (someone

correct me if I'm wrong) is they report almost everyone showing up

with lyme but normal healthy people do not bother to send their blood

in to Bowen to let them test it so we don't know if everyone tests

pos for Bowen or not, just unhealthy people do is all definitely know

as of now.

> > Hi

> >

> > Why don't you send a blood sample to Dr to test. It'd have

> to be

> > sent overnight delivery and that would cost a fair bit but the

> actual test

> > only costs about £100 so overall it might not work out too

> expensive

> > compared to other tests.

> >

> >

> > is cfs contagious/sexually

> transmitted?

> >

> >

> > > , it is good to have you on this list to report his

> findings. Sounds

> > > like what he sees with his microscope is same as what Bowen

> shows, as even

> > > healthy friends of his show them, just in lower numbers. For

> those of us

> > who can't

> > > get to UK to have him as a doc, might you ask him if he thinks

> the new

> > test at

> > > Immunosciences is a worthwhile test? Rich reported on it and

> then I

> > called

> > > Dr. Ari there and reported my discussion with him. I could dig

> up Rich's

> > post

> > > if you'd like. I already did IGeneX LDA/PCR and even provoked

> it with two

> > abx

> > > but still got a neg, but did get pos on Bowen and IGeneX IgM

> WB. I just

> > > wanted more proof that what I have may be a borellia based

> illness being

> > that I've

> > > been to two LLMD's now and neither diagnosed me as lyme. I have

> heard a

> > > CFSer before look into lyme and say " You know, I used to think

> that I'd

> > love to

> > > know if I was lyme so that I would finally know what caused me

> to be sick

> > but

> > > after reading about lyme I don't think I'd want to have it

> afterall " . I

> > think

> > > this argument is not logical b/c while it may be true that long

> term

> > chronic

> > > lyme is a SOB to conquer, so is this " CFS " --in other words, we

> (with

> > exception

> > > of a few) ain't getting cured anyway and so I might as well know

> what is

> > > causing my illness as at least that way I can maybe better

> address it and

> > have proof

> > > to others who might think it's all in my head.

> > >

> > >

> > > In a message dated 4/2/2004 10:04:31 AM Eastern Standard Time,

> > > writes:

> > > I think it is highly likely that many cases of CFS are

> contagious as the

> > > evidence is growing that many cases of CFS are Borreliosis/Lyme

> > >

> > > I was recently diagnosed as having Borreliosis after 7 yrs of a

> CFS

> > > diagnosis. My doctor in the UK is using a special technique of

> electron

> > > microscopy which he developed with the vet/microbiologist Walter

> Tarello.

> > > There can be no false positives with this test as he actually

> sees the

> > > borrelia spirochetes exit the dying blood cells.

> > >

> > > I recently asked him how many of his CFS/ME patients are now

> being

> > diagnosed

> > > as having Borreliosis and he told me this

> > >

> > > ''On microscopy all are positive for Borrelia - like spiros.

> This is what

> > Dr

> > > Bill Harvey finds on serial/repeated Western Blot testing - all

> 547 of his

> > > CFS/ME patients are positive for Borrelia burgdorferi''

> > >

> > > Since Lyme is sexually transmissable and some LLMDs even think

> it is

> > > transmissable in tears/saliva people are at risk of catching

> lyme related

> > > CFS. Many of my doctors patients partners are also positive for

> Lyme but

> > > the numbers of spiros they have in their blood is minimal and so

> it is not

> > > considered an active infection. It seems that some people can be

> infected

> > > and yet never develop the full blown infection.

> > >

> > > It may be time for people to pursue this possible cause of CFS

> further

> > >

> > >

> > >

[Guest guest]

>> correct me if I'm wrong) is they report almost everyone showing

up

> with lyme but normal healthy people do not bother to send their

blood

> in to Bowen to let them test it so we don't know if everyone tests

> pos for Bowen or not, just unhealthy people do is all definitely

know

> as of now.

>

>

Hi

The latest report I have read (it was passed to me by a friend who

goes on another list) is that 100% of the people Dr diagnosed

with borrelia through darkfield microscopy have tested POSITIVE with

a PCR test. There were over 30 people's blood that he used in order

to confirm his diagnosis.

He is currently conducting a properly controlled study to further

his research using controls.

I agree, the big question is, has everybody got spirochetes in their

blood? I did ask his receptionist was everybody showing spirochetes

in their blood and she said definitely not, I think the figure was

about 60% of their patients but don't quote me on that I could be

wrong.

The other thing I have to say is that many of Dr 's patients

(me included) are doing fantastically well on the Samento, not abx

at all. As you know Sameno is an immune system modulator as well as

being a natural anti-biotic so if this is the case there can be no

doubt that it has been bugs and bacteria that have been keeping us

sick.

All in all life is so great on most days but there are still some

bad days with killer migraines if I go off my low carb diet.

However I didn't really believe I would get to this level of feeling

so well.

I would also add that I, personally am still not convinced that

people can get better with Samento alone if they have a very toxic

body and many amalgam fillings. Of course I could be completely

wrong and time will tell.

Pam

[Guest guest]

On or about Saturday, April 17, 2004 10:03 AM [GMT+1=CET],

doggy532001 <pam.clewley@...> sprinkled letters onto the page,

saying:

> Hi

>

> The latest report I have read (it was passed to me by a friend who

> goes on another list) is that 100% of the people Dr diagnosed

> with borrelia through darkfield microscopy have tested POSITIVE with

> a PCR test. There were over 30 people's blood that he used in order

> to confirm his diagnosis.

That can't be right.... I was dxed with borreliosis via Darkfield MS and I

haven't had PCR! So does that mean I now have an UNCONFIRMED diagnosis? Or

was I one of those patients? No wonder they gave me a hard time last time I

was in hospital, and probably the wrong treatment (they refused to accept

the borreliosis dx - it's not on my medical records), and my own doctor is

fast losing patience.

30 bloods may be 100% for those patients tested by PCR but if there are

'150' patients what happened to the other 120 results.... (hypothetically,

that is...)? Or are there only 30 of us...?

Can we see that report?

Regards,

Kezzi. . .

[Guest guest]

Hey Kezzi, watch your blood pressure <g>

Try phrasing it differently.

As I understand it (3rd or 4th hand) DrW had PCR borrelia testing for 30

of his patients. These 30 had all been diagnosed by him, using

dark-field microscopy, as having spirochete-like forms in their blood.

All those 30 people had a positive PCR result for borrelia.

Sue

[Guest guest]

> On or about Saturday, April 17, 2004 10:03 AM [GMT+1=CET],

> doggy532001 <pam.clewley@b...> sprinkled letters onto the page,

> saying:

>

>>

> That can't be right.... I was dxed with borreliosis via Darkfield

MS and I

> haven't had PCR! So does that mean I now have an UNCONFIRMED

diagnosis? Or

> was I one of those patients? No wonder they gave me a hard time

last time I

> was in hospital, and probably the wrong treatment (they refused to

accept

> the borreliosis dx - it's not on my medical records), and my own

doctor is

> fast losing patience.

>

> 30 bloods may be 100% for those patients tested by PCR but if

there are

> '150' patients what happened to the other 120 results....

(hypothetically,

> that is...)? Or are there only 30 of us...?

>

> Can we see that report?

>

> Regards,

> Kezzi. . .

Hi Kezzi

I am only reporting what was posted on another list, I don't know if

it was part of the study or if it was just a a piece of pre-study

research but either way it was a 100% confirmation of borreliosis.

Probably in time we will all be able to have a PCR test for

confirmation, but these things happen very slowly I believe.

Pam

[Guest guest]

Re: Re: is cfs contagious/sexually transmitted?

> Hey Kezzi, watch your blood pressure <g>

>

> Try phrasing it differently.

>

> As I understand it (3rd or 4th hand) DrW had PCR borrelia testing for 30

> of his patients. These 30 had all been diagnosed by him, using

> dark-field microscopy, as having spirochete-like forms in their blood.

> All those 30 people had a positive PCR result for borrelia.

>

> Sue

Hi Sue,

I'm cool...

My problem is that after 28 years of degenerative neurological illness and

going to AW to get things sorted I seem to have missed out. I was dxed by

him, (darkfield) and confirmed borrelia positive by letter, but with nothing

for my doc to see nor to put in my hospital records. No photos, test

results... I was very recently admitted to hospital when I suddenly lost the

use of my right arm. Because they could gain no proof of my borreliosis dx

they wouldn't push for further investigations down the LD/FMS/CFS route and

I was discharged with cortisone injections and an arm that is slowly

improving but extremely painful and limiting. I am sure they would have

looked at things differently if there was a suspicion of CFIDS and not just

my say so...

Can you blame me for being a little annoyed...? The dx I have is worthless

without medical/pathological back-up.

Regards,

Kezzi. . .